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Volumn 9, Issue 5, 2006, Pages 1164-1171

Preparing caregivers for the death of a loved one: A theoretical framework and suggestions for future research

Author keywords

[No Author keywords available]

Indexed keywords

BEREAVEMENT; CAREGIVER; DEATH; HIGH RISK POPULATION; HUMAN; MENTAL HEALTH; OUTCOME ASSESSMENT; REVIEW; STRESS; TERMINAL DISEASE; THEORETICAL MODEL; WELLBEING;

EID: 33751045314     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2006.9.1164     Document Type: Review
Times cited : (147)

References (63)
  • 1
    • 33751032152 scopus 로고    scopus 로고
    • Last accessed on January 26, 2006
    • National Center for Health Statistics: Faststats A to Z. Death/Mortality. 2002 (www.cdc.gov/nchs/fastats/ deaths.htm) (Last accessed on January 26, 2006).
    • (2002) Faststats A to Z. Death/Mortality
  • 2
    • 0033598322 scopus 로고    scopus 로고
    • Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients
    • Emanuel EJ, Fairclough DL, Slutsman J, Alpert H, Baldwin D, Emanuel LL: Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients. N Engl J Med 1999;341:956-963.
    • (1999) N Engl J Med , vol.341 , pp. 956-963
    • Emanuel, E.J.1    Fairclough, D.L.2    Slutsman, J.3    Alpert, H.4    Baldwin, D.5    Emanuel, L.L.6
  • 3
    • 0242320966 scopus 로고    scopus 로고
    • The costs of family caregiving: Implications for geriatric oncology
    • Haley WE: The costs of family caregiving: Implications for geriatric oncology. Crit Rev Oncol Hematol 2003;48:151-158.
    • (2003) Crit Rev Oncol Hematol , vol.48 , pp. 151-158
    • Haley, W.E.1
  • 4
    • 0035747769 scopus 로고    scopus 로고
    • Family caregiving in hospice: Effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia
    • Haley WE, LaMonde LA, Han B, Narramore S, Schonwetter R: Family caregiving in hospice: Effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia. Hosp J 2001;15:1-18.
    • (2001) Hosp J , vol.15 , pp. 1-18
    • Haley, W.E.1    LaMonde, L.A.2    Han, B.3    Narramore, S.4    Schonwetter, R.5
  • 5
    • 0025955219 scopus 로고
    • Depression through the first year after the death of a spouse
    • Zisook S, Shuchter SR: Depression through the first year after the death of a spouse. Am J Psychiatry 1991;148:1346-1352.
    • (1991) Am J Psychiatry , vol.148 , pp. 1346-1352
    • Zisook, S.1    Shuchter, S.R.2
  • 7
    • 0041675995 scopus 로고    scopus 로고
    • Risk factors in bereavement outcome: A methodological and emperical review
    • Stroebe MS, Hansson RO, Stroebe W, Schut H (eds). Washington, D.C.: American Psychological Association
    • Stroebe W, Schut H: Risk factors in bereavement outcome: A methodological and emperical review. In: Stroebe MS, Hansson RO, Stroebe W, Schut H (eds): Handbook of Bereavement Research: Consequences, Coping, and Care. Washington, D.C.: American Psychological Association, 2001, pp. 349-371.
    • (2001) Handbook of Bereavement Research: Consequences, Coping, and Care , pp. 349-371
    • Stroebe, W.1    Schut, H.2
  • 8
    • 23244466604 scopus 로고    scopus 로고
    • Racial and ethnic differences in the relationship of caregiving Stressors, resources, and sociodemographic variables to caregiver depression and perceived physical health
    • Sorensen S, Pinquart M: Racial and ethnic differences in the relationship of caregiving Stressors, resources, and sociodemographic variables to caregiver depression and perceived physical health. Aging Ment Health 2005;9:482-495.
