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Volumn 23, Issue 2, 2014, Pages 133-146

Specific psychosocial issues of individuals undergoing genetic counseling for cancer - A literature review

Author keywords

Genetic counseling; Genetic testing; Hereditary cancer; Meta ethnographic; Psychosocial issues; Review

Indexed keywords

ADAPTIVE BEHAVIOR; GENETIC COUNSELING; GENETIC PREDISPOSITION; GENETICS; HUMAN; NEOPLASM; PSYCHOLOGICAL ASPECT; REVIEW;

EID: 84897111710     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-013-9649-4     Document Type: Review
Times cited : (47)

References (83)
  • 1
    • 79951849979 scopus 로고    scopus 로고
    • Sharing genetic risk with next generation: Mutation-positive parents' communication with their offspring in Lynch Syndrome
    • 20857224 10.1007/s10689-010-9386-x
    • Aktan-Collan, K. I., Kaariainen, H. A., Kolttola, E. M., Pylvanainen, K., Jarvinen, H. J., Haukkala, A. H., et al. (2011). Sharing genetic risk with next generation: mutation-positive parents' communication with their offspring in Lynch Syndrome. Familial Cancer, 10, 43-50.
    • (2011) Familial Cancer , vol.10 , pp. 43-50
    • Aktan-Collan, K.I.1    Kaariainen, H.A.2    Kolttola, E.M.3    Pylvanainen, K.4    Jarvinen, H.J.5    Haukkala, A.H.6
  • 2
    • 0034537401 scopus 로고    scopus 로고
    • Psychosocial effects of living with an increased risk of breast cancer: An exploratory study using telephone focus groups
    • 1:STN:280:DC%2BD3M7jtVKksg%3D%3D 11180586 10.1002/1099-1611(200011/12)9: 6<511: AID-PON469>3.0.CO;2-E
    • Appleton, S., Fry, A., Rees, G., Rush, R., & Cull, A. (2000). Psychosocial effects of living with an increased risk of breast cancer: an exploratory study using telephone focus groups. Psycho-Oncology, 9, 511-521.
    • (2000) Psycho-Oncology , vol.9 , pp. 511-521
    • Appleton, S.1    Fry, A.2    Rees, G.3    Rush, R.4    Cull, A.5
  • 4
    • 49749093443 scopus 로고    scopus 로고
    • BRCA mutation-negative women from hereditary breast and ovarian cancer families: A qualitative study of the BRCA-negative experience
    • 2803025 18816319 10.1111/j.1369-7625.2008.00494.x
    • Bakos, A. D., Hutson, S. P., Loud, J. T., Peters, J. A., Giusti, R. M., & Greene, M. H. (2008). BRCA mutation-negative women from hereditary breast and ovarian cancer families: A qualitative study of the BRCA-negative experience. Health Expectations, 11, 220-231.
    • (2008) Health Expectations , vol.11 , pp. 220-231
    • Bakos, A.D.1    Hutson, S.P.2    Loud, J.T.3    Peters, J.A.4    Giusti, R.M.5    Greene, M.H.6
  • 5
    • 69449094305 scopus 로고    scopus 로고
    • Methods for the synthesis of qualitative research: A critical review
    • 3224695 19671152 10.1186/1471-2288-9-59
    • Barnett-Page, E., & Thomas, J. (2009). Methods for the synthesis of qualitative research: A critical review. BMC.Med.Res.Methodol, 9, 59.
    • (2009) BMC.Med.Res.Methodol , vol.9 , pp. 59
    • Barnett-Page, E.1    Thomas, J.2
  • 6
    • 77950913712 scopus 로고    scopus 로고
    • Long-term cohort study of women at intermediate risk of familial breast cancer: Experiences of living at risk
    • 1:STN:280:DC%2BC3c3jvFyitQ%3D%3D 19514016 10.1002/pon.1588
    • Bennett, P., Parsons, E., Brain, K., & Hood, K. (2010). Long-term cohort study of women at intermediate risk of familial breast cancer: experiences of living at risk. Psycho-Oncology, 19, 390-398.
    • (2010) Psycho-Oncology , vol.19 , pp. 390-398
    • Bennett, P.1    Parsons, E.2    Brain, K.3    Hood, K.4
  • 7
    • 33847612751 scopus 로고    scopus 로고
    • Risk perception, worry and satisfaction related to genetic counseling for hereditary cancer
    • 17279329 10.1007/s10897-006-9061-4
    • Bjorvatn, C., Eide, G. E., Hanestad, B. R., Oyen, N., Havik, O. E., Carlsson, A., et al. (2007). Risk perception, worry and satisfaction related to genetic counseling for hereditary cancer. Journal of Genetic Counseling, 16, 211-222.
    • (2007) Journal of Genetic Counseling , vol.16 , pp. 211-222
    • Bjorvatn, C.1    Eide, G.E.2    Hanestad, B.R.3    Oyen, N.4    Havik, O.E.5    Carlsson, A.6
  • 8
    • 41149145042 scopus 로고    scopus 로고
    • Anxiety and depression among subjects attending genetic counseling for hereditary cancer
    • 18295433 10.1016/j.pec.2008.01.008
    • Bjorvatn, C., Eide, G. E., Hanestad, B. R., & Havik, O. E. (2008). Anxiety and depression among subjects attending genetic counseling for hereditary cancer. Patient Education and Counseling, 71, 234-243.
    • (2008) Patient Education and Counseling , vol.71 , pp. 234-243
    • Bjorvatn, C.1    Eide, G.E.2    Hanestad, B.R.3    Havik, O.E.4
  • 9
    • 0036163160 scopus 로고    scopus 로고
    • Cancer patients who experienced diagnostic genetic testing for cancer susceptibility: Reactions and behavior after the disclosure of a positive test result
    • Bonadona, V., Saltel, P., Desseigne, F., Mignotte, H., Saurin, J. C., Wang, Q., et al. (2002). Cancer patients who experienced diagnostic genetic testing for cancer susceptibility: reactions and behavior after the disclosure of a positive test result. Cancer Epidemiology, Biomarkers & Prevention, 11, 97-104.
