메뉴 건너뛰기




Volumn 14, Issue 2, 2012, Pages 186-198

Crowdsourced health research studies: An important emerging complement to clinical trials in the public health research ecosystem

Author keywords

Community based participatory research; Consumer participation; Genomics; Health care research; Health services research; Individualized medicine; Medicine; Personalized medicine; Preventive medicine; Public health

Indexed keywords

ARTICLE; CLINICAL TRIAL (TOPIC); ECOSYSTEM; HEALTH SERVICES RESEARCH; PUBLIC HEALTH;

EID: 84862001575     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.1988     Document Type: Article
Times cited : (225)

References (74)
  • 1
    • 84862021280 scopus 로고    scopus 로고
    • Jan, accessed 2011-11-07 WebCite Cache ID 631KPP0Cj
    • National Audubon Society. 2011 Jan. Christmas Bird Count URL: http://birds.audubon.org/christmas-bird-count [accessed 2011-11-07] [WebCite Cache ID 631KPP0Cj]
    • (2011) Christmas Bird Count URL
  • 2
    • 81055128075 scopus 로고    scopus 로고
    • Jan 10. RNA Game Lets Players Help Find a Biological Prize URL:, accessed 2012-01-01 WebCite Cache ID 631KYAzuA
    • Markoff J. New York Times. 2011 Jan 10. RNA Game Lets Players Help Find a Biological Prize URL: http://www.nytimes.com/2011/01/11/science/11rna.html?-r= 4&ref=science [accessed 2012-01-01] [WebCite Cache ID 631KYAzuA]
    • (2011) New York Times
    • Markoff, J.1
  • 3
    • 84862006927 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-27 WebCite Cache ID 64Ein4e2N
    • SciStarter. URL: http://scistarter.com/[accessed 2011-12-27] [WebCite Cache ID 64Ein4e2N]
  • 4
    • 84862016502 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-30 WebCite Cache ID 64K5i4IF9
    • Citizen Science Alliance. URL: http://www.citizensciencealliance.org/ index.html [accessed 2011-12-30] [WebCite Cache ID 64K5i4IF9]
  • 5
    • 84886934775 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-28 WebCite Cache ID 64H4oVXxF
    • Merriam-Webster. Crowdsourcing URL: http://www.merriam-webster.com/ dictionary/crowdsourcing [accessed 2011-12-28] [WebCite Cache ID 64H4oVXxF]
    • Crowdsourcing
  • 8
    • 52449111216 scopus 로고    scopus 로고
    • Health 2.0 and Medicine 2.0: Tensions and controversies in the field
    • FREE Full text doi: 10.2196/jmir.1056 Medline: 18682374
    • Hughes B, Joshi I, Wareham J. Health 2.0 and Medicine 2.0: tensions and controversies in the field. J Med Internet Res 2008;10(3):e23 [FREE Full text] [doi: 10.2196/jmir.1056] [Medline: 18682374]
    • (2008) J Med Internet Res , vol.10 , Issue.3
    • Hughes, B.1    Joshi, I.2    Wareham, J.3
  • 9
    • 84862004716 scopus 로고    scopus 로고
    • Apr. The Wisdom of Patients: Health Care Meets Online Social Media URL:, accessed 2011-12-22 WebCite Cache ID 648CKkc9h
    • Sarasohn-Kahn J. California HealthCare Foundation. 2008 Apr. The Wisdom of Patients: Health Care Meets Online Social Media URL: http://www.chcf.org/~/ media/MEDIA%20LIBRARY%20Files/PDF/H/PDF%20HealthCareSocialMedia.pdf [accessed 2011-12-22] [WebCite Cache ID 648CKkc9h]
    • (2008) California HealthCare Foundation
    • Sarasohn-Kahn, J.1
  • 10
    • 84862025239 scopus 로고    scopus 로고
    • Apr. 02. A Patient-Centric Definition of Participatory Medicine URL:, accessed 2011-12-30 WebCite Cache ID 64K67F6I3
    • Frydman G. e-patients.net. 2010 Apr. 02. A Patient-Centric Definition of Participatory Medicine URL: http://participatorymedicine.org/[accessed 2011-12-30] [WebCite Cache ID 64K67F6I3]
    • (2010) E-patients.net
