-
1
-
-
33747390872
-
What do we tell the children? Contrasting the disclosure choices of two HD families regarding risk status and predictive genetic testing
-
DOI 10.1007/s10897-006-9021-z
-
Holt K: What Do We Tell the Children? Contrasting the Disclosure Choices of Two HD Families Regarding Risk Status and Predictive Genetic Testing. J Genet Counseling 2006; 15: 253-265. (Pubitemid 44252994)
-
(2006)
Journal of Genetic Counseling
, vol.15
, Issue.4
, pp. 253-265
-
-
Holt, K.1
-
2
-
-
26244441578
-
Parents sharing information with their children about genetic conditions
-
DOI 10.1016/j.pedhc.2005.05.008, PII S0891524505001653
-
Gallo AM, Angst D, Knafl KA, Hadley E, Smith C: Parents sharing information with their children about genetic conditions. J Pediatr Health Care 2005; 19: 267-275. (Pubitemid 41412129)
-
(2005)
Journal of Pediatric Health Care
, vol.19
, Issue.5
, pp. 267-275
-
-
Gallo, A.M.1
Angst, D.2
Knafl, K.A.3
Hadley, E.4
Smith, C.5
-
3
-
-
0034908030
-
Psychological issues among children of hereditary breast cancer gene (BRCA1/2) testing participants
-
DOI 10.1002/pon.531
-
Tercyak KP, Peshkin BN, Streisand R, Brogan BM, Lerman C: Psychological issues among children of hereditary breast cancer gene (BRCA1/2) testing participants. Psychooncology 2002; 10: 336-346. (Pubitemid 32725123)
-
(2001)
Psycho-Oncology
, vol.10
, Issue.4
, pp. 336-346
-
-
Tercyak, K.P.1
Peshkin, B.N.2
Streisand, R.3
Lerman, C.4
-
4
-
-
0035157769
-
Family pictures: Growing up with a brother with X-linked severe combined immunodeficiency
-
DOI 10.10 02/1096-86 28(200 10101)98:1<5 7::AID-AJM G1007>3.0.CO;2-J
-
Fanos JH, Puck JM: Family pictures: growing up with a brother with X-linked severe combined immunodeficiency. Am J Med Genet 2001; 98: 57-63. (Pubitemid 32041851)
-
(2001)
American Journal of Medical Genetics
, vol.98
, Issue.1
, pp. 57-63
-
-
Fanos, J.H.1
Puck, J.M.2
-
5
-
-
0348186963
-
Coping with feelings: Chronically ill children and their families
-
Canam C: Coping with feelings: chronically ill children and their families. Nursing Papers: Perspect Nurs 1987; 19: 9-21.
-
(1987)
Nursing Papers: Perspect Nurs
, vol.19
, pp. 9-21
-
-
Canam, C.1
-
6
-
-
68149169889
-
Genetic risk communication: Experiences of adolescent girls and young women from families with fragile X syndrome
-
McConkie-Rosell A, Heise EM, Spiridigliozzi GA: Genetic Risk Communication: experiences of Adolescent Girls and Young Women from Families with Fragile X Syndrome. J Genet Counselling 2009; 18: 313-325.
-
(2009)
J Genet Counselling
, vol.18
, pp. 313-325
-
-
McConkie-Rosell, A.1
Heise, E.M.2
Spiridigliozzi, G.A.3
-
7
-
-
0035149760
-
Sib understanding of genetics and attitudes toward carrier testing for X-linked severe combined immunodeficiency
-
DOI 10.100 2/1096-86 28(2001 0101)98:1<46::A ID-AJMG10 08>3.0.CO;2-K
-
Fanos JH, Davis J, Puck JM: Sib understanding of genetics and attitudes toward carrier testing for X-linked severe combined immunodeficiency. Am J Med Genet Part A 2001; 98: 46-56. (Pubitemid 32041850)
-
(2001)
American Journal of Medical Genetics
, vol.98
, Issue.1
, pp. 46-56
-
-
Fanos, J.H.1
Davis, J.2
Puck, J.M.3
-
8
-
-
0242380654
-
Ambigious loss and disenfranchised grief: The impact of DNA predictive testing on the family as a system
-
Sobel S, Cowan CB: Ambigious loss and disenfranchised grief: the impact of DNA predictive testing on the family as a system. Fam Process 2003; 42: 47-57.
