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Volumn 38, Issue 1, 2014, Pages 35-44

Consumer involvement in health research: A UK scoping and survey

Author keywords

Consumer involvement; Health research; Patient and public involvement; Research policy; User

Indexed keywords


EID: 84892157842     PISSN: 14706423     EISSN: 14706431     Source Type: Journal    
DOI: 10.1111/ijcs.12072     Document Type: Article
Times cited : (54)

References (46)
  • 2
    • 35748930837 scopus 로고    scopus 로고
    • Involving consumers successfully in NHS research: a national survey
    • Barber, R., Boote, J.D. & Cooper, C.L. (2007) Involving consumers successfully in NHS research: a national survey. Health Expectations, 10, 380-391.
    • (2007) Health Expectations , vol.10 , pp. 380-391
    • Barber, R.1    Boote, J.D.2    Cooper, C.L.3
  • 3
    • 84865401007 scopus 로고    scopus 로고
    • Can the impact of public involvement on research be evaluated? A mixed methods study
    • Barber, R., Boote, J.D., Parry, G.D., Cooper, C.L., Yeeles, P. & Cook, S. (2012) Can the impact of public involvement on research be evaluated? A mixed methods study. Health Expectations, 15, 229-241.
    • (2012) Health Expectations , vol.15 , pp. 229-241
    • Barber, R.1    Boote, J.D.2    Parry, G.D.3    Cooper, C.L.4    Yeeles, P.5    Cook, S.6
  • 5
    • 4444339020 scopus 로고    scopus 로고
    • Power, participation, and political renewal: theoretical perspectives on public participation under new labour in Britain
    • Barnes, M., Newman, J. & Sullivan, H. (2004) Power, participation, and political renewal: theoretical perspectives on public participation under new labour in Britain. Social Politics, 11, 267-279.
    • (2004) Social Politics , vol.11 , pp. 267-279
    • Barnes, M.1    Newman, J.2    Sullivan, H.3
  • 6
    • 15244349537 scopus 로고    scopus 로고
    • Developing the theoretical basis for service user/survivor-led research and equal involvement in research
    • Beresford, P. (2005) Developing the theoretical basis for service user/survivor-led research and equal involvement in research. Epidemiologia e Psichiatria Sociale, 14, 4-9.
    • (2005) Epidemiologia e Psichiatria Sociale , vol.14 , pp. 4-9
    • Beresford, P.1
  • 8
    • 80052814022 scopus 로고    scopus 로고
    • Public involvement in the systematic review process in health and social care: a narrative review of case examples
    • Boote, J., Baird, W. & Sutton, A. (2011) Public involvement in the systematic review process in health and social care: a narrative review of case examples. Health Policy (Amsterdam, Netherlands), 102, 105-116.
    • (2011) Health Policy (Amsterdam, Netherlands) , vol.102 , pp. 105-116
    • Boote, J.1    Baird, W.2    Sutton, A.3
  • 9
    • 29944441322 scopus 로고    scopus 로고
    • Principles and indicators of successful consumer involvement in NHS research: results of a Delphi study and subgroup analysis
    • Boote, J., Barber, R. & Cooper, C. (2006) Principles and indicators of successful consumer involvement in NHS research: results of a Delphi study and subgroup analysis. Health Policy, 75, 280-297.
    • (2006) Health Policy , vol.75 , pp. 280-297
    • Boote, J.1    Barber, R.2    Cooper, C.3
  • 10
    • 0036085994 scopus 로고    scopus 로고
    • Consumer involvement in health research: a review and research agenda
    • Boote, J., Telford, R. & Cooper, C. (2002) Consumer involvement in health research: a review and research agenda. Health Policy, 61, 213-236.
    • (2002) Health Policy , vol.61 , pp. 213-236
    • Boote, J.1    Telford, R.2    Cooper, C.3
  • 11
    • 84892145398 scopus 로고    scopus 로고
    • The PIRICOM Study: a systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research. [WWW document]. URL (accessed on 16 September 2010).
