The Personhood in Dementia Questionnaire (PDQ): Establishing an association between beliefs about personhood and health providers' approaches to person-centred care

Journal of Aging Studies

Volumn 27, Issue 3, 2013, Pages 276-287

  Hunter, Paulette V ^a   Hadjistavropoulos, Thomas ^b   Smythe, William E ^b   Malloy, David C ^b   Kaasalainen, Sharon ^c   Williams, Jaime ^b  

^a UNIVERSITY OF SASKATCHEWAN   (Canada)

^b UNIVERSITY OF REGINA   (Canada)

^c MCMASTER UNIVERSITY   (Canada)

Author keywords

Dementia; Elderly; Long term care; Older adults; Pain; Person centred care

Indexed keywords

EID: 84879296081     PISSN: 08904065     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jaging.2013.05.003     Document Type: Article

References (61)

1. Arslanian-Engoren C. Do emergency nurses' triage decisions predict differences in admission or discharge diagnoses for acute coronary syndromes?. The Journal of Cardiovascular Nursing 2004, 19:280-286.
2. Åström S., Nilsson M., Norberg A., Winblad B. Empathy, experience of burnout and attitudes toward demented patients among nursing staff in geriatric care. Journal of Advanced Nursing 1990, 15:1236-1244.
3. Aubin M., Giguère A., Hadjistavropoulos T., Verreault R. The systematic evaluation of instruments designed to assess pain in persons with limited ability to communicate. Pain Research & Management 2007, 12:195-203.
4. Ayalon L., Arean P., Bornfeld H., Beard R. Long-term care staff beliefs about evidence-based management of dementia and agitation. International Journal of Geriatric Psychiatry 2009, 24:118-124.
5. Baldwin C. Narrative, citizenship and dementia: The personal and the political. Journal of Aging Studies 2008, 22:222-228.
6. Bartlett R., O'Connor D. From personhood to citizenship: Broadening the lens for dementia practice and research. Journal of Aging Studies 2007, 21:107-118.
7. Behuniak S.M. Toward a political model of dementia: Power as compassionate care. Journal of Aging Studies 2010, 24:231-240.
8. Braspenning J., Sergeant J. General practitioners' decision making for mental health problems: Outcomes and ecological validity. Journal of Clinical Epidemiology 1994, 47:1365-1372.
9. Briggs S.R., Cheek J.M. The role of factor analysis in the development and evaluation of personality scales. Journal of Personality 1986, 54:106-148.
10. Brodaty H., Draper B., Low L.-F. Nursing home staff attitudes towards residents with dementia: Strain and satisfaction with work. Journal of Advanced Nursing 2003, 44:583-590.
11. Buron B. Levels of personhood: A model for dementia care. Geriatric Nursing 2008, 29:324-332.
12. Chappell N.L., Reid R.C., Gish J.A. Staff-based measures of individualized care for persons with dementia in long-term care facilities. Dementia 2007, 6:527-547.
13. Clark L.A., Watson D. Constructing validity: Basic issues in objective scale development. Psychological Assessment 1995, 7(3):309-319.
14. Cox E. The optimal number of response alternatives for a scale: A review. Journal of Marketing Research 1980, 17:407-422.
15. Crabtree B., Miller W. Doing qualitative research 1999, Sage Publications, London. 2nd ed.
16. Dewing J. Concerns relating to the application of frameworks to promote person-centredness in nursing with older people. Journal of Clinical Nursing 2004, 13:39-44.
17. Diefenbach M.A., Weinstein N.D., O'Reilly J. Scales for assessing perceptions of health hazard susceptibility. Health Education Research 1993, 8:181-192.
18. Dupuis S.L., Wiersma E., Loiselle L. Pathologizing behavior: Meanings of behaviors in dementia care. Journal of Aging Studies 2012, 26:162-173.
19. Edgell E., Noon S.M. Effect of violation of normality on the t-test of the correlation coefficient. Psychological Bulletin 1984, 95:576-583.
