Individual and family adaptation in Taiwanese families of individuals with severe and persistent mental illness (SPMI)

Research in Nursing and Health

Volumn 32, Issue 3, 2009, Pages 307-320

  Hsiao, Chiu Yueh ^a   van Riper, Marcia ^b  

^a CHUNG SHAN MEDICAL UNIVERSITY   (Taiwan)

^b UNIVERSITY OF NORTH CAROLINA   (United States)

Author keywords

Adaptation; Family; Severe and persistent mental illness

Indexed keywords

ADAPTIVE BEHAVIOR; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; CHRONIC DISEASE; COST OF ILLNESS; CROSS-SECTIONAL STUDY; ETHNOLOGY; FAMILY; FEMALE; HOSPITALIZATION; HUMAN; LIFE EVENT; MALE; MENTAL DISEASE; MENTAL STRESS; MIDDLE AGED; NURSING METHODOLOGY RESEARCH; PRINCIPAL COMPONENT ANALYSIS; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; SHAME; SOCIAL SUPPORT; STATISTICAL MODEL; TAIWAN;

ADAPTATION, PSYCHOLOGICAL; ATTITUDE TO HEALTH; CAREGIVERS; CHRONIC DISEASE; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; FAMILY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; LIFE CHANGE EVENTS; LINEAR MODELS; MALE; MENTAL DISORDERS; MIDDLE AGED; MODELS, PSYCHOLOGICAL; NURSING METHODOLOGY RESEARCH; PRINCIPAL COMPONENT ANALYSIS; SEVERITY OF ILLNESS INDEX; SHAME; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; TAIWAN;

EID: 66149130664     PISSN: 01606891     EISSN: 1098240X     Source Type: Journal    
DOI: 10.1002/nur.20322     Document Type: Article

References (54)