    • (2002) Cancer Epidemiology, Biomarkers & Prevention , vol.11 , pp. 97-104
    • Bonadona, V.1    Saltel, P.2    Desseigne, F.3    Mignotte, H.4    Saurin, J.C.5    Wang, Q.6
  • 10
    • 84862533432 scopus 로고    scopus 로고
    • When parents disclose BRCA1/2 test results: Their communication and perceptions of offspring response
    • 3326182 22231763 10.1002/cncr.26471
    • Bradbury, A. R., Patrick-Miller, L., Egleston, B. L., Olopade, O. I., Daly, M. B., Moore, C. W., et al. (2012). When parents disclose BRCA1/2 test results: their communication and perceptions of offspring response. Cancer, 118, 3417-3425.
    • (2012) Cancer , vol.118 , pp. 3417-3425
    • Bradbury, A.R.1    Patrick-Miller, L.2    Egleston, B.L.3    Olopade, O.I.4    Daly, M.B.5    Moore, C.W.6
  • 11
    • 0031056944 scopus 로고    scopus 로고
    • Reliability and validity of the Functional Assessment of Cancer Therapy-Breast quality-of-life instrument
    • 1:STN:280:DyaK2s3htlyntQ%3D%3D 9060536
    • Brady, M. J., Cella, D. F., Mo, F., Bonomi, A. E., Tulsky, D. S., Lloyd, S. R., et al. (1997). Reliability and validity of the Functional Assessment of Cancer Therapy-Breast quality-of-life instrument. Journal of Clinical Oncology, 15, 974-986.
    • (1997) Journal of Clinical Oncology , vol.15 , pp. 974-986
    • Brady, M.J.1    Cella, D.F.2    Mo, F.3    Bonomi, A.E.4    Tulsky, D.S.5    Lloyd, S.R.6
  • 12
    • 33644913410 scopus 로고    scopus 로고
    • Psychological impact of genetic counseling for familial cancer: A systematic review and meta-analysis
    • 16528610 10.1007/s10689-005-2577-1
    • Braithwaite, D., Emery, J., Walter, F., Prevost, A. T., & Sutton, S. (2006). Psychological impact of genetic counseling for familial cancer: A systematic review and meta-analysis. Familial Cancer, 5, 61-75.
    • (2006) Familial Cancer , vol.5 , pp. 61-75
    • Braithwaite, D.1    Emery, J.2    Walter, F.3    Prevost, A.T.4    Sutton, S.5
  • 14
    • 0033777223 scopus 로고    scopus 로고
    • Psychological consequences of predictive genetic testing: A systematic review
    • 1:STN:280:DC%2BD3cvovVKisw%3D%3D 11039571 10.1038/sj.ejhg.5200532
    • Broadstock, M., Michie, S., & Marteau, T. (2000). Psychological consequences of predictive genetic testing: A systematic review. European Journal of Human Genetics, 8, 731-738.
    • (2000) European Journal of Human Genetics , vol.8 , pp. 731-738
    • Broadstock, M.1    Michie, S.2    Marteau, T.3
  • 15
    • 0037455386 scopus 로고    scopus 로고
    • Psychological outcomes and risk perception after genetic testing and counselling in breast cancer: A systematic review
    • 12526728
    • Butow, P. N., Lobb, E. A., Meiser, B., Barratt, A., & Tucker, K. M. (2003). Psychological outcomes and risk perception after genetic testing and counselling in breast cancer: A systematic review. The Medical Journal of Australia, 178, 77-81.
    • (2003) The Medical Journal of Australia , vol.178 , pp. 77-81
    • Butow, P.N.1    Lobb, E.A.2    Meiser, B.3    Barratt, A.4    Tucker, K.M.5
  • 16
    • 84856364789 scopus 로고    scopus 로고
    • Evaluating meta-ethnography: Systematic analysis and synthesis of qualitative research
    • 1:STN:280:DC%2BC38%2Fot1Oltw%3D%3D 22176717
    • Campbell, R., Pound, P., Morgan, M., Daker-White, G., Britten, N., Pill, R., et al. (2011). Evaluating meta-ethnography: systematic analysis and synthesis of qualitative research. Health Technology Assessment, 15, 1-164.
    • (2011) Health Technology Assessment , vol.15 , pp. 1-164
    • Campbell, R.1    Pound, P.2    Morgan, M.3    Daker-White, G.4    Britten, N.5    Pill, R.6
  • 17
    • 35948960277 scopus 로고    scopus 로고
    • Living with hereditary non-polyposis colorectal cancer; experiences from and impact of genetic testing
    • 1:STN:280:DC%2BD2snmtlSgtg%3D%3D 17705030 10.1007/s10897-007-9117-0
    • Carlsson, C., & Nilbert, M. (2007). Living with hereditary non-polyposis colorectal cancer; experiences from and impact of genetic testing. Journal of Genetic Counseling, 16, 811-820.
    • (2007) Journal of Genetic Counseling , vol.16 , pp. 811-820
    • Carlsson, C.1    Nilbert, M.2
  • 18
    • 77956520623 scopus 로고    scopus 로고
    • Communication of BRCA results and family testing in 1,103 high-risk women
    • 1:CAS:528:DC%2BC3cXhtFart7%2FO 10.1158/1055-9965.EPI-10-0325
    • Cheung, E. L., Olson, A. D., Yu, T. M., Han, P. Z., & Beattie, M. S. (2010). Communication of BRCA results and family testing in 1,103 high-risk women. Cancer Epidemiology, Biomarkers & Prevention, 19, 2211-2219.
    • (2010) Cancer Epidemiology, Biomarkers & Prevention , vol.19 , pp. 2211-2219
    • Cheung, E.L.1    Olson, A.D.2    Yu, T.M.3    Han, P.Z.4    Beattie, M.S.5
  • 19
    • 0037216727 scopus 로고    scopus 로고
    • Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients
    • 12476445 10.1002/ajmg.a.10868
    • Claes, E., Evers-Kiebooms, G., Boogaerts, A., Decruyenaere, M., Denayer, L., & Legius, E. (2003). Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients. American Journal of Medical Genetics. Part A, 116A, 11-19.