20. Edvardsson D., Innes A. Measuring person-centred care: A critical comparative review of published tools. The Gerontologist 2010, 50:834-846.
21. Enmarker I., Olsen R., Hellzen O. Management of a person with dementia with aggressive and violent behaviour: A systematic literature review. International Journal of Older People Nursing 2011, 6:153-162.
22. Feldt K., Ryden M., Miles S. Treatment of pain in cognitively impaired compared with cognitively intact older patients with hip-fracture. Journal of the American Geriatrics Society 1998, 46:1079-1085.
23. Fisher J.E., Drossel C., Ferguson K., Cherup S., Sylvester M. Treating persons with dementia in context. Handbook of behavioral and cognitive therapies with older adults 2008, 200-218. Springer, New York.
24. Fisher J.E., Drossel C., Yury C., Cherup S. A contextual model of restraint-free care for persons with dementia. Functional Analysis in Clinical Treatment 2007, 211-238.
25. Garrard J., Makris L., Dunham T., Heston L.L., Cooper S., Ratner E.R., et al. Evaluation of neuroleptic drug use by nursing home elderly under proposed Medicare and Medicaid regulations. Journal of the American Medical Association 1991, 265:463-467.
26. Hadjistavropoulos T., Craig K.D., Duck S., Cano A., Goubert L., Jackson P., et al. A biopsychosocial formulation of pain communication. Psychological Bulletin 2011, 137:910-939.
27. Hadjistavropoulos T., Hunter P., Dever Fitzgerald T. Pain assessment and management in older adults: Conceptual issues and clinical challenges. Canadian Psychology 2009, 50:241-254.
28. Herr K., Bjoro K., Decker S. Tools for assessment of pain in nonverbal older adults with dementia: A state-of-the-science review. Journal of Pain and Symptom Management 2006, 31:170-191.
29. Horgas A.L., Tsai P.-F. Analgesic drug prescription and use in cognitively impaired nursing home residents. Nursing Research 1998, 47:235-242.
30. Hung L., Chaudhury H. Exploring personhood in dining experiences of residents with dementia in long-term care facilities. Journal of Aging Studies 2011, 25:1-12.
31. Kaasalainen S., Coker E., Dolovich L., Papaioannou A., Hadjistavropoulos T., Emili A., et al. Pain management decision-making among long-term care physicians and nurses. Western Journal of Nursing Research 2007, 29:561-580.
32. Kaasalainen S., Middleton J., Knezacek S., Ife C., Hartley T., Stewart N., et al. Pain and cognitive status in the institutionalized elderly: Perceptions & interventions. Journal of Gerontological Nursing 1998, 24:24-31.
33. Kane R.L., Williams C.C., Williams T.F., Kane R.A. Restraining restraints: Changes in a standard of care. Annual Review of Public Health 1993, 14:545-584.
34. Kidd P.S., Parshall M.B. Getting the focus and the group: Enhancing analytical rigor in focus group research. Qualitative Health Research 2000, 10:293-308.
35. Kitwood T. Dementia reconsidered: The person comes first 1997, Open University Press, Philadelphia, PA.
36. Lebovits A.H., Groen L.G., Goetzel R.Z. Development of the Cancer Attitudes Questionnaire. Cancer 1984, 54:1124-1129.
37. Lewin K. A dynamic theory of personality 1936, McGraw-Hill, New York.
38. Lints-Martindale A., Hadjistavropoulos T., Barber B., Gibson S.J. A psychophysical investigation of the Facial Action Coding System as an index of pain variability among older adults with and without Alzheimer's disease. Pain Medicine 2007, 8:678-689.
39. Malloy D.C., Hadjistavropoulos T. The problem of pain management among persons with dementia, personhood, and the ontology of relationships. Nursing Philosophy 2004, 5:147-159.
40. Maslach C., Jackson S.E. Maslach burnout inventory - Human services survey (MBI-HSS). MBI manual 1981, 1996, CPP, Inc., Mountain View, CA. 3rd ed. C. Maslach, S.E. Jackson, M.P. Leiter (Eds.).