1. Acock, A.C., van Dulmen, M.H.M., Allen, K.R., & Piercy, F.P. (2005). Contemporary and emerging research methods in studying families. In V.L. Bengtson, A.C. Acock, K.R. Allen, P. Dilworth-Anderson, & D.M. Klein (Eds.), Sourcebook of family theory and research (pp. 59-89). Thousand Oaks, CA: Sage.
2. Baron, R.M., & Kenny, D.A. (1986). The moderator- mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psy-chology, 51, 1173-1182.
3. Baronet, A.M.(1999). Factorsassociated with caregiver burden in mental illness: A critical review of the research literature. Clinical Psychology Review, 19, 819-841.
4. Barrowclough, C., & Parle, M. (1997). Appraisal, psychological adjustment and expressed emotion in relatives of patients suffering form schizophrenia. British Journal of Psychiatry, 171, 26-30.
5. Biegel, D.E., Milligan, S.E., Putnam, P.L., & Song, L. (1994). Predictors of burden among lower socio- economic status caregivers of persons with chronic mental illness. Community Mental Health Journal, 30, 473-494.
6. Blumenthal, J.A., Burg, M.M., Barefoot, J., Williams, R.B., Haney, T., & Zimet, G. (1987). Social support, type A behavior, and coronary artery disease. Psychosomatic Medicine, 49, 331-340.
7. Chien, C.P., & Cheng, T.A. (1985). Depression in Taiwan: Epidemiological survey utilizing CES-D. Seishin Shinkeigaku Zasshi, 87, 335-338.
8. Chu, L.C., & Kao, H.S. (2005). The moderation of mediation experience and emotional intelligence on the relationship between perceived stress and negative mental health. Chinese Journal of Psychology, 47, 157-179.
9. Chuang, Y.C. (1994). Family and marriage: Hokkien and Hakka villages in north Taiwan (In Chinese). Taipei, Taiwan: Institute of Ethnology, Academia Sinica.
10. Clark, M.S. (1999). The double ABCX model of family crisis as a representation of family functioning after rehabilitation from stroke. Psychology, Health & Medicine, 4, 203-220.
11. Cohen, C.A., Colantonio, A., & Vernich, L. (2002). Positive aspects of caregiving: Rounding out the caregiver experience. International Journal of Geriatric Psychiatry, 17, 184-188.
12. Cohen, S. (1986). Contrasting the hassles scale and the perceived stress scale: Who's really measuring appraisedstress? AmericanPsychologist, 41, 717-718.
13. Cohen, M.S. (1999). Families coping with childhood chronic illness: A research review. Families Systems and Health, 17, 149-164.
14. Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A Global Measure of Perceived Stress. Journal of Health and Social Behavior, 24, 385-396.
15. Department of Health, Taiwan R.O.C. (2008). Health government report. Taipei, Taiwan: Department of Health.
16. Donner, A., & Klar, N. (2000). Design and analysis of cluster randomization trials in health research. London: Arnold.
17. Greenberg, J.S., Greenley, J.R., & Brown, R. (1997). Do mental health services reduce distress of families of people with serious mental illness? Psychiatric Rehabilitation Journal, 21, 40-50.
18. Guarnaccia, P.J., & Parra, P. (1996). Ethnicity, social status, and families' experiences of caring for a mentally ill family member. Community Mental Health Journal, 32, 243-260.
19. Hobbs, T.R. (1997). Depression in the caregiving mothers of adult schizophrenics: A test of the resource deterioration model. Community Mental Health Journal, 33, 387-399.
20. Hortwitz, A.V., & Reinhard, S.C. (1995). Ethnic differencesincaregivingdutiesandburdensamongparents and siblings of persons with severe mental illnesses. Journal of Health and Social Behavior, 36, 138-150.
21. Hsiao, C.Y., & Van Riper, M. (in review). Taiwanese families of individuals with mental illness: An integrative literature review.
22. Huang, C.Y. (2004). Informal female care givers of older adults with dementia in Taiwan. California Journal of Health Promotion, 2, 53-66.
23. Kramer, B.J. (1993). Marital history and the prior relationship as predictors of positive and negative outcomes among wife caregivers. Family Relations, 42, 367-375.
24. Laidlaw, T.M., Ceverdale, J.H., Falloon, I.R.H., & Kydd, R.R. (2002). Caregivers' stresses when living together or apart from patients with chronic schizophrenia. Community Mental Health Journal, 38, 303-310.
25. Lee, T.Y., Tsai, Y.F., & Young, M.S. (2000). The needs and related factors of caregivers of aboriginal and non-aboriginal schizophrneia patients in the Hualien area (in Chinese). Tzu Chi Medical Journal, 12, 247-257.
26. Lefley, H.P. (1996). Family caregiving in mental illness. Thousand Oaks, CA: Sage.
27. McCubbin, M.A., & McCubbin, H.I. (1993). Families coping with health crisis: The family Resiliency Modeloffamilystress, adjustment, andadaptation.In C.B.Danielson, B.Hamel-Bissell, & P.Winstead-Fry Brenda, W.F. Patricia (Eds.), Families, health, and illness (pp. 21-63). St. Louis, MO: Mosby.
