The end-of-life experience: Modifiable predictors of caregivers' bereavement adjustment

Cancer

Volumn 120, Issue 6, 2014, Pages 918-925

  Garrido, Melissa M ^a,b   Prigerson, Holly G ^c  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^c HARVARD MEDICAL SCHOOL   (United States)

Author keywords

bereavement; depression; end of life care; quality of life; regrets

Indexed keywords

ADULT; ADVANCED CANCER; AGED; ANXIETY DISORDER; ARTICLE; BEREAVEMENT; CANCER MORTALITY; CANCER PATIENT; CAREGIVER BURDEN; COPING BEHAVIOR; DEPRESSION; DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS; DISTRESS SYNDROME; FEMALE; HUMAN; INCIDENCE; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MENTAL FUNCTION; OUTCOME ASSESSMENT; PERSONAL EXPERIENCE; PREDICTION; PRIORITY JOURNAL; QUALITY OF LIFE; RESUSCITATION; RISK REDUCTION; SHORT FORM 36; SOCIAL BEHAVIOR; STANDARDIZATION; STRUCTURED INTERVIEW; VERY ELDERLY; YOUNG ADULT;

BEREAVEMENT; DEPRESSION; END-OF-LIFE CARE; QUALITY OF LIFE; REGRETS;

ADULT; ADVANCE DIRECTIVE ADHERENCE; ADVANCE DIRECTIVES; AGED; AGED, 80 AND OVER; ATTITUDE TO DEATH; BEREAVEMENT; CAREGIVERS; EMOTIONS; FEMALE; HUMANS; MALE; MENTAL HEALTH; MIDDLE AGED; NEOPLASMS; QUALITY OF LIFE; QUESTIONNAIRES; RELIGION AND PSYCHOLOGY; TERMINAL CARE; YOUNG ADULT;

EID: 84896717717     PISSN: 0008543X     EISSN: 10970142     Source Type: Journal    
DOI: 10.1002/cncr.28495     Document Type: Article

References (38)