    • (2003) American Journal of Medical Genetics. Part A , vol.116 , pp. 11-19
    • Claes, E.1    Evers-Kiebooms, G.2    Boogaerts, A.3    Decruyenaere, M.4    Denayer, L.5    Legius, E.6
  • 20
    • 0033743960 scopus 로고    scopus 로고
    • Distress and psychiatric morbidity among women from high-risk breast and ovarian cancer families
    • 1:STN:280:DC%2BD3crhtFOitQ%3D%3D 11068972 10.1037/0022-006X.68.5.864
    • Coyne, J. C., Benazon, N. R., Gaba, C. G., Calzone, K., & Weber, B. L. (2000). Distress and psychiatric morbidity among women from high-risk breast and ovarian cancer families. Journal of Consulting and Clinical Psychology, 68, 864-874.
    • (2000) Journal of Consulting and Clinical Psychology , vol.68 , pp. 864-874
    • Coyne, J.C.1    Benazon, N.R.2    Gaba, C.G.3    Calzone, K.4    Weber, B.L.5
  • 21
    • 79952279292 scopus 로고    scopus 로고
    • 'Going-to-have-cancerness': A study of living with increased risk of BRCA1 and BRCA2 mutations for six South Island women
    • 21125072
    • Crump, R. J., Fitzgerald, R. P., & Legge, M. (2010). 'Going-to-have-cancerness': A study of living with increased risk of BRCA1 and BRCA2 mutations for six South Island women. Journal of Primary Health Care, 2, 311-317.
    • (2010) Journal of Primary Health Care , vol.2 , pp. 311-317
    • Crump, R.J.1    Fitzgerald, R.P.2    Legge, M.3
  • 22
    • 33751008420 scopus 로고    scopus 로고
    • A gift or a yoke Women's and men's responses to genetic risk information from BRCA1 and BRCA2 testing
    • 17100990 10.1111/j.1399-0004.2006.00720.x
    • d'Agincourt-Canning, L. (2006). A gift or a yoke Women's and men's responses to genetic risk information from BRCA1 and BRCA2 testing. Clinical Genetics, 70, 462-472.
    • (2006) Clinical Genetics , vol.70 , pp. 462-472
    • D'Agincourt-Canning, L.1
  • 23
    • 0035570037 scopus 로고    scopus 로고
    • Psychosocial issues following a positive result of genetic testing for BRCA1 and BRCA2 mutations: Findings from a focus group and a needs-assessment survey
    • 80928 11314429
    • Di Prospero, L. S., Seminsky, M., Honeyford, J., Doan, B., Franssen, E., Meschino, W., et al. (2001). Psychosocial issues following a positive result of genetic testing for BRCA1 and BRCA2 mutations: findings from a focus group and a needs-assessment survey. CMAJ, 164, 1005-1009.
    • (2001) CMAJ , vol.164 , pp. 1005-1009
    • Di Prospero, L.S.1    Seminsky, M.2    Honeyford, J.3    Doan, B.4    Franssen, E.5    Meschino, W.6
  • 25
    • 70349694549 scopus 로고    scopus 로고
    • The effect of BRCA gene testing on family relationships: A thematic analysis of qualitative interviews
    • 19479365 10.1007/s10897-009-9232-1
    • Douglas, H. A., Hamilton, R. J., & Grubs, R. E. (2009). The effect of BRCA gene testing on family relationships: A thematic analysis of qualitative interviews. Journal of Genetic Counseling, 18, 418-435.
    • (2009) Journal of Genetic Counseling , vol.18 , pp. 418-435
    • Douglas, H.A.1    Hamilton, R.J.2    Grubs, R.E.3
  • 26
    • 51649108645 scopus 로고    scopus 로고
    • Psychosocial issues in genetic testing for familial adenomatous polyposis: A review of the literature
    • 1:STN:280:DC%2BD1crhtlOmtA%3D%3D 18613296 10.1002/pon.1357
    • Douma, K. F., Aaronson, N. K., Vasen, H. F., & Bleiker, E. M. (2008). Psychosocial issues in genetic testing for familial adenomatous polyposis: A review of the literature. Psycho-Oncology, 17, 737-745.
    • (2008) Psycho-Oncology , vol.17 , pp. 737-745
    • Douma, K.F.1    Aaronson, N.K.2    Vasen, H.F.3    Bleiker, E.M.4
  • 27
    • 77649224101 scopus 로고    scopus 로고
    • Psychological distress and use of psychosocial support in familial adenomatous polyposis
    • 19382100 10.1002/pon.1570
    • Douma, K. F., Aaronson, N. K., Vasen, H. F., Gerritsma, M. A., Gundy, C. M., Janssen, E. P., et al. (2010). Psychological distress and use of psychosocial support in familial adenomatous polyposis. Psycho-Oncology, 19, 289-298.
    • (2010) Psycho-Oncology , vol.19 , pp. 289-298
    • Douma, K.F.1    Aaronson, N.K.2    Vasen, H.F.3    Gerritsma, M.A.4    Gundy, C.M.5    Janssen, E.P.6
  • 29
    • 70350237040 scopus 로고    scopus 로고
    • Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: A pilot study
    • 2917812 19707152 10.1097/GIM.0b013e3181b3f42d
    • Ersig, A. L., Williams, J. K., Hadley, D. W., & Koehly, L. M. (2009). Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: A pilot study. Genetics in Medicine, 11, 728-734.
    • (2009) Genetics in Medicine , vol.11 , pp. 728-734
    • Ersig, A.L.1    Williams, J.K.2    Hadley, D.W.3    Koehly, L.M.4
  • 30
    • 35348853843 scopus 로고    scopus 로고
    • Colorectal cancer survivors undergoing genetic testing for hereditary non-polyposis colorectal cancer: Motivational factors and psychosocial functioning
    • 1:STN:280:DC%2BD2snmtleitQ%3D%3D 17892499 10.1111/j.1399-0004.2007.00893. x
    • Esplen, M. J., Madlensky, L., Aronson, M., Rothenmund, H., Gallinger, S., Butler, K., et al. (2007). Colorectal cancer survivors undergoing genetic testing for hereditary non-polyposis colorectal cancer: motivational factors and psychosocial functioning. Clinical Genetics, 72, 394-401.