-
(2003)
Fam Process
, vol.42
, pp. 47-57
-
-
Sobel, S.1
Cowan, C.B.2
-
9
-
-
0033989352
-
Impact of genetic testing for Huntington disease on the family system
-
DOI 10.10 02/(SI CI)1096-8 628(2000 0103)90:1<4 9::AID-AJMG 10>3.0.CO;2-3
-
Sobel S, Cowan CB: Impact of genetic testing for Huntingtons Disease on the family system. Am J Med Genet 2000; 90: 49-59. (Pubitemid 30010830)
-
(2000)
American Journal of Medical Genetics
, vol.90
, Issue.1
, pp. 49-59
-
-
Sobel, S.K.1
Cowan, D.B.2
-
10
-
-
53249117184
-
Family communication between children and their parents about inherited genetic conditions: A meta-synthesis of the research
-
Metcalfe A, Coad J, Plumridge G, Gill P, Farndon P: Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research. Eur J Hum Genet 2008; 16: 1193-2000.
-
(2008)
Eur J Hum Genet
, vol.16
, pp. 1193-2000
-
-
Metcalfe, A.1
Coad, J.2
Plumridge, G.3
Gill, P.4
Farndon, P.5
-
13
-
-
0003547941
-
-
Upper Saddle River NJ: Prentice Hall
-
Bandura A: Social Learning Theory. Upper Saddle River, NJ: Prentice Hall, 1977.
-
(1977)
Social Learning Theory
-
-
Bandura, A.1
-
14
-
-
70349785356
-
Developing art-based techniques for eliciting children and young people's views about their family communication in genetic conditions
-
Coad J, Plumridge G, Metcalfe A: Developing art-based techniques for eliciting children and young people's views about their family communication in genetic conditions. Nurse Researcher 2009; 16: 56-64.
-
(2009)
Nurse Researcher
, vol.16
, pp. 56-64
-
-
Coad, J.1
Plumridge, G.2
Metcalfe, A.3
-
15
-
-
79956292850
-
-
The Development of Participatory Techniques Chapter 7; in: Christerson P and James A (eds) London: Falmer Press
-
O'Kane C: The Development of Participatory Techniques Chapter 7; in: Christerson P and James A (eds): Research with Children: Perspectives and practices. London: Falmer Press, 2000.
-
(2000)
Research with Children: Perspectives and Practices
-
-
O'Kane, C.1
-
16
-
-
0002067919
-
Methodological aspects of collecting data from children
-
Mauthner M: Methodological Aspects of Collecting Data from Children. Child Soci 1997; 11: 16-28.
-
(1997)
Child Soci
, vol.11
, pp. 16-28
-
-
Mauthner, M.1
-
18
-
-
34848813214
-
Process and outcome in communication of genetic information within families: A systematic review
-
DOI 10.1038/sj.ejhg.5201883, PII 5201883
-
Gaff CL, Clarke AJ, Atkinson P et al: Process and outcome in communication of genetic information within families: a systematic review. Eur J Hum Genet 2007; 15: 999-1011. (Pubitemid 47491454)
-
(2007)
European Journal of Human Genetics
, vol.15
, Issue.10
, pp. 999-1011
-
-
Gaff, C.L.1
Clarke, A.J.2
Atkinson, P.3
Sivell, S.4
Elwyn, G.5
Iredale, R.6
Thornton, H.7
Dundon, J.8
Shaw, C.9
Edwards, A.10
-
19
-
-
67349164838
-
On behalf of the Public and Professional Policy Committee (PPPC) of the European Society of Human Genetics (ESHG)
-
Borry P, Evers-Kiebooms G, Cornel MC, Clarke A, Dierickx K: On behalf of the Public and Professional Policy Committee (PPPC) of the European Society of Human Genetics (ESHG). Eur J Hum Genet 2009; 17: 711-719.
