Diagnosis of Duchenne muscular dystrophy: Parents' experiences and satisfaction

Child: Care, Health and Development

Volumn 22, Issue 2, 1996, Pages 113-128

  Green, J M ^a   Murton, F E ^a  

^a UNIVERSITY OF CAMBRIDGE   (United Kingdom)

Author keywords

Doctor parent communication; Duchenne; Parental satisfaction; Parents' experiences

Indexed keywords

ADULT; ARTICLE; ATTITUDE TO HEALTH; COMPARATIVE STUDY; DOCTOR PATIENT RELATION; FEMALE; HUMAN; MALE; MUSCULAR DYSTROPHY; ONSET AGE; PARENT; QUESTIONNAIRE; RETROSPECTIVE STUDY; SATISFACTION;

ADULT; AGE OF ONSET; ATTITUDE TO HEALTH; FEMALE; HUMANS; MALE; MUSCULAR DYSTROPHIES; PARENTS; PERSONAL SATISFACTION; PHYSICIAN-PATIENT RELATIONS; QUESTIONNAIRES; RETROSPECTIVE STUDIES;

EID: 0030093958     PISSN: 03051862     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2214.1996.tb00779.x     Document Type: Article

References (10)

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3. Cunningham, C.C., Morgan, P.A. & McGucken, R.B. (1984) Down's syndrome: is dissatisfaction with disclosure of diagnosis inevitable? Developmental Medicine & Child Neurology, 26, 33-39.
4. Emery, A.E.H. (1987) Duchenne Muscular Dystrophy. Oxford University Press, Oxford.
5. Firth, M.A. (1983) Diagnosis of Duchenne muscular dystrophy: experiences of parents of sufferers. British Medical Journal, 286, 700-701.
6. Firth, M., Gardner-Medwin, D., Hosking, G. & Wilkinson, E. (1983) Interviews with parents of boys suffering from Duchenne muscular dystrophy. Developmental Medicine and Child Neurology, 25, 466-471.
7. Green, J.M. & Murton, F.E. (1993) Duchenne Muscular Dystrophy: Families Responses to Diagnosis and Genetic counselling. Centre for Family Research, University of Cambridge.
8. Quine, L. & Rutter, D.R. (1994) First diagnosis of severe mental and physical disability: A study of doctor-parent communication. Journal of Child Psychology and Psychiatry, 35, 1273-1287.
9. Sloper, P. & Turner, S. (1993) Determinants of parental satisfaction with disclosure of disability. Developmental Medicine & Child Neurology, 35, 816-825.
10. Wilkinson, L. (1986) SYSTAT: The System for Statistics. Evanson Ill.: SYSTAT Inc.