    • (2005) Aging Ment Health , vol.9 , pp. 482-495
    • Sorensen, S.1    Pinquart, M.2
  • 9
    • 0032608609 scopus 로고    scopus 로고
    • Families' awareness of and response to dying
    • Yates P, Stetz KM: Families' awareness of and response to dying. Oncol Nurs Forum 1999;26:113-120.
    • (1999) Oncol Nurs Forum , vol.26 , pp. 113-120
    • Yates, P.1    Stetz, K.M.2
  • 11
    • 0036305942 scopus 로고    scopus 로고
    • Psychiatric disorders among bereaved persons: The role of perceived circumstances of death and preparedness for death
    • Barry LC, Kasl SV, Prigerson HG: Psychiatric disorders among bereaved persons: The role of perceived circumstances of death and preparedness for death. Am J Geriatr Psychiatry 2002;10:447-457.
    • (2002) Am J Geriatr Psychiatry , vol.10 , pp. 447-457
    • Barry, L.C.1    Kasl, S.V.2    Prigerson, H.G.3
  • 12
    • 33745295866 scopus 로고    scopus 로고
    • Preparedness for the death of a loved one and mental health in bereaved caregivers of dementia patients: Findings from the REACH study
    • Hebert RS, Dang Q, Schulz R: Preparedness for the death of a loved one and mental health in bereaved caregivers of dementia patients: Findings from the REACH study. J Palliat Med 2006;9:683-693.
    • (2006) J Palliat Med , vol.9 , pp. 683-693
    • Hebert, R.S.1    Dang, Q.2    Schulz, R.3
  • 13
    • 0035925227 scopus 로고    scopus 로고
    • Perspectives on care at the close of life. Serving patients who may die soon and their families: The role of hospice and other services
    • Lynn J: Perspectives on care at the close of life. Serving patients who may die soon and their families: The role of hospice and other services. JAMA 2001;285:925-932.
    • (2001) JAMA , vol.285 , pp. 925-932
    • Lynn, J.1
  • 14
    • 0036831897 scopus 로고    scopus 로고
    • Perspectives on preparedness for a death among bereaved persons
    • Barry LC, Prigerson HG: Perspectives on preparedness for a death among bereaved persons. Conn Med 2002;66:691-696.
    • (2002) Conn Med , vol.66 , pp. 691-696
    • Barry, L.C.1    Prigerson, H.G.2
  • 16
    • 0028454357 scopus 로고
    • Symptomatology and management of acute grief
    • Lindemann E: Symptomatology and management of acute grief. Am J Psychiatry 1944;151:155-160.
    • (1944) Am J Psychiatry , vol.151 , pp. 155-160
    • Lindemann, E.1
  • 17
    • 4444325855 scopus 로고    scopus 로고
    • Awareness of husband's impending death from cancer and long-term anxiety in widowhood: A nationwide follow-up
    • Valdimarsdottir U, Helgason AR, Furst CJ, Adolfsson J, Steineck G: Awareness of husband's impending death from cancer and long-term anxiety in widowhood: A nationwide follow-up. Palliat Med 2004;18:432-443.
    • (2004) Palliat Med , vol.18 , pp. 432-443
    • Valdimarsdottir, U.1    Helgason, A.R.2    Furst, C.J.3    Adolfsson, J.4    Steineck, G.5
  • 20
    • 0037603457 scopus 로고    scopus 로고
    • The health impact of health care on families: A matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses
    • Christakis NA, Iwashyna TJ: The health impact of health care on families: A matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses. Soc Sci Med 2003;57:465-475.
    • (2003) Soc Sci Med , vol.57 , pp. 465-475
    • Christakis, N.A.1    Iwashyna, T.J.2
  • 21
    • 1642458586 scopus 로고    scopus 로고
    • Supporting family caregivers at the end of life: "They don't know what they don't know."
    • Rabow MW, Hauser JM, Adams J: Supporting family caregivers at the end of life: "They don't know what they don't know." JAMA 2004;291:483-491.
