메뉴 건너뛰기




Volumn 19, Issue 4, 2010, Pages 360-370

Stigmatization and male identity: Norwegian males' experience after identification as BRCA1/2 mutation carriers

Author keywords

Breast and ovarian cancer; Male BRCA1 2 mutation carriers; Male genetic stigmatization; Males in HBOC families; Men and genetic counseling

Indexed keywords

ARTICLE; EMOTION; FEMALE; GENETIC COUNSELING; HETEROZYGOTE DETECTION; HUMAN; MALE; MUTATION; NORWAY; SOCIAL PSYCHOLOGY; TUMOR SUPPRESSOR GENE;

EID: 77956409195     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-010-9293-1     Document Type: Article
Times cited : (27)

References (52)
  • 1
    • 77956404338 scopus 로고    scopus 로고
    • Act of 5 December No. 100 relating to the application of biotechnology in human medicine etc. Norwegian legislation 2003
    • Act of 5 December No. 100 relating to the application of biotechnology in human medicine etc. http://www.lovdata.com/index-lov.html. Norwegian legislation 2003.
  • 3
    • 0242266947 scopus 로고    scopus 로고
    • Testing Participation in BRCA1/2-Positive Families: Initiator Role of Index Cases
    • DOI 10.1089/109065703322537241
    • C Blandy F Chabal D Stoppa-Lyonnet C Julian-Reynier 2003 Testing participation in BRCA1/2-positive families: initiator role of index cases Genetic Test 7 3 225 233 10.1089/109065703322537241 (Pubitemid 37363082)
    • (2003) Genetic Testing , vol.7 , Issue.3 , pp. 225-233
    • Blandy, C.1    Chabal, F.2    Stoppa-Lyonnet, D.3    Julian-Reynier, C.4
  • 5
    • 39749118704 scopus 로고    scopus 로고
    • Engagement with genetic discrimination: Concerns and experiences in the context of Huntington disease
    • DOI 10.1038/sj.ejhg.5201937, PII 5201937
    • Y Bombard E Penziner O Suchowersky M Guttman JS Paulsen JL Bottorff, et al. 2008 Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease European Journal of Human Genetics 16 3 279 289 10.1038/sj.ejhg.5201937 17957229 (Pubitemid 351292228)
    • (2008) European Journal of Human Genetics , vol.16 , Issue.3 , pp. 279-289
    • Bombard, Y.1    Penziner, E.2    Suchowersky, O.3    Guttman, M.4    Paulsen, J.S.5    Bottorff, J.L.6    Hayden, M.R.7
  • 6
    • 85010612299 scopus 로고    scopus 로고
    • Perceptions of genetic discrimination among people at risk for Huntington's disease: A cross sectional survey
    • 10.1136/bmj.b2175 19509425
    • Y Bombard G Veenstra JM Friedman S Creighton L Currie JS Paulsen, et al. 2009 Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey British Medical Journal 338 b2175 10.1136/bmj.b2175 19509425
    • (2009) British Medical Journal , vol.338 , pp. 2175
    • Bombard, Y.1    Veenstra, G.2    Friedman, J.M.3    Creighton, S.4    Currie, L.5    Paulsen, J.S.6
  • 7
    • 0037182749 scopus 로고    scopus 로고
    • The concept of hope in nursing 1: Its origins, background and nature
    • 12131834
    • JR Cutcliffe K Herth 2002 The concept of hope in nursing 1: its origins, background and nature British Journal of Nursing 11 12 832 840 12131834
    • (2002) British Journal of Nursing , vol.11 , Issue.12 , pp. 832-840
    • Cutcliffe, J.R.1    Herth, K.2
  • 8
    • 0034997291 scopus 로고    scopus 로고
    • Experiences of genetic risk: Disclosure and the gendering of responsibility
    • 10.1111/1467-8519.00234 11700677
    • L d'Agincourt-Canning 2001 Experiences of genetic risk: disclosure and the gendering of responsibility Bioethics 15 3 231 247 10.1111/1467-8519.00234 11700677
    • (2001) Bioethics , vol.15 , Issue.3 , pp. 231-247
    • D'Agincourt-Canning, L.1
  • 9
    • 33646069662 scopus 로고    scopus 로고
    • Genetic testing for hereditary cancers: The impact of gender on interest, uptake and ethical considerations
    • 10.1016/j.critrevonc.2006.03.001 16600617
    • L d'Agincourt-Canning P Baird 2006 Genetic testing for hereditary cancers: the impact of gender on interest, uptake and ethical considerations Critical Reviews in Oncology/Hematology 58 2 114 123 10.1016/j.critrevonc.2006. 03.001 16600617
    • (2006) Critical Reviews in Oncology/Hematology , vol.58 , Issue.2 , pp. 114-123
    • D'Agincourt-Canning, L.1    Baird, P.2
  • 10
    • 77956418914 scopus 로고    scopus 로고
    • Paper presented at the 30th Annual San Antonio Breast Cancer Symposium, San Antonio, Texas, USA.
