The ethics of measuring and modulating consciousness: the imperative of minding time

Progress in Brain Research

Volumn 177, Issue C, 2009, Pages 371-382

  Fins, Joseph J ^a  

^a WEILL CORNELL MEDICAL COLLEGE   (United States)

Author keywords

brain injury; disorders of consciousness; ethics; minimally conscious state; neuroethics; Quinlan; right to die; Schiavo; time; vegetative state

Indexed keywords

BRAIN INJURY; CHRONICITY; CONSCIOUSNESS; HEALTH CARE SYSTEM; HUMAN; MEDICAL ETHICS; NEUROIMAGING; PATIENT RIGHT; PHILOSOPHY; PRIORITY JOURNAL; PROGNOSIS; REIMBURSEMENT; REVIEW; RIGHT TO DIE; TIME; ARTICLE; COGNITION; CONSCIOUSNESS DISORDER; CONVALESCENCE; CULTURAL ANTHROPOLOGY; ETHICS; HISTORY; HISTORY OF MEDICINE; PATHOPHYSIOLOGY;

COGNITION; CONSCIOUSNESS; CONSCIOUSNESS DISORDERS; CULTURE; HISTORY OF MEDICINE; HUMANS; RECOVERY OF FUNCTION; RIGHT TO DIE;

EID: 73949108672     PISSN: 00796123     EISSN: None     Source Type: Book Series    
DOI: 10.1016/S0079-6123(09)17726-9     Document Type: Review

References (48)