    • Frydman, G.1
  • 11
    • 84862026835 scopus 로고    scopus 로고
    • May 12. The social life of health information 2011 URL:, accessed 2011-11-07 WebCite Cache ID 631Kqymr6
    • Fox S. Pew Research Center's Internet and American Life Project. 2011 May 12. The social life of health information 2011 URL: http://www.pewinternet.org/ Reports/2011/Social-Life-of-Health-Info.aspx [accessed 2011-11-07] [WebCite Cache ID 631Kqymr6]
    • (2011) Pew Research Center's Internet and American Life Project
    • Fox, S.1
  • 12
    • 61449109247 scopus 로고    scopus 로고
    • Emerging patient-driven health care models: An examination of health social networks, consumer personalized medicine and quantified self-tracking
    • Feb;, doi: 10.3390/ijerph6020492 Medline: 19440396
    • Swan M. Emerging patient-driven health care models: an examination of health social networks, consumer personalized medicine and quantified self-tracking. Int J Environ Res Public Health 2009 Feb; 6(2):492-525. [doi: 10.3390/ijerph6020492] [Medline: 19440396]
    • (2009) Int J Environ Res Public Health , vol.6 , Issue.2 , pp. 492-525
    • Swan, M.1
  • 14
    • 80051627955 scopus 로고    scopus 로고
    • Nov. 08. US healthcare tries to go viral with social networks URL:, accessed 2011-12-22 WebCite Cache ID 648Ds5lNs
    • Bradbury D. The Guardian. 2011 Nov. 08. US healthcare tries to go viral with social networks URL: http://www.guardian. co.uk/healthcare-network/2011/ nov/08/us-healthcare-viral-social-networks [accessed 2011-12-22] [WebCite Cache ID 648Ds5lNs]
    • (2011) The Guardian
    • Bradbury, D.1
  • 16
    • 77955865135 scopus 로고    scopus 로고
    • Googling your genes: Personal genomics and the discourse of citizen bioscience in the network age
    • Mar. 09;, FREE Full text WebCite Cache
    • Levina M. Googling your genes: personal genomics and the discourse of citizen bioscience in the network age. JCOM 2010 Mar. 09; 9 (1) [FREE Full text] [WebCite Cache]
    • (2010) JCOM , vol.9 , Issue.1
    • Levina, M.1
  • 17
    • 0005969828 scopus 로고    scopus 로고
    • Constructing the scientific citizen: Science and democracy in the biosciences
    • DOI 10.1088/0963-6625/10/1/301, PII S0963662501192271
    • Irwin A. Constructing the scientific citizen: science and democracy in the biosciences. Public Understand Sci 2001;10:1-18. [doi: 10.1088/0963-6625/10/ 1/301] (Pubitemid 33625567)
    • (2001) Public Understanding of Science , vol.10 , Issue.1 , pp. 1-18
    • Irwin, A.1
  • 19
    • 84862011349 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-30 WebCite Cache ID 64K6ip8EI
    • PatientsLikeMe. URL: http://www.patientslikeme.com/[accessed 2011-12-30] [WebCite Cache ID 64K6ip8EI]
  • 20
    • 84862016504 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-30 WebCite Cache ID 64K6kzInb
    • 23andMe. URL: https://www.23andme.com/[accessed 2011-12-30] [WebCite Cache ID 64K6kzInb]
  • 21
    • 84862016412 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-30 WebCite Cache ID 64K6mhFO3
    • DIYgenomics. URL: http://www.diygenomics.org/[accessed 2011-12-30] [WebCite Cache ID 64K6mhFO3]
  • 22
    • 84862006929 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-30 WebCite Cache ID 64K6p0LSu
    • Quantified Self. URL: http://quantifiedself.com/[accessed 2011-12-30] [WebCite Cache ID 64K6p0LSu]
  • 23
    • 84862016506 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-30 WebCite Cache ID 64K7FFFxk
    • Medicine 2.0. URL: http://www.medicine20congress.org [accessed 2011-12-30] [WebCite Cache ID 64K7FFFxk]
