메뉴 건너뛰기




Volumn 15, Issue 1, 2013, Pages

Online information exchanges for parents of children with a rare health condition: Key findings from an online support community

Author keywords

Clubfoot; Health Communication; Health Information Seeking And Provision; Online Social Support; Online Support Communities; Uncertainty Management

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CHILD; CLUBFOOT; FEMALE; HUMAN; INFORMATION SEEKING; INTERNET; MALE; ONLINE SYSTEM; PARENT; SELF HELP; SOCIAL SUPPORT; TELEMEDICINE;

EID: 84877306785     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.2423     Document Type: Article
Times cited : (50)

References (65)
  • 1
    • 80053504954 scopus 로고    scopus 로고
    • Internet use and ehealth literacy of low-income parents whose children have special health care needs
    • [FREE Full text] [ doi: 10.2196/jmir.1697] [Medline: 21960017]
    • Knapp C, Madden V, Wang H, Sloyer P, Shenkman E. Internet use and eHealth literacy of low-income parents whose children have special health care needs. J Med Internet Res 2011;13(3):e75 [FREE Full text] [doi: 10.2196/jmir.1697] [Medline: 21960017]
    • (2011) J Med Internet Res , vol.13 , Issue.3
    • Knapp, C.1    Madden, V.2    Wang, H.3    Sloyer, P.4    Shenkman, E.5
  • 2
    • 84860575089 scopus 로고    scopus 로고
    • Developing health promotion interventions on social networking sites: Recommendations from the facespace project
    • [FREE Full text] [doi: 10.2196/jmir.1875] [Medline: 22374589]
    • Gold J, Pedrana AE, Stoove MA, Chang S, Howard S, Asselin J, et al. Developing health promotion interventions on social networking sites: recommendations from The FaceSpace Project. J Med Internet Res 2012;14(1):e30 [FREE Full text] [doi: 10.2196/jmir.1875] [Medline: 22374589]
    • (2012) J Med Internet Res , vol.14 , Issue.1
    • Gold, J.1    Pedrana, A.E.2    Stoove, M.A.3    Chang, S.4    Howard, S.5    Asselin, J.6
  • 3
    • 84555188084 scopus 로고    scopus 로고
    • Why is facebook so successful? Psychophysiological measures describe a core flow state while using facebook
    • [doi: 10.1089/cyber.2010.0377] [Medline: 21879884] Dec
    • Mauri M, Cipresso P, Balgera A, Villamira M, Riva G. Why is Facebook so successful? Psychophysiological measures describe a core flow state while using Facebook. Cyberpsychol Behav Soc Netw 2011 Dec;14(12):723-731. [doi: 10.1089/cyber.2010.0377] [Medline: 21879884]
    • (2011) Cyberpsychol Behav Soc Netw , vol.14 , Issue.12 , pp. 723-731
    • Mauri, M.1    Cipresso, P.2    Balgera, A.3    Villamira, M.4    Riva, G.5
  • 4
    • 78651272504 scopus 로고    scopus 로고
    • An online community improves adherence in an internet-mediated walking program. Part 1: Results of a randomized controlled trial
    • [FREE Full text] [doi: 10.2196/jmir.1338] [Medline: 21169160]
    • Richardson CR, Buis LR, Janney AW, Goodrich DE, Sen A, Hess ML, et al. An online community improves adherence in an internet-mediated walking program. Part 1: results of a randomized controlled trial. J Med Internet Res 2010;12(4):e71 [FREE Full text] [doi: 10.2196/jmir.1338] [Medline: 21169160]
    • (2010) J Med Internet Res , vol.12 , Issue.4
    • Richardson, C.R.1    Buis, L.R.2    Janney, A.W.3    Goodrich, D.E.4    Sen, A.5    Hess, M.L.6
  • 5
    • 80051761936 scopus 로고    scopus 로고
    • Understanding the educational needs for parents of children with clubfoot
    • quiz 279. [doi: 10.1097/NOR.0b013e3182247c15] [Medline: 21799385]
    • Paulsen-Miller M, Dolan LA, Stineman A, Morcuende JA. Understanding the educational needs for parents of children with clubfoot. Orthop Nurs 2011;30(4):273-8; quiz 279. [doi: 10.1097/NOR.0b013e3182247c15] [Medline: 21799385]
    • (2011) Orthop Nurs , vol.30 , Issue.4 , pp. 273-278
    • Paulsen-Miller, M.1    Dolan, L.A.2    Stineman, A.3    Morcuende, J.A.4
  • 6
    • 84973831255 scopus 로고
    • Controllability of stressful events and satisfaction with spouse support behaviors
    • Cutrona CE, Suhr JA. Controllability of stressful events and satisfaction with spouse support behaviors. Comm Research 1992;19:154-174.
