Enhancing parental well-being and coping through a family-centred short course for Iranian parents of children with an autism spectrum disorder

Autism

Volumn 17, Issue 1, 2013, Pages 27-43

  Samadi, Sayyed Ali ^a   Mcconkey, Roy ^a   Kelly, Greg ^a  

^a UNIVERSITY OF ULSTER   (United Kingdom)

Author keywords

autism spectrum disorder; family support; Iran; Parent education

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; AUTISM; CHILD; CROSSOVER PROCEDURE; EDUCATION; FEMALE; HUMAN; IRAN; MALE; MENTAL STRESS; MIDDLE AGED; PARENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE;

ADAPTATION, PSYCHOLOGICAL; ADULT; CHILD; CHILD DEVELOPMENT DISORDERS, PERVASIVE; CHILD, PRESCHOOL; CROSS-OVER STUDIES; FEMALE; HUMANS; IRAN; MALE; MIDDLE AGED; PARENTS; QUESTIONNAIRES; STRESS, PSYCHOLOGICAL;

EID: 84882932704     PISSN: 13623613     EISSN: 14617005     Source Type: Journal    
DOI: 10.1177/1362361311435156     Document Type: Article

References (68)

1. Abidin R (1983) Parenting Stress Index: Manual Administration Booklet, and Research Update. Charlottesville: Pediatric Psychology Press.
2. Altiere MJ von Kluge S (2009) Family functioning and coping behaviors in parents of children with autism. Journal of Child and Family Studies 18: 83-92.
3. Bailey DB Powell T (2005) Assessing the information needs of families in early intervention. The developmental system approach to early intervention. Baltimore: Paul H Brookes, pp.151-183.
4. Baker-Ericzen MJ Brookman-Frazee L Stahmer A (2005) Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities 30(4):194-204.
5. Benson PR Karlof KL (2009) Anger, stress proliferation and depressed mood among parents of children with ASD: a longitudinal replication. Journal of Autism and Developmental Disorders 39 (2): 350-362.
6. Beresford B (1995) Resources and strategies: How parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry 35(1):171-209.
7. Bilgin H Kucuk L (2010) Raising an autistic child: perspectives from Turkish mothers. Journal of Child and Adolescent Psychiatric Nursing 23(2): 92-99.
8. Brookman-Frazee L Stahmer A Baker-Ericzen MJ Tsai K (2006) Parenting interventions for children with autism spectrum and disruptive behavior disorders: Opportunities for cross fertilization. Clinical Child and Family Psychology Review 9: 81-200.
9. Carey JW (1993) Linking qualitative and quantitative methods: Integrating cultural factors into public health. Qualitative Health Research 3: 298-318.
10. Chesney B Chesler M (1993) Activism through self-help group membership: reported life changes of parents of children with cancer. Small Group Research 24: 258-273.
11. Dabrowska A Pisula E (2010) Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research 54(3): 266-280.
12. Daley TC (2004) From symptom recognition to diagnosis: children with autism in urban India. Social Science and Medicine 58: 1323-1335.
13. Dempsey I Dunst CJ (2004) Help giving styles and parent empowerment in families with a young child with disability. Journal of Intellectual and Developmental Disabilities 29(1): 40-51.
14. Dempsey I Keen D (2008) A review of processes and outcomes in family-centered services for children with a disability. Topics in Early Childhood Special Education 28(1): 42-52.
15. Dunn M Burbine T Bowers C Tantleff-Dunn S (2001) Moderators of stress in parents of children with autism. Community Mental Health Journal 37(1): 39-52.
16. Dunst CJ Trivette CM Hamby DW (2007) Meta-analysis of family-centered helpgiving practices research. Mental Retardation and Developmental Disabilities Research Reviews 13: 370-378.
17. Epstein NB Baldwin LM Bishop DS (1983) The McMaster family assessment device. Journal of Marital and Family Therapy 9: 171-180.
18. Farrugia D (2009) Exploring stigma: medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder, Sociology of Health and Illness 31(7): 1011-1027.
19. Fombonne E (2009) Epidemiology of pervasive developmental disorders. Pediatric Research 65(6): 591-598.
