A conceptual model of the multiple stages of communication necessary to support patient-centered care

Journal of Comparative Effectiveness Research

Volumn 2, Issue 4, 2013, Pages 421-433

  Halley, Meghan C ^a   Rendle, Katharine A S ^a,b   Frosch, Dominick L ^a,c,d  

^a PALO ALTO MEDICAL FOUNDATION RESEARCH INSTITUTE   (United States)

^b UNIVERSITY OF MICHIGAN   (United States)

^c GORDON AND BETTY MOORE FOUNDATION   (United States)

^d UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

communication; dissemination; shared decision making; translation

Indexed keywords

CLINICAL PRACTICE; COMMUNICATION SKILL; COMPARATIVE EFFECTIVENESS; CONCEPTUAL FRAMEWORK; DECISION SUPPORT SYSTEM; DOCTOR PATIENT RELATION; HEALTH CARE ACCESS; HEALTH CARE AVAILABILITY; HEALTH CARE UTILIZATION; HEALTH PROMOTION; HUMAN; INFORMATION DISSEMINATION; INTERPERSONAL COMMUNICATION; MEDICAL CARE; PATIENT CARE; PATIENT EDUCATION; PRIORITY JOURNAL; REVIEW; RISK BENEFIT ANALYSIS; SHARED DECISION MAKING;

EID: 84886944945     PISSN: 20426305     EISSN: 20426313     Source Type: Journal    
DOI: 10.2217/cer.13.46     Document Type: Review

References (80)

