The perceived burden among Chinese family caregivers of people with schizophrenia

Journal of Clinical Nursing

Volumn 16, Issue 6, 2007, Pages 1151-1161

  Chien, Wai Tong ^a,c   Chan, Sally W C ^a   Morrissey, Jean ^b  

^a and Hong Kong Branch of CAS Center for Excellence in Animal Evolution and Genetics   (Hong Kong)

^b TRINITY COLLEGE DUBLIN   (Ireland)

^c CHINESE UNIVERSITY OF HONG KONG   (Hong Kong)

Author keywords

Burden; Mental health; Nurse; Nursing; Schizophrenia families

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ANALYSIS OF VARIANCE; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; CHI SQUARE DISTRIBUTION; CHINA; COST OF ILLNESS; CROSS-SECTIONAL STUDY; ETHNOLOGY; FAMILY; FEMALE; HEALTH STATUS; HEALTH SURVEY; HONG KONG; HUMAN; MALE; MIDDLE AGED; NURSING METHODOLOGY RESEARCH; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; REGRESSION ANALYSIS; RISK FACTOR; SATISFACTION; SCHIZOPHRENIA; SOCIAL SUPPORT; SOCIOECONOMICS;

ADAPTATION, PSYCHOLOGICAL; ADULT; ANALYSIS OF VARIANCE; ATTITUDE TO HEALTH; CAREGIVERS; CHI-SQUARE DISTRIBUTION; CHINA; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; FAMILY; FEMALE; HEALTH STATUS; HEALTH SURVEYS; HONG KONG; HUMANS; MALE; MIDDLE AGED; NURSING METHODOLOGY RESEARCH; PERSONAL SATISFACTION; QUALITY OF LIFE; QUESTIONNAIRES; REGRESSION ANALYSIS; RISK FACTORS; SCHIZOPHRENIA; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS;

EID: 34249071611     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2007.01501.x     Document Type: Article

References (48)

