Is hospitalisation for COPD an opportunity for advance care planning? A qualitative study

Primary Care Respiratory Journal

Volumn 21, Issue 3, 2012, Pages 261-266

  Seamark, David ^a   Blake, Susan ^a   Seamark, Clare ^a   Hyland, Michael E ^b   Greaves, Colin ^c   Pinnuck, Margaret ^a   Ward, David ^a   Hawkins, Adam ^d   Halpin, David ^e  

^a The Honiton Research Practice   (United Kingdom)

^b UNIVERSITY OF PLYMOUTH   (United Kingdom)

^c PENINSULA MEDICAL SCHOOL   (United Kingdom)

^d GLAXOSMITHKLINE   (United Kingdom)

^e ROYAL DEVON AND EXETER HOSPITAL   (United Kingdom)

Author keywords

Advance care planning; Chronic obstructive pulmonary disease; Exacerbation; Primary care; Qualitative research

Indexed keywords

ADULT; ADVANCED CARE PLANNING; AGED; ARTICLE; ARTIFICIAL VENTILATION; ATTITUDE TO ILLNESS; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL ARTICLE; DISEASE EXACERBATION; DISEASE SEVERITY; FEMALE; GENERAL PRACTITIONER; HOSPITAL DISCHARGE; HOSPITALIZATION; HUMAN; INTERVIEW; LIVING WILL; MALE; MEDICAL DECISION MAKING; PATIENT ATTITUDE; PATIENT CARE; PATIENT DECISION MAKING; QUALITATIVE RESEARCH; RESUSCITATION;

ADVANCE CARE PLANNING; AGED; AGED, 80 AND OVER; FEMALE; HOSPITALIZATION; HUMANS; MALE; MIDDLE AGED; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITATIVE RESEARCH;

EID: 84866432230     PISSN: 14714418     EISSN: 14751534     Source Type: Journal    
DOI: 10.4104/pcrj.2012.00032     Document Type: Article

References (36)