20. Ghomri M (2003) Coping strategies and mental health of the students with intellectual disabilities and normal children, a comparative study. Unpublished doctoral thesis, Allameh Tabatabaie University, Tehran, Iran. [In Persian]
21. Gilliam JE (1995) Gilliam Autism Rating Scale. Austin, TX: Pro-Ed.
22. Goldberg D Williams P (1991) A user's guide to the General Health Questionnaire. Windsor: NFER-Nelson.
23. Gorman CJC Balter L (1997) Culturally sensitive parent education: A critical review of quantitative research. Review of Educational Research 67(3): 339-369.
24. Guralnick MJ,(ed. ) (2005) The Developmental Systems Approach to Early Intervention. Baltimore: Paul Brookes.
25. Hastings RP Johnson E (2001) Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders 31(3): 62-83.
26. Hastings RP Allen R McDermott K Still D (2002) Factors related to positive perceptions in mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 15: 269-275.
27. Hastings RP Kovshoff H Brown T Ward NJ Espinosa FD Remington B (2005) Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism 9(4): 377-391.
28. Hatton C Akram Y Shah R Robertson J Emerson E (2004) Supporting South Asian families with a child with severe disabilities. London: Jessica Kingsley.
29. Homan A (1998) Normalizing General Health Questionnaire on the Iranian population. Tehran: Tehran University Press. [In Persian]
30. Hornby G. (2000) Improving Parental Involvement. London: Cassell.
31. Kaiser AP Hancock TB (2003) Teaching parents new skills to support their young children's development. Infants and Young Children 16(1): 9-21.
32. Keen D Couzens D Muspratt S Rodger S (2010) The effects of a parent-focused intervention for children with a recent diagnosis of autism spectrum disorder on parenting stress and competence. Research in Autism Spectrum Disorders 4: 229-241.
33. Khoshabi K (2003) The Adjustment Mechanisms in Parents with Autistic Child. The 5th National Conference on Children Intellectual Disability. Homepage of University of Social Welfare and Rehabilitation. Available at: http://www.rehabiran.net/ViewMqlh.aspx?&cd=759.
34. Krug DA Arick JR Almond PJ (1978) Autism Screening Instrument for Educational Planning: Background and Development. In: GillamJ,(ed. ) Autism: Diagnosis Instruction, Management and Research. Austin, TA: University of Texas Press.
35. Kuhn JC Carter AS (2006) Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry 76(4): 564-575.
36. Lord Nelson LG Summers JA Turnbull AP (2004) Boundaries in family-professional relationships, implications for special education. Remedial and Special Education 25(3): 153-165.
37. McConachie H Randle V Hammal D Le Couteur A (2005) A controlled trial of a training course for parents of children with suspected autism spectrum disorder. Journal of Pediatrics 143(3): 335-340.
38. McConkey R Truesdale-Kennedy M Chang M-Y Jarrah S Shukri R (2008) The impact on mothers of bringing up a child with intellectual disabilities: A cross-cultural study. International Journal of Nursing Studies 45: 65-74.
39. McConkey R Truesdale-Kennedy M Crawford H McGreevy E Reavey M Cassidy A (2010) Preschoolers with autism spectrum conditions: The impact of a home-based intervention to promote their communication. Early Child Development and Care 180(3): 299-315.
40. Mak WW Kwok YT (2010) Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science and Medicine 70: 2045-2051.
41. Matson ML Mahan S Matson JL (2009) Parent training: A review of methods for children with autism spectrum disorders. Research in Autism Spectrum Disorders 3: 868-875.
42. Montes G Halterman JS (2007) Psychological functioning and coping among mothers of children with autism. A population-based study. Pediatrics 119(5): 1040-1046.
43. Nachshen JS Jamieson J (2000) Advocacy, stress, and quality of life in parents of children with developmental disabilities. Developmental Disabilities Bulletin 28: 39-55.
44. Osborne LA McHugh L Saunders J Reed P (2008) Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders 38: 1092-1103.
45. Pakenham KI Sofronoff K Samios C (2004) Finding meaning in parenting a child with Asperger syndrome: Correlates of sense making and benefit finding. Research in Developmental Disabilities 25(3): 245-264.