    • Daly, M. B. (2007). Adressing the needs of men in BRCA1/2 families. Paper presented at the 30th Annual San Antonio Breast Cancer Symposium, San Antonio, Texas, USA.
    • (2007) Adressing the Needs of Men in BRCA1/2 Families
    • Daly, M.B.1
  • 11
    • 68449104651 scopus 로고    scopus 로고
    • The impact of social roles on the experience of men in BRCA1/2 families: Implications for counseling
    • Daly, M. B. (2008). The impact of social roles on the experience of men in BRCA1/2 families: implications for counseling. Journal of Genetic Counseling.
    • (2008) Journal of Genetic Counseling
    • Daly, M.B.1
  • 13
    • 0029840638 scopus 로고    scopus 로고
    • Males at-risk for the BRCA1-gene, the psychological impact
    • DOI 10.1002/(SICI)1099-1611(199609)5:3<251::AID-PON225>3.0.CO;2-6
    • AC Dudok de Wit A Tibben PG Frets EJ Meijers-Heijboer P Devilee MF Niermeijer 1996 Males at-risk for the BRCA1 gene, the psychological impact Psycho-Oncology 5 251 257 10.1002/(SICI)1099-1611(199609)5:3<251::AID- PON225>3.0.CO;2-6 (Pubitemid 26316371)
    • (1996) Psycho-Oncology , vol.5 , Issue.3 , pp. 251-257
    • De Dudok Wit, A.C.1    Tibben, A.2    Frets, P.G.3    Meijers-Heijboer, E.J.4    Devilee, P.5    Niermeijer, M.F.6
  • 15
    • 0141921347 scopus 로고    scopus 로고
    • To tell or not to tell: Barriers and facilitators in family communication about genetic risk
    • DOI 10.1034/j.1399-0004.2003.00142.x
    • K Forrest SA Simpson BJ Wilson ER van Teijlingen L McKee N Haites, et al. 2003 To tell or not to tell: barriers and facilitators in family communication about genetic risk Clinical Genetics 64 4 317 326 10.1034/j.1399-0004.2003. 00142.x 12974737 (Pubitemid 37236132)
    • (2003) Clinical Genetics , vol.64 , Issue.4 , pp. 317-326
    • Forrest, K.1    Simpson, S.A.2    Wilson, B.J.3    Van Teijlingen, E.R.4    McKee, L.5    Haites, N.6    Matthews, E.7
  • 16
    • 0036180726 scopus 로고    scopus 로고
    • How gender affects patterns of social relations and their impact on health: A comparison of one or multiple sources of support from "close persons"
    • DOI 10.1016/S0277-9536(01)00111-3, PII S0277953601001113
    • R Fuhrer SA Stansfeld 2002 How gender affects patterns of social relations and their impact on health: a comparison of one or multiple sources of support from "close persons" Social Science & Medicine 54 5 811 825 10.1016/S0277-9536(01)00111-3 (Pubitemid 34158700)
    • (2002) Social Science and Medicine , vol.54 , Issue.5 , pp. 811-825
    • Fuhrer, R.1    Stansfeld, S.A.2
  • 22
    • 0001594559 scopus 로고    scopus 로고
    • Family communication and genetic counseling: The case of hereditary breast and ovarian cancer
    • J Green M Richards F Murton H Statham N Hallowell 1997 Family communication and genetic counselling: the case of hereditary breast and ovarian cancer Journal of Genetic Counseling 6 45 60 10.1023/A:1025611818643 (Pubitemid 127716866)
    • (1997) Journal of Genetic Counseling , vol.6 , Issue.1 , pp. 45-60
    • Green, J.1    Richards, M.2    Murton, F.3    Statham, H.4    Hallowell, N.5
  • 23
    • 18344381796 scopus 로고    scopus 로고
    • Communication about genetic testing in families of male BRCA1/2 carriers and non-carriers: Patterns, priorities and problems
    • DOI 10.1111/j.1399-0004.2005.00443.x
