Toward a political model of dementia: Power as compassionate care

Journal of Aging Studies

Volumn 24, Issue 4, 2010, Pages 231-240

  Behuniak, Susan M ^a  

^a LE MOYNE COLLEGE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 77957019284     PISSN: 08904065     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jaging.2010.05.003     Document Type: Article

References (98)

1. Appelbaum P., Bonnie R., Karlawish J. The capacity to vote of persons with Alzheimer's disease. The American Journal of Psychiatry 2005, 162:2094-2100.
2. Baier A. What do women want in a moral theory?. Nous 1985, 19:57.
3. Baldwin C. Narrative(,) citizenship and dementia: The personal and the political. Journal of Aging Studies 2008, 22:222-228.
4. Barbas N.R., Wilde E.A. Competency issues in dementia: Medical decision making, driving, and independent living. Journal of Psychiatry and Neurology 2001, 14:199-212.
5. Barnard C. The functions of the executive 1938, Harvard University Press, Cambridge.
6. Bartlett R., O'Connor D. From personhood to citizenship: Broadening the lens for dementia practice and research. Journal of Aging Studies 2007, 21:107-118.
7. Behuniak S. A caring jurisprudence: Listening to patients at the Supreme Court 1997, Rowman & Littlefield, Lanham, MD.
8. Berghmans R.L.P. Ethical hazards of the substituted judgement test in decision making concerning the end of life of dementia patients. International Journal of Geriatric Psychiatry 1997, 12:283-287.
9. Blaikie P., Cannon T., Davis I. At risk: Natural hazards, people's vulnerability and disasters 1994, Routledge, London.
10. Blumenthal S.L. The default legal person. UCLA Law Review 2007, 54:1135.
11. Bond J. The medicalization of dementia. Journal of Aging Studies 1992, 6:397-403.
12. Brocklehurst H., Laurenson M. A concept analysis examining the vulnerability of older people. The British Journal of Nursing 2008, 17:1354-1357.
13. Clemont G. Care, autonomy, and justice: Feminism and the ethic of care 1996, Westview Press, Boulder.
14. Cohen D., Eisdorfer C. Alzheimer's disease: The loss of self 1986, Norton, NY.
15. Cruickshank M. Learning to be old: Gender, culture, and aging 2003, Rowman & Littlefield, Lanham, MD.
16. D'Agata E., Mitchell S.L. Patterns of antimicrobial use among nursing home residents with advanced dementia. Archives of Internal Medicine 2008, 168:357-362.
17. Dahl R.A. Who governs? Democracy and power in an American city 1961, Yale University Press, New Haven.
18. Davis D.H.J. Dementia: Sociological and philosophical constructions. Social Science & Medicine 2004, 58:369-378.
19. Day K., Carreon C., Stump C. The therapeutic design of environments for people with dementia: A review of the empirical research. The Gerontologist 2000, 40:397-416.
20. DeBaggio T. Losing my mind: An intimate look at life with Alzheimer's 2002, The Free Press, NY.
21. Delor F., Hubert M. Revisiting the concept of 'vulnerability'. Social Science & Medicine 2000, 50:1557-1570.
22. Dickens B. Vulnerable persons in biomedical research: 50years after the Nuremberg Code. International Journal of Bioethics 1999, 10:13-23.
23. Downs M. The emergence of the person in dementia research. Ageing and Society 1997, 17:597-607.
24. Dresser R. Dworkin on dementia: Elegant theory, questionable policy. The Hastings Center Report 1995, 25:32-38.
25. Dunham C.C., Cannon J.H. 'They're still in control enough to be in control': Paradox of power in dementia caregiving. Journal of Aging Studies 2008, 22:45-53.
26. Dworkin R. Life's dominion: An argument about abortion, euthanasia, and individual freedom 1994, Alfred Knopf, NY.
27. Eastwood R., Amaducci L. The challenge of the dementias. Lancet 1996, 347:1303-1308.
28. Erde E.L. Personhood: The vain and pointless quest for a definition: An ordinary language exploration,. Personhood and health care 2001, Kluwer Academic Publishers, Dordrecht, The Netherlands. D. Thomasa, D. Weisstub, C. Herve (Eds.).
29. Feil N. Validation: The Feil method 1982, Edward Feil Productions, Cleveland, OH.
30. Feil N. The validation breakthrough: Simple techniques for communicating with people with "Alzheimer's-type dementia 2002, Health Professions Press, Baltimore. (2nd ed.).
31. Fontana A., Smith R.W. Alzheimer's disease victims: The 'unbecoming' of self and the normalization of competence. Sociological Perspectives 1989, 32:35-46.
