메뉴 건너뛰기




Volumn 19, Issue 10, 2009, Pages 733-738

Facilitating family adjustment to a diagnosis of Duchenne muscular dystrophy: April 24-25, 2008, Miami, Florida

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CHILD CARE; COMPREHENSION; COPING BEHAVIOR; DUCHENNE MUSCULAR DYSTROPHY; EMOTIONALITY; FAMILY COPING; GRIEF; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL INFORMATION; PARENTAL BEHAVIOR; PATIENT ATTITUDE; PHYSICIAN ATTITUDE; PRIORITY JOURNAL; SIBLING RELATION; SOCIAL PSYCHOLOGY; SOCIAL SUPPORT; WORKSHOP;

EID: 70349400864     PISSN: 09608966     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.nmd.2009.07.011     Document Type: Article
Times cited : (24)

References (23)
  • 1
    • 0031116745 scopus 로고    scopus 로고
    • Caring for a child with a progressive illness during the complex chronic phase: parents' experience of facing adversity
    • Gravelle A.M. Caring for a child with a progressive illness during the complex chronic phase: parents' experience of facing adversity. J Adv Nurs 25 (1997) 738-745
    • (1997) J Adv Nurs , vol.25 , pp. 738-745
    • Gravelle, A.M.1
  • 2
    • 0141540588 scopus 로고    scopus 로고
    • Parental stress in mothers of boys with Duchenne muscular dystrophy
    • Nereo N.E., Fee R.J., and Hinton V.J. Parental stress in mothers of boys with Duchenne muscular dystrophy. J Pediatr Psychol 28 7 (2003) 473-484
    • (2003) J Pediatr Psychol , vol.28 , Issue.7 , pp. 473-484
    • Nereo, N.E.1    Fee, R.J.2    Hinton, V.J.3
  • 3
    • 0030093958 scopus 로고    scopus 로고
    • Diagnosis of Duchenne muscular dystrophy: parents' experiences and satisfaction
    • Green J.M., and Murton F.E. Diagnosis of Duchenne muscular dystrophy: parents' experiences and satisfaction. Child Care Health Dev 22 2 (1996) 113-128
    • (1996) Child Care Health Dev , vol.22 , Issue.2 , pp. 113-128
    • Green, J.M.1    Murton, F.E.2
  • 4
    • 0020657929 scopus 로고
    • Diagnosis of Duchenne muscular dystrophy: experiences of parents of sufferers
    • Firth M.A. Diagnosis of Duchenne muscular dystrophy: experiences of parents of sufferers. Br Med J 286 (1983) 700-701
    • (1983) Br Med J , vol.286 , pp. 700-701
    • Firth, M.A.1
  • 5
    • 0020551435 scopus 로고
    • Interviews with parents of boys suffering from Duchenne muscular dystrophy
    • Firth M., Gardner-Medwin D., Hosking G., and Wilkinson E. Interviews with parents of boys suffering from Duchenne muscular dystrophy. Dev Med Child Neurol 25 (1983) 466-471
    • (1983) Dev Med Child Neurol , vol.25 , pp. 466-471
    • Firth, M.1    Gardner-Medwin, D.2    Hosking, G.3    Wilkinson, E.4
  • 6
    • 66549112009 scopus 로고    scopus 로고
    • The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human beyond the illness
    • Samson A., Tomiak E., Dimillo J., Lavigne R., Miles S., Choquette M., et al. The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human beyond the illness. Chronic Illn 5 2 (2009) 103-114
    • (2009) Chronic Illn , vol.5 , Issue.2 , pp. 103-114
    • Samson, A.1    Tomiak, E.2    Dimillo, J.3    Lavigne, R.4    Miles, S.5    Choquette, M.6
  • 7
    • 37349011966 scopus 로고    scopus 로고
    • Breaking bad news
    • Schoefl R. Breaking bad news. Dig Dis 26 (2008) 56-58
    • (2008) Dig Dis , vol.26 , pp. 56-58
    • Schoefl, R.1
  • 8
    • 58849101839 scopus 로고    scopus 로고
    • Research Advisory Committee of the American Board of Pediatrics. Pediatric fellows: perspectives on training and future scope of practice
    • Freed G.L., Dunham K.M., Switalski K.E., Jones Jr. M.D., and McGuinness G.A. Research Advisory Committee of the American Board of Pediatrics. Pediatric fellows: perspectives on training and future scope of practice. Pediatrics 123 Suppl. 1 (2009) S31-S37
    • (2009) Pediatrics , vol.123 , Issue.SUPPL. 1
    • Freed, G.L.1    Dunham, K.M.2    Switalski, K.E.3    Jones Jr., M.D.4    McGuinness, G.A.5
  • 9
    • 51649101363 scopus 로고    scopus 로고
    • Pediatric residents' perceptions of communication competencies: implications for teaching