    • (2004) JAMA , vol.291 , pp. 483-491
    • Rabow, M.W.1    Hauser, J.M.2    Adams, J.3
  • 22
    • 0029820965 scopus 로고    scopus 로고
    • The role of prognosis in clinical decision making
    • Christakis NA, Sachs GA: The role of prognosis in clinical decision making. J Gen Intern Med 1996;11:422-425.
    • (1996) J Gen Intern Med , vol.11 , pp. 422-425
    • Christakis, N.A.1    Sachs, G.A.2
  • 23
    • 0032989715 scopus 로고    scopus 로고
    • The progress of awareness and acceptance of dying assessed in cancer patients and their caring relatives
    • Hinton J: The progress of awareness and acceptance of dying assessed in cancer patients and their caring relatives. Palliat Med 1999;13:19-35.
    • (1999) Palliat Med , vol.13 , pp. 19-35
    • Hinton, J.1
  • 24
    • 0024192277 scopus 로고
    • Uncertainty in illness
    • Mishel MH: Uncertainty in illness. Image J Nurs Sch 1988;20:225-232.
    • (1988) Image J Nurs Sch , vol.20 , pp. 225-232
    • Mishel, M.H.1
  • 25
    • 18244388950 scopus 로고    scopus 로고
    • Palliative care in the final days of life: "They were expecting it at any time."
    • Hallenbeck J: Palliative care in the final days of life: "They were expecting it at any time." JAMA 2005;293:2265-2271.
    • (2005) JAMA , vol.293 , pp. 2265-2271
    • Hallenbeck, J.1
  • 26
    • 0642378506 scopus 로고    scopus 로고
    • The experience of uncertainty for individuals with HIV/AIDS and the palliative care paradigm
    • Cochrane J: The experience of uncertainty for individuals with HIV/AIDS and the palliative care paradigm. Int J Palliat Nurs 2003;9:382-388.
    • (2003) Int J Palliat Nurs , vol.9 , pp. 382-388
    • Cochrane, J.1
  • 27
    • 0029282588 scopus 로고
    • Correlates of stress in HIV disease
    • McCain NL, Cella DF: Correlates of stress in HIV disease. West J Nurs Res 1995;17:141-155.
    • (1995) West J Nurs Res , vol.17 , pp. 141-155
    • McCain, N.L.1    Cella, D.F.2
  • 28
    • 0025153522 scopus 로고
    • Adaptation to multiple sclerosis: The role of social support, functional disability, and perceived uncertainty
    • Wineman NM: Adaptation to multiple sclerosis: The role of social support, functional disability, and perceived uncertainty. Nurs Res 1990;39:294-299.
    • (1990) Nurs Res , vol.39 , pp. 294-299
    • Wineman, N.M.1
  • 29
    • 0030133163 scopus 로고    scopus 로고
    • Adjustment of women with systemic lupus erythematosus
    • Failla S, Kuper BC, Nick TG, Lee FA: Adjustment of women with systemic lupus erythematosus. Appl Nurs Res 1996;9:87-93.
    • (1996) Appl Nurs Res , vol.9 , pp. 87-93
    • Failla, S.1    Kuper, B.C.2    Nick, T.G.3    Lee, F.A.4
  • 30
    • 0029434622 scopus 로고
    • Correlates of the caregiving process in multiple sclerosis
    • discussion 339-342
    • O'Brien RA, Wineman NM, Nealon NR: Correlates of the caregiving process in multiple sclerosis. Sch Inq Nurs Pract 1995;9:323-338; discussion 339-342.
    • (1995) Sch Inq Nurs Pract , vol.9 , pp. 323-338
    • O'Brien, R.A.1    Wineman, N.M.2    Nealon, N.R.3
  • 31
    • 0024677942 scopus 로고
    • The relationship among background characteristics, purpose in life, and caregiving demands on perceived health of spouse caregivers
    • Stetz KM: The relationship among background characteristics, purpose in life, and caregiving demands on perceived health of spouse caregivers. Sch Inq Nurs Pract 1989;3:133-153.