  • 24
    • 84862011352 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-25 WebCite Cache ID 64D4aC2bq
    • HealthCamp. URL: http://barcamp.org/w/page/403145/HealthCamp [accessed 2011-12-25] [WebCite Cache ID 64D4aC2bq]
  • 25
    • 84862016413 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-30 WebCite Cache ID 64K7Un8U9
    • Genomera. URL: http://genomera.com/[accessed 2011-12-30] [WebCite Cache ID 64K7Un8U9]
  • 26
    • 84862011350 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-30 WebCite Cache ID 64K7WZkxz
    • Althea Health. URL: http://www.altheahealth.com/csl/[accessed 2011-12-30] [WebCite Cache ID 64K7WZkxz]
  • 28
    • 84862011351 scopus 로고    scopus 로고
    • Jamie Heywood: The big idea my brother inspired URL:, accessed 2011-12-21 WebCite Cache ID 646O6iC01
    • Heywood J. TED Partner Series Talks. Jamie Heywood: The big idea my brother inspired URL: http://www.ted.com/talks/jamie-heywood-the-big-idea-my- brother-inspired.html [accessed 2011-12-21] [WebCite Cache ID 646O6iC01]
    • TED Partner Series Talks
    • Heywood, J.1
  • 30
    • 79955778144 scopus 로고    scopus 로고
    • Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm
    • May;, doi: 10.1038/nbt.1837 Medline: 21516084
    • Wicks P, Vaughan TE, Massagli MP, Heywood J. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nat Biotechnol 2011 May; 29(5):411-414. [doi: 10.1038/nbt.1837] [Medline: 21516084]
    • (2011) Nat Biotechnol , vol.29 , Issue.5 , pp. 411-414
    • Wicks, P.1    Vaughan, T.E.2    Massagli, M.P.3    Heywood, J.4
  • 31
    • 71149086365 scopus 로고    scopus 로고
    • How the social web supports patient experimentation with a new therapy: The demand for patient-controlled and patient-centered informatics
    • AMIA Annual Symposium;, November 6, Washington, DC
    • Frost JH, Massagli MP, Wicks P, Heywood J. How the Social Web Supports patient experimentation with a new therapy: The demand for patient-controlled and patient-centered informatics. In: AMIA Annu Symp Proc. 2008 Presented at: AMIA Annual Symposium; November 6, 2008; Washington, DC.
    • (2008) AMIA Annu Symp Proc. 2008
    • Frost, J.H.1    Massagli, M.P.2    Wicks, P.3    Heywood, J.4
  • 32
    • 79960149720 scopus 로고    scopus 로고
    • Concordance between site of onset and limb dominance in amyotrophic lateral sclerosis
    • Aug;, doi: 10.1136/jnnp. 2010.208413 Medline: 20562391
    • Turner MR, Wicks P, Brownstein CA, Massagli MP, Toronjo M, Talbot K, et al. Concordance between site of onset and limb dominance in amyotrophic lateral sclerosis. J Neurol Neurosurg Psychiatry 2011 Aug; 82(8):853-854. [doi: 10.1136/jnnp. 2010.208413] [Medline: 20562391]
    • (2011) J Neurol Neurosurg Psychiatry , vol.82 , Issue.8 , pp. 853-854
    • Turner, M.R.1    Wicks, P.2    Brownstein, C.A.3    Massagli, M.P.4    Toronjo, M.5    Talbot, K.6
  • 33
    • 60049100265 scopus 로고    scopus 로고
    • Measuring function in advanced ALS: Validation of ALSFRS-EX extension items
    • Mar;, doi: 10.1111/j.1468-1331.2008.02434.x Medline: 19364363
    • Wicks P, Massagli MP, Wolf C, Heywood J. Measuring function in advanced ALS: validation of ALSFRS-EX extension items. Eur J Neurol 2009 Mar; 16(3):353-359. [doi: 10.1111/j.1468-1331.2008.02434.x] [Medline: 19364363]
    • (2009) Eur J Neurol , vol.16 , Issue.3 , pp. 353-359
    • Wicks, P.1    Massagli, M.P.2    Wolf, C.3    Heywood, J.4
  • 34
    • 77956393071 scopus 로고    scopus 로고
