Transforming Duchenne Care: Meeting 25-26 June 2012, Ft. Lauderdale, Florida, USA

Neuromuscular Disorders

Volumn 23, Issue 8, 2013, Pages 690-695

  Kinnett, Kathi ^a   Cripe, Linda H ^b  

^a Parent Project Muscular Dystrophy   (United States)

^b NATIONWIDE CHILDREN S HOSPITAL   (United States)

Author keywords

Cardiac; Duchenne muscular dystrophy

Indexed keywords

CORTICOSTEROID;

ARTICLE; BECKER MUSCULAR DYSTROPHY; CHILD CARE; CLINICAL RESEARCH; CYSTIC FIBROSIS; DISEASE REGISTRY; DUCHENNE MUSCULAR DYSTROPHY; HEALTH CARE NEED; HEALTH CARE PLANNING; HEALTH CARE SURVEY; HOSPITAL CARE; HUMAN; NEEDS ASSESSMENT; PARENTAL ATTITUDE; PERSONAL EXPERIENCE; PHYSICIAN ATTITUDE; PRIORITY JOURNAL; QUALITY OF LIFE; RARE DISEASE;

CARDIAC; DUCHENNE MUSCULAR DYSTROPHY;

CONGRESSES AS TOPIC; HUMANS; MUSCULAR DYSTROPHY, DUCHENNE; PARENTS; PATIENT CARE; UNITED STATES;

EID: 84880952915     PISSN: 09608966     EISSN: 18732364     Source Type: Journal    
DOI: 10.1016/j.nmd.2013.05.002     Document Type: Article

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