1. Bauby J.-D. The diving bell and the butterfly (1998), Vintage International, New York
2. Blake R. The day Donny Herbert woke up (2007), Harmony Books, New York
3. Cantor N.L. Twenty-five years after Quinlan: A review of the jurisprudence of death and dying. Journal of Law Medicine & Ethics 29 2 (2001) 182-196
4. Capek M. Time. In: Wiener P.P. (Ed). Dictionary of the history of ideas Vol. IV (1973), Charles Scribner's Sons, Publishers, New York
5. Corbett C. Literary review Winter, Vol. III (2006), The Northeast Center for Special Care, Lake Katrine, NY
6. Dandy W.E. Ventriculography following the injection of air into the cerebral ventricles. Annals of Surgery 68 (1918) 5-11
7. Fins J.J. Constructing an ethical stereotaxy for severe brain injury: Balancing risks, benefits and access. Nature Reviews Neuroscience 4 (2003) 323-327
8. Fins J.J. Rethinking disorders of consciousness: New research and its implications. The Hastings Center Report 35 2 (2005) 22-24
9. Fins J.J. A palliative ethic of care: Clinical wisdom at life's end (2006), Jones and Bartlett, Sudbury, MA
10. Fins J.J. Affirming the right to care, preserving the right to die: Disorders of consciousness and neuroethics after Schiavo. Supportive & Palliative Care 4 2 (2006) 169-178
11. Fins J.J. Ethics of clinical decision making and communication with surrogates. In: Posner J., Saper C., Schiff N.D., and Plum F. (Eds). Plum and Posner's diagnosis of stupor and coma. (4th ed.) (2007), Oxford University Press, New York
12. Fins J.J. Border zones of consciousness: Another immigration debate?. American Journal of Bioethics-Neuroethics 7 1 (2007) 51-54
13. Fins J.J. A leg to stand on: Sir William Osler and Wilder Penfield's "Neuroethics". American Journal of Bioethics 8 1 (2008) 37-46
14. Fins J.J. "Humanities are the Hormones": Osler, Penfield and "Neuroethics" Revisited. American Journal of Bioethics 8 1 (2008) w5-w8
15. Fins J.J. A review of: The day Donny Herbert woke up. Journal of the American Medical Association 299 8 (2008) 959-960
16. Fins J.J., Illes J., Bernat J.L., Hirsch J., Laureys S., Murphy E., et al. Neuroimaging and disorders of consciousness: Envisioning an ethical research agenda. American Journal of Bioethics 8 9 (2008) 3-12
17. Fins J.J., Master M.G., Gerber L.M., and Giacino J.T. The minimally conscious state: A diagnosis in search of an epidemiology. Archives of Neurology 64 10 (2007) 1400-1405
18. Fins J.J., and Plum F. Neurological diagnosis is more than a state of mind: Diagnostic clarity and impaired consciousness. Archives of Neurology 61 9 (2004) 1354-1355
19. Fins J.J., and Schiff N.D. Shades of gray: New insights from the vegetative state. The Hastings Center Report 36 6 (2006) 8
20. Fins J.J., Schiff N.D., and Foley K.M. Late recovery from the minimally conscious state: Ethical and policy implications. Neurology 68 (2007) 304-307
21. Giacino J.T., Ashwal S., Childs N., Cranford R., Jennett B., Katz D.I., et al. The minimally conscious state: Definition and diagnostic criteria. Neurology 58 (2002) 349-353
22. Granger C.V., Carlin M., Diaz P., Dorval J., Forer S., Kessler C., et al. Medical necessity: Is current documentation practice and payment denial limiting access to inpatient rehabilitation?. American Journal of Physical Medicine & Rehabilitation 88 9 (2009) 755-765
23. Heraclitus. (1999). The art and thought of Heraclitus. In C. H. Kahn (Ed.) (p. 53). Cambridge, UK: Cambridge University Press.
24. Jennett B. The vegetative state (2001), Cambridge University Press, Cambridge, UK (pp. 63-64)
25. Jennett B., and Plum F. Persistent vegetative state after brain damage: A syndrome in search of a name. Lancet 299 7753 (1972) 734-737
26. Kilgore E.J., and Elster A.D. Walter Dandy and the history of ventriculography. Radiology 194 (1995) 657-660
27. Lammi M.H., Smith V.H., Tate R.L., and Taylor C.M. The minimally conscious state and recovery potential: A follow-up study 2 to 5 years after traumatic brain injury. Archives of Physical Medicine and Rehabilitation 86 4 (2005) 746-754
28. Laureys S., Faymonville M.E., Peigneux P., Damas P., Lambermont B., Del Fiore G., et al. Cortical processing of noxious somatosensory stimuli in the persistent vegetative state. Neuroimage 17 2 (2002) 732-741
29. Mathias J.L., and Wheaton P. Changes in attention and information-processing speed following severe traumatic brain injury: A meta-analytic review. Neuropsychology 21 2 (2007) 212-223
30. Matter of Karen Quinlan. (1976). 70 N.J. 10, 355 A.2d 677.
31. Multi-Society Task Force on PVS. Medical aspects of the persistent vegetative state (2). The Multi-Society Task Force on PVS. New England Journal of Medicine 330 22 (1994) 1572-1579
32. Nelson L.A., Yoash-Gantz R.E., Pickett T.C., and Campbell T.A. Relationship between processing speed and executive performance among OEF/OIF Veterans: Implications for postdeployment rehabilitation. The Journal of Head Trauma Rehabilitation 24 1 (2009) 32-40
33. NIH Consensus Development Panel on Rehabilitation of Persons With Traumatic Brain Injury. Rehabilitation of persons with traumatic brain injury. Journal of the American Medical Association 282 (1999) 974-983
34. Owen A.M., Coleman M.R., Boly M., Davis M.H., Laureys S., and Pickard J.D. Detecting awareness in the vegetative state. Science 313 5792 (2006) 1402
35. Penfield, W. (1936). The significance of the Montreal Neurological Institute. In Neurological Biographies and Addresses (Foundation Volume, Published for the Staff, to commemorate the Opening of the Montreal Neurological Institute, of McGill University). London: Humphrey Milford/Oxford University Press.
36. Penfield W. No man alone (1977), Little, Brown and Company, Boston, MA
37. Plum F., and Posner J.B. The diagnosis of stupor and coma. 3rd ed. (1982), F.A. Davis Company, Philadelphia, PA
38. Relvea-Chew A., Hollingworth W., Chan L., Comstock B.A., Overstreet K.A., and Jarvik J.G. Personal bankruptcy after traumatic brain injury or spinal cord injury: The role of medical debt. Archives of Physical Medicine and Rehabilitation 90 3 (2009) 413-419
39. Schiff N.D., Giacino J.T., and Fins J.J. Deep brain stimulation, neuroethics and the minimally conscious state: Moving beyond proof of principle. Archives of Neurology 66 6 (2009) 697-702
40. Schiff N.D., Giacino J.T., Kalmar K., Victor J.D., Baker K., Gerber M., et al. Behavioural improvements with thalamic stimulation after severe traumatic brain injury. Nature 448 7153 (2007) 600-603
41. Schiff N.D., Rodriguez-Moreno D., Kamal A., Kim K.H., Giacino J.T., Plum F., et al. fMRI reveals large-scale network activation in minimally conscious patients. Neurology 64 3 (2005) 514-523
42. Sobel D. Longitude (2007), Walker & Company, New York
43. Taylor C.M., Aird V.H., Tate R.L., and Lammi M.H. Sequence of recovery during the course of emergence from the minimally conscious state. Archives of Physical Medicine and Rehabilitation 88 4 (2007) 521-525
44. The Shorter Oxford English Dictionary. (1987). In C. T. Onions (Ed.). New York: Clarendon Press/Oxford University Press.
45. Voss H.U., Uluc A.M., Dyke J.P., Watts R., Kobylarz E.J., McCandliss B.D., et al. Possible axonal regrowth in late recovery from the minimally conscious state. Journal of Clinical Investigation 116 7 (2006) 2005-2011
46. Weill Cornell Transcripts. (2007-2008). Patient/Family Interviews. IRB approved study.
47. Whyte J., Katz D., Long D., DiPasquale M.C., Polansky M., Kalmar K., et al. Predictors of outcome in prolonged posttraumatic disorders of consciousness and assessment of medication effects: A multicenter study. Archives of Physical Medicine and Rehabilitation 86 3 (2005) 453-462
48. Wijdicks E.F.M., and Rabinstein A.A. The family conference: End-of-life guidelines at work for comatose patients. Neurology 68 (2007) 1092-1094