1. Healthcare Commission. Clearing the air. A national study of COPD. London: Commission for Healthcare Audit and Inspection, 2006.
2. National Statistics. Health statistics quarterly 34 (online supplement). London: The Stationery Office, 2007.
3. Halpin DMG. Improving the management of COPD. BMJ 2011;342:d1674.
4. Roberts CM, Stone RA, Buckingham RJ, Pursey NA, Lowe D. Acidosis, non-invasive ventilation and mortality in hospitalised COPD exacerbations. Thorax 2011;66:43-8. http://dx.doi.org/10.1136/thx.2010.153114
5. National Institute for Health and Clinical Excellence (NICE). COPD: management of COPD in primary and secondary care. Thorax 2004;59 (Suppl 1):1-232.
6. Department of Health. The National Services Framework for long term conditions. London: Department of Health, 2005.
7. O'Donnell DE, Aaron S, Bourbeau J, et al. Canadian Thoracic Society recommendation for management of chronic obstructive pulmonary disease: 2007 update. Can Respir J 2007;14 (SupplB):5-32B
8. Lanken PN, Terry PB, DeLisser HM, et al. An official American Thoracic Society clinical policy statement: Palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med 2008;177:912-27. http://dx.doi.org/10.1164/rccm.200605-587ST
9. Curtis RJ, Engelberg R, Wenrich M. Communication about palliative care for patients with COPD. J Palliat Care 2005;21:157-64.
10. Curtis RJ. Palliative and end-of-life care for patients with severe COPD. Eur Respir J 2007;32:796-803. http://dx.doi.org/10.1183/09031936.00126107
11. Gardiner C, Gott M, Small N, et al. Living with advanced chronic pulmonary obstructive disease: patients concerns regarding death and dying. Palliat Med 2009;23:691-7. http://dx.doi.org/10.1177/0269216309107003
12. Gardiner C, Gott M, Payne S, et al. Exploring the care needs of patients with advanced COPD: an overview of the literature. Respir Med 2010;104:159-65. http://dx.doi.org/10.1016/j.rmed.2009.09.007
13. Department of Health. End of Life care strategy: promoting high quality care for all adults at the end of life. London: Department of Health, 2008.
14. Department of Health. An outcomes strategy for people with chronic obstructive pulmonary disease (COPD) and asthma in England. London: Department of Health, 2011: p.39. http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_127974.
15. Gott M, Gardiner C, Small N, et al. Barriers to advance care planning in chronic obstructive pulmonary disease. Palliat Med 2009;23:642-8. http://dx.doi.org/10.1177/0269216309106790
16. Spence A, Hasson F, Waldron M, et al. Professionals delivering palliative care to people with COPD: qualitative study. Palliat Med 2009;23:126-31. http://dx.doi.org/10.1177/0269216308098804
17. Knauft E, Nielsen RA, Curtis JR, et al. Barriers and facilitators to end-of-life communication for patients with COPD. Chest 2005;127:2188-96 http://dx.doi.org/10.1378/chest.127.6.2188
18. Pinnock H, Kendall M, Murray SA, et al. Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study. BMJ 2011;342:d142. http://dx.doi.org/10.1136/bmj.d142
19. Boyd K, Murray SA. Recognising and managing key transitions in end of life care. BMJ 2011;341:c4863. http://dx.doi.org/10.1136/bmj.c4863
20. Thorns A, Cawley D. Palliative care in people with chronic obstructive pulmonary disease. BMJ 2011;342:d106. http://dx.doi.org/10.1136/bmj.d106
21. British Thoracic Society. The burden of lung disease. 2nd edition. London: British Thoracic Society, 2006. http://www.brit-thoracic.org.uk/Portals/0/Library/BTS%20 Publications/burdeon_of_lung_disease2007.pdf.
22. Brull R, Ghali WA, Quan H. Missed opportunities for prevention in general internal medicine. CMAJ 1999;160:1137-40.
23. Bryman J. Social research methods. Oxford: Oxford University Press, 2001.
24. Glaser BG, Strauss AL. The discovery of grounded theory: strategies for qualitative research. New York: Aldine, 1967.
25. Lazarus RS. Coping theory and research: past, present and future. Psychol Med 1993;55:234-7.
26. Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ 2010;340:c1345. http://dx.doi.org/10.1136/bmj.c1345
27. Elkington H, White P, Higgs R, Pettinari CJ. GPs' views of discussions of prognosis in severe COPD. Fam Pract 2001;18:440-4. http://dx.doi.org/10.1093/fampra/18.4.440
28. Barnes S, Gardiner C, Gott M, et al. Patient-professional communication interventions in life-limiting illness: A review. Journal of Pain and Symptom Management (in press).
29. Habraken JM, Pols J, Bindels PJE, Willems DL. The silence of patients with end-stage COPD: a qualitative study. Br J Gen Pract 2008;58:844-9. http://dx.doi.org/10.3399/bjgp08X376186
30. Patel K, Janssen DJ, Curtis JR. Advance care planning in COPD. Respirology 2012;17:72-8. http://dx.doi.org/10.1111/j.1440-1843.2011.02087.x
31. Gore JM, Brophy CJ, Greenstone MA. How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax 2000;55:1000-06. http://dx.doi.org/10.1136/thorax.55.12.1000
32. Gaber KA, Barnett M, Planchant Y, McGavin CR. Attitudes of 100 patients with chronic obstructive pulmonary disease to artificial ventilation and cardiopulmonary resuscitation. Palliat Med 2004;18:626-9. http://dx.doi.org/10.1191/0269216304pm944oa
33. Clayton JM, Butow PN, Tattersall MHN. When and how to initiate discussion about end-of-life issues with terminally patients. J Pain Symptom Manage 2005;30:132-44. http://dx.doi.org/10.1016/j.jpainsymman.2005.02.014
34. Dean MM. End-of-life care for COPD patients. Prim Care Respir J 2008;17:46-50. http://dx.doi.org/10.3132/pcrj.2008.00007
35. Barclay S, Maher J. Having difficult conversations about the end of life. BMJ 2010;341:c4862. http://dx.doi.org/10.1136/bmj.c4862
36. Witte K, Allen M. A meta-analysis of fear appeals: implications for effective public health campaigns. Health Educ Behav 2000;27:591-615. http://dx.doi.org/10.1177/109019810002700506