Health literacy in relation to cancer: Addressing the silence about and absence of cancer discussion among Aboriginal people, communities and health services

Health and Social Care in the Community

Volumn 21, Issue 6, 2013, Pages 655-664

  Treloar, Carla ^a   Gray, Rebecca ^a   Brener, Loren ^a   Jackson, Clair ^a   Saunders, Veronica ^a,b   Johnson, Priscilla ^a,c   Harris, Magdalena ^a,d   Butow, Phyllis ^e   Newman, Christy ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

^b CANCER RESEARCH DIVISION   (Australia)

^c Camperdown Community Health Centre   (Australia)

^d LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^e UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Aborigine; Australia; Cancer; Diagnosis; Health literacy; Treatment

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; AUSTRALIA; COMMUNITY CARE; DIAGNOSIS; ETHNOLOGY; FEMALE; HEALTH LITERACY; HUMAN; INDIGENOUS PEOPLE; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NEOPLASM; OCEANIC ANCESTRY GROUP; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; TREATMENT;

ABORIGINE; AUSTRALIA; CANCER; DIAGNOSIS; HEALTH LITERACY; TREATMENT;

ADULT; AGED; COMMUNITY HEALTH SERVICES; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH LITERACY; HUMANS; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NEOPLASMS; NEW SOUTH WALES; OCEANIC ANCESTRY GROUP; QUALITATIVE RESEARCH;

EID: 84885472470     PISSN: 09660410     EISSN: 13652524     Source Type: Journal    
DOI: 10.1111/hsc.12054     Document Type: Article

References (53)