    • Modifiable barriers to enrollment in American ALS research studies
    • Dec;, doi: 10.3109/17482968.2010.484494 Medline: 20446890
    • Bedlack RS, Wicks P, Heywood J, Kasarskis E. Modifiable barriers to enrollment in American ALS research studies. Amyotroph Lateral Scler 2010 Dec; 11(6):502-507. [doi: 10.3109/17482968.2010.484494] [Medline: 20446890]
    • (2010) Amyotroph Lateral Scler , vol.11 , Issue.6 , pp. 502-507
    • Bedlack, R.S.1    Wicks, P.2    Heywood, J.3    Kasarskis, E.4
  • 35
    • 67651177747 scopus 로고    scopus 로고
    • Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com)
    • May 15;, doi: 10.1002/mds.22528 Medline: 19353722
    • Wicks P, MacPhee GJ. Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com). Mov Disord 2009 May 15;24(7):1085-1088. [doi: 10.1002/mds.22528] [Medline: 19353722]
    • (2009) Mov Disord , vol.24 , Issue.7 , pp. 1085-1088
    • Wicks, P.1    MacPhee, G.J.2
  • 36
    • 79953094346 scopus 로고    scopus 로고
    • Patient-reported outcomes as a source of evidence in off-label prescribing: Analysis of data from PatientsLikeMe
    • FREE Full text doi: 10.2196/jmir.1643 Medline: 21252034
    • Frost J, Okun S, Vaughan T, Heywood J, Wicks P. Patient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMe. J Med Internet Res 2011;13(1):e6 [FREE Full text] [doi: 10.2196/jmir.1643] [Medline: 21252034]
    • (2011) J Med Internet Res , vol.13 , Issue.1
    • Frost, J.1    Okun, S.2    Vaughan, T.3    Heywood, J.4    Wicks, P.5
  • 37
    • 79953119037 scopus 로고    scopus 로고
    • Use of an online community to develop patient-reported outcome instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)
    • FREE Full text doi: 10.2196/jmir.1687 Medline: 21266318
    • Wicks P, Massagli M, Kulkarni A, Dastani H. Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ). J Med Internet Res 2011;13(1):e12 [FREE Full text] [doi: 10.2196/jmir.1687] [Medline: 21266318]
    • (2011) J Med Internet Res , vol.13 , Issue.1
    • Wicks, P.1    Massagli, M.2    Kulkarni, A.3    Dastani, H.4
  • 39
    • 77953856664 scopus 로고    scopus 로고
    • Sharing health data for better outcomes on PatientsLikeMe
    • FREE Full text doi: 10.2196/jmir.1549 Medline: 20542858
    • Wicks P, Massagli M, Frost J, Brownstein C, Okun S, Vaughan T, et al. Sharing health data for better outcomes on PatientsLikeMe. J Med Internet Res 2010;12(2):e19 [FREE Full text] [doi: 10.2196/jmir.1549] [Medline: 20542858]
    • (2010) J Med Internet Res , vol.12 , Issue.2
    • Wicks, P.1    Massagli, M.2    Frost, J.3    Brownstein, C.4    Okun, S.5    Vaughan, T.6
  • 40
    • 77957345183 scopus 로고    scopus 로고
    • The potential research impact of patient reported outcomes on osteogenesis imperfecta
    • Oct;, doi: 10.1007/s11999-010-1373-x Medline: 20458644
    • Brownstein CA, Wicks P. The potential research impact of patient reported outcomes on osteogenesis imperfecta. Clin Orthop Relat Res 2010 Oct; 468(10):2581-2585. [doi: 10.1007/s11999-010-1373-x] [Medline: 20458644]
    • (2010) Clin Orthop Relat Res , vol.468 , Issue.10 , pp. 2581-2585
    • Brownstein, C.A.1    Wicks, P.2
  • 41
    • 84862006937 scopus 로고    scopus 로고
    • 2011, May 15, Users URL:, accessed 2011-11-07 WebCite Cache ID 631Kv3rNx
    • 23andMe. 2011 May 15. 23 and Me Database Surpasses 100, 000 Users URL: https://www.23andme.com/about/press/23andme-database-100000k-users/[accessed 2011-11-07] [WebCite Cache ID 631Kv3rNx]
    • 23 and Me Database Surpasses 100, 000
  • 43
    • 79959841853 scopus 로고    scopus 로고