    • N Hallowell A Ardern-Jones R Eeles C Foster A Lucassen C Moynihan, et al. 2005 Communication about genetic testing in families of male BRCA1/2 carriers and non-carriers: patterns, priorities and problems Clinical Genetics 67 6 492 502 10.1111/j.1399-0004.2005.00443.x 15857416 (Pubitemid 40637447)
    • (2005) Clinical Genetics , vol.67 , Issue.6 , pp. 492-502
    • Hallowell, N.1    Ardern-Jones, A.2    Eeles, R.3    Foster, C.4    Lucassen, A.5    Moynihan, C.6    Watson, M.7
  • 25
    • 33845420082 scopus 로고    scopus 로고
    • Guilt, blame and responsibility: Men's understanding of their role in the transmission of BRCA1/2 mutations within their family
    • 17163862
    • N Hallowell A Arden-Jones R Eeles C Foster A Lucassen C Moynihan, et al. 2006 Guilt, blame and responsibility: men's understanding of their role in the transmission of BRCA1/2 mutations within their family Sociology of Health Illness 28 7 969 988 17163862
    • (2006) Sociology of Health Illness , vol.28 , Issue.7 , pp. 969-988
    • Hallowell, N.1    Arden-Jones, A.2    Eeles, R.3    Foster, C.4    Lucassen, A.5    Moynihan, C.6
  • 26
    • 38949179219 scopus 로고    scopus 로고
    • Interpersonal Responses Among Sibling Dyads Tested for BRCA1/BRCA2 Gene Mutations
    • DOI 10.1037/0278-6133.27.1.100, PII S0278613308600144
    • HA Hamann TW Smith KR Smith RT Croyle JM Ruiz JC Kircher, et al. 2008 Interpersonal responses among sibling dyads tested for BRCA1/BRCA2 gene mutations Health Psychology 27 1 100 109 10.1037/0278-6133.27.1.100 18230020 (Pubitemid 351215353)
    • (2008) Health Psychology , vol.27 , Issue.1 , pp. 100-109
    • Hamann, H.A.1    Smith, T.W.2    Smith, K.R.3    Croyle, R.T.4    Ruiz, J.M.5    Kircher, J.C.6    Botkin, J.R.7
  • 27
    • 0027349376 scopus 로고
    • Social support and long-term recovery from coronary artery surgery: Effects on patients and spouses
    • 10.1037/0278-6133.12.1.56 8462500
    • KB King HT Reis LA Porter LH Norsen 1993 Social support and long-term recovery from coronary artery surgery: effects on patients and spouses Health Psychology 12 1 56 63 10.1037/0278-6133.12.1.56 8462500
    • (1993) Health Psychology , vol.12 , Issue.1 , pp. 56-63
    • King, K.B.1    Reis, H.T.2    Porter, L.A.3    Norsen, L.H.4
  • 28
    • 51649111254 scopus 로고    scopus 로고
    • Sisters in hereditary breast and ovarian cancer families: Communal coping, social integration, and psychological well-being
    • 10.1002/pon.1373 18688790
    • LM Koehly JA Peters N Kuhn L Hoskins A Letocha R Kenen, et al. 2008 Sisters in hereditary breast and ovarian cancer families: communal coping, social integration, and psychological well-being Psychooncology 17 8 812 821 10.1002/pon.1373 18688790
    • (2008) Psychooncology , vol.17 , Issue.8 , pp. 812-821
    • Koehly, L.M.1    Peters, J.A.2    Kuhn, N.3    Hoskins, L.4    Letocha, A.5    Kenen, R.6
  • 30
    • 33846203984 scopus 로고    scopus 로고
    • Cancer risks among BRCA1 and BRCA2 mutation carriers
    • DOI 10.1038/sj.bjc.6603535, PII 6603535
    • E Levy-Lahad E Friedman 2007 Cancer risks among BRCA1 and BRCA2 mutation carriers British Journal of Cancer 96 1 11 15 10.1038/sj.bjc.6603535 17213823 (Pubitemid 46094632)
    • (2007) British Journal of Cancer , vol.96 , Issue.1 , pp. 11-15
    • Levy-Lahad, E.1    Friedman, E.2
  • 31
    • 0033652299 scopus 로고    scopus 로고
    • Evaluation of the needs of male carriers of mutations in BRCA1 or BRCA2 who have undergone genetic counseling
    • 10.1086/316907 11063672