    • (1992) Comm Research , vol.19 , pp. 154-174
    • Cutrona, C.E.1    Suhr, J.A.2
  • 7
    • 0025616883 scopus 로고
    • Reconceptualization of the uncertainty in illness theory
    • [Medline 2292449]
    • Mishel MH. Reconceptualization of the uncertainty in illness theory. Image J Nurs Sch 1990;22(4):256-262. [Medline: 2292449]
    • (1990) Image J Nurs Sch , vol.22 , Issue.4 , pp. 256-262
    • Mishel, M.H.1
  • 9
    • 33845883326 scopus 로고    scopus 로고
    • Providing web-based support for families of infants and young children with established disabilities
    • Zaidman-Zait A, Jamieson Jr. Providing web-based support for families of infants and young children with established disabilities. Infant Young Child 2007;20:11-25.
    • (2007) Infant Young Child , vol.20 , pp. 11-25
    • Zaidman-Zait, A.1    Jamieson, J.R.2
  • 10
    • 0842346536 scopus 로고    scopus 로고
    • Radical reduction in the rate of extensive corrective surgery for clubfoot using the ponseti method
    • [FREE Full text] [Medline 14754952] Feb
    • Morcuende JA, Dolan LA, Dietz FR, Ponseti IV. Radical reduction in the rate of extensive corrective surgery for clubfoot using the Ponseti method. Pediatrics 2004 Feb;113(2):376-380 [FREE Full text] [Medline: 14754952]
    • (2004) Pediatrics , vol.113 , Issue.2 , pp. 376-380
    • Morcuende, J.A.1    Dolan, L.A.2    Dietz, F.R.3    Ponseti, I.V.4
  • 11
    • 79952277778 scopus 로고    scopus 로고
    • Bracing in the treatment of children with clubfoot: Past, present, and future
    • [FREE Full text] [Medline: 21045966]
    • Desai L, Oprescu F, DiMeo A, Morcuende JA. Bracing in the treatment of children with clubfoot: past, present, and future. Iowa Orthop J 2010;30:15-23 [FREE Full text] [Medline: 21045966]
    • (2010) Iowa Orthop J , vol.30 , pp. 15-23
    • Desai, L.1    Oprescu, F.2    DiMeo, A.3    Morcuende, J.A.4
  • 12
    • 84861355968 scopus 로고    scopus 로고
    • Treatment results of late-relapsing idiopathic clubfoot previously treated with the ponseti method
    • Jun; [doi: 10.1097/BPO.0b013e318256117c] [Medline: 22584843]
    • McKay SD, Dolan LA, Morcuende JA. Treatment results of late-relapsing idiopathic clubfoot previously treated with the Ponseti method. J Pediatr Orthop 2012 Jun;32(4):406-411. [doi: 10.1097/BPO.0b013e318256117c] [Medline: 22584843]
    • (2012) J Pediatr Orthop , vol.32 , Issue.4 , pp. 406-411
    • McKay, S.D.1    Dolan, L.A.2    Morcuende, J.A.3
  • 13
    • 84862741958 scopus 로고    scopus 로고
    • The current management of idiopathic clubfoot revisited: Results of a survey of the posna membership
    • [doi: 10.1097/BPO.0b013e318259ff79] [Medline: 22706469]
    • Zionts LE, Sangiorgio SN, Ebramzadeh E, Morcuende JA. The current management of idiopathic clubfoot revisited: results of a survey of the POSNA membership. J Pediatr Orthop 2012;32(5):515-520. [doi: 10.1097/BPO. 0b013e318259ff79] [Medline: 22706469]
    • (2012) J Pediatr Orthop , vol.32 , Issue.5 , pp. 515-520