46. Pottie CG Ingram KM (2008) Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology 22(6): 855-864.
47. Probst P (2001) Outcomes of a group parent training procedure in families with autistic children. Available from: http://www.docstoc.com/docs/14713229/OUTCOMES-OF-A-GROUP-PARENT-TRAINING-IN-FAMILIES-WITH-AUTISTIC-CHILDREN.
48. Roger D Jervis G Najarian B (1993) Detachment and coping: The construction and validation of a new scale for measuring coping strategies. Personality and Individual Differences 15: 619-626.
49. Runswick-Cole KA (2007) The tribunal was the most stressful thing: the experiences of families who go to the special educational needs and disability tribunal (SENDisT). Disability and Society 22(3): 315-328.
50. Ryan S Runswick Cole C (2009) From advocate to activist? Mapping the experiences of mothers of children with autism. Journal of Applied Research in Intellectual Disability 22: 43-53.
51. Sabih S Sajid WB (2008) There is a significant stress among parents having children with autism. Rawalpindi Medical Journal 33(2): 214-216.
52. Samadi SA (2008) Comparative policy brief: status of intellectual disabilities in the Islamic Republic of Iran. Journal of Policy and Practice in Intellectual Disabilities 5(2): 129-132.
53. Samadi SA McConkey R Kelly G (2011a) The information and support needs of Iranian parents of children with autism spectrum disorders. Early Child Development and Care 2011. E-pub ahead of print, DOI: 10.1080/03004430.2011.616931.
54. Samadi SA Mahmoodizadeh A McConkey R (2011b) Prevalence of autism spectrum disorders among five year old children in Iran. Autism: The International Journal of Research and Practice 2011. E-pub ahead of print, DOI: 10.1177/1362361311407091.
55. Sander JL Morgan SB (1997) Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child and Family Behavior Therapy 19: 15-32.
56. Schultz TR Schmidt CT Stichter JP (2011) A review of parent education programs for parents of children with Autism Spectrum Disorders. Focus on Autism and Other Developmental Disabilities 26(2): 96-104.
57. Shields J (2001) The NAS EarlyBird Programme: Partnership with parents in early intervention. Autism 5(1): 49-56.
58. Singh NN Lancioni GE Winton ASW Singh J Curtis WJ Wahler RG, et al. (2007) Mindful parenting decreases aggression and increases social behavior in children with developmental disabilities. Behavior Modification 31(6): 749-771.
59. Sivberg B (2002) Family System and Coping Behaviours: A Comparison between parents of children with autistic spectrum disorders and parents with non-autistic children. Autism 6(4): 397-409.
60. Smith LE Hong J Seltzer MM Greenberg JS Almeida DM Bishop SL (2010) Daily experiences among mothers of adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders 40: 167-178.
61. Solomon R Necheles J Ferch C Bruckman D (2007) Pilot study of a parent training program for young children with autism: The P.L.A.Y. Project Home Consultation Program. Autism 11(3): 205-224.
62. Thompson L Lobb C (1997) Pathways to family empowerment: Effects of family-centred delivery of early intervention services. Exceptional Children 64(1): 99-113.
63. Turnbull AH Turnbull RH Erwin EJ Soodak LC Shogren KA (2010) Families, Professionals, and Exceptionality: Positive Outcomes through Partnerships and Trust (6th Edition). London: Pearson.
64. UNESCO (2011) UIS Statistics in Brief: Education (All Levels) Profile - Iran (Islamic Republic of). Paris: UNESCO.
65. Walker SK Riley DA (2001) Involvement of personal network factor in parent education effectiveness. Family Relations, Interdisciplinary Journal of Applied Family Studies 50(2): 186-193.
66. Wachtel K Carter AS (2008) Reaction to diagnosis and parenting styles among mothers of young children with ASDs. Autism 12(5): 575-594.
67. Welterlin A LaRue RH (2007) Serving the needs of immigrant families of children with autism. Disability and Society 22(7): 747-760.
68. Zinkin P McConachie H (eds) (1995) Disabled children and developing countries. London: Mackeith.