41. McAiney C.A., Stolee P., Hillier L.M., Harris D., Hamilton P., Kessler L., et al. Evaluation of the sustained implementation of a mental health learning initiative in long-term care. International Psychogeriatrics 2007, 19:842-858.
42. McCaffery M., Ferrell B., Pasero C. Nurses' personal opinions about patients' pain and their effect on recorded assessments and titration of opioid doses. Pain Management Nursing 2000, 1:79-87.
43. Morrison R.S., Siu A.L. A comparison of pain and its treatment in advanced dementia and cognitively intact patients with hip fracture. Journal of Pain and Symptom Management 2000, 19:240-248.
44. Murray S., Del Mar C., O'Rourke P. Predictors of an antibiotic prescription by GPs for respiratory tract infection: A pilot. Family Practice 2000, 17:386-388.
45. O'Connor D., Phinney A., Smith S., Small J., Perry J., Drance E., et al. Personhood in dementia care: Developing a research agenda for broadening the vision. Dementia 2007, 6:121-142.
46. Ontario Ministry of Health and Long-Term Care Ontario's strategy for Alzheimer disease and related dementias - Preparing for our future 1999, Queen's Printer for Ontario, Toronto.
47. Paulhus D.L. Measurement and control of response bias. Measures of personality and social psychological attitudes 1991, 17-59. Academic Press, New York, NY. J.P. Robinson, P.R. Shaver, L.S. Wrightsman (Eds.).
48. Phinney A., Chesla C.A. The lived body in dementia. Journal of Aging Studies 2003, 17:283-299.
49. Reddy S., Patt R.B. The benzodiazepines as adjuvant analgesics. Journal of Pain and Symptom Management 1994, 9:510-514.
50. Salzman C., Jeste D., Meyer R.E., Cohen-Mansfield J., Cummings J., Grossberg G., et al. Elderly patients with dementia-related symptoms of aggression: Consensus statement on treatment options, clinical trials, methodology, and policy. The Journal of Clinical Psychiatry 2008, 69:889-898.
51. Schindel Martin L., Dupuis S. Gentle Persuasive Approaches Curriculum Retrieved from the Murray Alzheimer Research and Education Program website:. http://marep.uwaterloo.ca/research/GPAProjectFinalReportJuly2005.pdf.
52. Sengstaken E., King S. The problems of pain and its detection among geriatric nursing home residents. Journal of the American Geriatrics Society 1993, 41:541-544.
53. Sijtsma K., van der Ark L.A. Investigation and treatment of missing item scores in test and questionnaire data. Multivariate Behavioural Research 2003, 38:505-528.
54. Tabak N., Bar-Tal Y., Cohen-Mansfield J. Clinical decision making of experienced and novice nurses. Western Journal of Nursing Research 1996, 18:534-547.
55. Taylor B.J. Factorial surveys: Using vignettes to study professional judgment. British Journal of Social Work 2006, 36:1187-1207.
56. Tobin S.S. The historical context of "humanistic" culture change in long-term care. Journal of Social Work in Long-Term Care 2003, 2:53-64.
57. Traynor M., Wade B. The development of a measure of job satisfaction for use in monitoring the morale of community nurses in four trusts. Journal of Advanced Nursing 1993, 18:127-137.
58. Wang P.S., Brookhart M.A., Setoguchi S., Patrick A.R., Schneeweiss S. Psychotropic medication use for behavioural symptoms of dementia. Current Neurology and Neuroscience Reports 2006, 6:490-495.
59. White D.L., Newton-Curtis L., Lyons K.S. Development and initial testing of a measure of person-directed care. The Gerontologist 2008, 48:114-123.
60. Woolcott J.C., Richardson K.J., Wiens M.O., Patel B., Marin J., Khan K.M., et al. Meta-analysis of the impact of 9 medication classes on falls in elderly persons. Archives of Internal Medicine 2009, 169:1952-1960.
61. Zimmerman S., Williams C.S., Reed P.S., Boustani M., Preisser J.S., Heck E., et al. Attitudes, stress, and satisfaction of staff who care for residents with dementia. The Gerontologist 2005, 45(S1):96-105.