    • A Liede K Metcalfe D Hanna E Hoodfar C Snyder C Durham, et al. 2000 Evaluation of the needs of male carriers of mutations in BRCA1 or BRCA2 who have undergone genetic counseling American Journal of Human Genetics 67 6 1494 1504 10.1086/316907 11063672
    • (2000) American Journal of Human Genetics , vol.67 , Issue.6 , pp. 1494-1504
    • Liede, A.1    Metcalfe, K.2    Hanna, D.3    Hoodfar, E.4    Snyder, C.5    Durham, C.6
  • 32
    • 1442307845 scopus 로고    scopus 로고
    • Cancer risks for male carriers of germline mutations in BRCA1 or BRCA2: A review of the literature
    • DOI 10.1200/JCO.2004.05.055
    • A Liede BY Karlan SA Narod 2004 Cancer risks for male carriers of germline mutations in BRCA1 or BRCA2: a review of the literature Journal of Clinical Oncology 22 4 735 742 10.1200/JCO.2004.05.055 14966099 (Pubitemid 41095079)
    • (2004) Journal of Clinical Oncology , vol.22 , Issue.4 , pp. 735-742
    • Liede, A.1    Karlan, B.Y.2    Narod, S.A.3
  • 34
    • 30744445981 scopus 로고    scopus 로고
    • Hereditary breast and ovarian cancer: Review and future perspectives
    • DOI 10.1007/s00109-005-0696-7
    • MP Lux PA Fasching MW Beckmann 2006 Hereditary breast and ovarian cancer: review and future perspectives Journal of Molecular Medecine 84 1 16 28 10.1007/s00109-005-0696-7 (Pubitemid 43099520)
    • (2006) Journal of Molecular Medicine , vol.84 , Issue.1 , pp. 16-28
    • Lux, M.P.1    Fasching, P.A.2    Beckmann, M.W.3
  • 35
    • 34247585580 scopus 로고    scopus 로고
    • Masculinity and perceived normative health behaviors as predictors of men's health behaviors
    • DOI 10.1016/j.socscimed.2007.02.035, PII S0277953607000846
    • JR Mahalik SM Burns M Syzdek 2007 Masculinity and perceived normative health behaviors as predictors of men's health behaviors Social Science & Medicine 64 11 2201 2209 10.1016/j.socscimed.2007.02.035 (Pubitemid 46678583)
    • (2007) Social Science and Medicine , vol.64 , Issue.11 , pp. 2201-2209
    • Mahalik, J.R.1    Burns, S.M.2    Syzdek, M.3
  • 36
    • 0035845256 scopus 로고    scopus 로고
    • Qualitative research: Standards, challenges, and guidelines
    • DOI 10.1016/S0140-6736(01)05627-6
    • K Malterud 2001 Qualitative research: standards, challenges, and guidelines Lancet 358 9280 483 488 10.1016/S0140-6736(01)05627-6 11513933 (Pubitemid 32769861)
    • (2001) Lancet , vol.358 , Issue.9280 , pp. 483-488
    • Malterud, K.1
  • 37
    • 0031847821 scopus 로고    scopus 로고
    • Men in breast cancer families: A preliminary qualitative study of awareness and experience
    • 10.1136/jmg.35.9.739
    • MF McAllister DG Evans W Ormiston P Daly 1998 Men in breast cancer families: a preliminary qualitative study of awareness and experience Journal Medicine of Genetics 35 9 739 744 10.1136/jmg.35.9.739
    • (1998) Journal Medicine of Genetics , vol.35 , Issue.9 , pp. 739-744
    • McAllister, M.F.1    Evans, D.G.2    Ormiston, W.3    Daly, P.4
  • 40
    • 53249117184 scopus 로고    scopus 로고
    • Family communication between children and their parents about inherited genetic conditions: A meta-synthesis of the research
    • 10.1038/ejhg.2008.84 18431405
    • A Metcalfe J Coad GM Plumridge P Gill P Farndon 2008 Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research European Journal of Human Genetics 16 10 1193 1200 10.1038/ejhg.2008.84 18431405
    • (2008) European Journal of Human Genetics , vol.16 , Issue.10 , pp. 1193-1200
    • Metcalfe, A.1    Coad, J.2    Plumridge, G.M.3    Gill, P.4    Farndon, P.5