    • (2007) Clinical Genetics , vol.72 , pp. 394-401
    • Esplen, M.J.1    Madlensky, L.2    Aronson, M.3    Rothenmund, H.4    Gallinger, S.5    Butler, K.6
  • 31
    • 3543038163 scopus 로고    scopus 로고
    • Decision making with uncertain information: Learning from women in a high risk breast cancer clinic
    • 15604633 10.1023/B:JOGC.0000027958.02383.a9
    • Frost, C. J., Venne, V., Cunningham, D., & Gerritsen-McKane, R. (2004). Decision making with uncertain information: learning from women in a high risk breast cancer clinic. Journal of Genetic Counseling, 13, 221-236.
    • (2004) Journal of Genetic Counseling , vol.13 , pp. 221-236
    • Frost, C.J.1    Venne, V.2    Cunningham, D.3    Gerritsen-McKane, R.4
  • 32
    • 84872801846 scopus 로고    scopus 로고
    • Qualitative Systematic Reviews of Treatment Burden in Stroke, Heart Failure and Diabetes - Methodological Challenges and Solutions
    • 3568050 23356353 10.1186/1471-2288-13-10
    • Gallacher, K., Jani, B., Morrison, D., Macdonald, S., Blane, D., Erwin, P., et al. (2013). Qualitative Systematic Reviews of Treatment Burden in Stroke, Heart Failure and Diabetes - Methodological Challenges and Solutions. BMC Medical Research Methodology, 13, 10.
    • (2013) BMC Medical Research Methodology , vol.13 , pp. 10
    • Gallacher, K.1    Jani, B.2    Morrison, D.3    Macdonald, S.4    Blane, D.5    Erwin, P.6
  • 33
    • 13744263782 scopus 로고    scopus 로고
    • Hereditary cancer predisposition syndromes
    • 15637391 10.1200/JCO.2005.10.042
    • Garber, J. E., & Offit, K. (2005). Hereditary cancer predisposition syndromes. Journal of Clinical Oncology, 23, 276-292.
    • (2005) Journal of Clinical Oncology , vol.23 , pp. 276-292
    • Garber, J.E.1    Offit, K.2
  • 34
    • 2442521134 scopus 로고    scopus 로고
    • Accommodating risk: Responses to BRCA1/2 genetic testing of women who have had cancer
    • 1:STN:280:DC%2BD2c3ksl2ntQ%3D%3D 10.1016/j.socscimed.2003.11.025
    • Hallowell, N., Foster, C., Eeles, R., Ardern-Jones, A., & Watson, M. (2004). Accommodating risk: responses to BRCA1/2 genetic testing of women who have had cancer. Social Science & Medicine, 59, 553-565.
    • (2004) Social Science & Medicine , vol.59 , pp. 553-565
    • Hallowell, N.1    Foster, C.2    Eeles, R.3    Ardern-Jones, A.4    Watson, M.5
  • 35
    • 18344381796 scopus 로고    scopus 로고
    • Communication about genetic testing in families of male BRCA1/2 carriers and non-carriers: Patterns, priorities and problems
    • 1:STN:280:DC%2BD2M3it1Kmuw%3D%3D 15857416 10.1111/j.1399-0004.2005.00443. x
    • Hallowell, N., Ardern-Jones, A., Eeles, R., Foster, C., Lucassen, A., Moynihan, C., et al. (2005). Communication about genetic testing in families of male BRCA1/2 carriers and non-carriers: patterns, priorities and problems. Clinical Genetics, 67, 492-502.
    • (2005) Clinical Genetics , vol.67 , pp. 492-502
    • Hallowell, N.1    Ardern-Jones, A.2    Eeles, R.3    Foster, C.4    Lucassen, A.5    Moynihan, C.6
  • 36
    • 33845420082 scopus 로고    scopus 로고
    • Guilt, blame and responsibility: Men's understanding of their role in the transmission of BRCA1/2 mutations within their family
    • 10.1111/j.1467-9566.2006.5222.x
    • Hallowell, N., Arden-Jones, A., Eeles, R., Foster, C., Lucassen, A., Moynihan, C., et al. (2006). Guilt, blame and responsibility: men's understanding of their role in the transmission of BRCA1/2 mutations within their family. Sociology of Health & Illness, 28, 969-988.
    • (2006) Sociology of Health & Illness , vol.28 , pp. 969-988
    • Hallowell, N.1    Arden-Jones, A.2    Eeles, R.3    Foster, C.4    Lucassen, A.5    Moynihan, C.6
  • 37
    • 78649741330 scopus 로고    scopus 로고
    • Conditions and consequences of a BRCA mutation in young, single women of childbearing age
    • 20797954 10.1188/10.ONF.627-634
    • Hamilton, R., & Hurley, K. E. (2010). Conditions and consequences of a BRCA mutation in young, single women of childbearing age. Oncology Nursing Forum, 37, 627-634.
    • (2010) Oncology Nursing Forum , vol.37 , pp. 627-634
    • Hamilton, R.1    Hurley, K.E.2
  • 38
    • 67650945260 scopus 로고    scopus 로고
    • Emotional distress following genetic testing for hereditary breast and ovarian cancer: A meta-analytic review
    • 2807362 19594276 10.1037/a0014778
    • Hamilton, J. G., Lobel, M., & Moyer, A. (2009a). Emotional distress following genetic testing for hereditary breast and ovarian cancer: A meta-analytic review. Health Psychology, 28, 510-518.
    • (2009) Health Psychology , vol.28 , pp. 510-518
    • Hamilton, J.G.1    Lobel, M.2    Moyer, A.3
  • 39
    • 69549133609 scopus 로고    scopus 로고
    • Living with genetic test results for hereditary breast and ovarian cancer
    • 19723276 10.1111/j.1547-5069.2009.01279.x
    • Hamilton, R., Williams, J. K., Skirton, H., & Bowers, B. J. (2009b). Living with genetic test results for hereditary breast and ovarian cancer. Journal of Nursing Scholarship, 41, 276-283.
