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Volumn 94, Issue 10, 2013, Pages 1934-1939

Disorders of consciousness and disordered care: Families, caregivers, and narratives of necessity

Author keywords

Affordable Care Act; Brain injury; Disability and civil rights; Disorders of consciousness; Family narratives; Neuroethics; Rehabilitation; Vegetative State

Indexed keywords

ARTICLE; BRAIN INJURY; CAREGIVER; CIVIL RIGHTS; CONSCIOUSNESS DISORDER; DECISION MAKING; HEALTH CARE POLICY; HEALTH CARE SYSTEM; HEALTH INSURANCE; HEALTH SERVICE; HOSPITALIZATION; HUMAN; MEDICAL CARE; MEDICAL ETHICS; MINIMALLY CONSCIOUS STATE; NARRATIVE; PATIENT CARE; PERSISTENT VEGETATIVE STATE; PHYSIOTHERAPY; PROGNOSIS; REHABILITATION CARE; REIMBURSEMENT; TRAUMATIC BRAIN INJURY;

EID: 84884702071     PISSN: 00039993     EISSN: 1532821X     Source Type: Journal    
DOI: 10.1016/j.apmr.2012.12.028     Document Type: Note
Times cited : (45)

References (54)
  • 1
    • 0037762683 scopus 로고    scopus 로고
    • Constructing an ethical stereotaxy for severe brain injury: Balancing risks, benefits and access
    • J.J. Fins Constructing an ethical stereotaxy for severe brain injury: balancing risks, benefits and access Nat Rev Neurosci 4 2003 323 327
    • (2003) Nat Rev Neurosci , vol.4 , pp. 323-327
    • Fins, J.J.1
  • 3
    • 58749085435 scopus 로고    scopus 로고
    • Lessons from the injured brain: A bioethicist in the vineyards of neuroscience
    • J.J. Fins Lessons from the injured brain: a bioethicist in the vineyards of neuroscience Camb Q Healthc Ethics 18 2009 7 13
    • (2009) Camb Q Healthc Ethics , vol.18 , pp. 7-13
    • Fins, J.J.1
  • 4
    • 84858266443 scopus 로고    scopus 로고
    • Solitary advocates: The severely brain injured and their surrogates
    • B. Hoffman, N. Tomes, M. Schlessinger, R. Grob, Rutgers University Pr
    • J.J. Fins, and J. Hersh Solitary advocates: the severely brain injured and their surrogates B. Hoffman, N. Tomes, M. Schlessinger, R. Grob, Transforming health care from below: patients as actors in U.S. health policy 2011 Rutgers University Pr 21 42
    • (2011) Transforming Health Care from Below: Patients As Actors in U.S. Health Policy , pp. 21-42
    • Fins, J.J.1    Hersh, J.2
  • 5
    • 84860729047 scopus 로고    scopus 로고
    • Coma and consciousness: Paradigms (re)framed by neuroimaging
    • S. Laureys, and N.D. Schiff Coma and consciousness: paradigms (re)framed by neuroimaging Neuroimage 61 2012 478 491
    • (2012) Neuroimage , vol.61 , pp. 478-491
    • Laureys, S.1    Schiff, N.D.2
  • 6
    • 78649729315 scopus 로고    scopus 로고
    • Assessment scales for disorders of consciousness: Evidence-based recommendations for clinical practice and research
    • Brain Injury-Interdisciplinary Special Interest Group, Disorders Of Consciousness Task Force American Congress of Rehabilitation Medicine
    • R.T. Seel American Congress of Rehabilitation Medicine Brain Injury-Interdisciplinary Special Interest Group, and Disorders of Consciousness Task Force Assessment scales for disorders of consciousness: evidence-based recommendations for clinical practice and research Arch Phys Med Rehabil 91 2010 1795 1813
    • (2010) Arch Phys Med Rehabil , vol.91 , pp. 1795-1813
    • Seel, R.T.1
  • 7
    • 33846429153 scopus 로고    scopus 로고
    • Late recovery from the minimally conscious state: Ethical and policy implications
    • J.J. Fins, N.D. Schiff, and K.M. Foley Late recovery from the minimally conscious state: ethical and policy implications Neurology 68 2007 304 307
    • (2007) Neurology , vol.68 , pp. 304-307
    • Fins, J.J.1    Schiff, N.D.2    Foley, K.M.3
  • 8