1. Greenfield S, Rich E. Welcome to the journal of comparative effectiveness research. J.Compar. Effect. Res. 1(1), 1-3 (2012).
2. Strope SA, Yang L, Nepple KG, Andriole GL, Owens PL. Population based comparative effectiveness of transurethral resection of the prostate and laser therapy for benign prostatic hyperplasia. J.Urol. 187(4), 1341-1345 (2012).
3. Lieberman D. Colorectal cancer screening: practice guidelines. Dig. Dis. 30 SUPPL. 2, 34-38 (2012).
4. Clancy CM. Commentary: precision science and patient-centered care. Acad. Med. 86(6), 667-670 (2011).
5. Avorn J, Fischer M. 'Bench to behavior': translating comparative effectiveness research into improved clinical practice. Health Aff. 29(10), 1891-1900 (2010).
6. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc. Sci. Med. 44(5), 681-692 (1997).
7. Timbie JW, Fox DS, Busum KV, Schneider EC. Five reasons that many comparative effectiveness studies fail to change patient care and clinical practice. Health Aff. 31(10), 2168-2175 (2012).
8. Rogers EM. Diffusion of Innovations (5thEdition). Free Press, New York, USA (2003).
9. Gaglio B, Shoup JA, Glasgow RE. TheRE-AIM Framework: a systematic review of use over time. Am. J.Public Health 103(6), e38-e46 (2013).
10. Frosch DL, Kaplan RM. Shared decision making in clinical medicine: past research and future directions. Am. J.Prev. Med. 17(4), 285-294 (1999).
11. Politi MC, Légaré F. Physicians' reactions to uncertainty in the context of shared decision making. Patient Educ. Couns. 80(2), 155-157 (2010).
12. Nelson B. Comparative effectiveness research takes a stand on cancer screening. Cancer Cytopathol. 120(1), 1-2 (2012).
13. U.S. Preventive Services Task Force. Screening for breast cancer: U.S. Preventive Services Task Force recommendation statement. Ann. Intern. Med. 151(10), 716-726, W-236 (2009).
14. U.S. Preventive Services Task Force. Screening for prostate cancer: U.S. Preventive Services Task Force recommendation statement. Ann.Intern. Med. 157(2), 120-134 (2012).
15. Elwyn G, Edwards A, Wensing M, Hibbs R, Wilkinson C, Grol R. Shared decision making observed in clinical practice: visual displays of communication sequence and patterns. J.Eval. Clin. Pract. 7(2), 211-221 (2001).
16. U.S. Preventive Services Task Force. Screening for colorectal cancer: U.S. Preventive Services Task Force recommendation statement. Ann. Intern. Med. 149(9), 627-637 (2008).
17. Zapka J, Klabunde CN, Taplin S, Yuan G, Ransohoff D, Kobrin S. Screening colonoscopy in the US: attitudes and practices of primary care physicians. J.Gen. Intern. Med. 27(9), 1150-1158 (2012).
18. Zapka J, Klabunde CN, Arora NK, Yuan G, Smith JL, Kobrin SC. Physicians' colorectal cancer screening discussion and recommendation patterns. Cancer Epidemiol. Biomarkers Prev. 20(3), 509-521 (2011).
19. Murray E, Pollack L, White M, Lo B. Clinical decision-making: patients' preferences and experiences. Patient Educ. Couns. 65(2), 189-196 (2007).
20. Murray E, Pollack l, White M, Lo B. Clinical decision-making: physicians' preferences and experiences. BMC Fam. Pract. 8, 10 (2007).
21. Elwyn G, Frosch D, Volandes A, Edwards A, Montori VM. Investing in deliberation: adefinition and classification of decision support interventions for people facing difficult health decisions. Med. Decis. Making 30(6), 701-711 (2010).
22. Elwyn G, O'Connor AM, Bennett C etal. Assessing the quality of decision support technologies using the international patient decision aid standards instrument (IPDASI). PLoS One 4(3), e4705 (2009).
23. Gigerenzer G, Gaissmaier W, Kurz-Milcke E, Schwartz LM, Woloshin S. Helping doctors and patients make sense of health statistics. Psychol. Sci. Publ. Interest 8(2), 53-96 (2007).
24. Hawley ST, Zikmund-Fisher B, Ubel P, Jancovic A, Lucas T, Fagerlin A. The impact of the format of graphical presentation on health-related knowledge and treatment choices. Patient Educ. Couns. 73(3), 448-455 (2008).
25. Lipkus IM. Numeric, verbal, and visual formats of conveying health risks: suggested best practices and future recommendations. Med. Decis. Making 27(5), 696-713 (2007).
26. Fuller R, Dudley N, Blacktop J. Riskcommunication and older people-understanding of probability and risk information by medical inpatients aged 75years and older. Age Ageing 30(6), 473-476 (2001).
27. Reyna VF, Nelson WL, Han PK, Dieckmann NF. How numeracy influences risk comprehension and medical decision making. Psychol. Bull. 135(6), 943-973 (2009).
28. Neuner-Jehle S, Senn O, Wegwarth O, Rosemann T, Steurer J. How do family physicians communicate about cardiovascular risk? Frequencies and determinants of different communication formats. BMC Fam. Pract. 12, 15 (2011).
29. Galesic M, Garcia-Retamero R. Do low-numeracy people avoid shared decision making? Health Psychol. 30(3), 336-341 (2011).