    • (2009) Journal of Nursing Scholarship , vol.41 , pp. 276-283
    • Hamilton, R.1    Williams, J.K.2    Skirton, H.3    Bowers, B.J.4
  • 40
    • 35948959333 scopus 로고    scopus 로고
    • Assessment of psychosocial outcomes in genetic counseling research: An overview of available measurement scales
    • 17694397 10.1007/s10897-007-9111-6
    • Kasparian, N. A., Wakefield, C. E., & Meiser, B. (2007). Assessment of psychosocial outcomes in genetic counseling research: an overview of available measurement scales. Journal of Genetic Counseling, 16, 693-712.
    • (2007) Journal of Genetic Counseling , vol.16 , pp. 693-712
    • Kasparian, N.A.1    Wakefield, C.E.2    Meiser, B.3
  • 41
    • 38349095097 scopus 로고    scopus 로고
    • Predictors of psychological distress among individuals with a strong family history of malignant melanoma
    • 1:STN:280:DC%2BD1c%2FksFOnsQ%3D%3D 18177469 10.1111/j.1399-0004.2007. 00949.x
    • Kasparian, N. A., Meiser, B., Butow, P. N., Simpson, J. M., & Mann, G. J. (2008). Predictors of psychological distress among individuals with a strong family history of malignant melanoma. Clinical Genetics, 73, 121-131.
    • (2008) Clinical Genetics , vol.73 , pp. 121-131
    • Kasparian, N.A.1    Meiser, B.2    Butow, P.N.3    Simpson, J.M.4    Mann, G.J.5
  • 42
    • 53949085085 scopus 로고    scopus 로고
    • Psychosocial outcome following genetic risk counselling for familial colorectal cancer. A comparison of affected patients and family members
    • 1:STN:280:DC%2BD1cnovFSqsQ%3D%3D 18954412 10.1111/j.1399-0004.2008.01089. x
    • Keller, M., Jost, R., Haunstetter, C. M., Sattel, H., Schroeter, C., Bertsch, U., et al. (2008). Psychosocial outcome following genetic risk counselling for familial colorectal cancer. A comparison of affected patients and family members. Clinical Genetics, 74, 414-424.
    • (2008) Clinical Genetics , vol.74 , pp. 414-424
    • Keller, M.1    Jost, R.2    Haunstetter, C.M.3    Sattel, H.4    Schroeter, C.5    Bertsch, U.6
  • 43
    • 0344467125 scopus 로고    scopus 로고
    • Living with chronic risk: Healthy women with a family history of breast/ovarian cancer
    • 10.1080/13698570310001607003
    • Kenen, R., Ardern-Jones, A., & Eeles, R. (2003). Living with chronic risk: healthy women with a family history of breast/ovarian cancer. Health, Risk & Society, 5, 315-331.
    • (2003) Health, Risk & Society , vol.5 , pp. 315-331
    • Kenen, R.1    Ardern-Jones, A.2    Eeles, R.3
  • 45
    • 76049120565 scopus 로고    scopus 로고
    • Genetic testing offered directly after the diagnosis of colorectal cancer: A pilot study on the reactions of patients
    • 1:STN:280:DC%2BC3c7hsVaisw%3D%3D 20162866
    • Landsbergen, K. M., Prins, J. B., Brunner, H. G., & Hoogerbrugge, N. (2009a). Genetic testing offered directly after the diagnosis of colorectal cancer: A pilot study on the reactions of patients. Genetic Counseling, 20, 317-325.
    • (2009) Genetic Counseling , vol.20 , pp. 317-325
    • Landsbergen, K.M.1    Prins, J.B.2    Brunner, H.G.3    Hoogerbrugge, N.4
  • 46
    • 70449522288 scopus 로고    scopus 로고
    • Genetic testing for Lynch syndrome in the first year of colorectal cancer: A review of the psychological impact
    • 2771129 19330464 10.1007/s10689-009-9239-7
    • Landsbergen, K. M., Prins, J. B., Brunner, H. G., Kraaimaat, F. W., & Hoogerbrugge, N. (2009b). Genetic testing for Lynch syndrome in the first year of colorectal cancer: A review of the psychological impact. Familial Cancer, 8, 325-337.
    • (2009) Familial Cancer , vol.8 , pp. 325-337
    • Landsbergen, K.M.1    Prins, J.B.2    Brunner, H.G.3    Kraaimaat, F.W.4    Hoogerbrugge, N.5
  • 47
    • 3543112175 scopus 로고    scopus 로고
    • Short- and long-term impact of receiving genetic mutation results in women at increased risk for hereditary breast cancer
    • 15612172 10.1023/B:JOGC.0000018822.56297.a6
    • Lim, J., Macluran, M., Price, M., Bennett, B., & Butow, P. (2004). Short- and long-term impact of receiving genetic mutation results in women at increased risk for hereditary breast cancer. Journal of Genetic Counseling, 13, 115-133.
    • (2004) Journal of Genetic Counseling , vol.13 , pp. 115-133
    • Lim, J.1    Macluran, M.2    Price, M.3    Bennett, B.4    Butow, P.5
  • 49
    • 17844377961 scopus 로고    scopus 로고
    • Men at risk of being a mutation carrier for hereditary breast/ovarian cancer: An exploration of attitudes and psychological functioning during genetic testing
    • 1:CAS:528:DC%2BD3MXmsVOlsbc%3D 11464240 10.1038/sj.ejhg.5200668
    • Lodder, L., Frets, P. G., Trijsburg, R. W., Tibben, A., Meijers-Heijboer, E. J., Duivenvoorden, H. J., et al. (2001). Men at risk of being a mutation carrier for hereditary breast/ovarian cancer: an exploration of attitudes and psychological functioning during genetic testing. European Journal of Human Genetics, 9, 492-500.
    • (2001) European Journal of Human Genetics , vol.9 , pp. 492-500
    • Lodder, L.1    Frets, P.G.2    Trijsburg, R.W.3    Tibben, A.4    Meijers-Heijboer, E.J.5    Duivenvoorden, H.J.6
  • 50
    • 77953043381 scopus 로고    scopus 로고
    • Women's perceptions of the personal and family impact of genetic cancer risk assessment: Focus group findings
    • 19902342 10.1007/s10897-009-9267-3
    • MacDonald, D. J., Sarna, L., Weitzel, J. N., & Ferrell, B. (2010). Women's perceptions of the personal and family impact of genetic cancer risk assessment: focus group findings. Journal of Genetic Counseling, 19, 148-160.
