Pathways from religion to advance care planning: Beliefs about control over length of life and end-of-life values

Gerontologist

Volumn 53, Issue 5, 2013, Pages 801-816

  Garrido, Melissa M ^a,b   Idler, Ellen L ^c   Leventhal, Howard ^d   Carr, Deborah ^d  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^c EMORY UNIVERSITY   (United States)

^d RUTGERS UNIVERSITY   (United States)

Author keywords

Advance directive; Durable power of attorney for healthcare; Living wills

Indexed keywords

AGED; ARTICLE; ATTITUDE TO DEATH; DURABLE POWER OF ATTORNEY FOR HEALTHCARE; FEMALE; HUMAN; LIVING WILL; MALE; MIDDLE AGED; PATIENT CARE; PATIENT PREFERENCE; RELIGION; TERMINAL CARE; VERY ELDERLY;

ADVANCE DIRECTIVE; DURABLE POWER OF ATTORNEY FOR HEALTHCARE; LIVING WILLS;

ADVANCE CARE PLANNING; AGED; AGED, 80 AND OVER; ATTITUDE TO DEATH; FEMALE; HUMANS; LIVING WILLS; MALE; MIDDLE AGED; PATIENT PREFERENCE; RELIGION; SPIRITUALITY; TERMINAL CARE;

EID: 84888587393     PISSN: 00169013     EISSN: 17585341     Source Type: Journal    
DOI: 10.1093/geront/gns128     Document Type: Article

References (38)