1. Atkinson J. (2009) Trauma Trails, Recreating Song Lines: The Transgenerational Effects of Trauma in Indigenous Australia. Spinifex Press, North Melbourne.
2. Australian Government Department of Health and Ageing (2007) National Strategic Framework for Aboriginal and Torres Strait Islander Health 2003-2013; Australian Government Implementation Plan 2007-2013. Commonwealth of Australia, Canberra.
3. Australian Institute of Health and Welfare (2011a) The Health and Welfare of Australia's Aboriginal and Torres Strait Islander People, an Overview 2011. AIHW, Canberra.
4. Australian Institute of Health and Welfare (2011b) Life Expectancy and Mortality of Aboriginal and Torres Strait Islander People. Australian Institute of Health and Welfare, Canberra.
5. Baker D. (2006) The meaning and the measure of health literacy. Journal of General Internal Medicine 21, 878-883.
6. Canadian Council on Learning (2007) Health Literacy in Canada: Initial Results from the International Adult Literacy and Skills Survey (IALSS). Canadian Council on Learning, Ottawa, ON.
7. Clarke J. (2004) Dissolving the public realm? The logics and limits of neo-liberalism. Journal of Social Policy 33, 27-48.
8. Committee on Health Literacy for the Council on Scientific Affairs (1999) Health literacy: report of the Council on Scientific Affairs. Journal of the American Medical Association 281, 552-557.
9. Croager E., Eades T., Pratt I., Slevin T. (2010) Impact of a short, culturally relevant training course on cancer knowledge and confidence in Western Australia's Aboriginal Health Professionals. Australian & New Zealand Journal of Public Health 34 (Suppl 1), S76-S79.
10. Cunningham J. Rumbold A., Zhang X., Condon J. (2008) Incidence, aetiology, and outcomes of cancer in Indigenous peoples in Australia. Lancet Oncology 9, 585-595.
11. Davidson P. & Page K. (2012) Research participation as work: comparing the perspectives of researchers and economically marginalized populations. American Journal of Public Health 102, 1254-1259.
12. Dewalt D., Berkman N., Sheridan S., Lohr K. & Pignone M. (2004) Literacy and health outcomes: a systematic review of the literature. Journal of General Internal Medicine 19, 1228-1239.
13. Donovan R., Carter O., Jalleh G. & Jones S. (2004) Changes in beliefs about cancer in Western Australia, 1964-2001. Medical Journal of Australia 18, 23-25.
14. Garvey G., Cunningham J., Valery P. et al. (2011) Reducing the burden of cancer for Aboriginal and Torres Strait Islander Australians: time for a coordinated, collaborative, priority-driven, Indigenous-led research program. Medical Journal of Australia 194, 530-531.
15. Goldstein D., Thewes B. & Butow P. (2002) Communicating in a multicultural society. II: Greek community attitudes towards cancer in Australia. Internal Medicine Journal 32, 289-296.
16. Hohn M. (1997) Empowerment Health Education in Adult Literacy: A Guide for Public Health and Adult Literacy Practitioners, Policy Makers, and Funders. US National Institute for Literacy, Washington, DC.
17. Institute of Medicine (2004) Health Literacy: A Prescription to End Confusion. National Academies Press, Washington, DC.
18. Ishikawa H., Nomura K., Sato M. & Yano E. (2008) Developing a measure of communicative and critical health literacy: a pilot study of Japanese office workers. Health Promotion International 23, 269-274.
19. Jordan J., Buchbinder R. & Osborne R. (2010) Conceptualising health literacy from the patient perspective. Patient Education and Counseling 79, 36-42.
20. Kickbusch I. (2002) Health literacy: a search for new categories. Health Promotion International 17, 1-2.
21. Kowal E. & Paradies Y. (2010) Enduring dilemmas of Indigenous health: recognising the tensions inherent in all efforts to bring about change in Indigenous health outcomes. Medical Journal of Australia 192, 599-600.
22. McCray A. (2005) Promoting health literacy. Journal of the American Medical Informatics Association 12, 152-163.
23. McGrath P., Holewa H., Ogilvie K., Rayner R. & Patton M.A. (2006a) Insights on Aboriginal peoples' views of cancer in Australia. Contemporary Nurse: A Journal for the Australian Nursing Profession 22, 240-254.
24. McGrath P., Ogilvie K., Rayner R. & Patton M. (2006b) Insights on Aboriginal peoples' views of cancer in Australia. Contemporary Nurse: A Journal for the Australian Nursing Profession 22, 240-254.
25. National Health and Medical Research Council (2003) Values and Ethics: Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Research. Commonwealth of Australia, Canberra.
26. Nutbeam D. (2008) The evolving concept of health literacy. Social Science & Medicine 67, 2072-2078.
27. Nutbeam D. (2009) Defining and measuring health literacy: what can we learn from literacy studies? International Journal of Public Health 54, 303-305.