    • Rider E.A., Volkan K., and Hafler J.P. Pediatric residents' perceptions of communication competencies: implications for teaching. Med Teach 30 7 (2008) e208-e217
    • (2008) Med Teach , vol.30 , Issue.7
    • Rider, E.A.1    Volkan, K.2    Hafler, J.P.3
  • 10
    • 16844369869 scopus 로고    scopus 로고
    • Association between intellectual functioning and age in children with Duchenne muscular dystrophy: further results from a meta-analysis
    • Cotton S., Voudouris N., and Greenwood K.M. Association between intellectual functioning and age in children with Duchenne muscular dystrophy: further results from a meta-analysis. Dev Med Child Neurol 73 (2005) 257-265
    • (2005) Dev Med Child Neurol , vol.73 , pp. 257-265
    • Cotton, S.1    Voudouris, N.2    Greenwood, K.M.3
  • 11
    • 42449160246 scopus 로고    scopus 로고
    • Neuropsychiatric disorders in males with Duchenne muscular dystrophy: frequency rate of attention-deficit hyperactivity disorder (ADHD), autism spectrum disorder, and obsessive-compulsive disorder
    • Hendriksen J.G.M., and Vles J.S.H. Neuropsychiatric disorders in males with Duchenne muscular dystrophy: frequency rate of attention-deficit hyperactivity disorder (ADHD), autism spectrum disorder, and obsessive-compulsive disorder. J Child Neurol 23 5 (2008) 477-481
    • (2008) J Child Neurol , vol.23 , Issue.5 , pp. 477-481
    • Hendriksen, J.G.M.1    Vles, J.S.H.2
  • 12
    • 58549113694 scopus 로고    scopus 로고
    • Duchenne muscular dystrophy
    • Mazzocco M.M.M., and Ross J.L. (Eds), MIT Press, Cambridge
    • Hinton V.J., and Goldstein E.M. Duchenne muscular dystrophy. In: Mazzocco M.M.M., and Ross J.L. (Eds). Neurogenetic developmental disorders (2007), MIT Press, Cambridge 105-131
    • (2007) Neurogenetic developmental disorders , pp. 105-131
    • Hinton, V.J.1    Goldstein, E.M.2
  • 13
    • 36348945650 scopus 로고    scopus 로고
    • Behavior in DMD Study Group. Behavior patterns in Duchenne muscular dystrophy: report on the Parent Project Muscular Dystrophy behavior workshop 8-9 of December 2006, Philadelphia, USA
    • Poysky J. Behavior in DMD Study Group. Behavior patterns in Duchenne muscular dystrophy: report on the Parent Project Muscular Dystrophy behavior workshop 8-9 of December 2006, Philadelphia, USA. Neuromuscul Disord 17 11-12 (2007) 986-994
    • (2007) Neuromuscul Disord , vol.17 , Issue.11-12 , pp. 986-994
    • Poysky, J.1
  • 15
    • 35548968368 scopus 로고    scopus 로고
    • Parent and child perspectives on physician communication in pediatric palliative care
    • Hsiao J.L., Evan E.E., and Zeltzer L.K. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care 5 (2007) 355-365
    • (2007) Palliat Support Care , vol.5 , pp. 355-365
    • Hsiao, J.L.1    Evan, E.E.2    Zeltzer, L.K.3
  • 19
    • 3142574829 scopus 로고    scopus 로고
    • Depression in parents of children with Duchenne muscular dystrophy
    • Abi Daoud M.S., Dooley J.M., and Gordon K.E. Depression in parents of children with Duchenne muscular dystrophy. Pediatr Neurol 31 1 (2004) 16-19
    • (2004) Pediatr Neurol , vol.31 , Issue.1 , pp. 16-19
    • Abi Daoud, M.S.1    Dooley, J.M.2    Gordon, K.E.3
  • 21
    • 0036893241 scopus 로고    scopus 로고
    • Siblings of children with chronic illness: a meta-analysis
    • Sharpe D., and Rossiter L. Siblings of children with chronic illness: a meta-analysis. J Pediatr Psychol 27 8 (2002) 699-710
    • (2002) J Pediatr Psychol , vol.27 , Issue.8 , pp. 699-710
    • Sharpe, D.1    Rossiter, L.2
  • 22
    • 33749682820 scopus 로고    scopus 로고
    • Fostering resilience in siblings of youths with a chronic health condition: a review of the literature
    • Bellin M.H., and Kovacs P. Fostering resilience in siblings of youths with a chronic health condition: a review of the literature. Health Soc Work 31 3 (2006) 209-216
    • (2006) Health Soc Work , vol.31 , Issue.3 , pp. 209-216
    • Bellin, M.H.1    Kovacs, P.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.