    • (1989) Sch Inq Nurs Pract , vol.3 , pp. 133-153
    • Stetz, K.M.1
  • 32
    • 0035148803 scopus 로고    scopus 로고
    • Coping style, perceived uncertainty in illness, and distress in individuals with Parkinson's disease and their caregivers
    • Sanders-Dewey NE, Mullins LL, Chaney JM: Coping style, perceived uncertainty in illness, and distress in individuals with Parkinson's disease and their caregivers. Rehabil Psychol 2001;46:363-381.
    • (2001) Rehabil Psychol , vol.46 , pp. 363-381
    • Sanders-Dewey, N.E.1    Mullins, L.L.2    Chaney, J.M.3
  • 33
    • 0030625558 scopus 로고    scopus 로고
    • Uncertainty in acute illness
    • Mishel MH: Uncertainty in acute illness. Annu Rev Nurs Res 1997;15:57-80.
    • (1997) Annu Rev Nurs Res , vol.15 , pp. 57-80
    • Mishel, M.H.1
  • 36
  • 37
    • 0032201072 scopus 로고    scopus 로고
    • The cultural context of death rituals and mourning practices
    • Kagawa-Singer M: The cultural context of death rituals and mourning practices. Oncol Nurs Forum 1998;25:1752-1756.
    • (1998) Oncol Nurs Forum , vol.25 , pp. 1752-1756
    • Kagawa-Singer, M.1
  • 38
    • 17744385291 scopus 로고    scopus 로고
    • Overcoming barriers to access and utilization of hospice and palliative care services in African-American communities
    • Winston CA, Leshner P, Kramer J, Allen G: Overcoming barriers to access and utilization of hospice and palliative care services in African-American communities. Omega (Westport) 2004;50:151-163.
    • (2004) Omega (Westport) , vol.50 , pp. 151-163
    • Winston, C.A.1    Leshner, P.2    Kramer, J.3    Allen, G.4
  • 39
    • 4544375100 scopus 로고    scopus 로고
    • Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals
    • Ahmed N, Bestall JC, Ahmedzai SH, Payne SA, Clark D, Noble B: Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals. Palliat Med 2004;18:525-542.
    • (2004) Palliat Med , vol.18 , pp. 525-542
    • Ahmed, N.1    Bestall, J.C.2    Ahmedzai, S.H.3    Payne, S.A.4    Clark, D.5    Noble, B.6
  • 41
    • 0030664012 scopus 로고    scopus 로고
    • What is wrong with end-of-life care? Opinions of bereaved family members
    • Hanson LC, Danis M, Garrett J: What is wrong with end-of-life care? Opinions of bereaved family members. J Am Geriatr Soc 1997;45:1339-1344.
    • (1997) J Am Geriatr Soc , vol.45 , pp. 1339-1344
    • Hanson, L.C.1    Danis, M.2    Garrett, J.3
  • 42
    • 0028998128 scopus 로고
    • Effective physician-patient communication and health outcomes: A review
    • Stewart MA: Effective physician-patient communication and health outcomes: A review. CMAJ 1995;152:1423-1433.
    • (1995) CMAJ , vol.152 , pp. 1423-1433
    • Stewart, M.A.1
  • 44
    • 0037417651 scopus 로고    scopus 로고
    • Care of the dying patient: The last hours or days of life
    • Ellershaw J, Ward C: Care of the dying patient: The last hours or days of life. BMJ 2003;326:30-34.
    • (2003) BMJ , vol.326 , pp. 30-34
    • Ellershaw, J.1    Ward, C.2
  • 45
    • 0034696509 scopus 로고    scopus 로고
    • Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers
    • Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL: Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers. Ann Intern Med 2000;132:451-459.
