A call for high-quality advance care planning in outpatients with severe COPD or chronic heart failure

Chest

Volumn 139, Issue 5, 2011, Pages 1081-1088

  Janssen, Daisy J A ^a,b,c   Spruit, Martijn A ^a   Schols, Jos M G A ^c   Wouters, Emiel F M ^a,c  

^a Centre of Expertise for Chronic Organ Failure   (Netherlands)

^b Proteion Thuis   (Netherlands)

^c MAASTRICHT UNIVERSITY   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; ARTIFICIAL VENTILATION; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL TRIAL; CONTROLLED STUDY; DISEASE SEVERITY; DUTCH; DYING; ETHNIC GROUP; HEALTH CARE QUALITY; HEART FAILURE; HUMAN; INTERPERSONAL COMMUNICATION; LIFE SUSTAINING TREATMENT; MAJOR CLINICAL STUDY; MEDICAL SPECIALIST; OBSERVATIONAL STUDY; OUTCOME ASSESSMENT; PALLIATIVE THERAPY; PATIENT CARE; PRIORITY JOURNAL; PROGNOSIS; PROSPECTIVE STUDY; RESUSCITATION; TERMINAL CARE; TREATMENT PLANNING;

EID: 79955776574     PISSN: 00123692     EISSN: 19313543     Source Type: Journal    
DOI: 10.1378/chest.10-1753     Document Type: Article

References (35)