    • Web-based genome-wide association study identifies two novel loci and a substantial genetic component for Parkinson's disease
    • Jun;, FREE Full text doi: 10.1371/journal.pgen. 1002141 Medline: 21738487
    • Do CB, Tung JY, Dorfman E, Kiefer AK, Drabant EM, Francke U, et al. Web-based genome-wide association study identifies two novel loci and a substantial genetic component for Parkinson's disease. PLoS Genet 2011 Jun; 7(6):e1002141 [FREE Full text] [doi: 10.1371/journal.pgen. 1002141] [Medline: 21738487]
    • (2011) PLoS Genet , vol.7 , Issue.6
    • Do, C.B.1    Tung, J.Y.2    Dorfman, E.3    Kiefer, A.K.4    Drabant, E.M.5    Francke, U.6
  • 44
    • 80051767336 scopus 로고    scopus 로고
    • Efficient replication of over 180 genetic associations with self-reported medical data
    • FREE Full text doi: 10.1371/journal.pone.0023473 Medline: 21858135
    • Tung JY, Do CB, Hinds DA, Kiefer AK, Macpherson JM, Chowdry AB, et al. Efficient replication of over 180 genetic associations with self-reported medical data. PLoS One 2011;6(8):e23473 [FREE Full text] [doi: 10.1371/journal.pone.0023473] [Medline: 21858135]
    • (2011) PLoS One , vol.6 , Issue.8
    • Tung, J.Y.1    Do, C.B.2    Hinds, D.A.3    Kiefer, A.K.4    Macpherson, J.M.5    Chowdry, A.B.6
  • 45
    • 77952527802 scopus 로고    scopus 로고
    • Multigenic condition risk assessment in direct-to-consumer genomic services
    • May;, Medline: 20474084
    • Swan M. Multigenic condition risk assessment in direct-to-consumer genomic services. Genet Med 2010 May; 12(5):279-288. [Medline: 20474084]
    • (2010) Genet Med , vol.12 , Issue.5 , pp. 279-288
    • Swan, M.1
  • 46
    • 77954167176 scopus 로고    scopus 로고
    • Web-based, participant-driven studies yield novel genetic associations for common traits
    • Jun;, FREE Full text doi: 10.1371/journal.pgen. 1000993 Medline: 20585627
    • Eriksson N, Macpherson JM, Tung JY, Hon LS, Naughton B, Saxonov S, et al. Web-based, participant-driven studies yield novel genetic associations for common traits. PLoS Genet 2010 Jun; 6(6):e1000993 [FREE Full text] [doi: 10.1371/journal.pgen. 1000993] [Medline: 20585627]
    • (2010) PLoS Genet , vol.6 , Issue.6
    • Eriksson, N.1    Macpherson, J.M.2    Tung, J.Y.3    Hon, L.S.4    Naughton, B.5    Saxonov, S.6
  • 47
    • 84862016417 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-27 WebCite Cache ID 64EihH0y2
    • 23andWe Research. URL: https://www.23andme.com/research/[accessed 2011-12-27] [WebCite Cache ID 64EihH0y2]
  • 48
    • 84862006936 scopus 로고    scopus 로고
    • May 17. 'The Quantified Self' and Personal Development URL:, accessed 2011-11-07 WebCite Cache ID 631Labbqw
    • Lennon, G. The geoffreylennon blog. 2011 May 17. 'The Quantified Self' and Personal Development URL: http://geoffreylennon. wordpress.com/2011/05/17/ the-quantified-self-and-personal-development/[accessed 2011-11-07] [WebCite Cache ID 631Labbqw]
    • (2011) The Geoffreylennon Blog
    • Lennon, G.1
  • 49
    • 84862016508 scopus 로고    scopus 로고
    • May 28-29, 2011;, Mountain View, CA URL:, WebCite Cache
    • Quantified Self. Quantified Self Posters. 2011 Presented at: Quantified Self Inaugural Conference; May 28-29, 2011; Mountain View, CA URL: http://diygenomics.pbworks.com/w/file/fetch/49108415/QSPosters.pdf [WebCite Cache]
    • (2011) Quantified Self Inaugural Conference
  • 50
    • 84862016415 scopus 로고    scopus 로고
    • March 26-28 URL:, accessed 2012-01-01 WebCite Cache ID 64EjiplJb
