The impact on mothers of bringing up a child with intellectual disabilities: A cross-cultural study

International Journal of Nursing Studies

Volumn 45, Issue 1, 2008, Pages 65-74

  McConkey, Roy ^a   Truesdale Kennedy, Maria ^a   Chang, Mei Ying ^b   Jarrah, Samiha ^c   Shukri, Raghda ^c  

^a UNIVERSITY OF ULSTER   (United Kingdom)

^b NATIONAL TAIPEI UNIVERSITY OF NURSING AND HEALTH SCIENCES   (Taiwan)

^c UNIVERSITY OF JORDAN   (Jordan)

Author keywords

Culture; Intellectual disability; Mothers; Stress; Well being

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; CHILD; CHILD PARENT RELATION; COMPARATIVE STUDY; COST OF ILLNESS; CULTURAL FACTOR; ETHNOLOGY; FEMALE; HANDICAPPED CHILD; HUMAN; IRELAND; JORDAN; MALE; MENTAL DEFICIENCY; MENTAL STRESS; MIDDLE AGED; MOTHER; NURSING METHODOLOGY RESEARCH; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; QUALITATIVE RESEARCH; QUESTIONNAIRE; SELF CONCEPT; SOCIAL SUPPORT; TAIWAN;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; ATTITUDE TO HEALTH; CHILD; CHILD, PRESCHOOL; COST OF ILLNESS; CROSS-CULTURAL COMPARISON; DISABLED CHILDREN; FEMALE; HUMANS; IRELAND; JORDAN; MALE; MENTAL RETARDATION; MIDDLE AGED; MODELS, PSYCHOLOGICAL; MOTHERS; NURSING METHODOLOGY RESEARCH; PARENTING; QUALITATIVE RESEARCH; QUESTIONNAIRES; SELF EFFICACY; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; TAIWAN;

EID: 36549013264     PISSN: 00207489     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijnurstu.2006.08.007     Document Type: Article

References (40)