    • (2010) Journal of Genetic Counseling , vol.19 , pp. 148-160
    • MacDonald, D.J.1    Sarna, L.2    Weitzel, J.N.3    Ferrell, B.4
  • 51
    • 68149147489 scopus 로고    scopus 로고
    • Implications of living with a strong family history of breast cancer
    • 19650516
    • Maheu, C. (2009). Implications of living with a strong family history of breast cancer. Canadian Journal of Nursing Research, 41, 100-112.
    • (2009) Canadian Journal of Nursing Research , vol.41 , pp. 100-112
    • Maheu, C.1
  • 52
    • 70449625708 scopus 로고    scopus 로고
    • Family communication, genetic testing and colonoscopy screening in hereditary non-polyposis colon cancer: A qualitative study
    • 19177338 10.1002/pon.1487
    • McCann, S., MacAuley, D., Barnett, Y., Bunting, B., Bradley, A., Jeffers, L., et al. (2009). Family communication, genetic testing and colonoscopy screening in hereditary non-polyposis colon cancer: A qualitative study. Psycho-Oncology, 18, 1208-1215.
    • (2009) Psycho-Oncology , vol.18 , pp. 1208-1215
    • McCann, S.1    MacAuley, D.2    Barnett, Y.3    Bunting, B.4    Bradley, A.5    Jeffers, L.6
  • 53
    • 29644445236 scopus 로고    scopus 로고
    • Psychological impact of genetic testing for cancer susceptibility: An update of the literature
    • 15937976 10.1002/pon.933
    • Meiser, B. (2005). Psychological impact of genetic testing for cancer susceptibility: an update of the literature. Psycho-Oncology, 14, 1060-1074.
    • (2005) Psycho-Oncology , vol.14 , pp. 1060-1074
    • Meiser, B.1
  • 54
    • 0036790751 scopus 로고    scopus 로고
    • Psychological impact of genetic testing in women from high-risk breast cancer families
    • 1:STN:280:DC%2BD38nhvFWgtQ%3D%3D 12376208 10.1016/S0959-8049(02)00264-2
    • Meiser, B., Butow, P., Friedlander, M., Barratt, A., Schnieden, V., Watson, M., et al. (2002). Psychological impact of genetic testing in women from high-risk breast cancer families. European Journal of Cancer, 38, 2025-2031.
    • (2002) European Journal of Cancer , vol.38 , pp. 2025-2031
    • Meiser, B.1    Butow, P.2    Friedlander, M.3    Barratt, A.4    Schnieden, V.5    Watson, M.6
  • 55
    • 63849230777 scopus 로고    scopus 로고
    • Genetic counselling and testing for inherited gene mutations in newly diagnosed patients with breast cancer: A review of the existing literature and a proposed research agenda
    • 2656887 19090970 10.1186/bcr2194
    • Meiser, B., Tucker, K., Friedlander, M., Barlow-Stewart, K., Lobb, E., Saunders, C., et al. (2008). Genetic counselling and testing for inherited gene mutations in newly diagnosed patients with breast cancer: A review of the existing literature and a proposed research agenda. Breast Cancer Research, 10, 216.
    • (2008) Breast Cancer Research , vol.10 , pp. 216
    • Meiser, B.1    Tucker, K.2    Friedlander, M.3    Barlow-Stewart, K.4    Lobb, E.5    Saunders, C.6
  • 56
    • 51649084890 scopus 로고    scopus 로고
    • Risk perception and cancer worries in families at increased risk of familial breast/ovarian cancer
    • 3947579 18613300 10.1002/pon.1370
    • Mellon, S., Gold, R., Janisse, J., Cichon, M., Tainsky, M. A., Simon, M. S., et al. (2008). Risk perception and cancer worries in families at increased risk of familial breast/ovarian cancer. Psycho-Oncology, 17, 756-766.
    • (2008) Psycho-Oncology , vol.17 , pp. 756-766
    • Mellon, S.1    Gold, R.2    Janisse, J.3    Cichon, M.4    Tainsky, M.A.5    Simon, M.S.6
  • 57
    • 79551469166 scopus 로고    scopus 로고
    • Experiencing genetic counselling for hereditary cancers: The client's perspective
    • 1:STN:280:DC%2BC3M7lsFGksA%3D%3D 10.1111/j.1365-2354.2010.01201.x
    • Mendes, A. F., Santos, T. A., & Sousa, L. (2011). Experiencing genetic counselling for hereditary cancers: The client's perspective. European Journal of Cancer Care (Engl), 20, 204-211.
    • (2011) European Journal of Cancer Care (Engl) , vol.20 , pp. 204-211
    • Mendes, A.F.1    Santos, T.A.2    Sousa, L.3
  • 60
    • 0141676664 scopus 로고    scopus 로고
    • Psychosocial issues associated with genetic testing for breast and ovarian cancer risk: An integrative review
    • 14533449 10.1081/CNV-120022380
    • Pasacreta, J. V. (2003). Psychosocial issues associated with genetic testing for breast and ovarian cancer risk: an integrative review. Cancer Investigation, 21, 588-623.
    • (2003) Cancer Investigation , vol.21 , pp. 588-623
    • Pasacreta, J.V.1
  • 62
    • 44049091729 scopus 로고    scopus 로고
    • Outcome measurement in clinical genetics services: A systematic review of validated measures
    • 18489673 10.1111/j.1524-4733.2007.00259.x
    • Payne, K., Nicholls, S., McAllister, M., Macleod, R., Donnai, D., & Davies, L. M. (2008). Outcome measurement in clinical genetics services: A systematic review of validated measures. Value in Health, 11, 497-508.
    • (2008) Value in Health , vol.11 , pp. 497-508
    • Payne, K.1    Nicholls, S.2    McAllister, M.3    Macleod, R.4    Donnai, D.5    Davies, L.M.6
  • 63
    • 17444366160 scopus 로고    scopus 로고
    • Resisting medicines: A synthesis of qualitative studies of medicine taking
    • 10.1016/j.socscimed.2004.11.063
    • Pound, P., Britten, N., Morgan, M., Yardley, L., Pope, C., Daker-White, G., et al. (2005). Resisting medicines: A synthesis of qualitative studies of medicine taking. Social Science & Medicine, 61, 133-155.