    • 63849145905 scopus 로고    scopus 로고
    • Being conscious of their burden: Severe brain injury and the two cultures challenge
    • J.J. Fins Being conscious of their burden: severe brain injury and the two cultures challenge Ann N Y Acad Sci 1157 2009 131 147
    • (2009) Ann N y Acad Sci , vol.1157 , pp. 131-147
    • Fins, J.J.1
  • 9
    • 84858229411 scopus 로고    scopus 로고
    • Brain injury and the culture of neglect: Musings on an uncertain future. The body and the state
    • J.J. Fins, and A. Suppes Brain injury and the culture of neglect: musings on an uncertain future. The body and the state Soc Res 78 2011 731 746
    • (2011) Soc Res , vol.78 , pp. 731-746
    • Fins, J.J.1    Suppes, A.2
  • 10
    • 68349131405 scopus 로고    scopus 로고
    • Diagnostic accuracy of the vegetative and minimally conscious state: Clinical consensus versus standardized neurobehavioral assessment
    • C. Schnakers, A. Vanhaudenhuyse, and J. Giacino Diagnostic accuracy of the vegetative and minimally conscious state: clinical consensus versus standardized neurobehavioral assessment BMC Neurol 9 2009 35
    • (2009) BMC Neurol , vol.9 , pp. 35
    • Schnakers, C.1    Vanhaudenhuyse, A.2    Giacino, J.3
  • 11
    • 0037065807 scopus 로고    scopus 로고
    • The minimally conscious state: Definition and diagnostic criteria
    • J.T. Giacino, S. Ashwal, and N. Childs The minimally conscious state: definition and diagnostic criteria Neurology 58 2002 349 353
    • (2002) Neurology , vol.58 , pp. 349-353
    • Giacino, J.T.1    Ashwal, S.2    Childs, N.3
  • 12
    • 50849087132 scopus 로고    scopus 로고
    • Ethics of clinical decision making and communication with surrogates
    • J. Posner, C. Saper, N.D. Schiff, F. Plum, 4th ed. Oxford University Pr New York
    • J.J. Fins Ethics of clinical decision making and communication with surrogates J. Posner, C. Saper, N.D. Schiff, F. Plum, Plum and Posner's diagnosis of stupor and coma 4th ed. 2007 Oxford University Pr New York
    • (2007) Plum and Posner's Diagnosis of Stupor and Coma
    • Fins, J.J.1
  • 13
    • 4444331621 scopus 로고    scopus 로고
    • Neurological diagnosis is more than a state of mind: Diagnostic clarity and impaired consciousness
    • J.J. Fins, and F. Plum Neurological diagnosis is more than a state of mind: diagnostic clarity and impaired consciousness Arch Neurol 61 2004 1354 1355
    • (2004) Arch Neurol , vol.61 , pp. 1354-1355
    • Fins, J.J.1    Plum, F.2
  • 14
    • 33847066352 scopus 로고    scopus 로고
    • Affirming the right to care, preserving the right to die: Disorders of consciousness and neuroethics after Schiavo
    • J.J. Fins Affirming the right to care, preserving the right to die: disorders of consciousness and neuroethics after Schiavo Palliat Support Care 4 2006 169 178
    • (2006) Palliat Support Care , vol.4 , pp. 169-178
    • Fins, J.J.1
  • 15
    • 18244394400 scopus 로고    scopus 로고
    • Rethinking disorders of consciousness: New research and its implications
    • J.J. Fins Rethinking disorders of consciousness: new research and its implications Hastings Cent Rep 35 2 2005 22 24
    • (2005) Hastings Cent Rep , vol.35 , Issue.2 , pp. 22-24
    • Fins, J.J.1
  • 16
    • 34147181545 scopus 로고    scopus 로고
    • The family conference: End-of-life guidelines at work for comatose patients
    • E.F.M. Wijdicks, and A.A. Rabinstein The family conference: end-of-life guidelines at work for comatose patients Neurology 68 2007 1092 1094
    • (2007) Neurology , vol.68 , pp. 1092-1094
    • Wijdicks, E.F.M.1    Rabinstein, A.A.2
  • 17
    • 84884702061 scopus 로고    scopus 로고
    • 70 N.J. 10, 355 A.2d 677 (1976).