    • Brett, J., Staniszewska, S., Mockford, C., Seers, K., Herron-Marx, S. & Bayliss, H. (2010) The PIRICOM Study: a systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research. [WWW document]. URL http://www.ukcrc.org/systematic-review-on-ppi-in-clinical-research/ (accessed on 16 September 2010).
    • (2010)
    • Brett, J.1    Staniszewska, S.2    Mockford, C.3    Seers, K.4    Herron-Marx, S.5    Bayliss, H.6
  • 12
    • 84872292655 scopus 로고    scopus 로고
    • All trials must be registered and the results published
    • doi: 10.1136/bmj.f105.
    • Chalmers, I., Glasziou, P. & Godlee, F. (2013) All trials must be registered and the results published. British Medical Journal, 346, f105. doi: 10.1136/bmj.f105.
    • (2013) British Medical Journal , vol.346
    • Chalmers, I.1    Glasziou, P.2    Godlee, F.3
  • 15
    • 84892164696 scopus 로고    scopus 로고
    • Department of HealthBest research for best health. [WWW document]. URL (accessed on 29 July 2013).
    • Department of Health (2006) Best research for best health. [WWW document]. URL https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/136578/dh_4127152.pdf (accessed on 29 July 2013).
    • (2006)
  • 16
    • 84892187961 scopus 로고    scopus 로고
    • Department of HealthValuing people now: a new three-year strategy for learning disabilities. [WWW document]. URL (accessed on 5 August 2010).
    • Department of Health (2009) Valuing people now: a new three-year strategy for learning disabilities. [WWW document]. URL http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_093375.pdf (accessed on 5 August 2010).
    • (2009)
  • 17
    • 84892176448 scopus 로고    scopus 로고
    • Department of HealthInnovation health and wealth, accelerating adoption and diffusion in the NHS. [WWW document]. URL (accessed on 12 November 2012).
    • Department of Health (2011) Innovation health and wealth, accelerating adoption and diffusion in the NHS. [WWW document]. URL http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_131784.pdf (accessed on 12 November 2012).
    • (2011)
  • 20
    • 69549089595 scopus 로고    scopus 로고
    • Ensuring public and patient participation in research: a case study in infrastructure development in one UK Research and Development consortium
    • Howe, A., MacDonald, H., Barrett, B. & Little, B. (2006) Ensuring public and patient participation in research: a case study in infrastructure development in one UK Research and Development consortium. Primary Health Care Research and Development, 7, 60-67.
    • (2006) Primary Health Care Research and Development , vol.7 , pp. 60-67
    • Howe, A.1    MacDonald, H.2    Barrett, B.3    Little, B.4
  • 21
    • 84887974163 scopus 로고    scopus 로고
    • The impact of patient and public involvement in the work of the Dementias & Neurodegenerative Diseases Research Network (DeNDRoN): case studies
    • doi: 10.1111/j.1369-7625.2011.00728.x.
    • Iliffe, S., McGrath, T. & Mitchell, D. (2011) The impact of patient and public involvement in the work of the Dementias & Neurodegenerative Diseases Research Network (DeNDRoN): case studies. Health Expectations, 16, 351-361. doi: 10.1111/j.1369-7625.2011.00728.x.
    • (2011) Health Expectations , vol.16 , pp. 351-361
    • Iliffe, S.1    McGrath, T.2    Mitchell, D.3
  • 22
    • 84892172959 scopus 로고    scopus 로고
    • INVOLVE What is public involvement in research? [WWW document]. URL (accessed on 12 November 2012).
    • INVOLVE (2012) What is public involvement in research? [WWW document]. URL http://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2 (accessed on 12 November 2012).
    • (2012)
  • 23
    • 84874363519 scopus 로고    scopus 로고
    • PPI, paradoxes and Plato: who's sailing the ship?
    • Ives, J., Damery, S. & Redwod, S. (2013) PPI, paradoxes and Plato: who's sailing the ship? Journal of Medical Ethics, 39, 181-185.