    • Zionts, L.E.1    Sangiorgio, S.N.2    Ebramzadeh, E.3    Morcuende, J.A.4
  • 14
    • 84255196046 scopus 로고    scopus 로고
    • Relapse after tibialis anterior tendon transfer in idiopathic clubfoot treated by the ponseti method
    • [doi: 10.1097/BPO.0b013e31823db19d] [Medline: 22173393]
    • Masrouha KZ, Morcuende JA. Relapse after tibialis anterior tendon transfer in idiopathic clubfoot treated by the Ponseti method. J Pediatr Orthop 2012;32(1):81-84. [doi: 10.1097/BPO.0b013e31823db19d] [Medline: 22173393]
    • (2012) J Pediatr Orthop , vol.32 , Issue.1 , pp. 81-84
    • Masrouha, K.Z.1    Morcuende, J.A.2
  • 15
    • 77950494573 scopus 로고    scopus 로고
    • Ponseti method compared with surgical treatment of clubfoot: A prospective comparison
    • [doi: 10.2106/JBJS.H.01560] [Medline: 20124052] Feb
    • Halanski MA, Davison JE, Huang JC, Walker CG, Walsh SJ, Crawford HA. Ponseti method compared with surgical treatment of clubfoot: a prospective comparison. J Bone Joint Surg Am 2010 Feb;92(2):270-278. [doi: 10.2106/JBJS.H.01560] [Medline: 20124052]
    • (2010) J Bone Joint Surg Am , vol.92 , Issue.2 , pp. 270-278
    • Halanski, M.A.1    Davison, J.E.2    Huang, J.C.3    Walker, C.G.4    Walsh, S.J.5    Crawford, H.A.6
  • 16
    • 78650939111 scopus 로고    scopus 로고
    • The diagnosis and management of common childhood orthopedic disorders
    • Jan; [doi: 10.1016/j.cppeds.2010.10.004] [Medline: 21195338]
    • Nemeth B. The diagnosis and management of common childhood orthopedic disorders. Curr Probl Pediatr Adolesc Health Care 2011 Jan;41(1):2-28. [doi: 10.1016/j.cppeds.2010.10.004] [Medline: 21195338]
    • (2011) Curr Probl Pediatr Adolesc Health Care , vol.41 , Issue.1 , pp. 2-28
    • Nemeth, B.1
  • 17
    • 80052794634 scopus 로고    scopus 로고
    • Management of congenital talipes equinovarus using the ponseti method: A systematic review
    • Sep [doi: 10.1302/0301-620X.93B9.26947] [Medline: 21911524]
    • Jowett CR, Morcuende JA, Ramachandran M. Management of congenital talipes equinovarus using the Ponseti method: a systematic review. J Bone Joint Surg Br 2011 Sep;93(9):1160-1164. [doi: 10.1302/0301-620X.93B9.26947] [Medline: 21911524]
    • (2011) J Bone Joint Surg Br , vol.93 , Issue.9 , pp. 1160-1164
    • Jowett, C.R.1    Morcuende, J.A.2    Ramachandran, M.3
  • 18
    • 0035615625 scopus 로고    scopus 로고
    • Communication and uncertainty management
    • Brashers DE. Communication and Uncertainty Management. J Commun 2001;51(3):477-497.
    • (2001) J Commun , vol.51 , Issue.3 , pp. 477-497
    • Brashers, D.E.1
  • 19
    • 0039363055 scopus 로고    scopus 로고
    • Managing uncertainty in illness explanation: An application of problematic integration theory
    • In: Whaley B, editor Hillsdale, NJ: Erlbaum
    • Babrow AS, Hines SC, Kasch CR. Managing uncertainty in illness explanation: An application of problematic integration theory. In: Whaley B, editor. Explaining illness: Research, theory, and strategies. Hillsdale, NJ: Erlbaum; 2000:41-67.