30. Gaissmaier W, Gigerenzer G. Statistical illiteracy undermines informed shared decision making. Z. Evid. Fortbild. Qual. Gesundhwes. 102(7), 411-413 (2008).
31. Kalet A, Roberts JC, Fletcher R. How do physicians talk with their patients about risks? J.Gen. Intern. Med. 9(7), 402-404 (1994).
32. Stacey D, Bennett CL, Barry MJ etal. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 10, CD001431 (2011).
33. Frosch DL, Légaré F, Fishbein M, Elwyn G. Adjuncts or adversaries to shared decision-making? Applying the integrative model of behavior to the role and design of decision support interventions in healthcare interactions. Implement. Sci. 4(1), 73 (2009).
34. Joosten EAG, DeFuentes-Merillas L, deWeert GH, Sensky T, van der Staak CPF, de Jong CAJ. Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status. Psychother. Psychosom. 77(4), 219-226 (2008).
35. Wilson SR, Strub P, Buist AS etal. Shared treatment decision making improves adherence and outcomes in poorly controlled asthma. Am. J.Respir. Crit. Care Med. 181(6), 566-577 (2010).
36. Volk RJ, Hawley ST, Kneuper S etal. Trials of decision aids for prostate cancer screening. Am. J.Prev. Med. 33(5), 428-434.e11 (2007).
37. Medves J, Godfrey C, Turner C etal. Systematic review of practice guideline dissemination and implementation strategies for healthcare teams and team-based practice. Int. J.Evid. Based Healthc. 8(2), 79-89 (2010).
38. Prior M, Guerin M, Grimmer-Somers K. Theeffectiveness of clinical guideline implementation strategies-a synthesis of systematic review findings. J.Eval. Clin. Pract. 14(5), 888-897 (2008).
39. Farmer AP, Légaré F, Turcot L etal. Printed educational materials: effects on professional practice and health care outcomes. Cochrane Database Syst. Rev. 3, CD004398 (2008).
40. Ivers N, Jamtvedt G, Flottorp S etal. Audit and feedback: effects on professional practice and healthcare outcomes. Cochrane Database Syst. Rev. 6, CD000259 (2012).
41. Avorn J. Transforming trial results into practice change: the final translational hurdle: comment on 'Impact of the ALLHAT/JNC7 dissemination project on thiazide-type diuretic use.' Arch. Intern. Med. 170(10), 858-860 (2010).
42. Forsetlund L, Bjørndal A, Rashidian A etal. Continuing education meetings and workshops: effects on professional practice and health care outcomes. Cochrane Database Syst. Rev. 2, CD003030 (2009).
43. Donohue JM, Cevasco M, Rosenthal MB. Adecade of direct-to-consumer advertising of prescription drugs. N. Engl. J.Med. 357(7), 673-681 (2007).
44. Ash JS, Sittig DF, Campbell EM, Guappone KP, Dykstra RH. Some unintended consequences of clinical decision support systems. AMIA Annu. Symp. Proc. 11, 26-30 (2007).
45. Belkora JK, Teng A, Volz S, Loth MK, Esserman LJ. Expanding the reach of decision and communication aids in a breast care center: a quality improvement study. Patient Educ. Couns. 83(2), 234-239 (2011).
46. Brackett C, Kearing S, Cochran N, Tosteson AN, Blair Brooks W. Strategies for distributing cancer screening decision aids in primary care. Patient Educ. Couns. 78(2), 166-168 (2010).
47. Uy V, May SG, Tietbohl C, Frosch DL. Barriers and facilitators to routine distribution of patient decision support interventions: apreliminary study in community-based primary care settings. Health Expect. doi: 10.1111/j.1369-7625. 2011.00760.x. (2012) (Epub ahead of print).
48. Belkora JK, Volz S, Teng AE, Moore DH, Loth MK, Sepucha KR. Impact of decision aids in a sustained implementation at a breast care center. Patient Educ. Couns. 86(2), 195-204 (2012).
49. Pignone M, Winquist A, Schild LA etal. Effectiveness of a patient and practice-level colorectal cancer screening intervention in health plan members: the CHOICE trial. Cancer 117(15), 3352-3362 (2011).
50. Silvia KA, Sepucha KR. Decision aids in routine practice: lessons from the breast cancer initiative. Health Expect. 9(3), 255-264 (2006).
51. Lewis CL, Brenner AT, Griffith JM, Pignone MP. The uptake and effect of a mailed multi-modal colon cancer screening intervention: apilot controlled trial. Implement. Sci. 3, 32 (2008).
52. Neiger BL, Thackeray R, Van Wagenen SA etal. Use of social media in health promotion: purposes, key performance indicators, and evaluation metrics. Health Promot. Pract. 13(2), 159-164 (2012).
53. Metzger MJ, Flanagin AJ. Using web 2.0 technologies to enhance evidence-based medical information. J.Health Commun. 16(SUPPL. 1), 45-58 (2011).
54. Fordis M, Street RL, Volk RJ, Smith Q. Theprospects for web 2.0 technologies for engagement, communication, and dissemination in the era of patient-centered outcomes research: selected articles developed from the Eisenberg conference series 2010 meeting. J.Health Commun. 16(SUPPL. 1), 3-9 (2011).
