-
1
-
-
0031116745
-
Caring for a child with a progressive illness during the complex chronic phase: parents' experience of facing adversity
-
Gravelle A.M. Caring for a child with a progressive illness during the complex chronic phase: parents' experience of facing adversity. J Adv Nurs 25 (1997) 738-745
-
(1997)
J Adv Nurs
, vol.25
, pp. 738-745
-
-
Gravelle, A.M.1
-
2
-
-
0141540588
-
Parental stress in mothers of boys with Duchenne muscular dystrophy
-
Nereo N.E., Fee R.J., and Hinton V.J. Parental stress in mothers of boys with Duchenne muscular dystrophy. J Pediatr Psychol 28 7 (2003) 473-484
-
(2003)
J Pediatr Psychol
, vol.28
, Issue.7
, pp. 473-484
-
-
Nereo, N.E.1
Fee, R.J.2
Hinton, V.J.3
-
3
-
-
0030093958
-
Diagnosis of Duchenne muscular dystrophy: parents' experiences and satisfaction
-
Green J.M., and Murton F.E. Diagnosis of Duchenne muscular dystrophy: parents' experiences and satisfaction. Child Care Health Dev 22 2 (1996) 113-128
-
(1996)
Child Care Health Dev
, vol.22
, Issue.2
, pp. 113-128
-
-
Green, J.M.1
Murton, F.E.2
-
4
-
-
0020657929
-
Diagnosis of Duchenne muscular dystrophy: experiences of parents of sufferers
-
Firth M.A. Diagnosis of Duchenne muscular dystrophy: experiences of parents of sufferers. Br Med J 286 (1983) 700-701
-
(1983)
Br Med J
, vol.286
, pp. 700-701
-
-
Firth, M.A.1
-
6
-
-
66549112009
-
The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human beyond the illness
-
Samson A., Tomiak E., Dimillo J., Lavigne R., Miles S., Choquette M., et al. The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human beyond the illness. Chronic Illn 5 2 (2009) 103-114
-
(2009)
Chronic Illn
, vol.5
, Issue.2
, pp. 103-114
-
-
Samson, A.1
Tomiak, E.2
Dimillo, J.3
Lavigne, R.4
Miles, S.5
Choquette, M.6
-
7
-
-
37349011966
-
Breaking bad news
-
Schoefl R. Breaking bad news. Dig Dis 26 (2008) 56-58
-
(2008)
Dig Dis
, vol.26
, pp. 56-58
-
-
Schoefl, R.1
-
8
-
-
58849101839
-
Research Advisory Committee of the American Board of Pediatrics. Pediatric fellows: perspectives on training and future scope of practice
-
Freed G.L., Dunham K.M., Switalski K.E., Jones Jr. M.D., and McGuinness G.A. Research Advisory Committee of the American Board of Pediatrics. Pediatric fellows: perspectives on training and future scope of practice. Pediatrics 123 Suppl. 1 (2009) S31-S37
-
(2009)
Pediatrics
, vol.123
, Issue.SUPPL. 1
-
-
Freed, G.L.1
Dunham, K.M.2
Switalski, K.E.3
Jones Jr., M.D.4
McGuinness, G.A.5
-
9
-
-
51649101363
-
Pediatric residents' perceptions of communication competencies: implications for teaching
-
Rider E.A., Volkan K., and Hafler J.P. Pediatric residents' perceptions of communication competencies: implications for teaching. Med Teach 30 7 (2008) e208-e217
-
(2008)
Med Teach
, vol.30
, Issue.7
-
-
Rider, E.A.1
Volkan, K.2
Hafler, J.P.3
-
10
-
-
16844369869
-
Association between intellectual functioning and age in children with Duchenne muscular dystrophy: further results from a meta-analysis
-
Cotton S., Voudouris N., and Greenwood K.M. Association between intellectual functioning and age in children with Duchenne muscular dystrophy: further results from a meta-analysis. Dev Med Child Neurol 73 (2005) 257-265
-
(2005)
Dev Med Child Neurol
, vol.73
, pp. 257-265
-
-
Cotton, S.1
Voudouris, N.2
Greenwood, K.M.3
-
11
-
-
42449160246
-
Neuropsychiatric disorders in males with Duchenne muscular dystrophy: frequency rate of attention-deficit hyperactivity disorder (ADHD), autism spectrum disorder, and obsessive-compulsive disorder
-
Hendriksen J.G.M., and Vles J.S.H. Neuropsychiatric disorders in males with Duchenne muscular dystrophy: frequency rate of attention-deficit hyperactivity disorder (ADHD), autism spectrum disorder, and obsessive-compulsive disorder. J Child Neurol 23 5 (2008) 477-481