    • (2000) Explaining illness: Research, theory, and strategies , pp. 41-67
    • Babrow, A.S.1    Hines, S.C.2    Kasch, C.R.3
  • 20
    • 0002084423 scopus 로고    scopus 로고
    • The many meanings of uncertainty in illness: Toward a systematic accounting
    • [doi 101207/s15327027hc1001-1] [Medline 16370987]
    • Babrow AS, Kasch CR, Ford LA. The many meanings of uncertainty in illness: toward a systematic accounting. Health Commun 1998;10(1):1-23. [doi: 10.1207/s15327027hc1001-1] [Medline: 16370987]
    • (1998) Health Commun , vol.10 , Issue.1 , pp. 1-23
    • Babrow, A.S.1    Kasch, C.R.2    Ford, L.A.3
  • 22
    • 78651347749 scopus 로고    scopus 로고
    • One wants to know what a chromosome is: The internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder
    • Jan; [doi: 10.1111/j.1467-9566.2010.01277.x] [Medline: 20937053]
    • Gundersen T. 'One wants to know what a chromosome is': the internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder. Sociol Health Illn 2011 Jan;33(1):81-95. [doi: 10.1111/j.1467-9566. 2010.01277.x] [Medline: 20937053]
    • (2011) Sociol Health Illn , vol.33 , Issue.1 , pp. 81-95
    • Gundersen, T.1
  • 23
    • 49649093778 scopus 로고    scopus 로고
    • Advice-giving and the management of uncertainty for cancer survivors
    • [doi 101080/10410230802229712] [Medline 18701998] Jul
    • Thompson S, O'Hair HD. Advice-giving and the management of uncertainty for cancer survivors. Health Commun 2008 Jul;23(4):340-348. [doi: 10.1080/10410230802229712] [Medline: 18701998]
    • (2008) Health Commun , vol.23 , Issue.4 , pp. 340-348
    • Thompson, S.1    O'Hair, H.D.2
  • 24
    • 0000877054 scopus 로고    scopus 로고
    • Communication of social support in computer-mediated groups for people with disabilities
    • [doi 101207/s15327027hc1102-2] [Medline 16370973]
    • Braithwaite DO, Waldron VR, Finn J. Communication of social support in computer-mediated groups for people with disabilities. Health Commun 1999;11(2):123-151. [doi: 10.1207/s15327027hc1102-2] [Medline: 16370973]
    • (1999) Health Commun , vol.11 , Issue.2 , pp. 123-151
    • Braithwaite, D.O.1    Waldron, V.R.2    Finn, J.3
  • 25
    • 36749008248 scopus 로고    scopus 로고
    • The effect of uncertainty reducing strategies on young couples' relational repair and intimacy
    • Emmers TM, Canary DJ. The Effect of Uncertainty Reducing Strategies on Young Couples' Relational Repair and Intimacy. Commun Quart 1996;44(2):166-182.
    • (1996) Commun Quart , vol.44 , Issue.2 , pp. 166-182
    • Emmers, T.M.1    Canary, D.J.2
  • 28
    • 77956457680 scopus 로고    scopus 로고
    • The role of the internet in supporting and informing carers of people with cancer: A literature review
    • [doi: 10.1007/s00520-010-0863-4] [Medline: 20336326] Sep
    • Kinnane NA, Milne DJ. The role of the Internet in supporting and informing carers of people with cancer: a literature review. Support Care Cancer 2010 Sep;18(9):1123-1136. [doi: 10.1007/s00520-010-0863-4] [Medline: 20336326]
    • (2010) Support Care Cancer , vol.18 , Issue.9 , pp. 1123-1136
    • Kinnane, N.A.1    Milne, D.J.2
  • 29
    • 74049147542 scopus 로고    scopus 로고
    • Washington, DC: Pew Research Center's Internet & American Life Project
    • Fox S. The Social Life of Health Information. Washington, DC: Pew Research Center's Internet & American Life Project; 2011.
    • (2011) The Social Life of Health Information.
    • Fox, S.1
  • 30
    • 49249095381 scopus 로고    scopus 로고
    • The early postnatal period: Exploring women's views, expectations and experiences of care using focus groups in victoria, australia
    • [FREE Full text] [doi: 10.1186/1471-2393-8-27] [Medline: 18644157]
    • Forster DA, McLachlan HL, Rayner J, Yelland J, Gold L, Rayner S. The early postnatal period: exploring women's views, expectations and experiences of care using focus groups in Victoria, Australia. BMC Pregnancy Childbirth 2008;8:27 [FREE Full text] [doi: 10.1186/1471-2393-8-27] [Medline: 18644157]
    • (2008) BMC Pregnancy Childbirth , vol.8 , pp. 27
    • Forster, D.A.1    McLachlan, H.L.2    Rayner, J.3    Yelland, J.4    Gold, L.5    Rayner, S.6
  • 31
    • 67650681897 scopus 로고    scopus 로고
    • Parenthood, information and support on the internet. A literature review of research on parents and professionals online
    • [FREE Full text] [doi: 10.1186/1471-2296-10-34] [Medline: 19450251]
    • Plantin L, Daneback K. Parenthood, information and support on the internet. A literature review of research on parents and professionals online. BMC Fam Pract 2009;10:34 [FREE Full text] [doi: 10.1186/1471-2296-10-34] [Medline: 19450251]
    • (2009) BMC Fam Pract , vol.10 , pp. 34
    • Plantin, L.1    Daneback, K.2
  • 32
    • 33645755627 scopus 로고    scopus 로고
    • Parenting gone wired: Empowerment of new mothers on the internet?
    • Madge C, O'Connor H. Parenting gone wired: empowerment of new mothers on the internet? Soc Cultur Geogr 2006;7(2):199-220.