32. Fox N. Postmodern perspectives on care: The vigil and the gift. Critical Social Policy 1995, 15:44-45.
33. Fox P. From senility to Alzheimer's disease: The rise of the Alzheimer's disease movement. The Millbank Quarterly 1989, 67:58-102.
34. Freire P. Pedagogy of the oppressed. Myra Bergman Ramos (Trans.) NY: Continuum 1985.
35. French J., Raven B. The basis of social power. Studies in social power 1959, Institute of Social Research, Ann Arbor. D. Cartwright (Ed.).
36. Gillies B.A. A memory like clockwork: Accounts of living through dementia. Aging & Mental Health 2000, 4:366-374.
37. Gilligan C. In a different voice: Psychological theory and women's development 1982, Harvard University Press, Cambridge.
38. Goodwin R.E. Protecting the vulnerable: A reanalysis of our social responsibilities 1985, University of Chicago Press, Chicago.
39. Harrison C. Personhood, dementia and the integrity of a life. Canadian Journal on Aging 1993, 12:428-440.
40. Hawks J.H. Power: A concept analysis. Journal of Advanced Nursing 1991, 16:754-762.
41. Heineken J. Power: Conflicting views. The Journal of Nursing Administration 1985, 15:36-39.
42. Justice and care: Essential readings in feminist ethics 1995, Westview Press, Boulder. V. Held (Ed.).
43. Herskovits E. Struggling over subjectivity: Debates about the 'self' and Alzheimer's disease. Medical Anthropology Quarterly 1995, 9:146-164.
44. Hirschman K.B., et al. Do Alzheimer's disease patients want to participate in a treatment decision, and would their caregivers let them. The Gerontologist 2005, 45:381-388.
45. Jolley D.J., Benbow S.M. Stigma and Alzheimer's disease: Causes, consequences and a constructive approach. International Journal of Clinical Practice 2000, 54:117-119.
46. Josefowitz N. Paths to power 1980, Addison-Wesley, Reading, MA.
47. Kapp M.B. Legal interventions for persons with dementia in the USA: Ethical, policy and practical aspects. Aging & Mental Health 2001, 5:312-315.
48. Karlawish J.H., et al. Addressing the ethical, legal, and social issues raised by voting by persons with dementia. JAMA 2004, 292:1345-1350.
49. Karlawish J.H., et al. The ability of persons with Alzheimer disease (AD) to make a decision about taking an AD treatment. Neurology 2005, 64:1514-1519.
50. Katsuno T. Dementia from the inside: How people with early-stage dementia evaluate their quality of life. Ageing & Society 2005, 25:197-214.
51. Kessler L. Dancing with Rose: Finding life in the land of Alzheimer's 2007, Viking, NY.
52. Killias M. Vulnerability: Towards a better understanding of a key variable in the genesis of fear of crime. Violence and Victims 1990, 5:97-109.
53. King I. A theory for nursing systems, concepts, process 1981, J. Wiley, NY.
54. Kittay E.F. Love's labor: Essays on women, equality, and dependency 1999, Routledge, NY.
55. Kitwood T. Dementia reconsidered: The person comes first 1997, Open University Press, Philadelphia.
56. Kontos P.C. 'The painterly hand': Embodied consciousness and Alzheimer's disease. Journal of Aging Studies 2003, 17:151-170.
57. Kontos P.C. Ethnographic reflections on selfhood, embodiment and Alzheimer's disease. Ageing and Society 2004, 24:829-849.
58. Kontos P.C. Embodied selfhood in Alzheimer's disease. Dementia 2005, 4:553-570.
59. Kontos P.C. Habitus: An incomplete account of human agency. The American Journal of Semiotics 2006, 22:69-85.
60. Kuhse H. Some reflections on the problem of advance directives,. Personhood and health care 2001, Kluwer Academic Publishers, Dordrecht, The Netherlands. D. Thomasa, D. Weisstub, C. Herve (Eds.).
61. An ethic of care: Feminist and interdisciplinary perspectives 1993, Routledge, NY. M.J. Larrabee (Ed.).
62. Levine C., et al. The limitations of 'vulnerability' as a protection for human research. The American Journal of Bioethics 2004, 4:44-49.
63. Lizza J.P. Persons and death: What's metaphysically wrong with our current statutory definition of death?. The Journal of Medicine and Philosophy 1993, 18:351-374.
64. Luborsky M.R. The cultural adversity of physical disability: Erosion of full adult personhood. Journal of Aging Studies 1994, 8:239-253.
65. Lyman K.A. Bringing the social back in: A critique of the biomedicalization of dementia. The Gerontologist 1989, 29:597-605.
66. Lyman K.A. Living with Alzheimer's disease: The creation of meaning among persons with dementia. The Journal of Clinical Ethics 1998, 9:49-57.
