'Nowhere to room ... nobody told them': Logistical and cultural impediments to Aboriginal peoples' participation in cancer treatment

Australian Health Review

Volumn 35, Issue 2, 2011, Pages 235-241

  Shahid, Shaouli ^a   Finn, Lizzie ^b   Bessarab, Dawn ^a   Thompson, Sandra C ^c  

^a CURTIN UNIVERSITY   (Australia)

^b CURTIN UNIVERSITY   (Australia)

^c UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 79957638851     PISSN: 01565788     EISSN: 14498944     Source Type: Journal    
DOI: 10.1071/AH09835     Document Type: Article

References (29)

1. Smith KB, Humphreys JS, Wilson MGA. Addressing the health disadvantage of rural populations: How does epidemiological evidence inform rural health policies and research? Aust J Rural Health 2008; 16(2): 56-66. doi:10.1111/j.1440-1584.2008.00953.x (Pubitemid 351351524)
2. Gruen R, Bailie R. Specialist clinics in remote Australian Aboriginal communities: Where rock art meets rocket science. J Health Serv Res Policy 2004; 9(9): 56-62. doi:10.1258/1355819042349844
3. Calver J, Wiltshire A, Holman CD, Hunter E, Garfield C, Rosman DL. Does health assessment improve health outcomes in indigenous people? An RCT with 13 years of follow-up. Aust N Z J Public Health 2005; 29(2): 107-11. doi:10.1111/j.1467-842X.2005.tb00058.x (Pubitemid 40585230)
4. Condon JR, Armstrong BK, Barnes A, Cunningham J. Cancer in Indigenous Australians: A review. Cancer Causes Control 2003; 14(2): 109-21. doi:10.1023/A:1023064400004 (Pubitemid 36539517)
5. Condon JR, Barnes T, Armstrong BK, Selva-Nayagam S, Elwood JM. Stage at diagnosis and cancer survival for Indigenous Australians in the Northern Territory. Med J Aust 2005; 182(6): 277-80. (Pubitemid 40425880)
6. Roder D. Comparative cancer incidence mortality and survival in Indigenous and non-Indigenous residents of South Australia and Northern territory. Can Forum 2005; 29(1): 7-9. (Pubitemid 40524417)
7. Year Book Australia, 2005. Canberra: Australian Bureau of Statistics; 2005.
8. CunninghamJ, RumboldAR,ZhangX,CondonJR. Incidence, aetiology, and outcomes of cancer in Indigenous peoples in Australia. Lancet Oncol 2008; 9: 585. doi:10.1016/S1470-2045(08)70150-5 (Pubitemid 351722583)
9. Shahid S, Thompson S. An overview of cancer and beliefs about the disease in Indigenous people of Australia, Canada, New Zealand and the United States. Aust N Z J Public Health 2009; 33(2): 109-18. doi:10.1111/j.1753-6405.2009. 00355.x
10. Jong KE, Vale PJ, Armstrong BK. Rural inequalities in cancer care and outcome. Med J Aust 2005; 182(1): 13-4. (Pubitemid 40089869)
11. Cancer survival in Australia 1992-1997: Geographic categories and socioeconomic status. Canberra: Australian Institute of Health and Welfare, Australasian Association of Cancer Registries; 2003.
12. Lowenthal RM, Grogan PB, Kerrins ET. Reducing the impact of cancer in Indigenous communities: Ways forward. Med J Aust 2005; 182(3): 105-6. (Pubitemid 40268250)
13. McGrath P. I don't want to be in that big city; this is my country here': Research findings on Aboriginal peoples' preference to die at home. Aust J Rural Health 2007; 15: 264-8. doi:10.1111/j.1440-1584.2007. 00904.x
14. Bourke L, Sheridan C, Russell U, Jones G, DeWitt D, Liaw S. Developing a conceptual understanding of rural health practice. Aust J Rural Health 2004; 12(5): 181-6. doi:10.1111/j.1440-1854.2004.00601.x (Pubitemid 40089902)
15. Dixon J, Welch N. Researching the rural-metropolitan health differential using the 'social determinants of health'. Aust J Rural Health 2000; 8: 254-60. doi:10.1046/j.1440-1584.2000.00327.x
16. Shahid S, Finn L, Thompson ST. Barriers to participation of Aboriginal people in cancer care: Communication in the hospital setting. Med J Aust 2009; 190(10): 574-9.
17. Shahid S, Bessarab D, Howat P, Thompson SC. Exploration of the beliefs and experiences of Aboriginal people with cancer in Western Australia: A methodology to acknowledge cultural difference and build understanding. BMC Med Res Methodol 2009; 9: 60.
18. Bishop B, Vicary D, Andrews H, Pearson G. Towards a culturally appropriate mental health research process for Indigenous Australians. The Australian Community Psychologist 2006; 18: 31-41.
19. Liamputtong P, Ezzy D. Qualitative Research Methods. 2nd ed. South Melbourne, Victoria: Oxford University Press; 2005.
20. Aboriginal patient coordination and liaison project. Meet and assist service. Perth: West Australian Department of Health; 2006.
21. Relationship, responsibility, respect. Canberra: Department of the Environment and Heritage; 2004. Available at http://www.indigenous tourism.australia.com/content/PDF/welcome-to-country.pdf [verified 22 March 2011].
22. Access to health services. Canberra: Australian Institute of Health and Welfare; 2006. Available at http://www.aihw.gov.au/access-to-healthservices- indigenous/ [verified 22 March 2011].
23. Simpson A. Improving the health of rural and remote Aboriginal communities through state-wide education and employment initiatives. 10th National Rural Health Conference; 17-20 May 2009; Cairns, QLD. Office of Aboriginal Health, WA Health; 2009. Available at http://10thnrhc.ruralhealth. org.au/papers/docs/Simpson-Aeron-E7.pdf [verified 7 March 2011].
24. Gruen RL, Weeamanthri TS, Bailie RS. Outreach and improved services for indigenous people in remote Australia: The requirements for sustainability. J Epidemiol Community Health 2002; 56: 517-21. doi:10.1136/ jech.56.7.517 (Pubitemid 34712948)
25. Stoneman J, Taylor SJ. Improving access to medicines in urban, regional and rural Aboriginal communities - is expansion of Section 100 the answer? Rural Remote Health 2007; 7: 738. Available at http://www. rrh.org.au/articles/ showarticlenew.asp?ArticleID=738 [verified 7 March 2011].
26. Jiwa M, Saunders CM, Thompson SC, Rosenwax LK, Sargant S, Khong EL, et al. Timely cancer diagnosis and management as a chronic condition: Opportunities for primary care. Med J Aust 2008; 189(2): 78-82.
27. Mitchell GK. The role of general practice in cancer care. Aust Fam Physician 2008; 37(9): 698-702.
28. Lawrence M, Dodd Z, Mohor S, Dunn S, de Crespigny C, Power C, et al. Improving the patient journey: Achieving positive outcomes for remote Aboriginal cardiac patients. Darwin: Cooperative Research Centre for Aboriginal Health; 2009.
29. Bolch D, Johnston JB, Giles LC, Whitehead C, Phillips P, Crotty M. Hospital to home: An integrated approach to discharge planning in a rural South Australian town. Aust J Rural Health 2005; 13(2): 91-6. doi:10.1111/j.1440-1854. 2005.00660.x (Pubitemid 40711416)