    • (2006) Soc Cultur Geogr , vol.7 , Issue.2 , pp. 199-220
    • Madge, C.1    O'Connor, H.2
  • 33
    • 14544275008 scopus 로고    scopus 로고
    • Socially unbiased parenting support on the internet: A cross-sectional study of users of a large swedish parenting website
    • [doi: 10.1111/j.1365-2214 2005.00475.x] [Medline: 15658965] Jan
    • Sarkadi A, Bremberg S. Socially unbiased parenting support on the Internet: a cross-sectional study of users of a large Swedish parenting website. Child Care Health Dev 2005 Jan;31(1):43-52. [doi: 10.1111/j.1365-2214.2005. 00475.x] [Medline: 15658965]
    • (2005) Child Care Health Dev , vol.31 , Issue.1 , pp. 43-52
    • Sarkadi, A.1    Bremberg, S.2
  • 34
    • 0032929913 scopus 로고    scopus 로고
    • Readability levels of patient education material on the world wide web
    • [Medline 9934385] Jan
    • Graber MA, Roller CM, Kaeble B. Readability levels of patient education material on the World Wide Web. J Fam Pract 1999 Jan;48(1):58-61. [Medline: 9934385]
    • (1999) J Fam Pract , vol.48 , Issue.1 , pp. 58-61
    • Graber, M.A.1    Roller, C.M.2    Kaeble, B.3
  • 35
    • 33748321950 scopus 로고    scopus 로고
    • Patients using the internet to obtain health information: How this affects the patient-health professional relationship
    • [doi 101016/jpec 200510006] [Medline 16406474] Oct
    • McMullan M. Patients using the Internet to obtain health information: how this affects the patient-health professional relationship. Patient Educ Couns 2006 Oct;63(1-2):24-28. [doi: 10.1016/j.pec.2005.10.006] [Medline: 16406474]
    • (2006) Patient Educ Couns , vol.63 , Issue.1-2 , pp. 24-28
    • McMullan, M.1
  • 36
    • 0035576074 scopus 로고    scopus 로고
    • Impact of the media and the internet on oncology: Survey of cancer patients and oncologists in canada
    • [Medline 11731511] Dec
    • Chen X, Siu LL. Impact of the media and the internet on oncology: survey of cancer patients and oncologists in Canada. J Clin Oncol 2001 Dec 1;19(23):4291-4297. [Medline: 11731511]
    • (2001) J Clin Oncol , vol.1 , Issue.1923 , pp. 4291-4297
    • Chen, X.1    Siu, L.L.2
  • 37
    • 36249005043 scopus 로고    scopus 로고
    • Producing genetic knowledge and citizenship through the internet: Mothers pediatric genetics and cybermedicine
    • [doi: 10.1111/j.1467-95662007.01042.x] [Medline: 18254838] Jan
    • Schaffer R, Kuczynski K, Skinner D. Producing genetic knowledge and citizenship through the Internet: mothers, pediatric genetics, and cybermedicine. Sociol Health Illn 2008 Jan;30(1):145-159. [doi: 10.1111/j.1467-9566.2007.01042.x] [Medline: 18254838]
    • (2008) Sociol Health Illn , vol.30 , Issue.1 , pp. 145-159
    • Schaffer, R.1    Kuczynski, K.2    Skinner, D.3
  • 38
    • 0023926687 scopus 로고
    • First step in obtaining child health care: Selecting a physician
    • [Medline 3344176] Mar
    • Hickson GB, Stewart DW, Altemeier WA, Perrin JM. First step in obtaining child health care: selecting a physician. Pediatrics 1988 Mar;81(3):333-338. [Medline: 3344176]
    • (1988) Pediatrics , vol.81 , Issue.3 , pp. 333-338
    • Hickson, G.B.1    Stewart, D.W.2    Altemeier, W.A.3    Perrin, J.M.4
  • 39
    • 4143088180 scopus 로고    scopus 로고
    • Characteristics of online and offline health information seekers and factors that discriminate between them
    • Nov [doi: 10.1016/j.socscimed.2004.02.020] [Medline: 15312915]
    • Cotten SR, Gupta SS. Characteristics of online and offline health information seekers and factors that discriminate between them. Soc Sci Med 2004 Nov;59(9):1795-1806. [doi: 10.1016/j.socscimed.2004.02.020] [Medline: 15312915]
    • (2004) Soc Sci Med , vol.59 , Issue.9 , pp. 1795-1806
    • Cotten, S.R.1    Gupta, S.S.2
  • 40
    • 0842343541 scopus 로고    scopus 로고
    • A nonlinear model of information-seeking behavior
    • Foster A. A nonlinear model of information-seeking behavior. J Am Soc Inf Sci Tec 2004;55(3):228-237.
