How do patients with rare diseases experience the medical encounter? Exploring role behavior and its impact on patient-physician interaction

Health Policy

Volumn 105, Issue 2-3, 2012, Pages 154-164

  Budych, Karolina ^a   Helms, Thomas M ^a   Schultz, Carsten ^b  

^a Deutsche Stiftung für chronisch Kranke ^*  (Germany)

^b UNIVERSITY OF KIEL   (Germany)

Author keywords

Patient physician interaction; Rare diseases; Role behavior; Uncertainty management

Indexed keywords

ADOLESCENT; ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; CHILD; DOCTOR PATIENT RELATION; DUCHENNE MUSCULAR DYSTROPHY; EPIDERMOLYSIS BULLOSA; FEMALE; HEALTH CARE PERSONNEL; HEALTH CARE POLICY; HUMAN; MAJOR CLINICAL STUDY; MALE; MARFAN SYNDROME; NEURODEGENERATION WITH BRAIN IRON ACCUMULATION; PATIENT CARE; PRESCHOOL CHILD; RARE DISEASE; ROLE THEORY; SCHOOL CHILD; SEMI STRUCTURED INTERVIEW; WILSON DISEASE;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHILD; CHILD, PRESCHOOL; EPIDERMOLYSIS BULLOSA; FEMALE; HEALTH POLICY; HEPATOLENTICULAR DEGENERATION; HUMANS; INFANT; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; MUSCULAR DYSTROPHY, DUCHENNE; NEUROAXONAL DYSTROPHIES; PHYSICIAN'S ROLE; PHYSICIAN-PATIENT RELATIONS; RARE DISEASES; ROLE; YOUNG ADULT;

EID: 84859783056     PISSN: 01688510     EISSN: 18726054     Source Type: Journal    
DOI: 10.1016/j.healthpol.2012.02.018     Document Type: Article

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