    • (2000) Ann Intern Med , vol.132 , pp. 451-459
    • Emanuel, E.J.1    Fairclough, D.L.2    Slutsman, J.3    Emanuel, L.L.4
  • 46
    • 2942561745 scopus 로고    scopus 로고
    • Family satisfaction with family conferences about end-of-life care in the intensive care unit: Increased proportion of family speech is associated with increased satisfaction
    • McDonagh JR, Elliott TB, Engelberg RA, Treece PD, Shannon SE, Rubenfeld GD, Patrick DL, Curtis JR: Family satisfaction with family conferences about end-of-life care in the intensive care unit: Increased proportion of family speech is associated with increased satisfaction. Crit Care Med 2004;32:1484-1488.
    • (2004) Crit Care Med , vol.32 , pp. 1484-1488
    • McDonagh, J.R.1    Elliott, T.B.2    Engelberg, R.A.3    Treece, P.D.4    Shannon, S.E.5    Rubenfeld, G.D.6    Patrick, D.L.7    Curtis, J.R.8
  • 47
    • 22244478658 scopus 로고    scopus 로고
    • Beyond advance directives: Importance of communication skills at the end of life
    • Tulsky JA: Beyond advance directives: Importance of communication skills at the end of life. JAMA 2005;294:359-365.
    • (2005) JAMA , vol.294 , pp. 359-365
    • Tulsky, J.A.1
  • 48
    • 85007659009 scopus 로고    scopus 로고
    • What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study
    • Kirk P, Kirk I, Kristjanson LJ What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. BMJ 2004;328:1343.
    • (2004) BMJ , vol.328 , pp. 1343
    • Kirk, P.1    Kirk, I.2    Kristjanson, L.J.3
  • 49
    • 0029151060 scopus 로고
    • Care of the family when the patient is dying
    • Bascom PB, Tolle SW: Care of the family when the patient is dying. West J Med 1995;163:292-296.
    • (1995) West J Med , vol.163 , pp. 292-296
    • Bascom, P.B.1    Tolle, S.W.2
  • 51
    • 0033222138 scopus 로고    scopus 로고
    • Family perspectives on dying in long-term care settings
    • Wilson SA, Daley BJ: Family perspectives on dying in long-term care settings. J Gerontol Nurs 1999;25:19-25.
    • (1999) J Gerontol Nurs , vol.25 , pp. 19-25
    • Wilson, S.A.1    Daley, B.J.2
  • 52
    • 0034940126 scopus 로고    scopus 로고
    • Breaking bad news and discussing death
    • Ambuel B, Mazzone MF: Breaking bad news and discussing death. Prim Care 2001;28:249-267.
    • (2001) Prim Care , vol.28 , pp. 249-267
    • Ambuel, B.1    Mazzone, M.F.2
  • 53
    • 14844286177 scopus 로고    scopus 로고
    • Dealing with conflict in caring for the seriously ill: "It was just out of the question."
    • Back AL, Arnold RM: Dealing with conflict in caring for the seriously ill: "It was just out of the question." JAMA 2005;293:1374-1381.
    • (2005) JAMA , vol.293 , pp. 1374-1381
    • Back, A.L.1    Arnold, R.M.2
  • 54
    • 0036467827 scopus 로고    scopus 로고
    • Can communication skills training alter physicians' beliefs and behavior in clinics?
    • Jenkins V, Fallowfield L: Can communication skills training alter physicians' beliefs and behavior in clinics? J Clin Oncol 2002;20:765-769.
    • (2002) J Clin Oncol , vol.20 , pp. 765-769
    • Jenkins, V.1    Fallowfield, L.2
  • 55
    • 17644403126 scopus 로고    scopus 로고
    • The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues
    • Clayton JM, Butow PN, Tattersall MH: The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer 2005;103:1957-1964.