    • Matter of Karen Quinlan, 70 N.J. 10, 355 A.2d 677 (1976).
    • Matter of Karen Quinlan
  • 18
    • 84884704605 scopus 로고    scopus 로고
    • Stupor and coma
    • S.C. McKean, J.J. Ross, D.D. Dressler, D.J. Brotman, J.S. Ginsberg, McGraw Hill Company New York
    • N.D. Schiff, and J.J. Fins Stupor and coma S.C. McKean, J.J. Ross, D.D. Dressler, D.J. Brotman, J.S. Ginsberg, Principles and practice of hospital medicine 2012 McGraw Hill Company New York 1724 1729
    • (2012) Principles and Practice of Hospital Medicine , pp. 1724-1729
    • Schiff, N.D.1    Fins, J.J.2
  • 20
    • 4444331621 scopus 로고    scopus 로고
    • Neurological diagnosis is more than a state of mind: Diagnostic clarity and impaired consciousness
    • J.J. Fins, and F. Plum Neurological diagnosis is more than a state of mind: diagnostic clarity and impaired consciousness Arch Neurol 61 2004 1354 1355
    • (2004) Arch Neurol , vol.61 , pp. 1354-1355
    • Fins, J.J.1    Plum, F.2
  • 21
    • 84884704581 scopus 로고    scopus 로고
    • Code of Federal Regulations. Title 42, Volume 3 Part 482, Subpart C. Conditions of participation for hospitals.
    • Code of Federal Regulations. Title 42, Volume 3 Part 482, Subpart C. Conditions of participation for hospitals.
  • 22
    • 0028217788 scopus 로고
    • Medical aspects of the persistent vegetative state (1 and 2). The Multi-Society Task Force on PVS
    • 1572-9
    • Medical aspects of the persistent vegetative state (1 and 2). The Multi-Society Task Force on PVS N Engl J Med 330 1994 1499 1508 1572-9
    • (1994) N Engl J Med , vol.330 , pp. 1499-1508
  • 23
    • 84882971299 scopus 로고    scopus 로고
    • Severe brain injury and organ donation: A call for temperance
    • Available at:. Accessed April 1, 2012.
    • Fins JJ. Severe brain injury and organ donation: a call for temperance. Virtual Mentor 2012;14:221-6. Available at: http://virtualmentor.ama-assn.org/ 2012/03/stas1-1203.html. Accessed April 1, 2012.
    • (2012) Virtual Mentor , vol.14 , pp. 221-226
    • Fins, J.J.1
  • 25
    • 77952426201 scopus 로고    scopus 로고
    • Postresuscitation care: Entering a new era
    • J.P. Nolan, and J. Soar Postresuscitation care: entering a new era Curr Opin Crit Care 16 2010 216 222
    • (2010) Curr Opin Crit Care , vol.16 , pp. 216-222
    • Nolan, J.P.1    Soar, J.2
  • 26
    • 84859928362 scopus 로고    scopus 로고
    • Early EEG correlates of neuronal injury after brain anoxia
    • A.O. Rossetti, E. Carrera, and M. Oddo Early EEG correlates of neuronal injury after brain anoxia Neurology 78 2012 796 802
    • (2012) Neurology , vol.78 , pp. 796-802
    • Rossetti, A.O.1    Carrera, E.2    Oddo, M.3
  • 27
    • 77952094582 scopus 로고    scopus 로고
    • Intracranial pressure monitoring for traumatic brain injury
    • L.C. Padayachy, A.A. Figaji, and M.R. Bullock Intracranial pressure monitoring for traumatic brain injury Childs Nerv Syst 26 2010 441 452
    • (2010) Childs Nerv Syst , vol.26 , pp. 441-452
    • Padayachy, L.C.1    Figaji, A.A.2    Bullock, M.R.3
  • 29
    • 84884699819 scopus 로고    scopus 로고
    • 42 U.S.C. 1395y(a)(1)(A).
    • -42 U.S.C. 1395y(a)(1)(A).