    • (2005) Social Science & Medicine , vol.61 , pp. 133-155
    • Pound, P.1    Britten, N.2    Morgan, M.3    Yardley, L.4    Pope, C.5    Daker-White, G.6
  • 64
    • 33745025710 scopus 로고    scopus 로고
    • A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report
    • 16761103 10.1007/s10897-005-9014-3
    • Resta, R., Biesecker, B. B., Bennett, R. L., Blum, S., Hahn, S. E., Strecker, M. N., et al. (2006). A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report. Journal of Genetic Counseling, 15, 77-83.
    • (2006) Journal of Genetic Counseling , vol.15 , pp. 77-83
    • Resta, R.1    Biesecker, B.B.2    Bennett, R.L.3    Blum, S.4    Hahn, S.E.5    Strecker, M.N.6
  • 65
    • 84863615237 scopus 로고    scopus 로고
    • Essential elements of genetic cancer risk assessment, counseling, and testing: Updated recommendations of the National Society of Genetic Counselors
    • 22134580 10.1007/s10897-011-9462-x
    • Riley, B. D., Culver, J. O., Skrzynia, C., Senter, L. A., Peters, J. A., Costalas, J. W., et al. (2012). Essential elements of genetic cancer risk assessment, counseling, and testing: updated recommendations of the National Society of Genetic Counselors. Journal of Genetic Counseling, 21, 151-161.
    • (2012) Journal of Genetic Counseling , vol.21 , pp. 151-161
    • Riley, B.D.1    Culver, J.O.2    Skrzynia, C.3    Senter, L.A.4    Peters, J.A.5    Costalas, J.W.6
  • 66
    • 84858968129 scopus 로고    scopus 로고
    • Methods of synthesizing qualitative research studies for health technology assessment
    • 22004781 10.1017/S0266462311000389
    • Ring, N., Jepson, R., & Ritchie, K. (2011). Methods of synthesizing qualitative research studies for health technology assessment. International Journal of Technology Assessment in Health Care, 27, 384-390.
    • (2011) International Journal of Technology Assessment in Health Care , vol.27 , pp. 384-390
    • Ring, N.1    Jepson, R.2    Ritchie, K.3
  • 67
    • 33744818935 scopus 로고    scopus 로고
    • A literature review of the psychological impact of genetic testing on breast cancer patients
    • 16242293 10.1016/j.pec.2005.08.012
    • Schlich-Bakker, K. J., ten Kroode, H. F., & Ausems, M. G. (2006a). A literature review of the psychological impact of genetic testing on breast cancer patients. Patient Education and Counseling, 62, 13-20.
    • (2006) Patient Education and Counseling , vol.62 , pp. 13-20
    • Schlich-Bakker, K.J.1    Ten Kroode, H.F.2    Ausems, M.G.3
  • 69
    • 0033083916 scopus 로고    scopus 로고
    • The construction and testing of the EORTC colorectal cancer-specific quality of life questionnaire module (QLQ-CR38). European Organization for Research and Treatment of Cancer Study Group on Quality of Life
    • 1:STN:280:DyaK1Mznslektw%3D%3D 10448266 10.1016/S0959-8049(98)00357-8
    • Sprangers, M. A., te Velde, A., & Aaronson, N. K. (1999). The construction and testing of the EORTC colorectal cancer-specific quality of life questionnaire module (QLQ-CR38). European Organization for Research and Treatment of Cancer Study Group on Quality of Life. European Journal of Cancer, 35, 238-247.
    • (1999) European Journal of Cancer , vol.35 , pp. 238-247
    • Sprangers, M.A.1    Te Velde, A.2    Aaronson, N.K.3
  • 70
    • 60049098815 scopus 로고    scopus 로고
    • How does communication heal Pathways linking clinician-patient communication to health outcomes
    • 19150199 10.1016/j.pec.2008.11.015
    • Street, R. L., Jr., Makoul, G., Arora, N. K., & Epstein, R. M. (2009). How does communication heal Pathways linking clinician-patient communication to health outcomes. Patient Education and Counseling, 74, 295-301.
    • (2009) Patient Education and Counseling , vol.74 , pp. 295-301
    • Street, Jr.R.L.1    Makoul, G.2    Arora, N.K.3    Epstein, R.M.4
  • 71
    • 68449099032 scopus 로고    scopus 로고
    • Men in the women's world of hereditary breast and ovarian cancer-A systematic review
    • 19165626 10.1007/s10689-009-9232-1
    • Stromsvik, N., Raheim, M., Oyen, N., & Gjengedal, E. (2009). Men in the women's world of hereditary breast and ovarian cancer-a systematic review. Familial Cancer, 8, 221-229.
    • (2009) Familial Cancer , vol.8 , pp. 221-229
    • Stromsvik, N.1    Raheim, M.2    Oyen, N.3    Gjengedal, E.4
  • 72
    • 77956409195 scopus 로고    scopus 로고
    • Stigmatization and male identity: Norwegian males' experience after identification as BRCA1/2 mutation carriers
    • 20306122 10.1007/s10897-010-9293-1
    • Stromsvik, N., Raheim, M., Oyen, N., Engebretsen, L. F., & Gjengedal, E. (2010). Stigmatization and male identity: Norwegian males' experience after identification as BRCA1/2 mutation carriers. Journal of Genetic Counseling, 19, 360-370.
    • (2010) Journal of Genetic Counseling , vol.19 , pp. 360-370
    • Stromsvik, N.1    Raheim, M.2    Oyen, N.3    Engebretsen, L.F.4    Gjengedal, E.5
  • 73
    • 80055017996 scopus 로고    scopus 로고
    • Cancer worry among Norwegian male BRCA1/2 mutation carriers
    • 3175350 21603983 10.1007/s10689-011-9456-8
    • Stromsvik, N., Raheim, M., & Gjengedal, E. (2011). Cancer worry among Norwegian male BRCA1/2 mutation carriers. Familial Cancer, 10, 597-603.