28. Nutbeam D. & Kickbusch I. (2000) Advancing health literacy: a global challenge for the 21st century. Health Promotion International 15, 183-184.
29. Osborn C., Paasche-Orlow M., Davis T. & Wolf M. (2007) Health literacy: an overlooked factor in understanding HIV health disparities. American Journal of Preventive Medicine 33, 374-378.
30. Parker R. (2000) Health literacy: a challenge for American patients and their health care providers. Health Promotion International 15, 277-283.
31. Petersen A. (1997) Risk, governance and the new public health. In: A. Petersen and R. Bunton (Eds) Foucault, Health and Medicine, pp. 189-206. Routledge, London.
32. Petersen A. & Lupton D. (1996) The New Public Health: Health and Self in the Age of Risk. Allen & Unwin, Sydney, NSW.
33. Prior D. (2009) The meaning of cancer for Australian Aboriginal women; changing the focus of cancer nursing. European Journal of Oncology Nursing 13, 280-286.
34. Ratzan S. & Parker R. (2000) Introduction. In: C. Selden, M. Zorn, S. Ratzan and R. Parker (Eds) National Library of Medicine Current Bibliographies in Medicine: Health Literacy, pp. v-vii. National Institutes of Health, U.S. Department of Health and Human Services, Bethesda, MD. NLM Pub. No. CBM 2000-1.
35. Rudd R. (2002) Literacy and health: a maturing partnership. Focus on Basics: Connecting Research and Practice 5, 1-8.
36. Shahid S., Finn L., Bessarab D. & Thompson S.C. (2009a) Understanding, beliefs and perspectives of Aboriginal people in Western Australia about cancer and its impact on access to cancer services. BMC Health Services Research 9, 1-9.
37. Shahid S., Finn L. & Thompson S.C. (2009b) Barriers to participation of Aboriginal people in cancer care: communication in the hospital setting. Medical Journal of Australia 190, 574-579.
38. Shahid S., Finn L., Bessarab D. & Thompson S. (2011) 'Nowhere to room. nobody told them': logistical and cultural impediments to Aboriginal peoples' participation in cancer treatment. Australian Health Review 35, 235-241.
39. Shaw S., Huebner C., Armin J., Orzech K. & Vivian J. (2009) The role of culture in health literacy and chronic disease screening and management. Journal of Immigrant and Minority Health 11, 460-467.
40. Si D., Bailie R., Togni S., D'Abbs P. & Robinson G. (2006) Aboriginal health workers and diabetes care in remote community health centres: a mixed method analysis. Medical Journal of Australia 185, 40-45.
41. Simonds S. (1974) Health education as social policy. Health Education Monograph 2, 1-25.
42. Simpson L., Zubrzycki J., Reid I. & Jones V. (2011) A good way of doing business! working together to achieve improved outcomes for Aboriginal people in NSW Cancer Services. Aboriginal & Islander Health Worker Journal 35, 13-15.
43. Sørensen K., Van den Broucke S., Fullam J., Doyle G., Pelikan J., Slonska Z. & Brand H.; (HLS-EU) Consortium Health Literacy Project European (2012) Health literacy and public health: a systematic review and integration of definitions and models. BMC Public Health 12, 1-13.
44. Supramaniam R., Grindley H. & Pulver L.J. (2006) Cancer mortality in Aboriginal people in New South Wales, Australia, 1994-2002. Australian and New Zealand Journal of Public Health 30, 453-456.
45. Taylor K., Smith J., Dimer L., Ali M., Wilson N., Thomas T. & Thompson S. (2010) 'You're always hearing about the stats. death happens so often': new perspectives on barriers to Aboriginal participation in cardiac rehabilitation. Medical Journal of Australia 192, 602.
46. Thorne S. (2008) Interpretive Description. Left Coast Print Inc, Walnut Creek, CA.
47. Thorne S., Reimer Kirkham S. & O'flynn-Magee K. (2004) The analytic challenge in interpretive description. International Journal of Qualitative Methods 3, 1-15.
48. Wakerman J., Humphreys J., Wells R., Kuipers P., Entwistle P. & Jones J. (2008) Primary health care delivery models in rural and remote Australia - a systematic review. BMC Health Services Research 8, 276.
49. Williams K., Mullan P. & Fletcher F. (2007) Working with African American women to develop a cancer literacy assessment tool. Journal of Cancer Education 22, 241-244.
50. Wood L., France K., Hunt K., Eades S. & Slack-Smith L. (2008) Indigenous women and smoking during pregnancy: knowledge, cultural contexts and barriers to cessation. Social Science and Medicine 66, 2378-2389.
51. Yeo S., Meiser B., Barlow-Stewart K., Goldstein D., Tucker K. & Eisenbruch M. (2005) Understanding community beliefs of Chinese-Australians about cancer: initial insights using an ethnographic approach. Psycho-Oncology 14, 174-186.
52. Zanchetta M. & Poureslami I. (2006) Health literacy within the reality of immigrants' culture and language. Canadian Journal of Public Health 97, S26-S30.
53. Zarcadoolas C., Pleasant A. & Greer D. (2005) Understanding health literacy: an expanded model. Health Promotion International 20, 195-203.