1. Lynn J, Teno JM, Phillips RS, et al; SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Perceptions by family members of the dying experience of older and seriously ill patients. Ann Intern Med. 1997;126(2):97-106.
2. Lanken PN, Terry PB, Delisser HM, et al; ATS End-of-Life Care Task Force. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med. 2008;177(8):912-927. (Pubitemid 351600670)
3. Jaarsma T, Beattie JM, Ryder M, et al; Advanced Heart Failure Study Group of the HFA of the ESC. Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail. 2009;11(5):433-443.
4. Stapleton RD, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Association of depression and life-sustaining treatment preferences in patients with COPD. Chest. 2005;127(1):328-334. (Pubitemid 41724593)
5. Formiga F, Chivite D, Ortega C, Casas S, Ramón JM, Pujol R. End-of-life preferences in elderly patients admitted for heart failure. QJM. 2004;97(12):803-808. (Pubitemid 39618572)
6. Krumholz HM, Phillips RS, Hamel MB, et al; Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Resuscitation preferences among patients with severe congestive heart failure: results from the SUPPORT project. Circulation. 1998;98(7):648-655.
7. Tanvetyanon T, Leighton JC. Life-sustaining treatments in patients who died of chronic congestive heart failure compared with metastatic cancer. Crit Care Med. 2003;31(1):60-64. (Pubitemid 36151150)
8. Gaber KA, Barnett M, Planchant Y, McGavin CR. Attitudes of 100 patients with chronic obstructive pulmonary disease to artificial ventilation and cardiopulmonary resuscitation. Palliat Med. 2004;18(7):626-629. (Pubitemid 39468110)
9. Heffner JE, Fahy B, Hilling L, Barbieri C. Attitudes regarding advance directives among patients in pulmonary rehabilitation. Am J Respir Crit Care Med. 1996;154(6 Pt 1):1735-1740. (Pubitemid 26424943)
10. Fried TR, Bradley EH, Towle VR, Allore H. Understanding the treatment preferences of seriously ill patients. N Engl J Med. 2002;346(14):1061-1066. (Pubitemid 34984621)
11. Fried TR, Bradley EH, Towle VR. Assessment of patient preferences: integrating treatments and outcomes. J Gerontol B Psychol Sci Soc Sci. 2002;57(6):S348-S354. (Pubitemid 35285957)
12. Silveira MJ, Kim SY, Langa KM. Advance directives and outcomes of surrogate decision making before death. N Engl J Med. 2010;362(13):1211-1218.
13. Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010;340:c1345.
14. Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Understanding physicians' skills at providing end-of-life care perspectives of patients, families, and health care workers. J Gen Intern Med. 2001;16(1):41-49. (Pubitemid 32128695)
15. Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Patients' perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS. Chest. 2002;122(1):356-362.
16. Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL. Patient-physician communication about end-of-life care for patients with severe COPD. Eur Respir J. 2004;24(2):200-205. (Pubitemid 39139785)
17. Fried TR, van Doorn C, O'Leary JR, Tinetti ME, Drickamer MA. Older persons' preferences for site of terminal care. Ann Intern Med. 1999;131(2):109-112. (Pubitemid 29340562)
18. Schoen C, Osborn R, How SK, Doty MM, Peugh J. In chronic condition: experiences of patients with complex health care needs, in eight countries, 2008. Health Aff (Millwood). 2009;28(1):w1-w16.
19. Janssen DJ, Wouters EF, Schols JM, Spruit MA. Self-perceived symptoms and care needs of patients with severe to very severe chronic obstructive pulmonary disease, congestive heart failure or chronic renal failure and its consequences for their closest relatives: the research protocol. BMC Palliat Care. 2008;7:5.
20. Charlson ME, Pompei P, Ales KL, MacKenzie CR. A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis. 1987;40(5):373-383. (Pubitemid 17055592)
21. Engelberg R, Downey L, Curtis JR. Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care. J Palliat Med. 2006;9(5):1086-1098. (Pubitemid 44759942)
22. Altman DG, Gore SM, Gardner MJ, Pocock SJ. Statistical guidelines for contributors to medical journals. Br Med J (Clin Res Ed). 1983;286(6376):1489- 1493.
23. Claessens MT, Lynn J, Zhong Z, et al; Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Dying with lung cancer or chronic obstructive pulmonary disease: insights from SUPPORT. J Am Geriatr Soc. 2000;48(5 Suppl):S146-S153.
24. Pochard F, Lanore JJ, Bellivier F, et al. Subjective psychological status of severely ill patients discharged from mechanical ventilation. Clin Intensive Care. 1995;6(2):57-61.
25. Hill AT, Hopkinson RB, Stableforth DE. Ventilation in a Birmingham intensive care unit 1993-1995: outcome for patients with chronic obstructive pulmonary disease. Respir Med. 1998;92(2):156-161.
26. Seneff MG, Wagner DP, Wagner RP, Zimmerman JE, Knaus WA. Hospital and 1-year survival of patients admitted to intensive care units with acute exacerbation of chronic obstructive pulmonary disease. JAMA. 1995;274(23):1852-1857. (Pubitemid 26001261)
27. Nava S, Santoro C, Grassi M, Hill N. The influence of the media on COPD patients' knowledge regarding cardiopulmonary resuscitation. Int J Chron Obstruct Pulmon Dis. 2008;3(2):295-300. (Pubitemid 352037889)
28. Christakis NA, Lamont EB. Extent and determinants of error in doctors' prognoses in terminally ill patients: prospective cohort study. BMJ. 2000;320(7233):469-472. (Pubitemid 30173113)
29. Knauft E, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Barriers and facilitators to end-of-life care communication for patients with COPD. Chest. 2005;127(6):2188-2196.
30. Curtis JR, Engelberg R, Young JP, et al. An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer. J Palliat Med. 2008;11(4):610-620. (Pubitemid 351630198)
31. Barnes S, Gott M, Payne S, et al. Recruiting older people into a large, community-based study of heart failure. Chronic Illn. 2005;1(4):321-329.
32. Rutten FH, Cramer MJ, Lammers JW, Grobbee DE, Hoes AW. Heart failure and chronic obstructive pulmonary disease: An ignored combination? Eur J Heart Fail. 2006;8(7):706-711. (Pubitemid 44635314)
33. Fried TR, O'Leary J, Van Ness P, Fraenkel L. Inconsistency over time in the preferences of older persons with advanced illness for life-sustaining treatment. J Am Geriatr Soc. 2007;55(7):1007-1014. (Pubitemid 47024626)
34. Levenson JW, McCarthy EP, Lynn J, Davis RB, Phillips RS. The last six months of life for patients with congestive heart failure. J Am Geriatr Soc. 2000;48(5 Suppl):S101-S109. (Pubitemid 30266002)
35. Lynn J, Ely EW, Zhong Z, et al. Living and dying with chronic obstructive pulmonary disease. J Am Geriatr Soc. 2000;48(5 Suppl):S91-S100. (Pubitemid 30266001)