28. Mu, P.F. (2005). Paternal reactions to a child with epilepsy: Uncertainty, coping strategies, and depression. Journal of Advanced Nursing, 49, 367-376.
29. Musil, C.M., Warner, C.B., & Zauszniewski, J.A. (2006). Grandmothers, caregiving, and family func- tioning. Journal of Gerontology: Social Sciences, 61B, S89-S98.
30. National Institute of Mental Health. (1987). Towards a model for a comprehensive community-based mental health system. Washington, DC: Author.
31. Noh, S., & Avison, W.R. (1988). Spouses of discharged psychiatric patients: Factors associated with their experience of burden. Journal of Marriage and the Family, 50, 377-389.
32. Noonan, A.E., & Tennstedt, S.L. (1997). Meaning in caregiving and its contribution to caregiver wellbeing. The Gerontological Society of America, 37, 785-794.
33. Patterson, J., & Garwick, A. (1994). Theoretical link- ages: Family meanings and a sense of coherence. In E. Thompson, & A. Thompson (Eds.), Sense of coherence and resiliency: Stress, coping, and health (pp. 71-89). Madison, WI: University of Wisconsin Press.
34. Pearlin, L.I., Mullan, J.T., Semple, S.J., & Skaff, M.M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583-594.
35. Pickett, S.A., Cook, J.A., Cohler, B.J., & Solomon, M.L. (1997). Positive parent/adult child relationships: Impact of severe mental illness and caregiving burden. American Journal of Orthopsychiatry, 67, 220-230.
36. Pinquart, M., & Sörensen, I. (2003). Associations of stressors and uplifts of caregiving with caregiver burden and depressed mood: A meta-analysis. Journal of Gerontology. Series B: Psychological Sciences, 58, 112-128.
37. Pinquart, M., & Sorensen, S. (2005). Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: A meta-analysis. The Gerontologist, 45, 90-106.
38. Saunders, J. (1999). Family functioning in families providing care for a family member with schizophre- nia. Issues in Mental Health Nursing, 20, 95-113.
39. Schulze, B., & Rössler, W. (2005). Caregiver burden in mental illness: Review of measurement, findings and intervention in 2004-2005. Current Opinion in Psychiatry, 18, 684-691.
40. Shiau, S.J. (1996). The mediating effect of family function and the effect of the coping behavior on the quality of life of psychotic patients (in Chinese). Project report of Health Department of the Executive Yuan. Taipei, Taiwan: Executive Yuan.
41. Shu, B.C., Lung, F.W., Lu, Y.C., Chase, G.A., & Pan, P. (2001). Care of patients with chronic mental illness: Comparison of home and half-way house care. International Journal of Social Psychiatry, 47(2), 52-62.
42. Shyu, Y.I., Archbold, P., & Imle, M. (1998). Finding a balance point: A process central to understanding family caregivingin Taiwanese Families.Research in Nursing & Health, 21, 261-270.
43. Singer, J.D. (1998). Using SAS PROC MIXED to fit multilevel models, hierarchical models, and individual growth models. Journal of Educational and Behavioral Statistics, 24, 323-355.
44. Song, L.Y. (1998). The extent and correlates of depressive symptomatology among caregivers of persons with mental illness (in Chinese). Public Health, 25, 181-196.
45. Song, L.Y. (1999). The exploration of caregivers of individuals with mental illness: The degree of caregiver burden and its related factors (in Chinese). Chinese Journal of Medical Health, 1, 1-30.
46. Song, L.Y. (2002). The development and validation of a caregiver burden scale: A focus on practice applic- ability(inChinese).SocialPolicyandSocialWork, 6, 61-100.
47. Song, L.Y., Biegel, D.E., & Milligan, S.E. (1997). Predictors of depressive symptomatology among lower social class caregivers of persons with chronic mental illness. Community Mental Health Journal, 33, 269-286.
48. Sun, F., & Long, A. (2008). A theory to guide families and careers of people who are at risk of suicide. Journal of Clinical Nursing, 17, 1939-1948.
49. Sun, Y.K.S., & Cheng, S.K. (1997). Family functioning, socialsupporttofamilies, andsymptomremittanceof schizophrenia. Hong Kong Journal of Psychiatry, 7, 19-25.
50. Svavarsdottir, E.K., McCubbin, M.A., & Kane, J.H. (2000). Well-being of parents of young children with asthma. Research in Nursing & Health, 23, 346-358.
51. Tzeng, W.C. (2001). Being trapped in a circle: Life after a suicide attempt in Taiwan. Journal of Transcultural Nursing, 12, 302-309.
52. Tzeng, W.C., & Lipson, J.G. (2004). The cultural context of suicide stigma in Taiwan. Qualitative Health Research, 14, 345-358.
53. Van Riper, M. (2007). Families of children with Down syndrome: Responding to "a change in plans" with resilience. Journal of Pediatric Nursing, 22, 116-128.
54. Yen, W.J., & Lundeen, S. (2006). The association between meaning of caregiving, perceived social support and levels of depression of Taiwanese caregivers of mentally ill patients. The International Journal of Psychiatric Nursing Research, 12, 1378-1392.