1. Cole MG, Dendukuri N,. Risk factors for depression among elderly community subjects: a systematic review and meta-analysis. Am J Psychiatry. 2003; 160: 1147-1156. (Pubitemid 41070975)
2. Zivin K, Christakis NA,. The emotional toll of spousal morbidity and mortality. Am J Geriatr Psychiatry. 2007; 15: 772-779.
3. Bruce ML, Kim K, Leaf PJ, Jacobs S,. Depressive episodes and dysphoria resulting from conjugal bereavement in a prospective community sample. Am J Psychiatry. 1990; 147: 608-611. (Pubitemid 20153431)
4. Stroebe M, Schut H, Stroebe W,. Health outcomes of bereavement. Lancet. 2007; 370: 1960-1973. (Pubitemid 350192658)
5. Boerner K, Schulz R, Horowitz A,. Positive aspects of caregiving and adaptation to bereavement. Psychol Aging. 2004; 19: 668-675. (Pubitemid 39610539)
6. Lichtenthal WG, Nilsson M, Kissane DW, et al. Underutilization of mental health services among bereaved caregivers with prolonged grief disorder. Psychiatr Serv. 2011; 62: 1225-1229.
7. Fenix JB, Cherlin EJ, Prigerson HG, et al. Religiousness and major depression among bereaved family caregivers: a 13-month follow-up study. J Palliat Care. 2006; 22: 286-292.
8. Hebert RS, Prigerson HG, Schulz R, Arnold RM,. Preparing caregivers for the death of a loved one: a theoretical framework and suggestions for future research. J Palliat Med. 2006; 9: 1164-1171. (Pubitemid 44759950)
9. Wright AA, Zhang B, Ray A, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008; 300: 1665-1673.
10. Wright AA, Keating NL, Balboni TA, et al. Place of death: correlations with quality of life of patients with cancer and predictors of bereaved caregivers' mental health. J Clin Oncol. 2010; 28: 4457-4464.
11. Johnson JG, Zhang B, Prigerson HG,. Investigation of a developmental model of risk for depression and suicidality following spousal bereavement. Suicide Life Threat Behav. 2008; 38: 1-12. (Pubitemid 351481862)
12. Mullan JT,. The bereaved caregiver: a prospective study of changes in well-being. Gerontologist. 1992; 32: 673-683.
13. Schulz R, Mendelsohn AB, Haley WE, et al. End-of-life care and the effects of bereavement on family caregivers of persons with dementia. N Engl J Med. 2003; 349: 1936-1942. (Pubitemid 37409711)
14. Zhang B, Nilsson ME, Prigerson HG,. Factors important to patients' quality of life at the end of life. Arch Intern Med. 2012; 172: 1133-1142.
15. Temel JS, Greer JA, Muzikansky A, et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010; 363: 733-742.
16. Balboni T, Balboni M, Paulk ME, et al. Support of cancer patients' spiritual needs and associations with medical care costs at the end of life. Cancer. 2011; 117: 5383-5391.
17. Pfeiffer E,. A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. J Am Geriatr Soc. 1975; 23: 433-441.
18. McHorney CA, Ware JE Jr, Raczek AE,. The MOS 36-Item Short-Form Health Survey (SF-36), II: Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care. 1993; 31: 247-263.
19. First MB, Spitzer RL, Gibbon M, Williams JBW,. Structured Clinical Interview for the DSM-IV TR Axis I Disorders-Patient Edition (SCID-I/P). Version 2.0. New York: Biometrics Research, New York State Psychiatric Institute; 1995.
20. Mack JW, Block SD, Nilsson M, et al. Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection Scale. Cancer. 2009; 115: 3302-3311.
21. Cohen SR, Mount BM, Bruera E, Provost M, Rowe J, Tong K,. Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain. Palliat Med. 1997; 11: 3-20. (Pubitemid 27089236)
22. Fetzer Institute/National Institute on Aging Working Group. Multidimensional Measurement of Religiousness/Spirituality for Use in Health Research: A Report of the Fetzer Institute/National Institute on Aging Work Group. Kalamazoo, MI: John E. Fetzer Institute; 1999.
23. Pargament KI, Koenig HG, Perez LM,. The many methods of religious coping: development and initial validation of the RCOPE. J Clin Psychol. 2000; 56: 519-543. (Pubitemid 30196651)
24. Garrido MM, Idler EL, Leventhal H, Carr D,. Pathways from religion to advance care planning: beliefs about control over length of life and end-of-life values. Gerontologist. 2013; 53: 801-816.
25. Akaike H,. A new look at the statistical model identification. IEEE Trans Automat Contr. 1974; 19: 716-723.
26. Sugiura N,. Further analysis of the data by Akaike's information criterion and the finite corrections. Commun Stat Theory Methods. 1978; 7: 13-26.
27. Burnham KP, Anderson DR,. Model Selection and Multimodel Inference: A Practical Information-Theoretic Approach. 2nd ed. New York: Springer-Verlag; 2002.
28. Efron B, Hastie T, Johnstone I, Tibshirani R,. Least angle regression. Ann Statist. 2004; 32: 407-451.
29. Hastie T, Tibshirani R, Friedman JH,. The Elements of Statistical Learning. 2nd ed. New York: Springer-Verlag; 2009.
30. Baron RM, Kenny DA,. The moderator-mediator variable distinction in social psychological research: conceptual, strategic, and statistical considerations. J Pers Soc Psychol. 1986; 51: 1173-1182.
31. Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA,. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000; 284: 2476-2482.
32. van den Heuvel ET, de Witte LP, Schure LM, Sanderman R, Meyboom-de Jong B,. Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clin Rehabil. 2001; 15: 669-677. (Pubitemid 33138428)
33. Ybema JF, Kuijer RG, Hagedoorn M, Buunk BP,. Caregiver burnout among intimate partners of patients with a severe illness: an equity perspective. Pers Relatsh. 2002; 9: 73-88. (Pubitemid 36836897)
34. Mack JW, Weeks JC, Wright AA, Block SD, Prigerson HG,. End-of-life discussions, goal attainment, and distress at the end of life: Predictors and outcomes of receipt of care consistent with preferences. J Clin Oncol. 2010; 28: 1203-1208.
35. Volandes AE, Paasche-Orlow MK, Mitchell SL, et al. Randomized controlled trial of a video decision support tool for cardiopulmonary resuscitation decision making in advanced cancer. J Clin Oncol. 2013; 31: 380-386.
36. Allison TA, Sudore RL,. Disregard of patients' preferences is a medical error: comment on "Failure to engage hospitalized elderly patients and their families in advance care planning." JAMA Intern Med. 2013; 173: 787.
37. Schulz R, Hebert R, Boerner K,. Bereavement after caregiving. Geriatrics. 2008; 63: 20-22. (Pubitemid 351160022)
38. Teno JM, Gozalo PL, Bynum JP, et al. Change in end-of-life care for Medicare beneficiaries: site of death, place of care, and health care transitions in 2000, 2005, and 2009. JAMA. 2013; 309: 470-477.