1. Andersson A. Depression and anxiety in families with a mentally handicapped child. International Journal of Rehabilitation Research 16 3 (1993) 165-169
2. Appleton P.L., Böll V., Everett J.M., Kelley A.M., Meredith K.H., and Payne T.G. Beyond child development centres: care coordination for children with disabilities. Child: Care, Health and Development 23 1 (1997) 29-40
3. Baxter C., Cummins R.A., and Yiolitis L. Parental stress attributed to family members with and without disability: A longitudinal study. Journal of Intellectual and Developmental disability 25 2 (2000) 105-118
4. Blacher J., and Mink I.T. Interviewing family members and care providers: concepts, methodologies and cultures. In: Emerson E., Hatton C., Thompson T., and Parmenter T.R. (Eds). The International Handbook of Applied Research in Intellectual Disabilities (2004), Wiley, Chichester
5. Button L., Green B., Cassam T., Inez J., and Baker C. The impact of international placements on nurses' personal and professional lives: a literature review. Journal of Advanced Nursing 50 4 (2005) 315-324
6. Chang C.F. Adaptive behavior, patient attitudes, and parent stress of autistic children (1993), Psychology Publication, Taipei (In Chinese)
7. Chang, C. L., 2000. A study of relationship among attachment, self-esteem, and health status of adolescence. Unpublished M.Sc. thesis, National Taiwan Normal University.
8. Chen, W.C., 1998. Relations among adolescent suicide ideation, family functioning and hopelessness. Unpublished M.Sc. thesis, National Changhua University.
9. Chen Y.C. Chinese values, health and nursing. Journal of Advanced Nursing 36 3 (2001) 270-273
10. Chou K.R., LaMontagne L.L., and Hepworth J.T. Burden experienced by caregivers of relatives with dementia in Taiwan. Nursing Research 48 2 (1999) 206-214
11. Chuang, M. E., 1995. Effects of the characteristics of multiply handicapped children and their mother on the stress recognition and psychological adjustment. Unpublished M.Sc. thesis, Chinese Culture University.
12. Cohen S., and Wills T.A. Stress, social support, and the buffering hypothesis. Psychological Bulletin 98 2 (1985) 310-357
13. Duffy M.E., Vehvilainen-Julkunen K., Huber D., and Varjoranta P. Family nursing practice in public health: Finland and Utah. Public Health Nursing 15 3 (1998) 281-287
14. Dunst C.J., Trivette C.M., and Cross A.H. Mediating influences of social support: personal, family, and childhood outcomes. American Journal of Mental Deficiency 90 4 (1986) 403-417
15. Dunst C., Trivette C.M., and Deal A. Enabling and Empowerment of Families (1998), Brookline Books, Cambridge, MA
16. Duvdevany I., and Abboud S. Stress, social support and well-being of Arab mothers of children with an intellectual disability who are served by welfare services in northern Israel. Journal of Intellectual Disability Research 47 4 and 5 (2003) 264-272
17. Dyson L.L. Fathers and mothers of school-age children with developmental disabilities: parental stress, family functioning and social support. American Journal on Mental Retardation 102 3 (1997) 267-279
18. Emerson E. Mothers of children and adolescents with intellectual disability: social and economic situation, mental health status, and the self-assessed social and psychological impact of the child's difficulties. Journal of Intellectual Disability Research 47 4 and 5 (2003) 385-399
19. Epstein N.B., Baldwin L.M., and Bishop D.S. The McMaster Family Assessment Device. Journal of Marital and Family Therapy 9 3 (1983) 171-180
20. Folkman S., and Lazarus R.S. Manual for the Ways of Coping Questionnaire (1988), Consulting Psychologists Press, Palo Alto, CA
21. Friedrich W.N., Greenberg M.T., and Crnic K. A short-form of the questionnaire on resources and stress. American Journal of Mental Deficiency 88 1 (1983) 41-48
22. Gartner A., Lipsky D.K., and Turnbull A.P. Supporting Families With a Child With a Disability: An international outlook (1991), Paul H Brookes, Baltimore
23. Goldberg D., and Williams P. A Users Guide to the General Health Questionnaire (1991), NFER-Nelson, Windsor
24. Grant G., and Whittell B. Differentiated coping strategies in families with children or adults with intellectual disabilities: the relevance of gender, family composition and the life span. Journal of Applied Research in Intellectual Disabilities 13 4 (2000) 256-275
25. Hall D.M.B., and Elliman D. Health for all Children. fourth ed (2003), Oxford University Press, Oxford
26. Hastings R., Daley D., Burns C., and Beck A. Distress and expressed emotion among mothers of children with intellectual disabilities. American Journal on Mental Retardation 111 1 (2006) 48-61
27. Hatton C., and Emerson E. Families with a person with intellectual disabilities: stress and impact. Current Opinion in Psychiatry 16 (2003) 497-501
28. Kazak A.E., and Wilcox B.L. The structure and function of social support networks in families with handicapped children. American Journal of Community Psychology 12 (1984) 645-661
29. Kim H.W., Greenberg J.S., Seltzer M.M., and Krauss M.W. The role of coping in maintaining the psychological well-being of mothers of adults with intellectual disability and mental illness. Journal of Intellectual Disability Research 47 4-5 (2003) 313-327
30. Lazarus R.S., and Folkman S. Stress, Appraisal, and Coping (1984), Springer, New York
31. Olsen S.F., Marshall E.S., Mandeleco B.L., Allred K.W., et al. Support, communication and hardiness in families with children with disabilities. Journal of Family Nursing 5 4 (1999) 275-291
32. Sale J., Lonfield L.H., and Brazil K. Revisiting the quantitative-qualitative debate: implications for mixed-methods research. Quality and Quantity 36 1 (2002) 43-53
33. Saloviita T., Italinna M., and Leinonem E. Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: a double ABCX model. Journal of Intellectual Disability Research 47 4 and 5 (2003) 300-312
34. Sarason I.G., Levine H.M., Basham R.B., and Sarason B.R. Assessing social support: the social support questionnaire. Journal of Personality and Social Psychology 44 2 (1983) 127-139
35. Sawin K.J., and Harringan M.P. Measures of Family Functioning for Research and Practice (1995), Springer, New York
36. Scott R.L., Sexton D., Thompson B., and Wood T.A. Measurement characteristics of a short-form if the questionnaire on resources and STRESS. American Journal on Mental Retardation 94 4 (1989) 331-339
37. Seltzeer M.M., Floyd F.J., and Hindes A.R. Research methods in intellectual disabilities: the family context. In: Emerson E., Hatton C., Thompson T., and Parmenter T.R. (Eds). The International Handbook of Applied Research in Intellectual Disabilities (2004), Wiley, Chichester
38. Sloper P. Models of service support for parents of disabled children. What do we know? What do we need to know?. Child: Care, Health and Development 25 2 (1999) 85-99
39. Sparrow S.S., Balla B.A., and Cicchetti D. Vineland Adaptive Behavior Scales (1984), American Guidance Corporation, Circle Pines, MN
40. Valentine D.P. Children with special needs: sources of support and stress for families. Social Work and Human Sexuality 12 2 (1993) 107-121