    • (2011) Familial Cancer , vol.10 , pp. 597-603
    • Stromsvik, N.1    Raheim, M.2    Gjengedal, E.3
  • 74
    • 33846583726 scopus 로고    scopus 로고
    • Familial effects of BRCA1 genetic mutation testing: Changes in perceived family functioning
    • 1:CAS:528:DC%2BD2sXks1CktA%3D%3D 10.1158/1055-9965.EPI-06-0178
    • Stroup, A. M., & Smith, K. R. (2007). Familial effects of BRCA1 genetic mutation testing: changes in perceived family functioning. Cancer Epidemiology, Biomarkers & Prevention, 16, 135-141.
    • (2007) Cancer Epidemiology, Biomarkers & Prevention , vol.16 , pp. 135-141
    • Stroup, A.M.1    Smith, K.R.2
  • 75
    • 0036283684 scopus 로고    scopus 로고
    • Parent-child factors and their effect on communicating BRCA1/2 test results to children
    • 12191538 10.1016/S0738-3991(01)00192-6
    • Tercyak, K. P., Peshkin, B. N., DeMarco, T. A., Brogan, B. M., & Lerman, C. (2002). Parent-child factors and their effect on communicating BRCA1/2 test results to children. Patient Education and Counseling, 47, 145-153.
    • (2002) Patient Education and Counseling , vol.47 , pp. 145-153
    • Tercyak, K.P.1    Peshkin, B.N.2    DeMarco, T.A.3    Brogan, B.M.4    Lerman, C.5
  • 76
    • 35348959469 scopus 로고    scopus 로고
    • Information needs of mothers regarding communicating BRCA1/2 cancer genetic test results to their children
    • 2495765 17949286 10.1089/gte.2006.0534
    • Tercyak, K. P., Peshkin, B. N., DeMarco, T. A., Patenaude, A. F., Schneider, K. A., Garber, J. E., et al. (2007). Information needs of mothers regarding communicating BRCA1/2 cancer genetic test results to their children. Genetic Testing, 11, 249-255.
    • (2007) Genetic Testing , vol.11 , pp. 249-255
    • Tercyak, K.P.1    Peshkin, B.N.2    DeMarco, T.A.3    Patenaude, A.F.4    Schneider, K.A.5    Garber, J.E.6
  • 77
    • 3543088730 scopus 로고    scopus 로고
    • Genetic cancer risk assessment and counseling: Recommendations of the national society of genetic counselors
    • 15604628 10.1023/B:JOGC.0000018821.48330.77
    • Trepanier, A., Ahrens, M., McKinnon, W., Peters, J., Stopfer, J., Grumet, S. C., et al. (2004). Genetic cancer risk assessment and counseling: recommendations of the national society of genetic counselors. Journal of Genetic Counseling, 13, 83-114.
    • (2004) Journal of Genetic Counseling , vol.13 , pp. 83-114
    • Trepanier, A.1    Ahrens, M.2    McKinnon, W.3    Peters, J.4    Stopfer, J.5    Grumet, S.C.6
  • 78
    • 33644918325 scopus 로고    scopus 로고
    • Disengagement and social support moderate distress among women with a family history of breast cancer
    • 16409581 10.1111/j.1075-122X.2006.00178.x
    • Turner-Cobb, J. M., Bloor, L. E., Whittemore, A. S., West, D., & Spiegel, D. (2006). Disengagement and social support moderate distress among women with a family history of breast cancer. The Breast Journal, 12, 7-15.
    • (2006) The Breast Journal , vol.12 , pp. 7-15
    • Turner-Cobb, J.M.1    Bloor, L.E.2    Whittemore, A.S.3    West, D.4    Spiegel, D.5
  • 79
    • 35048876116 scopus 로고    scopus 로고
    • Psychosocial and behavioral impact of genetic counseling and testing
    • 17917142
    • Vadaparampil, S. T., Miree, C. A., Wilson, C., & Jacobsen, P. B. (2006). Psychosocial and behavioral impact of genetic counseling and testing. Breast Disease, 27, 97-108.
    • (2006) Breast Disease , vol.27 , pp. 97-108
    • Vadaparampil, S.T.1    Miree, C.A.2    Wilson, C.3    Jacobsen, P.B.4
  • 80
    • 65749150416 scopus 로고    scopus 로고
    • Experiences of genetic counseling for BRCA1/2 among recently diagnosed breast cancer patients: A qualitative inquiry
    • 19042271 10.1080/07347330802359586
    • Vadaparampil, S. T., Quinn, G. P., Brzosowicz, J., & Miree, C. A. (2008). Experiences of genetic counseling for BRCA1/2 among recently diagnosed breast cancer patients: A qualitative inquiry. Journal of Psychosocial Oncology, 26, 33-52.
    • (2008) Journal of Psychosocial Oncology , vol.26 , pp. 33-52
    • Vadaparampil, S.T.1    Quinn, G.P.2    Brzosowicz, J.3    Miree, C.A.4
  • 81
    • 84876040668 scopus 로고    scopus 로고
    • The counselees' self-reported request for psychological help in genetic counseling for hereditary breast/ovarian cancer: Not only psychopathology matters
    • Vos, J., van Asperen, C. J., Oosterwijk, J. C., Menko, F. H., Collee, M. J., Garcia, E. G. et al. (2013). The counselees' self-reported request for psychological help in genetic counseling for hereditary breast/ovarian cancer: not only psychopathology matters. Psycho-Oncology, 22, 902-910.
    • (2013) Psycho-Oncology , vol.22 , pp. 902-910
    • Vos, J.1    Van Asperen, C.J.2    Oosterwijk, J.C.3    Menko, F.H.4    Collee, M.J.5    Garcia, E.G.6
  • 83
    • 4344572889 scopus 로고    scopus 로고
    • Lay understanding of familial risk of common chronic diseases: A systematic review and synthesis of qualitative research
    • 1466757 15576545 10.1370/afm.242
    • Walter, F. M., Emery, J., Braithwaite, D., & Marteau, T. M. (2004). Lay understanding of familial risk of common chronic diseases: A systematic review and synthesis of qualitative research. Annals of Family Medicine, 2, 583-594.
    • (2004) Annals of Family Medicine , vol.2 , pp. 583-594
    • Walter, F.M.1    Emery, J.2    Braithwaite, D.3    Marteau, T.M.4


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