A randomised controlled trial on the efficacy of advance care planning on the quality of end-of-life care and communication in patients with COPD: The research protocol

BMJ Open

Volumn 4, Issue 1, 2014, Pages

  Houben, Carmen H M ^a   Spruit, Martijn A ^a   Wouters, Emiel F M ^a,b   Janssen, Daisy J A ^a,b  

^a CIRO+   (Netherlands)

^b MAASTRICHT UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ANXIETY DISORDER; ARTICLE; BEREAVEMENT; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL EFFECTIVENESS; CLINICAL PROTOCOL; COMMUNICATION SKILL; CONTROLLED STUDY; DEPRESSION; DISTRESS SYNDROME; DYING; HOSPITAL DISCHARGE; HOSPITAL PHYSICIAN; HUMAN; INTERVENTION STUDY; MULTICENTER STUDY; NURSE TRAINING; OUTCOME ASSESSMENT; PATIENT ASSESSMENT; PATIENT CARE; PATIENT PREFERENCE; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; TEAMWORK; TERMINAL CARE; ADULT; DOCTOR NURSE RELATION; FAMILY; FEMALE; MALE; MIDDLE AGED; NETHERLANDS; PALLIATIVE THERAPY; PROCEDURES; PSYCHOLOGY; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUESTIONNAIRE; RIGHT TO DIE;

ADULT; ADVANCE CARE PLANNING; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; NETHERLANDS; OUTCOME ASSESSMENT (HEALTH CARE); PALLIATIVE CARE; PATIENT CARE TEAM; PHYSICIAN-NURSE RELATIONS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITY OF LIFE; QUESTIONNAIRES; RIGHT TO DIE; TERMINAL CARE;

EID: 84892857860     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2013-004465     Document Type: Article

References (35)

