Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders

Research and Practice for Persons with Severe Disabilities

Volumn 30, Issue 4, 2005, Pages 194-204

  Baker Ericzén, Mary J ^a   Brookman Frazee, Lauren ^b   Stahmer, Aubyn ^b  

^a CHILD AND ADOLESCENT SERVICES RESEARCH CENTER   (United States)

^b NONE

Author keywords

Autism; Community program; Inclusion; Parental stress; Toddlers

Indexed keywords

EID: 33646686802     PISSN: 15407969     EISSN: None     Source Type: Journal    
DOI: 10.2511/rpsd.30.4.194     Document Type: Review

References (56)

1. Abidin, R. R. (1995). Manual for the Parenting Stress Index. Odessa, FL: Psychological Assessment Resources.
2. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.
3. Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107(6), 433-444.
4. nd ed.). San Antonio, TX: Psychological Corp.
5. Bebko, J. M., Konstantareas, M. M., & Springer, J. (1987). Parent and professional evaluations of family stress associated with characteristics of autism. Journal of Autism & Developmental Disorders, 17(4), 565-576.
6. Birenbaum, A., Guyot, D., & Cohen, H. J. (1990). Health care financing for severe developmental disabilities. Washington, DC, US: American Association on Mental Retardation.
7. Bitsika, V., & Sharpley, C. (1999). An exploratory examination of the effects of support groups on the well being of parents of children with autism- I: General counseling. Journal of Applied Health Behavior, 1(2), 16-22.
8. Bitsika, V., & Sharpley, C. (2000). Development and testing of the effects of support groups on the well-being of parents of children with autism- II: Specific stress management techniques. Journal of Applied Health Behavior, 2(1), 8-15.
9. Bouma, R., & Schweitzer, R. (1990). The impact of chronic childhood illness on family stress: A comparison between autism and cystic fibrosis. Journal of Clinical Psychology, 46(6), 722-730.
10. Bristol, M. M., Gallagher, J. J., & Holt, K. D. (1993). Maternal depressive symptoms in autism: Response to psychoeducational intervention. Rehabilitation Psychology, 38(1), 3-10.
11. Bristol, M. M., Gallagher, J. J., & Schopler, E. (1988). Mothers and fathers of young developmentally disabled and nondisabled boys: Adaptation and spousal support. Developmental Psychology, 24(3), 441-451.
12. Burack, J. A., & Volkmar, F. R. (1992). Development of low-and high-functioning autistic children. Journal of Child Psychology and Psychiatry ane Allied Disciplines, 33(3), 607-616.
13. Cameron, S., Dobson, L., & Day, D. (1991). Stress in parents of developmentally delayed and non-delayed preschool children. Canada's Mental Health, 39(1), 13-17.
14. Chan, J., & Sigafoos, J. (2001). Does respite care reduce parental stress in families with developmentally disabled children? Child and Youth Care Forum, 30(5), 253-263.
15. Crnic, K. A., & Greenberg, M. T. (1990). Minor parenting stresses with young children. Child Development, 61(5), 1628-1637.
16. Daly, T. (1991). Social behavior and social understanding of mainstreamed and non-mainstreamed typical preschoolers. (Doctoral dissertation, //www.il.proquest.com/umi/]). Dissertation Abstracts International, 52 (6-B), 3316.
17. Dyson, L. L. (1997). Families of young children with handicaps: Parental stress and family functioning. American Journal on Mental Retardation, 95(6), 623-629.
18. Feldman, F. A., & Wener, S. E. (2002). Collateral effects of behavioral parent training on families of children with developmental disabilities and behavior disorders. Behavioral Interventions, 17, 75-83.
19. Fewell, R. R., & Oelwein, P. L. (1990). The relationship between time in integrated environments and developmental gains in young children with special needs. Topics in Early Childhood Special Education, 10(2), 104-116.
20. Fisman, S., & Wolf, L. (1991). The handicapped child: Psychological effects of parental, marital, and sibling relationships. Psychiatric Clinics of North America, 14(1), 199-217.
21. Floyd, F. J., & Gallagher, E. M. (1997). Parental stress, care demands, and use of support services for school-age children with disabilities and behavior problems. Family Relations, 46(4), 359-371.
22. Gallagher, J. J., & Bristol, M. (1989). Families of young handicapped children. In M. C. Wang & M. C. Reynolds (Eds.), Handbook of special education: Research and practice, vol. 3: Low incidence conditions, advances in education (pp. 295-317). Elmsford, NY, US: Pergamon Press, Inc.
23. Gilliam, J. E. (1995). Gilliam autism rating scale. Austin, TX: Pro-Ed.
24. Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56, 631-642.
25. Guralnick, M. J. (2000). An agenda for change in early childhood inclusion. Journal of Early Intervention, 23(4), 213-222.
26. Haldadian, A., & Merbler, J. (1995). Fathers of young children with disabilities: How do they want to be involved? Child & Youth Care Forum, 24, 327-338.
27. Hastings, R. P. (2003). Child behavior problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research. Special Issue on Family Research, 47(4-5), 231-237.
28. Hawkins, N., & Singer, H. S. (1989). A skills training approach for assisting parents to cope with stress. In G. H. S. Singer & L. K. Irvin (Eds.), Support for caregiving families: Enabling positive adaptation to disability (pp. 71-83). Baltimore: Paul H. Brooks.
29. Hestenes, L. L., & Carroll, D. E. (2000). The play interactions of young children with and without disabilities: Individual and environmental influences. Early Childhood Research Quarterl, 15(2), 229-246.