55. Bernhardt JM, Mays D, Kreuter MW. Dissemination 2.0: closing the gap between knowledge and practice with new media and marketing. J.Health Commun. 16(SUPPL.1), 32-44 (2011).
56. Elwyn G, Scholl I, Tietbohl C etal. Theimplementation of patient decision support interventions into routine clinical practice: asystematic review. BMC Med. Inform. Decis. (2013) (In press).
57. Lin GA, Halley M, Rendle KAS etal. Aneffort to spread decision aids in five California primary care practices yielded low distribution, highlighting hurdles. Health Aff. 32(2), 311-320 (2013).
58. Edwards M, Davies M, Edwards A. What are the external influences on information exchange and shared decision-making in healthcare consultations: a meta-synthesis of the literature. Patient Educ. Couns. 75(1), 37-52 (2009).
59. Braddock CH, Edwards KA, Hasenberg NM, Laidley TL, Levinson W. Informed decision making in outpatient practice. JAMA 282(24), 2313-2320 (1999).
60. Zikmund-Fisher BJ, Couper MP, Singer E etal. The DECISIONS Study: a nationwide survey of United States adults regarding 9 common medical decisions. Med. Decis. Making 30(5 SUPPL.), 20S-34S (2010).
61. Quirk A, Chaplin R, Lelliott P, Seale C. Howpressure is applied in shared decisions about antipsychotic medication: aconversation analytic study of psychiatric outpatient consultations. Sociol. Health Ill. 34(1), 95-113 (2011).
62. Robertson M, Moir J, Skelton J, Dowell J, Cowan S. When the business of sharing treatment decisions is not the same as shared decision making: a discourse analysis of decision sharing in general practice. Health 15(1), 78-95 (2011).
63. Roter DL, Hall JA. Physician gender and patient-centered communication: a critical review of empirical research. Annu. Rev. Public Health. 25, 497-519 (2004).
64. Johnson RL, Roter D, Powe NR, Cooper LA. Patient race/ethnicity and quality of patient-physician communication during medical visits. Am. J.Public Health 94(12), 2084-2090 (2004).
65. Belcher VN, Fried TR, Agostini JV, Tinetti ME. Views of older adults on patient participation in medication-related decision making. J.Gen. Intern. Med. 21(4), 298-303 (2006).
66. Helitzer DL, Lanoue M, Wilson B, deHernandez BU, Warner T, Roter D. Arandomized controlled trial of communication training with primary care providers to improve patient-centeredness and health risk communication. Patient Educ. Couns. 82(1), 21-29 (2011).
67. Carlsen B, Aakvik A. Patient involvement in clinical decision making: the effect of GP attitude on patient satisfaction. Health Expect. 9(2), 148-157 (2006).
68. Edwards A, Elwyn G, Hood K etal. Patient-based outcome results from a cluster randomized trial of shared decision making skill development and use of risk communication aids in general practice. Fam. Pract. 21(4), 347-354 (2004).
69. Epstein RM, Street RL. The values and value of patient-centered care. Ann. Fam. Med. 9(2), 100-103 (2011).
70. Frosch DL, May SG, Rendle KAS, Tietbohl C, Elwyn G. Authoritarian physicians and patients' fear of being labeled 'difficult' among key obstacles to shared decision making. Health Aff. 31(5), 1030-1038 (2012).
71. Adams JA, Elwyn G, Legare F, Frosch DL. Communicating with physicians about medical decisions: a reluctance to disagree. Arch. Intern. Med. 172(15), 1184-1186 (2012).
72. Underwood W, Orom H, Poch M etal. Multiple physician recommendations for prostate cancer treatment: a pandora's box for patients? Can. J.Urol. 17(5), 5346-5354 (2010).
73. Mendel R, Traut-Mattausch E, Frey D etal. Do physicians' recommendations pull patients away from their preferred treatment options? Health Expect. 15(1), 23-31 (2012).
74. Kinnersley P, Edwards A, Hood K etal. Interventions before consultations for helping patients address their information needs. Cochrane Database Syst. Rev. 3, CD004565 (2007).
75. Butow P, Devine R, Boyer M, Pendlebury S, Jackson M, Tattersall MHN. Cancer consultation preparation package: changing patients but not physicians is not enough. J.Clin. Oncol. 22(21), 4401-4409 (2004).
76. Elwyn G, Lloyd A, Joseph-Williams N etal. Option grids: shared decision making made easier. Patient Educ. Couns. 90(2), 207-212 (2013).
77. Elwyn G, Frosch D, Thomson R etal. Shared decision making: a model for clinical practice. J.Gen. Intern. Med. 27(10), 1361-1367 (2012).
78. Harrington J, Noble LM, Newman SP. Improving patients' communication with doctors: a systematic review of intervention studies. Patient Educ. Couns. 52(1), 7-16 (2004).
79. Edwards A, Elwyn G. Inside the black box of shared decision making: distinguishing between the process of involvement and who makes the decision. Health Expect. 9(4), 307-320 (2006).
80. Légaré F, Ratté S, Stacey D etal. Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database Syst. Rev. 5, CD006732 (2010).