1. Allen, R. S., DeLaine, S. R., Chaplin, W. F., Marson, D. C., Bourgeois, M. S., Dijkstra, K., & Burgio, L. D. (2003). Advance care planning in nursing homes: Correlates of capacity and possession of advance directives. The Gerontologist, 43, 309-317. doi:10.1093/geront/43.3.309.
2. Balboni, T., Vanderwerker, L. C., Block, S. D., Paulk, M. E., Lathan, C. S., Peteet, J. R., & Prigerson, H. G. (2007). Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life. Journal of Clinical Oncology, 25, 555-560. doi:10.1200/JCO.2006.07.9046.
3. Black, K., Reynolds, S. L., & Osman, H. (2008). Factors associated with advance care planning among older adults in southwest Florida. Journal of Applied Gerontology, 27, 93-109. doi:10.1177/0733464807307773.
4. Bullock, K. (2006). Promoting advance directives among African Americans: A faith-based model. Journal of Palliative Medicine, 9, 183-195. doi:10.1089/jpm.2006.9.183.
5. Carr, D. (2011). Racial differences in end-of-life planning: Why don't Blacks and Latinos prepare for the inevitable? Omega-Journal of Death & Dying, 63(1), 1-20. doi:10.2190/OM.63.1.a.
6. Carr, D. (2012). I don't want to die like that...': The impact of significant others' death quality on advance care planning. The Gerontologist. Advance online publication. doi:10.1093/geront/gns051.
7. Carr, D., & Khodyakov, D. (2007). End-of-life health care planning among young-old adults: An assessment of psychosocial influences. Journal of Gerontology: Social Sciences, 62B(2), 135-141. Retrieved from http://psychsocgerontology.oxfordjournals.org/(accessedonOctober4, 2012.
8. Cohen-Mansfield, J., Rabinovich, B. A., Lipson, S., Fein, A., Gerber, B., Weisman, S., & Pawlson, G. (1991). The decision to execute a durable power of attorney for health care and preferences regarding the utilization of life-sustaining treatments in nursing home residents. Archives of Internal Medicine, 151, 289-294. doi:10.1001/archinte.1991.00400020053012.
9. Davis-Berman, J. (2011). Conversations about death: Talking to residents in independent, assisted, and long-term care settings. Journal of Applied Gerontology, 30, 353-369. doi:10.1177/0733464810367637.
10. Doukas, D. J., & Hardwig, J. (2003). Using the family covenant in planning end-of-life care: Obligations and promises of patients, families, and physicians. Journal of the American Geriatrics Society, 51, 1155- 1158. doi:10.1046/j.1532-5415.2003.51383.x.
11. Ehman, J., Ott, B., Short, T., Ciampa, R., & Hansen-Flaschen, J. (1999). Do patients want physicians to inquire about their spiritual or religious beliefs if they become gravely ill? Archives of Internal Medicine, 159, 1803-1806. doi:10-1001/pubs.Arch Intern Med.-ISSN-0003-9926-159-15- ioi80537.
12. Grodin, M. A. (1993). Religious advance directives: The convergence of law, religion, medicine, and public health. American Journal of Public Health, 83, 899-903. doi:10.2105/AJPH.83.6.899.
13. Idler, E. L., Boulifard, D. A., Labouvie, E., Chen, Y. Y., Krause, T. J., & Contrada, R. J. (2009). Looking inside the black box of "attendance at services": New measures for exploring an old dimension in religion and health research. International Journal for the Psychology of Religion, 19(1), 1-20. doi:10.1080/10508610802471096.
14. Johnson, K. S., Kuchibhatla, M., & Tulsky, J. A. (2008). What explains racial differences in the use of advance directives and attitudes toward hospice care? Journal of the American Geriatrics Society, 56, 1953- 1958. doi: 10.1111/j.1532-5415.2008.01919.x.
15. Leventhal, H., Diefenbach, M., & Leventhal, E. A. (1992). Illness cognition: Using common sense to understand treatment adherence and affect cognition interactions. Cognitive Therapy & Research, 16(2), 143-163. doi: 10.1007/BF01173486.
16. Kwak, J., & Haley, W. E. (2005). Current research findings on end-oflife decision making among racially or ethnically diverse groups. The Gerontologist, 45, 634-641. doi:10.1093/geront/45.5.634.
17. Mack, J. W., Weeks, J. C., Wright, A. A., Block, S. D., & Prigerson, H. G. (2010). End-of-life discussions, goal attainment, and distress at the end of life: Predictors and outcomes of receipt of care consistent with preferences. Journal of Clinical Oncology, 28, 1203-1208. doi:10.1200/JCO.2009.25.4672.
18. Mitchell, C. B., & Whitehead, M. K. (1993). A time to live, a time to die: Advance directives and living wills. Ethics & Medicine, 9(1), 2-5.
19. National Association of Evangelicals. (1994). Euthanasia: Termination of medical treatment. Retrieved from http//www.euthanasia.com/evangel.html (accessed on March 8, 2012).
20. Perkins, H. S. (2007). Controlling death: The false promise of advance directives. Annals of Internal Medicine, 147, 51-57. Retrieved from http://annals.org/journal.aspx (accessed on October 4, 2012).