  • 43
    • 2342617580 scopus 로고    scopus 로고
    • An investigation of genetic counselors' discussions of genetic discrimination with cancer risk patients
    • DOI 10.1023/A:1025816820243
    • NL Pfeffer PM Veach BS LeRoy 2003 An investigation of genetic counselors' discussion of genetic discrimination with cancer risk patients Journal of Genet Counseling 12 5 419 438 10.1023/A:1025816820243 (Pubitemid 39024186)
    • (2003) Journal of Genetic Counseling , vol.12 , Issue.5 , pp. 419-438
    • Pfeffer, N.L.1    Veach, P.M.2    LeRoy, B.S.3
  • 45
    • 34249944400 scopus 로고    scopus 로고
    • Picking a frame for communicating about genetics: Stigmas or challenges
    • DOI 10.1007/s10897-006-9075-y
    • RA Smith 2007 Picking a frame for communicating about genetics: stigmas or challenges Journal of Genetic Counseling 16 3 289 298 10.1007/s10897-006- 9075-y 17476468 (Pubitemid 46878633)
    • (2007) Journal of Genetic Counseling , vol.16 , Issue.3 , pp. 289-298
    • Smith, R.A.1
  • 46
    • 68449099032 scopus 로고    scopus 로고
    • Men in the women's world of hereditary breast and ovarian cancer-a systematic review
    • Stromsvik, N., Raheim, M., Oyen, N., & Gjengedal, E. (2009). Men in the women's world of hereditary breast and ovarian cancer-a systematic review. Family Cancer.
    • (2009) Family Cancer
    • Stromsvik, N.1    Raheim, M.2    Oyen, N.3    Gjengedal, E.4
  • 47
    • 33846583726 scopus 로고    scopus 로고
    • Familial effects of BRCA1 genetic mutation testing: Changes in perceived family functioning
    • DOI 10.1158/1055-9965.EPI-06-0178
    • AM Stroup KR Smith 2007 Familial effects of BRCA1 genetic mutation testing: changes in perceived family functioning Cancer Epidemiology Biomarkers Prevention 16 1 135 141 10.1158/1055-9965.EPI-06-0178 (Pubitemid 46174276)
    • (2007) Cancer Epidemiology Biomarkers and Prevention , vol.16 , Issue.1 , pp. 135-141
    • Stroup, A.M.1    Smith, K.R.2
  • 48
    • 21044433922 scopus 로고    scopus 로고
    • Gender differences in attitudes among those at risk for Huntington's disease
    • DOI 10.1089/gte.2005.9.152
    • S Taylor 2005 Gender differences in attitudes among those at risk for Huntington's disease Genetic Test 9 2 152 157 10.1089/gte.2005.9.152 (Pubitemid 40875016)
    • (2005) Genetic Testing , vol.9 , Issue.2 , pp. 152-157
    • Taylor, S.1
  • 49
    • 45149104257 scopus 로고    scopus 로고
    • Investigating genetic discrimination in Australia: A large-scale survey of clinical genetics clients
    • DOI 10.1111/j.1399-0004.2008.01016.x
    • S Taylor S Treloar K Barlow-Stewart M Stranger M Otlowski 2008 Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients Clinical Genetics 74 1 20 30 10.1111/j.1399-0004.2008. 01016.x 18492091 (Pubitemid 351833815)
    • (2008) Clinical Genetics , vol.74 , Issue.1 , pp. 20-30
    • Taylor, S.1    Treloar, S.2    Barlow-Stewart, K.3    Stranger, M.4    Otlowski, M.5
  • 51
    • 0035125062 scopus 로고    scopus 로고
    • Variation in cancer risks, by mutation position, in BRCA2 mutation carriers
    • DOI 10.1086/318181
    • D Thompson D Easton 2001 Variation in cancer risks, by mutation position, in BRCA2 mutation carriers American Journal of Human Genetics 68 2 410 419 10.1086/318181 11170890 (Pubitemid 32147810)
    • (2001) American Journal of Human Genetics , vol.68 , Issue.2 , pp. 410-419
    • Thompson, D.1    Easton, D.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.