    • (2013) Journal of Medical Ethics , vol.39 , pp. 181-185
    • Ives, J.1    Damery, S.2    Redwod, S.3
  • 24
    • 84961666544 scopus 로고    scopus 로고
    • Reconstructing consumer participation in evidence-based health care: a polemic
    • Jordan, Z. & Court, A. (2010) Reconstructing consumer participation in evidence-based health care: a polemic. International Journal of Consumer Studies, 34, 558-561.
    • (2010) International Journal of Consumer Studies , vol.34 , pp. 558-561
    • Jordan, Z.1    Court, A.2
  • 25
    • 67649109057 scopus 로고    scopus 로고
    • Patient involvement and the politics of methodology
    • Kreindler, S.A. (2009) Patient involvement and the politics of methodology. Canadian Public Administration, 52, 113-124.
    • (2009) Canadian Public Administration , vol.52 , pp. 113-124
    • Kreindler, S.A.1
  • 27
    • 77249171323 scopus 로고    scopus 로고
    • What is involvement in research and what does it achieve? Reflections on a pilot study of the personal costs of stroke
    • McKevitt, C., Fudge, N. & Wolfe, C. (2009) What is involvement in research and what does it achieve? Reflections on a pilot study of the personal costs of stroke. Health Expectations, 13, 86-94.
    • (2009) Health Expectations , vol.13 , pp. 86-94
    • McKevitt, C.1    Fudge, N.2    Wolfe, C.3
  • 28
    • 84892147648 scopus 로고    scopus 로고
    • National Cancer Research InstituteACTION ON ACCESS: widening patient participation in clinical trials. [WWW document]. URL (accessed on 12 November 2012).
    • National Cancer Research Institute (2012) ACTION ON ACCESS: widening patient participation in clinical trials. [WWW document]. URL http://www.ncri.org.uk/includes/Publications/reports/action_on_access_report_final.pdf (accessed on 12 November 2012).
    • (2012)
  • 29
    • 84892148438 scopus 로고    scopus 로고
    • National Institute of Health ResearchMaking the difference. [WWW document]. URL (accessed on 29 July 2013).
    • National Institute of Health Research (2011) Making the difference. [WWW document]. URL http://www.crncc.nihr.ac.uk/Resources/NIHR%20CRN%20CC/PPI/Documents/Making%20the%20difference%20May%202011.pdf (accessed on 29 July 2013).
    • (2011)
  • 30
    • 84892162245 scopus 로고    scopus 로고
    • National Institute of Health ResearchCentral Commissioning Facility National Institute for Health Research and Policy Research Programme Patient and Public Involvement Plan: purpose, objectives and work (April 2013 to March 2015). [WWW document]. URL (accessed on 26 July 2013).
    • National Institute of Health Research (2013) Central Commissioning Facility National Institute for Health Research and Policy Research Programme Patient and Public Involvement Plan: purpose, objectives and work (April 2013 to March 2015). [WWW document]. URL http://www.ccf.nihr.ac.uk/PPI/Documents/CCF%20PPI%20Plan%202013-15.pdf (accessed on 26 July 2013).
    • (2013)
  • 31
    • 79960099634 scopus 로고    scopus 로고
    • Collaboration and co-ownership in research: dynamics and dialogues between patient research partners and professional researchers in a research team
    • Nierse, C.J., Schipper, K., van Zadelhoff, E., van de Griendt, J. & Abma, T.A. (2012) Collaboration and co-ownership in research: dynamics and dialogues between patient research partners and professional researchers in a research team. Health Expectations, 15, 242-254.
    • (2012) Health Expectations , vol.15 , pp. 242-254
    • Nierse, C.J.1    Schipper, K.2    van Zadelhoff, E.3    van de Griendt, J.4    Abma, T.A.5
  • 34
    • 84892149215 scopus 로고    scopus 로고
    • How to make health and social care research radical and really, really useful
    • In (ed. by C.E. Lloyd & T. Heller). Sage, London.