    • (2004) J Am Soc Inf Sci Tec , vol.55 , Issue.3 , pp. 228-237
    • Foster, A.1
  • 41
    • 39749127959 scopus 로고    scopus 로고
    • Computer-mediated support group intervention for parents
    • [doi: 10.1111/j.1547-50692007.00203.x] [Medline: 18302589]
    • Bragadóttir H. Computer-mediated support group intervention for parents. J Nurs Scholarsh 2008;40(1):32-38. [doi: 10.1111/j.1547-5069.2007. 00203.x] [Medline: 18302589]
    • (2008) J Nurs Scholarsh , vol.40 , Issue.1 , pp. 32-38
    • Bragadóttir, H.1
  • 42
    • 34548509498 scopus 로고    scopus 로고
    • Social support in cyberspace: A content analysis of communication within a huntington's disease online support group
    • Oct; [doi 101016/jpec200706002] [Medline 17629440]
    • Coulson NS, Buchanan H, Aubeeluck A. Social support in cyberspace: a content analysis of communication within a Huntington's disease online support group. Patient Educ Couns 2007 Oct;68(2):173-178. [doi: 10.1016/j.pec.2007.06. 002] [Medline: 17629440]
    • (2007) Patient Educ Couns , vol.68 , Issue.2 , pp. 173-178
    • Coulson, N.S.1    Buchanan, H.2    Aubeeluck, A.3
  • 43
    • 84858190197 scopus 로고    scopus 로고
    • Creating a bond between caregivers online: Effect on caregivers' coping strategies
    • [FREE Full text] [doi: 10.1080/10810730.2011.585687] [Medline: 22004055]
    • Namkoong K, DuBenske LL, Shaw BR, Gustafson DH, Hawkins RP, Shah DV, et al. Creating a bond between caregivers online: effect on caregivers' coping strategies. J Health Commun 2012;17(2):125-140 [FREE Full text] [doi: 10.1080/10810730.2011.585687] [Medline: 22004055]
    • (2012) J Health Commun , vol.17 , Issue.2 , pp. 125-140
    • Namkoong, K.1    DuBenske, L.L.2    Shaw, B.R.3    Gustafson, D.H.4    Hawkins, R.P.5    Shah, D.V.6
  • 44
    • 47949088204 scopus 로고    scopus 로고
    • Internet-based interactive support for cancer patients: Are integrated systems better?
    • Jun [FREE Full text] [doi: 10.1111/j.1460-2466 200800383x] [Medline 21804645]
    • Gustafson DH, Hawkins R, McTavish F, Pingree S, Chen WC, Volrathongchai K, et al. Internet-Based Interactive Support for Cancer Patients: Are Integrated Systems Better? J Commun 2008 Jun;58(2):238-257 [FREE Full text] [doi: 10.1111/j.1460-2466.2008.00383.x] [Medline: 21804645]
    • (2008) J Commun , vol.58 , Issue.2 , pp. 238-257
    • Gustafson, D.H.1    Hawkins, R.2    McTavish, F.3    Pingree, S.4    Chen, W.C.5    Volrathongchai, K.6
  • 45
    • 79961085769 scopus 로고    scopus 로고
    • Online solutions to support needs and preferences of parents of children with asthma and allergies
    • Aug; [doi: 10.1177/1074840711415416] [Medline: 21813815]
    • Stewart M, Letourneau N, Masuda JR, Anderson S, McGhan S. Online solutions to support needs and preferences of parents of children with asthma and allergies. J Fam Nurs 2011 Aug;17(3):357-379. [doi: 10.1177/ 1074840711415416] [Medline: 21813815]
    • (2011) J Fam Nurs , vol.17 , Issue.3 , pp. 357-379
    • Stewart, M.1    Letourneau, N.2    Masuda, J.R.3    Anderson, S.4    McGhan, S.5
  • 46
    • 0037157120 scopus 로고    scopus 로고
    • Empirical studies assessing the quality of health information for consumers on the world wide web: A systematic review
    • [Medline 12020305]
    • Eysenbach G, Powell J, Kuss O, Sa ER. Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review. JAMA 2002;287(20):2691-2700. [Medline: 12020305]
    • (2002) JAMA , vol.287 , Issue.20 , pp. 2691-2700