21. Pew Forum on Religion and Public Life. (2008). U.S. religious landscape survey. Religious beliefs and practices: Diverse and politically relevant. Pew Forum. Retrieved from http://religions.pewforum.org/pdf/report2-religious- landscape-study-full.pdf (accessed on October 4, 2012).
22. Phelps, A. C., Maciejewski, P. K., Nilsson, M., Balboni, T. A., Wright, A. A., Paulk, M. E., et al. (2009). Religious coping and use of intensive lifeprolonging care near death in patients with advanced cancer. Journal of the American Medical Association, 301, 1140-1147. doi:10.1001/jama.2009.341.
23. Phillips, L. L., Allen, R. S., Harris, G. M., Presnell, A. H., DeCoster, J., & Cavanaugh, R. (2011). Aging prisoners' treatment selection: Does prospect theory enhance understanding of end-of-life medical decisions? The Gerontologist, 51, 663-674. doi:10.1093/geront/gnr039.
24. Phipps, E., True, G., Harris, D., Chong, U., Tester, W., Chavin, S. I., & Braitman, L. E. (2003). Approaching the end of life: Attitudes, preferences, and behaviors of African-American and White patients and their family caregivers. Journal of Clinical Oncology, 21(3), 549-554. doi:10.1200/JCO.2003.12.080.
25. Powe, B., & Finnie, R. (2003). Cancer fatalism: The state of the science. Cancer Nursing, 26(6), 454-465. Retrieved from http://journals.lww.com/ cancernursingonline/pages/default.aspx. (accessed on October 4, 2012).
26. Randall, G. K., & Bishop, A. J. (2012). Direct and indirect effects of religiosity on valuation of life through forgiveness and social provisions among older incarcerated males. The Gerontologist. Advance online publication. doi:10.1093/geront/gns070.
27. Schieman, S. (2011). Education and the importance of religion in decision making: Do other dimensions of religiousness matter? Journal for the Scientific Study of Religion, 50(3), 570-587. doi:10.1111/j.1468-5906.2011.01583.x.
28. Schmid, B., Allen, R. S., Haley, P. P., & DeCoster, J. (2010). Family matters: Dyadic agreement in end-of-life medical decision making. The Gerontologist, 50, 226-237. doi:10.1093/geront/gnp166.
29. Sharp, S., Carr, D., and MacDonald, C. (2012). Religion and end-of-life treatment preferences: Assessing the effects of religious denomination, beliefs, and practices. Social Forces, 91, 275-298. Retrieved from http://muse.jhu.edu/ journals/social-forces/(accessed on October 4, 2012).
30. Sherkat, D. E. (2010). The religious demography of the United States: Dynamics of affiliation, participation, and belief. In C. Ellison and R. Hummer (Eds.), Religion, families, and health: Population-based research in the United States (pp. 403-430). New Brunswick, NJ: Rutgers University Press.
31. Smith, A. K., McCarthy, E. P., Paulk, E., Balboni, T. A., Maciejewski, P. K., Block, S. D., & Prigerson, H. G. (2008). Racial and ethnic differences in advance care planning among patients with cancer: Impact of terminal illness acknowledgement, religiousness, and treatment preferences. Journal of Clinical Oncology, 26, 4131-4137. doi:10.1200/JCO.2007.14.8452.
32. Smith, T. W. (1990). Classifying Protestant denominations. Review of Religious Research, 31, 225-245. Retrieved from http://rra.hartsem.edu/reviewof. htm (accessed on October 4, 2012).
33. Steinhauser, K., Christakis, N., Clipp, E., McNeilly, M., McIntyre, L., & Tulsky, J. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. Journal of the American Medical Association, 284, 2476-2482. doi:10.1001/jama.284.19.2476.
34. True, G., Phipps, E. J., Braitman, L. E., Harralson, T., Harris, D., & Tester, W. (2005). Treatment preferences and advance care planning at the end of life: The role of ethnicity and spiritual coping in cancer patients. Annals of Behavioral Medicine, 30, 174-179. doi:10.1207/s15324796abm3002-10.
35. United States Conference of Catholic Bishops (USCCB). (2009). Ethical and religious directives for Catholic health care services (5th ed.). Washington, DC: USCCB Publishing. Retrieved from http://www.usccb.org/.(accessedonOctober4, 2012).
36. Winter, L., Dennis, M. P., & Parker, B. (2009). Preferences for life-prolonging medical treatments and deference to the will of God. Journal of Religion and Health, 48, 418-430. doi:10.1007/s10943-008-9205-y.
37. Winter, L. & Parks, S. M. (2011). Acceptors and rejecters of life-sustaining treatment: Differences in advance care planning characteristics. Journal of Applied Gerontology. Advance online publication. doi:10.1177/0733464811399079.
38. Wong, P. T., Reker, G. T., & Gesser, G. (1994). Death Attitude Profile- Revised: A multidimensional measure of attitudes toward death. In R. A. Neimeyer (Ed.), Death anxiety handbook: Research, instrumentation and application (pp. 121-128). Washington, DC: Taylor & Francis.