-
(2009)
Eur J Hum Genet
, vol.17
, pp. 711-719
-
-
Borry, P.1
Evers-Kiebooms, G.2
Cornel, M.C.3
Clarke, A.4
Dierickx, K.5
-
20
-
-
27244441655
-
Coming down the line Patients' understanding of their family history of common chronic diseases
-
Walter F, Emery J: Coming down the line Patients' understanding of their family history of common chronic diseases. Ann Fam Med 2005; 3: 405-410.
-
(2005)
Ann Fam Med
, vol.3
, pp. 405-410
-
-
Walter, F.1
Emery, J.2
-
21
-
-
34548145376
-
Information processing in the context of genetic risk: Implications for genetic-risk communication
-
DOI 10.1007/s10897-006-9082-z
-
Etchegary H, Perrier C: Information processing in the context of genetic risk: implications for genetic risk communication. J Genet Counselling 2007; 16: 419-432. (Pubitemid 47305502)
-
(2007)
Journal of Genetic Counseling
, vol.16
, Issue.4
, pp. 419-432
-
-
Etchegary, H.1
Perrier, C.2
-
22
-
-
0035192344
-
Adolescents' and adults' understanding of probability expressions
-
DOI 10.1016/S1054-139X(00)00176-2, PII S1054139X00001762
-
Biehl M, Halpern-Felsher BL: Adolescents' and adults' understanding of probability expressions. J Adolesc Health 2001; 28: 30-35. (Pubitemid 32014393)
-
(2001)
Journal of Adolescent Health
, vol.28
, Issue.1
, pp. 30-35
-
-
Biehl, M.1
Halpern-Felsher, B.L.2
-
23
-
-
67650763713
-
How should risk be communicated to children? A cross-sectional study comparing different formats of probability information
-
Ulph F, Townsend E, Glazebrook C: How should risk be communicated to children? A cross-sectional study comparing different formats of probability information. BMC Med inform decis making 2009; 9: 26.
-
(2009)
BMC Med Inform Decis Making
, vol.9
, pp. 26
-
-
Ulph, F.1
Townsend, E.2
Glazebrook, C.3
-
24
-
-
21044456586
-
Genetic professionals' reports of nondisclosure of genetic risk information within families
-
DOI 10.1038/sj.ejhg.5201394
-
Clarke A, Richards M, Kerzin-Storrar L et al: Genetic professionals reports of nondisclosure of genetic risk information within families. Eur J Hum Genet 2005; 13: 556-562. (Pubitemid 40691395)
-
(2005)
European Journal of Human Genetics
, vol.13
, Issue.5
, pp. 556-562
-
-
Clarke, A.1
Richards, M.2
Kerzin-Storrar, L.3
Halliday, J.4
Young, M.A.5
Simpson, S.A.6
Featherstone, K.7
Forrest, K.8
Lucassen, A.9
Morrison, P.J.10
Quarrell, O.W.J.11
Stewart, H.12
Ahmad, A.13
Brennan, P.14
Lynch, S.A.15
Wiles, V.16
Zukowska-Wilcocks, A.17
-
25
-
-
53949104692
-
Adaptation to living with a genetic condition or risk: A mini-review
-
Biesecker B, Erby L: Adaptation to living with a genetic condition or risk: a mini-review. Clin Genet 2008; 74: 401-407.
-
(2008)
Clin Genet
, vol.74
, pp. 401-407
-
-
Biesecker, B.1
Erby, L.2
|