    • Purttell, R. & Gibson, A. (2012) How to make health and social care research radical and really, really useful. In Long-Term Conditions, Challenges in Health and Social Care (ed. by C.E. Lloyd & T. Heller), pp. 69-79. Sage, London.
    • (2012) Long-Term Conditions, Challenges in Health and Social Care , pp. 69-79
    • Purttell, R.1    Gibson, A.2
  • 36
    • 84892144401 scopus 로고    scopus 로고
    • Exploring impact: public involvement in NHS, public health and social care research. INVOLVE and National Institute of Health Research. [WWW document]. URL (accessed on 10 February 2010).
    • Staley, K. (2009) Exploring impact: public involvement in NHS, public health and social care research. INVOLVE and National Institute of Health Research. [WWW document]. URL http://www.invo.org.uk/pdfs/Involve_Exploring_Impactfinal28.10.09.pdf (accessed on 10 February 2010).
    • (2009)
    • Staley, K.1
  • 37
    • 84912013079 scopus 로고    scopus 로고
    • 'The missing links': understanding how context and mechanism influence the impact of public involvement in research
    • Epub ahead of print, doi: 10.1111/hex.12017.
    • Staley, K., Buckland, S.A., Hayes, H. & Tarpey, M. (2012) 'The missing links': understanding how context and mechanism influence the impact of public involvement in research. Health Expectations. Epub ahead of print, doi: 10.1111/hex.12017.
    • (2012) Health Expectations
    • Staley, K.1    Buckland, S.A.2    Hayes, H.3    Tarpey, M.4
  • 40
    • 84880285430 scopus 로고    scopus 로고
    • Patient and public involvement in research: future challenges
    • Staniszewska, S. & Denegri, S. (2013) Patient and public involvement in research: future challenges. Evidence Based Nursing, 16, 69.
    • (2013) Evidence Based Nursing , vol.16 , pp. 69
    • Staniszewska, S.1    Denegri, S.2
  • 41
    • 34249314025 scopus 로고    scopus 로고
    • User involvement in the development of a research bid: barriers, enablers and impacts
    • Staniszewska, S.H., Jones, N., Newburn, M. & Marshall, S. (2007) User involvement in the development of a research bid: barriers, enablers and impacts. Health Expectations, 10, 173-183.
    • (2007) Health Expectations , vol.10 , pp. 173-183
    • Staniszewska, S.H.1    Jones, N.2    Newburn, M.3    Marshall, S.4
  • 43
    • 84871130571 scopus 로고    scopus 로고
    • We need to move the debate on open clinical trial data forward
    • doi: 10.1136/bmj.e8351.
    • Thompson, M. & Heneghan, C. (2012) We need to move the debate on open clinical trial data forward. British Medical Journal, 345, e8351. doi: 10.1136/bmj.e8351.
    • (2012) British Medical Journal , vol.345
    • Thompson, M.1    Heneghan, C.2
  • 44
    • 77649240987 scopus 로고    scopus 로고
    • Critical perspectives on 'consumer involvement' in health research: epistemological dissonance and the know-do gap
    • Ward, P.R., Thompson, J., Barber, R., Armitage, C.J., Boote, J.D., Cooper, C.L. & Jones, G.L. (2010) Critical perspectives on 'consumer involvement' in health research: epistemological dissonance and the know-do gap. Journal of Sociology, 46, 63-82.
    • (2010) Journal of Sociology , vol.46 , pp. 63-82
    • Ward, P.R.1    Thompson, J.2    Barber, R.3    Armitage, C.J.4    Boote, J.D.5    Cooper, C.L.6    Jones, G.L.7
  • 45
    • 0035348551 scopus 로고    scopus 로고
    • A policy analysis of the Expert Patient in the United Kingdom: self-care as an expression of pastoral power?
    • Wilson, P.M. (2001) A policy analysis of the Expert Patient in the United Kingdom: self-care as an expression of pastoral power? Health and Social Care in the Community, 9, 134-142.
    • (2001) Health and Social Care in the Community , vol.9 , pp. 134-142
    • Wilson, P.M.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.