Supporting Hope and Prognostic Information: Nurses' Perspectives on Their Role When Patients Have Life-Limiting Prognoses

Journal of Pain and Symptom Management

Volumn 39, Issue 6, 2010, Pages 982-992

  Reinke, Lynn F ^a,b   Shannon, Sarah E ^b   Engelberg, Ruth A ^b   Young, Jessica P ^b   Curtis, J Randall ^b  

^a VA PUGET SOUND HEALTH CARE SYSTEM   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

Author keywords

end of life care; hope; Nurses' role; palliative care; prognosis

Indexed keywords

ADULT; ARTICLE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CONTROLLED STUDY; FAMILY COUNSELING; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; NEOPLASM; NURSE ATTITUDE; PALLIATIVE THERAPY; PATIENT CARE; PROGNOSIS; QUALITY OF LIFE; STRUCTURED INTERVIEW; TERMINAL CARE;

ADULT; ATTITUDE TO DEATH; COMMUNICATION; DATA COLLECTION; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; NURSES; NURSING; PHYSICIANS; PROGNOSIS; TERMINAL CARE;

EID: 77953144298     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2009.11.315     Document Type: Article

References (47)

1. Slevin M.L., Nichols S.E., Downer S.M., et al. Emotional support for cancer patients: what do patients really want?. Br J Cancer 74 (1996) 1275-1279
2. Nekolaichuk C.L., and Bruera E. On the nature of hope in palliative care. J Palliat Care 14 (1998) 36-42
3. Miller J.F. Hope-inspiring strategies of the critically ill. Appl Nurs Res 2 (1989) 23-29
4. Herth K.A., and Cutcliffe J.R. The concept of hope in nursing 3: hope and palliative care nursing. Br J Nurs 11 (2002) 977-983
5. Breitbart W., Rosenfeld B., Pessin H., et al. Depression, hopelessness and desire for hastened death in terminally ill patients with cancer. JAMA 284 (2000) 2907-2911
6. Schmale A.H. Relationship of separation and depression to disease. Psychosom Med 20 (1958) 259-277
7. Leydon G.M., Boulton M., Moynihan C., et al. Cancer patients' information needs and information seeking behavior: in depth interview study. Br Med J 320 (2000) 909-913
8. Peteet J.R., Abrams H.E., Murray Ross D., and Stearns N.M. Presenting a diagnosis of cancer: patients' views. J Fam Pract 32 (1991) 577-581
9. Dufault K., and Martocchio B.C. Hope: it's spheres and dimensions. Nurs Clin North Am 20 (1985) 379-391
10. Curtis J.R., Patrick D.L., Caldwell E., and Collier A.C. Why don't patients with AIDS and their clinicians talk about end-of-life care? Barriers to communication for patients with AIDS and their primary care clinicians. Arch Intern Med 160 (2000) 1597-1601
11. Knauft M.E., Nielsen E.L., Engelberg R.A., Patrick D.L., and Curtis J.R. Barriers and facilitators to communication about end-of-life care for patients with COPD. Chest 127 (2005) 2188-2196
12. Innes S., and Payne S. Advanced cancer patients' prognostic information preferences: a review. Palliat Med 23 (2009) 29-39
13. Scanlon C. Creating a vision of hope: the challenge of palliative care. Oncol Nurs Forum 16 (1989) 491-496
14. Curtis J.R., Engelberg R., Young J.P., et al. An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer. J Palliat Med 11 (2008) 610-620
15. Reinke L.F., Engelberg R.A., Shannon S.E., et al. Transitions regarding palliative and end-of-life care in severe chronic obstructive pulmonary disease or advanced cancer: themes identified by patients, families, and clinicians. J Palliat Med 11 (2008) 601-609
16. Ferrell B.R., and Grant M. Nurses cannot practice what they do not know. J Prof Nurs 17 (2001) 107-108
17. Wilkinson S., Perry R., Blanchard K., and Linsell L. Effectiveness of a three-day communication skills course in changing nurses' communication skills with cancer/palliative care patients: a randomised controlled trial. Palliat Med 22 (2008) 365-375
18. Mahmood-Yousuf K., Munday D., King N., and Dale J. Interprofessional relationships and communication in primary palliative care: impact of the Gold Standards Framework. Br J Gen Pract 58 (2008) 256-263
19. Wenrich M.D., Curtis J.R., Shannon S.E., et al. Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Arch Intern Med 161 (2001) 868-874
