메뉴 건너뛰기




Volumn 8, Issue 1, 2005, Pages 17-28

Adult life with Duchenne muscular dystrophy: Observations among an emerging and unforeseen patient population

Author keywords

Adult life; Duchenne muscular dystrophy; Participation; Quality of life; Sexual life

Indexed keywords

ADULT; DAILY LIFE ACTIVITY; DUCHENNE MUSCULAR DYSTROPHY; EDUCATION; FEMALE; FUNCTIONAL ASSESSMENT; HOUSING; HUMAN; IMMOBILIZATION; INCOME; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; REVIEW; SCHOOL; SEXUAL DYSFUNCTION; SOCIAL ASPECT;

EID: 12344314856     PISSN: 13638491     EISSN: None     Source Type: Journal    
DOI: 10.1080/13638490400010191     Document Type: Review
Times cited : (100)

References (24)
  • 1
    • 0037160782 scopus 로고    scopus 로고
    • The muscular dystrophies
    • Emery A. The muscular dystrophies. Lancet 2002;359:687-695.
    • (2002) Lancet , vol.359 , pp. 687-695
    • Emery, A.1
  • 4
    • 0036895043 scopus 로고    scopus 로고
    • Survival in Duchenne muscular dystrophy: Improvements in life expectancy since 1967 and the impact of home nocturnal ventilation
    • Eagle M, Baudouin SV, Chandler C, Giddings DR, Bullock R, Bushby K. Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromuscular Disorders 2002;12:926-929.
    • (2002) Neuromuscular Disorders , vol.12 , pp. 926-929
    • Eagle, M.1    Baudouin, S.V.2    Chandler, C.3    Giddings, D.R.4    Bullock, R.5    Bushby, K.6
  • 5
    • 0347480491 scopus 로고    scopus 로고
    • The Duchenne muscular dystrophy population in Denmark, 1977-2001: Prevalence, incidence and survival in relation to the introduction of ventilator use
    • Jeppesen J, Green A, Steffensen BF, Rahbek J. The Duchenne muscular dystrophy population in Denmark, 1977-2001: prevalence, incidence and survival in relation to the introduction of ventilator use. Neuromuscular Disorders 2003;13:804-812.
    • (2003) Neuromuscular Disorders , vol.13 , pp. 804-812
    • Jeppesen, J.1    Green, A.2    Steffensen, B.F.3    Rahbek, J.4
  • 6
    • 0035092299 scopus 로고    scopus 로고
    • Long-term ventilation for patients with Duchenne muscular dystrophy. Physicians' beliefs and practices
    • Gibson B. Long-term ventilation for patients with Duchenne muscular dystrophy. Physicians' beliefs and practices. Chest 2001;119:940-946.
    • (2001) Chest , vol.119 , pp. 940-946
    • Gibson, B.1
  • 10
    • 0242432505 scopus 로고    scopus 로고
    • Evaluation of health-related quality of life using the MOS 36-Item Short-Form Health Status Survey in patients receiving non-invasive positive pressure ventilation
    • Windisch W, Freidel K, Schucher B, Baumann H, Wiebel M, Matthys H, Petermann F. Evaluation of health-related quality of life using the MOS 36-Item Short-Form Health Status Survey in patients receiving non-invasive positive pressure ventilation. Intensive Care Medicine 2003;29:615-621.
    • (2003) Intensive Care Medicine , vol.29 , pp. 615-621
    • Windisch, W.1    Freidel, K.2    Schucher, B.3    Baumann, H.4    Wiebel, M.5    Matthys, H.6    Petermann, F.7
  • 11
    • 0017888622 scopus 로고
    • Reproduction in Duchenne dystrophy
    • Thompson CE. Reproduction in Duchenne dystrophy. Neurology 1978;28:1045-1047.
    • (1978) Neurology , vol.28 , pp. 1045-1047
    • Thompson, C.E.1
  • 12
    • 0023891839 scopus 로고
    • Ventilator use in progressive neuromuscular disease: Impact on patients and their families
    • Miller JR, Colbert AP, Schock NC. Ventilator use in progressive neuromuscular disease: impact on patients and their families. Developmental Medicine and Child Neurology 1988;30:200-207.
    • (1988) Developmental Medicine and Child Neurology , vol.30 , pp. 200-207
    • Miller, J.R.1    Colbert, A.P.2    Schock, N.C.3
  • 13
    • 0025104613 scopus 로고
    • Ventilator dependency: Decision-making, daily functioning and quality of life for patients with Duchenne muscular dystrophy
    • Miller JR, Colbert AP, Osberg JC. Ventilator dependency: decision-making, daily functioning and quality of life for patients with Duchenne muscular dystrophy. Developmental Medicine and Child Neurology 1990;32:1078-1086.
    • (1990) Developmental Medicine and Child Neurology , vol.32 , pp. 1078-1086
    • Miller, J.R.1    Colbert, A.P.2    Osberg, J.C.3
  • 14
    • 0025835096 scopus 로고
    • Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support
    • Bach JR, Campagnolo DI, Hoeman S. Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. American Journal of Physical Medicine and Rehabilitation 1991;70:129-135.
    • (1991) American Journal of Physical Medicine and Rehabilitation , vol.70 , pp. 129-135
    • Bach, J.R.1    Campagnolo, D.I.2    Hoeman, S.3
  • 15
    • 0027368139 scopus 로고
    • Heart transplantation in patients with muscular dystrophy associated with end-stage cardiomyopathy
    • Rees W, Schüler S, Hummel M, Hetzer R. Heart transplantation in patients with muscular dystrophy associated with end-stage cardiomyopathy. The Journal of Heart and Lung Transplantation 1993;12:804-807.
    • (1993) The Journal of Heart and Lung Transplantation , vol.12 , pp. 804-807
    • Rees, W.1    Schüler, S.2    Hummel, M.3    Hetzer, R.4
  • 16
    • 0035922355 scopus 로고    scopus 로고
    • Health and social services for children with neuromuscular diseases
    • Lund-Petersen I, Tangsrud SE. Health and social services for children with neuromuscular diseases. Tidsskr Nor Laegeforen 2001;121:2596-2598.
    • (2001) Tidsskr Nor Laegeforen , vol.121 , pp. 2596-2598
    • Lund-Petersen, I.1    Tangsrud, S.E.2
  • 18
    • 0037390796 scopus 로고    scopus 로고
    • Tracheobronchomalacia and tracheal hemorrhage in patients with Duchenne muscular dystrophy receiving long-term ventilation with uncuffed tracheostomies
    • Baydur A, Kanel G. Tracheobronchomalacia and tracheal hemorrhage in patients with Duchenne muscular dystrophy receiving long-term ventilation with uncuffed tracheostomies. Chest 2003;123:1307-1311.
    • (2003) Chest , vol.123 , pp. 1307-1311
    • Baydur, A.1    Kanel, G.2
  • 21
    • 12344315899 scopus 로고    scopus 로고
    • The young adult with congenital physical disability
    • Greenwood R, Barnes M, McMillan T, Ward C, editors. Hove, UK: Psychology Press
    • Critchley P. The young adult with congenital physical disability. In: Greenwood R, Barnes M, McMillan T, Ward C, editors. Neurological Rehabilitation. Hove, UK: Psychology Press 1997; p 525-534, 617-625.
    • (1997) Neurological Rehabilitation , pp. 525-534
    • Critchley, P.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.