Rare diseases - Avoiding misperceptions and establishing realities: The need for reliable epidemiological data

Advances in Experimental Medicine and Biology

Volumn 686, Issue , 2010, Pages 3-14

  Groft, Stephen C ^a   De La Paz, Manuel Posada ^b  

^a NATIONAL INSTITUTES OF HEALTH   (United States)

^b NONE

Author keywords

Clinical research networks; Epidemiology; Information systems; Patient organizations; Rare diseases; Training

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; BIOTECHNOLOGY; CLINICAL PROTOCOL; CONTINUING EDUCATION; DIAGNOSTIC PROCEDURE; DRUG INDUSTRY; EPIDEMIOLOGICAL DATA; EVIDENCE BASED MEDICINE; HEALTH CARE ACCESS; HEALTH CARE AVAILABILITY; HEALTH CARE ORGANIZATION; HEALTH CARE PERSONNEL; HUMAN; INCIDENCE; INFORMATION DISSEMINATION; INTERNATIONAL CLASSIFICATION OF DISEASES; INTERNATIONAL COOPERATION; MEDICAL INFORMATION; MEDICAL RESEARCH; PATIENT ADVOCACY; PATIENT CARE; POPULATION RESEARCH; PREVALENCE; PRIORITY JOURNAL; PROPHYLAXIS; RARE DISEASE; RELIABILITY; CLASSIFICATION; EPIDEMIOLOGY; HEALTH CARE DELIVERY; REVIEW;

EPIDEMIOLOGIC STUDIES; HEALTH SERVICES ACCESSIBILITY; HUMANS; RARE DISEASES;

EID: 79952060054     PISSN: 00652598     EISSN: None     Source Type: Book Series    
DOI: 10.1007/978-90-481-9485-8_1     Document Type: Article

References (9)

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