  • 30
    • 84983801466 scopus 로고    scopus 로고
    • Medical necessity: Is current documentation practice and payment denial limiting access to inpatient rehabilitation?
    • C.V. Granger, M. Carlin, and P. Diaz Medical necessity: is current documentation practice and payment denial limiting access to inpatient rehabilitation? Am J Phys Med Rehabil 88 2009 755 765
    • (2009) Am J Phys Med Rehabil , vol.88 , pp. 755-765
    • Granger, C.V.1    Carlin, M.2    Diaz, P.3
  • 31
    • 9944231914 scopus 로고    scopus 로고
    • The JFK Coma Recovery Scale-Revised: Measurement characteristics and diagnostic utility
    • J.T. Giacino, K. Kalmar, and J. Whyte The JFK Coma Recovery Scale-Revised: measurement characteristics and diagnostic utility Arch Phys Med Rehabil 85 2004 2020 2029
    • (2004) Arch Phys Med Rehabil , vol.85 , pp. 2020-2029
    • Giacino, J.T.1    Kalmar, K.2    Whyte, J.3
  • 32
    • 80053306901 scopus 로고    scopus 로고
    • Neuroethics, neuroimaging & disorders of consciousness: Promise or peril?
    • J.J. Fins Neuroethics, neuroimaging & disorders of consciousness: promise or peril? Trans Am Clin Climatol Assoc 122 2010 336 346
    • (2010) Trans Am Clin Climatol Assoc , vol.122 , pp. 336-346
    • Fins, J.J.1
  • 33
    • 77149167629 scopus 로고    scopus 로고
    • Willful modulation of brain activity in disorders of consciousness
    • M.M. Monti, A. Vanhaudenhuyse, and M.R. Coleman Willful modulation of brain activity in disorders of consciousness N Engl J Med 362 2010 579 589
    • (2010) N Engl J Med , vol.362 , pp. 579-589
    • Monti, M.M.1    Vanhaudenhuyse, A.2    Coleman, M.R.3
  • 34
    • 79952141056 scopus 로고    scopus 로고
    • Dissociations between behavioural and functional magnetic resonance imaging-based evaluations of cognitive function
    • J.C. Bardin, J.J. Fins, and D.I. Katz Dissociations between behavioural and functional magnetic resonance imaging-based evaluations of cognitive function Brain 134 2011 769 782
    • (2011) Brain , vol.134 , pp. 769-782
    • Bardin, J.C.1    Fins, J.J.2    Katz, D.I.3
  • 35
    • 84856821464 scopus 로고    scopus 로고
    • Pattern classification of volitional functional magnetic imaging responses in patients with severe brain injury
    • J.C. Bardin, N.D. Schiff, and H.U. Voss Pattern classification of volitional functional magnetic imaging responses in patients with severe brain injury Arch Neurol 69 2012 176 181
    • (2012) Arch Neurol , vol.69 , pp. 176-181
    • Bardin, J.C.1    Schiff, N.D.2    Voss, H.U.3
  • 36
    • 73949108672 scopus 로고    scopus 로고
    • The ethics of measuring and modulating consciousness: The imperative of minding time
    • J.J. Fins The ethics of measuring and modulating consciousness: the imperative of minding time Prog Brain Res 177C 2009 371 382
    • (2009) Prog Brain Res , vol.177 C , pp. 371-382
    • Fins, J.J.1
  • 38
    • 84884699513 scopus 로고    scopus 로고
    • Department of Health and Human Services, et al, Petitioners v Florida, et al, USC 11-398.
    • Department of Health and Human Services, et al, Petitioners v Florida, et al, USC 11-398.