30. Hodapp, R. M., Dykens, E. M., & Masino, L. L. (1997). Families of children with prader-willi syndrome: Stress-support and relations to child characteristics. Journal of Autism & Developmental Disorders, 27(1), 11-24.
31. Hutcheson, J. J., & Black, M. M. (1996). Psychometric properties of the Parenting Stress Index in a sample of low-income African-American mothers of infants and toddlers. Early Education and Development, 7(4), 381-400.
32. Ingersoll, B., Schreibman, L., & Stahmer, A. (2001). Brief report: Differential treatment outcomes for children with autistic spectrum disorder based on level of peer social avoidance. Journal of Autism and Developmental Disorders, 31(3), 343-349.
33. Kelly, J. F., & Booth, C. L. (1999). Child care for infants with special needs: Issues and applications. Infants and Young Children, 12, 26-33.
34. Koegel, R. L., Bimbela, A., & Schreibman, L. (1996). Collateral effects of parent training on family interactions. Journal of Autism & Developmental Disorders, 26(3), 347-359.
35. Koegel, R. L., Schreibman, L., Loos, L. M., & Dirlich-Wilhelm, H. (1992). Consistent stress profiles in mothers of children with autism. Journal of Autism & Developmental Disorders, 22(2), 205-216.
36. Lessenberry, B. M., & Remfeldt, R. A. (2004). Evaluating stress levels of parents of children with disabilities. Exceptional Children, 70(2), 231-244.
37. McGee, G. G., Morrier, M. J., & Daly, T. (1999). An incidental teaching approach to early intervention for toddlers with autism. Journal of the Association for Persons with Severe Handicaps, 24(3), 133-146.
38. Moes, D. (1995). Parent education and parenting stress. In R. L. Koegel & L. K. Koegel (Eds.), Teaching children with autism: Strategies for initiating positive interactions and improving learning opportunities (pp. 79-93). Baltimore, MD, US: Paul H. Brookes Publishing Co.
39. Moes, D., Koegel, R. L., Schreibman, L., & Loos, L. M. (1992). Stress profiles for mothers and fathers of children with autism. Psychological Reports, 71(3, Pt 2), 1272-1274.
40. Nixon, C. D., & Singer, G. H. (1993). Group cognitive behavioral treatment for excessive parental self-blame and guilt. American Journal on Mental Retardation, 97(6), 665-672.
41. Noh, S., Dumas, J. E., Wolf, L. C., & Fisman, S. N. (1989). Delineating sources of stress in parents of exceptional children. Family Relations: Journal of Applied Family & Child Studies, 38(4), 456-461.
42. Odom, S. L. (2000). Fading teacher prompts from peer-initiation interventions for young children with disabilities. Journal of Applied Behavior Analysis, 25(2), 307-317.
43. Olsson, M. B., & Hwang, C. P. (2001). Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research, 45(6), 535-543.
44. Peck, C. A., Odom, S. L., & Bricker, D. D. (Eds.) (1993). Integrating young children with disabilities into community programs: Ecological perspectives on research and implementation. Baltimore, MD, England: Paul H. Brookes Publishing.
45. Plienis, A. J., Robbins, F. R., & Dunlap, G. (1988). Parent adjustment and family stress as factors in behavioral parent training for young autistic children. Journal of the Multihandicapped Person, 1(1), 31-52.
46. Robbins, F. R., Dunlap, G., & Plienis, A. J. (1991). Family characteristics, family training, and the progress of young children with autism. Journal of Early Intervention, 15(2), 173-184.
47. Rodrigue, J. R., Morgan, S. B., & Geffken, G. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Child Psychology, 19(4), 371-379.
48. Santelli, B., Ginsberg, C., Sullivan, S., & Niederhauser, C. (2002). A collaborative study of parent to parent programs: Implications for positive behavior support. In J. M. Lucyshyn & G. Dunlap (Eds.), Families and positive behavior support: Addressing problem behavior in family contexts.; families and positive behavior support: Addressing problem behavior in family contexts; family, community & disability (pp. 439-456). Baltimore, MD, US: Paul H. Brookes Publishing Co.
49. Schreihman, L., & Koegel, R. L. (1996). Fostering self-management: Parent-delivered pivotal response training for children with autistic disorder. In E. Hibbs & P. Jensen (Eds.), Psychosocial treatments for child and adolescent disorders: Empirically based strategies for clinical practice (pp. 525-552). Washington. DC: American Psychological Association.
50. Singer, G. H. S., Marquis, J., Powers, L. K., Blanchard, L., Divenere, N., & Santelli, B. et al. (1999). A multi-site evaluation of parent to parent programs for parents of children with disabilities. Journal of Early Intervention, 22(3), 217-229.
51. Stahmer, A. C. Carter, C., Baker, M., & Miwa, K. (2003). Parent perspectives on their toddlers' development: Comparison of regular and inclusion childcare. Early Child Development & Care, 173(5), 477-488.
52. Stahmer, A. C., & Ingersoll, B. (2004). Inclusive programming for toddlers autism spectrum disorders: Outcomes from the children's toddler school. Journal of Positive Behavior Interventions, 6(2), 67-82.
53. Strain, P. S., & Cordisco, D. (1994). LEAP preschool. In S. L. Harris & J. S. Handlemen (Eds.), Preschool Education Programs for Children with Autism. Austin, TX: Pro-Ed.
54. Tobing, L. E., & Glenwick, D. S. (2002). Relation of the Childhood Autism Rating Scale-Parent version to diagnosis, stress, and age. Research in Developmental Disabilities, 23(3), 211-223.
55. Todis, B., & Singer, G. (1991). Stress and stress management in families with adopted children who have severe disabilities. Journal of the Association for Persons with Severe Handicaps (JASH), 16(1), 3-13.
56. Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual & Developmental Disability, 29(1), 16-26.