    • (2005) Cancer , vol.103 , pp. 1957-1964
    • Clayton, J.M.1    Butow, P.N.2    Tattersall, M.H.3
  • 56
    • 1642371066 scopus 로고    scopus 로고
    • The families evaluation on management, care and disclosure for terminal stage cancer patients
    • Mystakidou K, Parpa E, Tsilika E, Kalaidopoulou O, Vlahos L: The families evaluation on management, care and disclosure for terminal stage cancer patients. BMC Palliat Care 2002;1:3.
    • (2002) BMC Palliat Care , vol.1 , pp. 3
    • Mystakidou, K.1    Parpa, E.2    Tsilika, E.3    Kalaidopoulou, O.4    Vlahos, L.5
  • 57
    • 32644457434 scopus 로고    scopus 로고
    • Mortality after the hospitalization of a spouse
    • Christakis NA, Allison PD: Mortality after the hospitalization of a spouse. N Engl J Med 2006;354:719-730.
    • (2006) N Engl J Med , vol.354 , pp. 719-730
    • Christakis, N.A.1    Allison, P.D.2
  • 58
    • 0033572972 scopus 로고    scopus 로고
    • Caregiving as a risk factor for mortality: The Caregiver Health Effects Study
    • Schulz R, Beach SR: Caregiving as a risk factor for mortality: The Caregiver Health Effects Study. JAMA 1999;282:2215-2219.
    • (1999) JAMA , vol.282 , pp. 2215-2219
    • Schulz, R.1    Beach, S.R.2
  • 59
    • 0026064454 scopus 로고
    • The influence of caregiving and bereavement support on adjusting to an older relative's death
    • Bass DM, Bowman K, Noelker LS: The influence of caregiving and bereavement support on adjusting to an older relative's death. Gerontologist 1991;31:32-42.
    • (1991) Gerontologist , vol.31 , pp. 32-42
    • Bass, D.M.1    Bowman, K.2    Noelker, L.S.3
  • 60
    • 0142211455 scopus 로고    scopus 로고
    • Does grief counseling work?
    • Jordan JR, Neimeyer RA: Does grief counseling work? Death Stud 2003;27:765-786.
    • (2003) Death Stud , vol.27 , pp. 765-786
    • Jordan, J.R.1    Neimeyer, R.A.2
  • 61
    • 26444583354 scopus 로고    scopus 로고
    • Spiritual well-being as a dimension of quality of life for patients with advanced cancer and AIDS and their family caregivers: Results of a longitudinal study
    • Sherman DW, Ye XY, McSherry C, Calabrese M, Parkas V, Gatto M: Spiritual well-being as a dimension of quality of life for patients with advanced cancer and AIDS and their family caregivers: Results of a longitudinal study. Am J Hosp Palliat Care 2005;22:349-362.
    • (2005) Am J Hosp Palliat Care , vol.22 , pp. 349-362
    • Sherman, D.W.1    Ye, X.Y.2    McSherry, C.3    Calabrese, M.4    Parkas, V.5    Gatto, M.6
  • 62
    • 0034592811 scopus 로고    scopus 로고
    • Planning end-of-life care for patients with dementia: Roles of families and health professionals
    • Gessert CE, Forbes S, Bern-Klug M: Planning end-of-life care for patients with dementia: Roles of families and health professionals. Omega (Westport) 2000;42:273-291.
    • (2000) Omega (Westport) , vol.42 , pp. 273-291
    • Gessert, C.E.1    Forbes, S.2    Bern-Klug, M.3
  • 63
    • 0034949477 scopus 로고    scopus 로고
    • "It was never that bad": Biased recall of grief and long-term adjustment to the death of a spouse
    • Safer MA, Bonanno GA, Field NP: "It was never that bad": Biased recall of grief and long-term adjustment to the death of a spouse. Memory 2001;9:195-204.
    • (2001) Memory , vol.9 , pp. 195-204
    • Safer, M.A.1    Bonanno, G.A.2    Field, N.P.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.