    • Eysenbach, G.1    Powell, J.2    Kuss, O.3    Sa, E.R.4
  • 47
    • 0008369982 scopus 로고    scopus 로고
    • Parents on the web: Risks for quality management of cough in children
    • [Medline 10617738] Jan
    • Pandolfini C, Impicciatore P, Bonati M. Parents on the web: risks for quality management of cough in children. Pediatrics 2000 Jan;105(1):e1. [Medline: 10617738]
    • (2000) Pediatrics , vol.105 , Issue.1
    • Pandolfini, C.1    Impicciatore, P.2    Bonati, M.3
  • 49
    • 41549095953 scopus 로고    scopus 로고
    • Online participation: A content analysis of differences in utilization of two online cancer communities by men and women, patients and family members
    • [doi 101080/10410230701697100] [Medline 18443988]
    • Ginossar T. Online participation: a content analysis of differences in utilization of two online cancer communities by men and women, patients and family members. Health Commun 2008;23(1):1-12. [doi: 10.1080/10410230701697100] [Medline: 18443988]
    • (2008) Health Commun , vol.23 , Issue.1 , pp. 1-12
    • Ginossar, T.1
  • 50
    • 0037372378 scopus 로고    scopus 로고
    • Evaluation of an internet support group for women with primary breast cancer
    • [FREE Full text] [doi 101002/cncr11174] [Medline 12599221] Mar
    • Winzelberg AJ, Classen C, Alpers GW, Roberts H, Koopman C, Adams RE, et al. Evaluation of an internet support group for women with primary breast cancer. Cancer 2003 Mar 1;97(5):1164-1173 [FREE Full text] [doi: 10.1002/cncr.11174] [Medline: 12599221]
    • (2003) Cancer , vol.1 , Issue.975 , pp. 1164-1173
    • Winzelberg, A.J.1    Classen, C.2    Alpers, G.W.3    Roberts, H.4    Koopman, C.5    Adams, R.E.6
  • 53
    • 78650221762 scopus 로고    scopus 로고
    • The internet as a health information source: Findings from the 2007 health information national trends survey and implications for health communication
    • [doi: 10.1080/10810730.2010.522700] [Medline: 21154099]
    • Koch-Weser S, Bradshaw YS, Gualtieri L, Gallagher SS. The Internet as a health information source: findings from the 2007 Health Information National Trends Survey and implications for health communication. J Health Commun 2010;15 Suppl 3:279-293. [doi: 10.1080/10810730.2010.522700] [Medline: 21154099]
    • (2010) J Health Commun , vol.15 , Issue.3 SUPPL. , pp. 279-293
    • Koch-Weser, S.1    Bradshaw, Y.S.2    Gualtieri, L.3    Gallagher, S.S.4
  • 54
    • 61449237170 scopus 로고    scopus 로고
    • Gender differences in computer-mediated communication: A systematic literature review of online health-related support groups
    • [doi 101016/jpec200808029] [Medline 19233586] Apr
    • Mo PK, Malik SH, Coulson NS. Gender differences in computer-mediated communication: a systematic literature review of online health-related support groups. Patient Educ Couns 2009 Apr;75(1):16-24. [doi: 10.1016/j.pec.2008.08. 029] [Medline: 19233586]
    • (2009) Patient Educ Couns , vol.75 , Issue.1 , pp. 16-24
    • Mo, P.K.1    Malik, S.H.2    Coulson, N.S.3
  • 55
    • 0000995216 scopus 로고
    • A behavioural approach to information retrieval design
    • Ellis D. A behavioural approach to information retrieval design. J Doc 1989;45:318-338.
    • (1989) J Doc , vol.45 , pp. 318-338
    • Ellis, D.1
  • 56
    • 0032566238 scopus 로고    scopus 로고
    • Evidence based patient information
    • Coulter A. Evidence based patient information. BMJ 1998;317(7153):225- 226.