  • 39
    • 77957732282 scopus 로고    scopus 로고
    • Becoming accountable - Opportunities and obstacles for ACOs
    • H.S. Luft Becoming accountable - opportunities and obstacles for ACOs N Engl J Med 363 2010 1389 1391
    • (2010) N Engl J Med , vol.363 , pp. 1389-1391
    • Luft, H.S.1
  • 40
    • 79951824265 scopus 로고    scopus 로고
    • Accountable care organization at academic medical centers
    • J.A. Kastor Accountable care organization at academic medical centers N Engl J Med 364 2011 e11
    • (2011) N Engl J Med , vol.364 , pp. 11
    • Kastor, J.A.1
  • 41
    • 79951825521 scopus 로고    scopus 로고
    • Accountable care at academic medical centers - Lessons from Johns Hopkins
    • S.A. Berkowitz, and E.D. Miller Accountable care at academic medical centers - lessons from Johns Hopkins N Engl J Med 364 2011 e12
    • (2011) N Engl J Med , vol.364 , pp. 12
    • Berkowitz, S.A.1    Miller, E.D.2
  • 46
    • 16844362569 scopus 로고    scopus 로고
    • The minimally conscious state and recovery potential: A follow-up study 2 to 5 years after traumatic brain injury
    • M.H. Lammi, V.H. Smith, R.L. Tate, and C.M. Taylor The minimally conscious state and recovery potential: a follow-up study 2 to 5 years after traumatic brain injury Arch Phys Med Rehabil 86 2005 746 754
    • (2005) Arch Phys Med Rehabil , vol.86 , pp. 746-754
    • Lammi, M.H.1    Smith, V.H.2    Tate, R.L.3    Taylor, C.M.4
  • 47
    • 84856856671 scopus 로고    scopus 로고
    • Wait, wait don't tell me: Tuning in the injured brain
    • J.J. Fins Wait, wait.don't tell me: tuning in the injured brain Arch Neurol 69 2012 158 160
    • (2012) Arch Neurol , vol.69 , pp. 158-160
    • Fins, J.J.1
  • 48
    • 34547634001 scopus 로고    scopus 로고
    • Behavioral improvements with thalamic stimulation after severe traumatic brain injury
    • N.D. Schiff, J.T. Giacino, and K. Kalmar Behavioral improvements with thalamic stimulation after severe traumatic brain injury Nature 448 2007 600 603
    • (2007) Nature , vol.448 , pp. 600-603
    • Schiff, N.D.1    Giacino, J.T.2    Kalmar, K.3
  • 49
    • 84864663775 scopus 로고    scopus 로고
    • Thalamic deep brain stimulation to promote recovery from chronic post-traumatic minimally conscious state: Challenges and opportunities
    • J. Giacino, J.J. Fins, A. Machado, and N.D. Schiff Thalamic deep brain stimulation to promote recovery from chronic post-traumatic minimally conscious state: challenges and opportunities Neuromodulation 15 2012 339 349
    • (2012) Neuromodulation , vol.15 , pp. 339-349
    • Giacino, J.1    Fins, J.J.2    Machado, A.3    Schiff, N.D.4
  • 51
    • 68049143015 scopus 로고    scopus 로고
    • Incidence of clinically significant responses to zolpidem among patients with disorders of consciousness: A preliminary placebo controlled trial
    • J. Whyte, and R. Myers Incidence of clinically significant responses to zolpidem among patients with disorders of consciousness: a preliminary placebo controlled trial Am J Phys Med Rehabil 88 2009 410 418
    • (2009) Am J Phys Med Rehabil , vol.88 , pp. 410-418
    • Whyte, J.1    Myers, R.2
  • 52
    • 84857826580 scopus 로고    scopus 로고
    • Placebo-controlled trial of amantadine for severe traumatic brain injury
    • J.T. Giacino, J. Whyte, and E. Bagiella Placebo-controlled trial of amantadine for severe traumatic brain injury N Engl J Med 366 2012 819 826
    • (2012) N Engl J Med , vol.366 , pp. 819-826
    • Giacino, J.T.1    Whyte, J.2    Bagiella, E.3
  • 53
    • 0003620361 scopus 로고    scopus 로고
    • 2nd ed. Oxford University Pr New York
    • H. Brody Stories of sickness 2nd ed. 2009 Oxford University Pr New York
    • (2009) Stories of Sickness
    • Brody, H.1
  • 54
    • 84856849928 scopus 로고    scopus 로고
    • Minds apart: Severe brain injury
    • M. Freeman, Oxford University Pr New York
    • J.J. Fins Minds apart: severe brain injury M. Freeman, Law and neuroscience: current legal issues vol. 13 2010 Oxford University Pr New York 367 384
    • (2010) Law and Neuroscience: Current Legal Issues , vol.13 , pp. 367-384
    • Fins, J.J.1


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