20. Duggleby W., and Berry P. Transitions and shifting goals of care for palliative patients and their families. Clin J Oncol Nurs 9 (2005) 425-428
21. Herth K.A. Fostering hope in terminally-ill people. J Adv Nurs 15 (1990) 1250-1259
22. Rustoen T. Hope and quality of life, two central issues for cancer. Cancer Nurs 18 (1995) 355-361
23. Duggleby W., and Wright K. Elderly palliative care cancer patients' descriptions of hope-fostering strategies. Int J Palliat Nurs 10 (2004) 352-359
24. Ptacek J.T., and Eberhardt T.L. Breaking bad news: a review of the literature. JAMA 276 (1996) 496-502
25. Curtis J.R., Wenrich M.D., Carline J.D., et al. Understanding physicians' skills at providing end-of-life care: perspectives of patients, families, and health care workers. J Gen Intern Med 16 (2001) 41-49
26. Curtis J.R., Wenrich M.D., Carline J.D., et al. Patients' perspectives on physicians' skills at end-of-life care: differences between patients with COPD, cancer, and AIDS. Chest 122 (2002) 356-362
27. Evans W.G., Tulsky J.A., Back A.L., and Arnold R.M. Communication at times of transitions: how to help patients cope with loss and re-define hope. Cancer J 12 (2006) 417-424
28. Back A.L., Arnold R.M., and Quill T.E. Hope for the best, and prepare for the worst. Ann Intern Med 138 (2003) 439-443
29. University of Washington/Harborview Medical Center. The end of life care research program. Available from (2009). http://depts.washington.edu/eolcare/index.html Accessed 4/29/2010
30. Lynn J., Nolan K., Kabcenell A., et al. Reforming care for persons near the end of life: the promise of quality improvement. Ann Intern Med 137 (2002) 117-122
31. Strauss A.L., and Corbin J. Basics of qualitative research: Techniques and procedures for developing grounded theory (1998), Sage Publications, Thousand Oaks, CA
32. Glaser B.G., and Strauss A.L. Discovery of grounded theory (1967), Adline Publishing Company, Chicago, IL
33. Landis J.R., and Koch G.C. The measurement of observer agreement for categorical data. Biometrics 33 (1977) 159-174
34. Campbell J.D., Mauksch H.O., Neikirk H.J., and Hosokawa M.C. Collaborative practice and provider styles of delivering health care. Soc Sci Med 30 (1990) 1359-1365
35. Vazirani S., Hays R.D., Shapiro M.F., and Cowan M. Effect of a multidisciplinary intervention on communication and collaboration among physicians and nurses. Am J Crit Care 14 (2005) 71-77
36. Hancock K., Clayton J.M., Parker S.M., et al. Truth-telling in discussing prognosis in advanced life-limiting illnesses: a systematic review. Palliat Med 21 (2007) 507-517
37. Hagerty R.G., Butow P.N., Ellis P.M., et al. Communicating with realism and hope: incurable cancer patients' views on the disclosure of prognosis. J Clin Oncol 23 (2005) 1278-1288
38. Kirk P., Kirk I., and Kristjanson L.J. What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. BMJ 328 (2004) 1343
39. Shannon S.E., Foglia M.B., Hardy M., and Gallagher T.H. Disclosing errors to patients: perspectives of registered nurses. Jt Comm J Qual Patient Saf 35 (2009) 5-12
40. Swanson K.M. Nursing as informed caring for the well-being of others. Image J Nurs Sch 25 (1993) 352-357
41. Clayton J.M., Hancock K., Parker S., et al. Sustaining hope when communicating with terminally ill patients and their families: a systematic review. Psychooncology 17 7 (2008) 641-659
42. Penz K. Theories of hope: are they relevant for palliative care nurses and their practice?. Int J Palliat Nurs 14 (2008) 408-412
43. Penson R.T., Gu F., Harris S., et al. Hope. Oncologist 12 (2007) 1105-1113
44. Herth K.A. Hope in the family caregiver of terminally ill people. J Adv Nurs 18 (1993) 538-548
45. Back A.L., Arnold R.M., Baile W.F., et al. Efficacy of communication skills training for giving bad news and discussing transitions to palliative care. Arch Intern Med 167 (2007) 453-460
46. Back A.L., Arnold R.M., Tulsky J.A., Baile W.F., and Fryer-Edwards K.A. Teaching communication skills to medical oncology fellows. J Clin Oncol 21 (2003) 2433-2436
47. Curtis J.R., and Shannon S.E. Transcending the silos: toward an interdisciplinary approach to end-of-life care in the ICU. Intensive Care Med 32 (2006) 15-17