    • (1998) BMJ , vol.317 , Issue.7153 , pp. 225-226
    • Coulter, A.1
  • 57
    • 84856249046 scopus 로고    scopus 로고
    • Results of an online community needs assessment for psychoeducational interventions among partners of hereditary breast cancer previvors and survivors
    • Tercyak KP, Mays D, DeMarco TA, Sharff M, Friedman S. Results of an online community needs assessment for psychoeducational interventions among partners of hereditary breast cancer previvors and survivors. J Med Internet Res 2012;14(1
    • (2012) J Med Internet Res , vol.14 , pp. 1
    • Tercyak, K.P.1    Mays, D.2    DeMarco, T.A.3    Sharff, M.4    Friedman, S.5
  • 58
    • 2942652785 scopus 로고    scopus 로고
    • Online pediatric information seeking among mothers of young children: Results from a qualitative study using focus groups
    • [FREE Full text] [ doi: 10.2196/jmir.6.1.e7] [Medline: 15111273] Mar
    • Bernhardt JM, Felter EM. Online pediatric information seeking among mothers of young children: results from a qualitative study using focus groups. J Med Internet Res 2004 Mar 1;6(1):e7 [FREE Full text] [doi: 10.2196/jmir.6.1.e7] [Medline: 15111273]
    • (2004) J Med Internet Res , vol.1 , Issue.61
    • Bernhardt, J.M.1    Felter, E.M.2
  • 59
    • 5444240231 scopus 로고    scopus 로고
    • The role of the internet in patient-practitioner relationships: Findings from a qualitative research study
    • [FREE Full text] [ doi: 10.2196/jmir.6.3.e36] [Medline: 15471762] Sep
    • Hart A, Henwood F, Wyatt S. The role of the Internet in patient-practitioner relationships: findings from a qualitative research study. J Med Internet Res 2004 Sep 30;6(3):e36 [FREE Full text] [doi: 10.2196/jmir.6.3.e36] [Medline: 15471762]
    • (2004) J Med Internet Res , vol.30 , Issue.63
    • Hart, A.1    Henwood, F.2    Wyatt, S.3
  • 60
    • 84859927885 scopus 로고    scopus 로고
    • Using natural language processing to enable in-depth analysis of clinical messages posted to an internet mailing list: A feasibility study
    • [FREE Full text] [doi: 10.2196/jmir.1799] [Medline: 22112583]
    • Bekhuis T, Kreinacke M, Spallek H, Song M, O'Donnell JA. Using natural language processing to enable in-depth analysis of clinical messages posted to an Internet mailing list: a feasibility study. J Med Internet Res 2011;13(4):e98 [FREE Full text] [doi: 10.2196/jmir.1799] [Medline: 22112583]
    • (2011) J Med Internet Res , vol.13 , Issue.4
    • Bekhuis, T.1    Kreinacke, M.2    Spallek, H.3    Song, M.4    O'Donnell, J.A.5
  • 61
    • 84859911132 scopus 로고    scopus 로고
    • Benefits of peer support in online japanese breast cancer communities: Differences between lurkers and posters
    • [FREE Full text] [doi: 10.2196/jmir.1696] [Medline: 22204869]
    • Setoyama Y, Yamazaki Y, Namayama K. Benefits of peer support in online Japanese breast cancer communities: differences between lurkers and posters. J Med Internet Res 2011;13(4):e122 [FREE Full text] [doi: 10.2196/jmir.1696] [Medline: 22204869]
    • (2011) J Med Internet Res , vol.13 , Issue.4
    • Setoyama, Y.1    Yamazaki, Y.2    Namayama, K.3
  • 62
    • 77957590967 scopus 로고    scopus 로고
    • Information-seeking at a caregiving website: A qualitative analysis
    • [FREE Full text] [doi: 10.2196/jmir.1548] [Medline: 20675292]
    • Kernisan LP, Sudore RL, Knight SJ. Information-seeking at a caregiving website: a qualitative analysis. J Med Internet Res 2010;12(3):e31 [FREE Full text] [doi: 10.2196/jmir.1548] [Medline: 20675292]
    • (2010) J Med Internet Res , vol.12 , Issue.3
    • Kernisan, L.P.1    Sudore, R.L.2    Knight, S.J.3
  • 64
    • 79953119037 scopus 로고    scopus 로고
    • Use of an online community to develop patient-reported outcome instruments: The multiple sclerosis treatment adherence questionnaire (ms-taq)
    • [FREE Full text] [doi: 10.2196/jmir.1687] [Medline: 21266318]
    • Wicks P, Massagli M, Kulkarni A, Dastani H. Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ). J Med Internet Res 2011;13(1):e12 [FREE Full text] [doi: 10.2196/jmir.1687] [Medline: 21266318]
    • (2011) J Med Internet Res , vol.13 , Issue.1
    • Wicks, P.1    Massagli, M.2    Kulkarni, A.3    Dastani, H.4
  • 65
    • 84862001575 scopus 로고    scopus 로고
    • Crowdsourced health research studies: An important emerging complement to clinical trials in the public health research ecosystem
    • [FREE Full text] [doi: 10.2196/jmir.1988] [Medline: 22397809]
    • Swan M. Crowdsourced health research studies: an important emerging complement to clinical trials in the public health research ecosystem. J Med Internet Res 2012;14(2):e46 [FREE Full text] [doi: 10.2196/jmir.1988] [Medline: 22397809]
    • (2012) J Med Internet Res , vol.14 , Issue.2
    • Swan, M.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.