1. Barnes KA, Barlow CA, Harrington J, et al. Advance care planning discussions in advanced cancer: analysis of dialogues between patients and care planning mediators. Palliat Support Care 2011;9:73-9.
2. Patel K, Janssen DJ, Curtis JR. Advance care planning in COPD. Respirology 2012;17:72-8.
3. Clayton JM, Butow PN, Tattersall MH, et al. Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end-of-life care. J Clin Oncol 2007;25:715-23. (Pubitemid 350002928)
4. Dexter PR, Wolinsky FD, Gramelspacher GP, et al. Effectiveness of computer-generated reminders for increasing discussions about advance directives and completion of advance directive forms. A randomized, controlled trial. Ann Intern Med 1998;128:102-10. (Pubitemid 28053131)
5. Detering KM, Hancock AD, Reade MC, et al. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ 2010;340:c1345.
6. Kirchhoff KT, Hammes BJ, Kehl KA, et al. Effect of a disease-specific advance care planning intervention on end-of-life care. J Am Geriatr Soc 2012;60:946-50.
7. Morrison RS, Chichin E, Carter J, et al. The effect of a social work intervention to enhance advance care planning documentation in the nursing home. J Am Geriatr Soc 2005;53:290-4. (Pubitemid 41632556)
8. Bischoff KE, Sudore R, Miao Y, et al. Advance care planning and the quality of end-of-life care in older adults. J Am Geriatr Soc 2013;61:209-14.
9. Lopez AD, Shibuya K, Rao C, et al. Chronic obstructive pulmonary disease: current burden and future projections. Eur Respir J 2006;27:397-412. (Pubitemid 43180921)
10. Claessens MT, Lynn J, Zhong Z, et al. Dying with lung cancer or chronic obstructive pulmonary disease: insights from SUPPORT. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. J Am Geriatr Soc 2000;48(Suppl 5):S146-53. (Pubitemid 30266007)
11. Janssen DJ, Spruit MA, Schols JM, et al. A call for high-quality advance care planning in outpatients with severe COPD or chronic heart failure. Chest 2011;139:1081-8.
12. Knauft E, Nielsen EL, Engelberg RA, et al. Barriers and facilitators to end-of-life care communication for patients with COPD. Chest 2005;127:2188-96.
13. Reinke LF, Shannon SE, Engelberg RA, et al. Supporting hope and prognostic information: nurses' perspectives on their role when patients have life-limiting prognoses. J Pain Symptom Manage 2010;39:982-92.
14. Vestbo J, Hurd SS, Rodriguez-Roisin R. The 2011 revision of the global strategy for the diagnosis, management and prevention of COPD (GOLD)-why and what? Clin Respir J 2012;6:208-14.
15. Engelberg R, Downey L, Curtis JR. Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care. J Palliat Med 2006;9:1086-98. (Pubitemid 44759942)
16. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:361-70. (Pubitemid 13098606)
17. Teno JM, Clarridge B, Casey V, et al. Validation of Toolkit After-Death Bereaved Family Member Interview. J Pain Symptom Manage 2001;22:752-8. (Pubitemid 32776586)
18. Downey L, Curtis JR, Lafferty WE, et al. The Quality of Dying and Death Questionnaire (QODD): empirical domains and theoretical perspectives. J Pain Symptom Manage 2010;39:9-22.
19. Borreani C, Brunelli C, Miccinesi G, et al. Eliciting individual preferences about death: development of the End-of-Life Preferences Interview. J Pain Symptom Manage 2008;36:335-50.
20. Prigerson HG, Maciejewski PK, Reynolds CF III, et al. Inventory of complicated grief: a scale to measure maladaptive symptoms of loss. Psychiatry Res 1995;59:65-79. (Pubitemid 26024504)
21. Reinke LF, Shannon SE, Engelberg R, et al. Nurses' identification of important yet under-utilized end-of-life care skills for patients with life-limiting or terminal illnesses. J Palliat Med 2010;13:753-9.
22. Janssen DJ, Spruit MA, Schols JM, et al. Predicting changes in preferences for life-sustaining treatment among patients with advanced chronic organ failure. Chest 2012;141:1251-9.
23. Lorenz KA, Shugarman LR, Lynn J. Health care policy issues in end-of-life care. J Palliat Med 2006;9:731-48. (Pubitemid 43938850)
24. Fox E, Landrum-McNiff K, Zhong Z, et al. Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart, or liver disease. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. JAMA 1999;282:1638-45. (Pubitemid 29513970)
25. Murray SA, Kendall M, Boyd K, et al. Illness trajectories and palliative care. BMJ 2005;330:1007-11. (Pubitemid 40604286)
26. Rocker GM, Dodek PM, Heyland DK. Toward optimal end-of-life care for patients with advanced chronic obstructive pulmonary disease: insights from a multicentre study. Can Respir J 2008;15:249-54.
27. Lynn J, Ely EW, Zhong Z, et al. Living and dying with chronic obstructive pulmonary disease. J Am Geriatr Soc 2000;48(Suppl 5): S91-100.
28. Reinke LF, Engelberg RA, Shannon SE, et al. Transitions regarding palliative and end-of-life care in severe chronic obstructive pulmonary disease or advanced cancer: themes identified by patients, families, and clinicians. J Palliat Med 2008;11: 601-9. (Pubitemid 351630199)
29. Seamark D, Blake S, Seamark C, et al. Is hospitalisation for COPD an opportunity for advance care planning? A qualitative study. Prim Care Respir J 2012;21:261-6.
30. Richter B, Berger M. Randomized controlled trials remain fundamental to clinical decision making in type II diabetes mellitus: a comment to the debate on randomized controlled trials (for debate) [corrected]. Diabetologia 2000;43:254-8. (Pubitemid 30126834)
31. Groenewegen KH, Schols AM, Wouters EF. Mortality and mortality-related factors after hospitalization for acute exacerbation of COPD. Chest 2003;124:459-67. (Pubitemid 37000120)
32. Higginson I, Priest P, McCarthy M. Are bereaved family members a valid proxy for a patient's assessment of dying? Soc Sci Med 1994;38:553-7. (Pubitemid 24038051)
33. Au DH, Udris EM, Engelberg RA, et al. A randomized trial to improve communication about end-of-life care among patients with COPD. Chest 2012;141:726-35.
34. McMurray JJ, Adamopoulos S, Anker SD, et al. ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2012: the task force for the diagnosis and treatment of acute and chronic heart failure 2012 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association (HFA) of the ESC. Eur J Heart Fail 2012;14:803-69.
35. Barlo NP, van Moorsel CH, van den Bosch JM, et al. Predicting prognosis in idiopathic pulmonary fibrosis. Sarcoidosis Vasc Diffuse Lung Dis 2010;27:85-95.