-
(2008)
J Child Neurol
, vol.23
, Issue.5
, pp. 477-481
-
-
Hendriksen, J.G.M.1
Vles, J.S.H.2
-
12
-
-
58549113694
-
Duchenne muscular dystrophy
-
Mazzocco M.M.M., and Ross J.L. (Eds), MIT Press, Cambridge
-
Hinton V.J., and Goldstein E.M. Duchenne muscular dystrophy. In: Mazzocco M.M.M., and Ross J.L. (Eds). Neurogenetic developmental disorders (2007), MIT Press, Cambridge 105-131
-
(2007)
Neurogenetic developmental disorders
, pp. 105-131
-
-
Hinton, V.J.1
Goldstein, E.M.2
-
13
-
-
36348945650
-
Behavior in DMD Study Group. Behavior patterns in Duchenne muscular dystrophy: report on the Parent Project Muscular Dystrophy behavior workshop 8-9 of December 2006, Philadelphia, USA
-
Poysky J. Behavior in DMD Study Group. Behavior patterns in Duchenne muscular dystrophy: report on the Parent Project Muscular Dystrophy behavior workshop 8-9 of December 2006, Philadelphia, USA. Neuromuscul Disord 17 11-12 (2007) 986-994
-
(2007)
Neuromuscul Disord
, vol.17
, Issue.11-12
, pp. 986-994
-
-
Poysky, J.1
-
14
-
-
0036767679
-
Doctor-parent-child relationships: a 'pas de trois'
-
Tates K., Elbers E., Meeuwesen L., and Bensing J. Doctor-parent-child relationships: a 'pas de trois'. Patient Educ Couns 48 1 (2002) 1-3
-
(2002)
Patient Educ Couns
, vol.48
, Issue.1
, pp. 1-3
-
-
Tates, K.1
Elbers, E.2
Meeuwesen, L.3
Bensing, J.4
-
15
-
-
35548968368
-
Parent and child perspectives on physician communication in pediatric palliative care
-
Hsiao J.L., Evan E.E., and Zeltzer L.K. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care 5 (2007) 355-365
-
(2007)
Palliat Support Care
, vol.5
, pp. 355-365
-
-
Hsiao, J.L.1
Evan, E.E.2
Zeltzer, L.K.3
-
16
-
-
13244299554
-
Health care preferences and priorities of adolescents with chronic illnesses
-
Britto M.T., DeVellis R.F., Hornung R.W., DeFriese G.H., Atherton H.D., and Slap G.B. Health care preferences and priorities of adolescents with chronic illnesses. Pediatrics 114 5 (2004) 1272-1280
-
(2004)
Pediatrics
, vol.114
, Issue.5
, pp. 1272-1280
-
-
Britto, M.T.1
DeVellis, R.F.2
Hornung, R.W.3
DeFriese, G.H.4
Atherton, H.D.5
Slap, G.B.6
-
19
-
-
3142574829
-
Depression in parents of children with Duchenne muscular dystrophy
-
Abi Daoud M.S., Dooley J.M., and Gordon K.E. Depression in parents of children with Duchenne muscular dystrophy. Pediatr Neurol 31 1 (2004) 16-19
-
(2004)
Pediatr Neurol
, vol.31
, Issue.1
, pp. 16-19
-
-
Abi Daoud, M.S.1
Dooley, J.M.2
Gordon, K.E.3
-
20
-
-
0036196288
-
Duchenne muscular dystrophy - parental perceptions
-
Bothwell J.E., Dooley J.M., Gordon K.E., MacAuley A., Camfield P.R., and MacSween J. Duchenne muscular dystrophy - parental perceptions. Clin Pediatr (Phila) 41 2 (2002) 105-109
-
(2002)
Clin Pediatr (Phila)
, vol.41
, Issue.2
, pp. 105-109
-
-
Bothwell, J.E.1
Dooley, J.M.2
Gordon, K.E.3
MacAuley, A.4
Camfield, P.R.5
MacSween, J.6
-
21
-
-
0036893241
-
Siblings of children with chronic illness: a meta-analysis
-
Sharpe D., and Rossiter L. Siblings of children with chronic illness: a meta-analysis. J Pediatr Psychol 27 8 (2002) 699-710
-
(2002)
J Pediatr Psychol
, vol.27
, Issue.8
, pp. 699-710
-
-
Sharpe, D.1
Rossiter, L.2
-
22
-
-
33749682820
-
Fostering resilience in siblings of youths with a chronic health condition: a review of the literature
-
Bellin M.H., and Kovacs P. Fostering resilience in siblings of youths with a chronic health condition: a review of the literature. Health Soc Work 31 3 (2006) 209-216
-
(2006)
Health Soc Work
, vol.31
, Issue.3
, pp. 209-216
-
-
Bellin, M.H.1
Kovacs, P.2
|