67. McColgan G. A place to sit: Resistance strategies used to create privacy and home by people with dementia. Journal of Contemporary Ethnography 2005, 34:410-433.
68. McFadden S.H., Ingram M., Baldauf C. Actions, feelings, and values: Foundations of meaning and personhood in dementia. Journal of Religious Gerontology 2000, 11:67-86.
69. McGowin D.G. Living in the labyrinth: A personal journey through the maze of Alzheimer's 1993, Elder Books, San Francisco.
70. Matthews S.J. The social world of old women: Management of self-identity 1979, Sage Publications, Beverly Hills.
71. May R. Power and innocence: A search for the sources of violence 1973, Delta, NY.
72. Noddings N. Caring: A feminine approach to ethics and moral education 1984, University of California Press, Berkeley.
73. Nolan M.R., et al. Beyond 'person-centred' care: A new vision for gerontological nursing. International Journal of Older People Nursing 2003, 13:45-53.
74. Netten A. A positive environment? Physical and social influences on people with senile dementia in residential care 1993, Ashgate, Aldershot, UK.
75. Phinney A., Chesla C.A. The lived body in dementia. Journal of Aging Studies 2003, 17:283-299.
76. Proctor G. Listening to older women with dementia: Relationships, voices and power. Disability & Society 2001, 16:361-376.
77. Sabat S.R., Harré R. The construction and deconstruction of self in Alzheimer's disease. Ageing and Society 1992, 12:443-461.
78. Sabat S.R. Malignant positioning and the predicament of people with Alzheimer's disease. The self and others: Positioning individuals and groups in personal, political, and cultural contexts 2003, Praeger, Westport, CN. R. Harré, F.M. Moghaddam (Eds.).
79. Sabat S.R. Voices of Alzheimer's disease sufferers: A call for treatment based on personhood. The Journal of Clinical Ethics 1998, 9:35-48.
80. Scheper-Hughes N., Lock M.M. Speaking 'truth' to illness: Metaphors, reification, and a pedagogy for patients. Medical Anthropology Quarterly 1986, 17:137-140.
81. Settergren G. Brain death: An important paradigm shift in the 20th century. Acta Anaesthesiologica Scandinavica 2003, 47:1053-1058.
82. Shenk D. The forgetting: Alzheimer's: Portrait of an epidemic 2001, Anchor Books, NY.
83. Sixsmith A., Stilwell J., Copeland J. 'Rementia': Challenging the limits of dementia care. International Journal of Geriatric Psychiatry 1993, 8:993-1000.
84. Sloane P.D., et al. The therapeutic environment screenings survey for nursing homes. Journal of Gerontology 2002, 57B:69-79.
85. Smith D.H. Seeing and knowing dementia. Dementia and aging: Ethics, values, and policy choices 1992, Johns Hopkins University Press, Baltimore. R.H. Binstock, S. Garrard (Eds.).
86. Stevens B. The nurse as executive 1980, Nursing Resources, Wakefield.
87. Thompson N., Thompson S. Empowering older people: Beyond the care model. Journal of Social Work 2001, 1:61-76.
88. Tong R. Feminist approaches to bioethics: Theoretical reflections and practical applications 1997, Westview Press, Boulder, CO.
89. Tronto J. Moral boundaries: A political argument for an ethic of care 1993, Routledge, NY.
90. Washington v. Glucksberg, 512 U.S. 702 (1997).
91. West R. Jurisprudence and gender. Feminist legal theory: Foundations 1993, Temple University Press, Philadelphia. D. Kelly Weisberg (Ed.).
92. Wheeler C., Chinn P. Peace and power: A handbook of feminist process 1989, National League for Nursing, NY. 2nd Ed.
93. White, J. (2008). Care, resentment and mutuality. Unpublished paper presented at the annual meeting of the Western Political Science Association. San Diego.
94. Wislowski A., Cuellar N. Voting rights for older Americans with dementia: Implications for health care providers. Nursing Outlook 2006, 54:68-73.
95. Wolf-Klein G., et al. Conceptualizing Alzheimer's disease as a terminal medical illness. American Journal of Hospice and Palliative Medicine 2007, 24:77-82.
96. Woods B., Pratt R. Awareness in dementia: Ethical and legal issues in relation to people with dementia. Aging & Mental Health 2005, 9:423-429.
97. Woods R.T. Alzheimer's disease: Coping with a living death 1989, Souvenir Press, London.
98. Zeisel J., et al. Environmental correlates to behavioral health outcomes in Alzheimer's special care units. The Gerontologist 2003, 43:697.