1. American Psychiatric Association (1994) Diagnostic and Statistical Manual of Mental Disorders, DSM-IV, 4th edn. American Psychiatric Association, Washington, DC, USA.
2. Barbato A (1998) Schizophrenia and Public Health. Division of Mental Health & Substance Abuse, World Health Organization, Geneva.
3. Biegel DE, Song LY Chakaravarthy V (1994) Predictors of caregiver burden among support group members of persons with chronic illness. In Family Caregiving Across the Lifespan (Kahana E, Biegel DE Wykle MS eds). Sage Publications, Thousand Oaks, CA, USA, pp. 178 215.
4. Budd RJ Hughes ICT (1997) What do relatives of people with schizophrenia find helpful about family intervention? Schizophrenia Bulletin 23, 341 347.
5. Bulger MW, Wandersman A Goldman CR (1993) Burdens and gratifications of caregiving: appraisal of parental care of adults with schizophrenia. American Journal of Orthopsychiatry 63, 255 265.
6. Castle Peak Hospital (2000) Annual Report 1999-2000. Hospital Authority Hong Kong, Hong Kong SAR, China.
7. Champion LA (1990) The relationship between social vulnerability and the occurrence of severely threatening life events. Psychological Medicine 20 (Suppl. 1 157 161.
8. Champion LA Goodall GM (1994) Social support and mental health: positive and negative aspects. In Seminars in Psychology and the Social Sciences (Tantam D Birchwood MJ eds). Royal College of Psychiatrists, London, pp. 238 259.
9. Chang AM (1999) Psychosocial Nursing Intervention to Promote Self-esteem and Functional Independence Following Stroke. PhD dissertation, Department of Nursing, The Chinese University of Hong Kong, Hong Kong SAR, China.
10. Chien WT Norman I (2004) The validity and reliability of a Chinese version of the Family Burden Interview Schedule. Nursing Research 53, 314 322.
11. Chou KR (2000) Caregiver burden: a concept analysis. Journal of Paediatric Nursing 15, 398 407.
12. Chou KR, LaMontagne LL Hepworth JT (1999) Burden experienced by caregivers of relatives with dementia in Taiwan. Nursing Research 48, 206 214.
13. Cohen J (1992) A power primer. Psychological Bulletin 112, 155 159.
14. Cole RE Reiss D (1993) How do Families Cope with Chronic Illness? Lawrence Erlbaum Associates Inc., Hillsdale, NJ, USA.
15. Cuijpers P (1999) The effects of family interventions on relatives' burden: a meta-analysis. Journal of Mental Health 8, 275 285.
16. Dunkin JJ Hanley CA (1998) Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention. American Academy of Neurology 51, S53 S60.
17. Epstein NB, Baldwin LM Bishop DS (1983) The McMaster Family Assessment Device. Journal of Marital & Family Therapy 9, 171 180.
18. Heller T, Roccoforte JA, Hsieh K, Cook JA Pickett SA (1997) Benefits of support groups for families of adults with severe mental illness. American Journal of Orthopsychiatry 67, 187 198.
19. Hospital Authority Hong Kong (2002) Annual Report 2001-2002. Hospital Authority Hong Kong, Hong Kong SAR, China.
20. Lam CLK, Gandek B, Ren XS Chan MS (1998) Tests of scaling assumptions and construct validity of the Chinese (HK) version of the SF-36 Health Survey. Journal of Clinical Epidemiology 51, 1139 1147.
21. Leff J (1994) Working with the families of schizophrenic patients. British Journal of Psychiatry 164, 71 76.
22. Ma KY Yip KS (1997) The importance of an effective psychiatric community care service for chronic mental patients in Hong Kong. Hong Kong Journal of Mental Health 26, 28 35.
23. Magliano L, Fiorillo A, Malangone C, Marasco C, Guarneri M, Maj M National Mental Health Project Working Group (2003) The effect of social network on burden and pessimism in relatives of patients with schizophrenia. American Journal of Orthopsychiatry 73, 302 309.
24. Martens L Addington J (2001) The psychological well being of family members of individuals with schizophrenia. Social Psychiatry & Psychiatric Epidemiology 36, 128 133.
25. McCubbin M McCubbin H (1993) Families coping with illness: the resiliency model of family stress, adjustment and adaptation. In Families, Health and Illness: Perspectives on Coping and Intervention (Danielson C, Hamel-Bissell B Winstead-Fry P eds). Mosby, St Louis, pp. 21 63.
26. Meredith WH, Abbott DA Zheng FM (1994) Healthy family functioning in Chinese cultures: an exploratory study using the Circumplex model. International Journal of Sociology & Family 24, 147 157.
27. Mueser KT, Bellack AS, Wade JH, Sayers SL Rosenthal CK (1992) An assessment of the educational needs of chronic psychiatric patients and their relatives. British Journal of Psychiatry 160, 674 680.
28. Nilchaikovit T, Hill JM Holland JC (1993) The effects of culture on illness behavior and medical care: Asian and American differences. General Hospital Psychiatry 15, 41 50.
29. Ohaeri JU (2001) Caregiver burden and psychotic patients' perception of social support in a Nigerian setting. Social Psychiatry and Psychiatric Epidemiology 36, 86 93.
30. Pai S Kapur RL (1981) The burden on the family of a psychiatric patient: development of an interview schedule. British Journal of Psychiatry 138, 332 335.
31. Pai S Kapur RL (1982) Impact of treatment intervention on the relationship between dimensions of clinical psychopathology, social dysfunction and burden on the family. Psychological Medicine 12, 651 658.
32. Pearlin LI (1989) The sociological study of stress. Journal of Health & Social Behaviors 30, 241 256.
33. Pearson V Lam PCW (2000) On their own: caregivers in Guangzhou, China. In Family Interventions in Mental Illness: International Perspectives (Lefley HP Johnson PL eds.). Praeger, Westport, CT, USA, pp. 171 183.
34. Portney LG Watkins MP (2000) Foundation of Clinical Research: Application to Practice, 2nd edn. Prentice Hall, NJ, USA.
35. Rungreangkulkij S Gilliss CL (2000) Conceptual approaches to studying family caregiving for persons with severe mental illness. Journal of Family Nursing 6, 341 366.
36. Sarason IG, Sarason BR, Shearin EN Pierce GR (1987) A brief measure of social support: practical and theoretical implications. Journal of Social Personality and Relationship 4, 497 510.
37. Scazufca M Kuipers E (1996) Links between expressed emotion and burden of care in relatives of patients with schizophrenia. British Journal of Psychiatry 168, 580 587.
38. Schene AH (1990) Objective and subjective dimensions of family burden: towards an integrative framework for research. Social Psychiatry & Psychiatric Epidemiology 25, 289 297.
39. Schene AH, Tessler RC Gamache GM (1994) Instruments measuring family or caregiver burden in severe mental illness. Social Psychiatry & Psychiatric Epidemiology 29, 228 240.
40. Shih FJ (1996) Concepts related to Chinese patients' perceptions of health, illness and person: issues of conceptual clarity. Accident and Emergency Nursing 4, 208 215.
41. Spector RE (1991) Cultural Diversity in Health and Illness, 3rd edn. Appleton & Lange, Norwalk, CT, USA.
42. Stevens J (2002) Applied Multivariate Statistics for the Social Sciences, 4th edn. Lawrence Erlbaum, Mahwah, NJ, USA.
43. Sun YKS Cheung SK (1997) Family functioning, social support to families and symptom remittance of schizophrenia. Hong Kong Journal of Psychiatry 7, 19 25.
44. Sun YKS (1994) A study of the family functioning of families with a schizophrenic patient. Master thesis, Department of social work, The Chinese University of Hong Kong, Hong Kong, China.
45. Tabachnick BG Fidell LS (1996) Using Multivariate Statistics, 3rd edn. Harper-Collins, New York.
46. Ware JE, Snow KK, Kosinski M Gandek B (1993) SF-36 Health Survey: Manual & interpretation guide. The Health Institute, New England Medical Centre, Boston, USA.
47. Warner R De Girolamo G (1995) Schizophrenia. World Health Organization, Geneva.
48. Watkins M (2001) Providing community care to individuals with mental health problems. In Community Nursing and Health Care: Insights and Innovations Hyde V ed.). Arnold, London, pp. 69 94.