    • Association for the Advancement of Artificial Intelligence. 2012. Self-tracking and Collective Intelligence for Personal Wellness meeting March 26-28 URL: http://mednlp. jp/AAAI2012 [accessed 2012-01-01] [WebCite Cache ID 64EjiplJb]
    • (2012) Self-tracking and Collective Intelligence for Personal Wellness Meeting
  • 51
    • 77958461778 scopus 로고    scopus 로고
    • The unreasonable effectiveness of my self-experimentation
    • Dec;, doi: 10.1016/j.mehy.2010.04.030 Medline: 20580874
    • Roberts S. The unreasonable effectiveness of my self-experimentation. Med Hypotheses 2010 Dec; 75(6):482-489. [doi: 10.1016/j.mehy.2010.04.030] [Medline: 20580874]
    • (2010) Med Hypotheses , vol.75 , Issue.6 , pp. 482-489
    • Roberts, S.1
  • 52
    • 20444452160 scopus 로고    scopus 로고
    • Self-experimentation as a source of new ideas: Ten examples about sleep, mood, health, and weight
    • Roberts S. Self-experimentation as a source of new ideas: ten examples about sleep, mood, health, and weight. Behav Brain Sci 2004 Apr; 27(2):227-262. [Medline: 15595236] (Pubitemid 40823080)
    • (2004) Behavioral and Brain Sciences , vol.27 , Issue.2 , pp. 227-262
    • Roberts, S.1
  • 53
    • 84862016418 scopus 로고    scopus 로고
    • Jun. 29, URL:, accessed 2011-11-07 WebCite Cache ID 631LPR9o7
    • Manning L. FlowingData. 2011 Jun. 29. A year of food consumption visualized URL: http://flowingdata.com/2011/06/29/a-year-of-food-consumption- visualized/[accessed 2011-11-07] [WebCite Cache ID 631LPR9o7]
    • (2011) A Year of Food Consumption Visualized
    • Manning, L.1
  • 54
    • 84862016421 scopus 로고    scopus 로고
    • The quantified self blog
    • Jan 30, URL:, accessed 2011-11-07 WebCite Cache ID 631LdPTzG
    • Roberts S. The Quantified Self blog. 2011 Jan 30. Results of The Buttermind Experiment URL: http://quantifiedself.com/2011/01/results-of-the- buttermind-experiment/[accessed 2011-11-07] [WebCite Cache ID 631LdPTzG]
    • (2011) Results of the Buttermind Experiment
    • Roberts, S.1
  • 55
    • 84862011356 scopus 로고    scopus 로고
    • 2011 Blueberry health study report: Memory scores continue to improve. Mechanisms of aging: Emerging concepts
    • 2011 June 3-6, Raleigh, North Carolina URL:, WebCite Cache
    • Martin R, Burns D, Doiron D. 2011 Blueberry Health Study Report: Memory Scores Continue to Improve. Mechanisms of Aging: Emerging Concepts. 2011 Presented at: 40th Annual Meeting of the American Aging Association; June 3-6, 2011; Raleigh, North Carolina URL: http://www.blueberrystudy.com/ AAApresentations/[WebCite Cache]
    • (2011) 40th Annual Meeting of the American Aging Association
    • Martin, R.1    Burns, D.2    Doiron, D.3
  • 56
    • 84858411604 scopus 로고    scopus 로고
    • Citizen science genomics as a model for crowdsourced preventive medicine research
    • Dec. 23;, FREE Full text WebCite Cache
    • Swan M, Hathaway K, Hogg C, McCauley R, Vollrath A. Citizen science genomics as a model for crowdsourced preventive medicine research. J Participat Med 2010 Dec. 23;2:e20 [FREE Full text] [WebCite Cache]
    • (2010) J Participat Med , vol.2
    • Swan, M.1    Hathaway, K.2    Hogg, C.3    McCauley, R.4    Vollrath, A.5
  • 57
    • 84862016511 scopus 로고    scopus 로고
    • Dec. 08, URL:, accessed 2011-11-07 WebCite Cache ID 631LiGuQo
    • Swan M and McCauley R. Genomera. 2010 Dec. 08. Vitamin B-9 and MTHFR variants URL: http://genomera.com/studies/vitamin-b-9-and-mthfr-variants [accessed 2011-11-07] [WebCite Cache ID 631LiGuQo]
    • (2010) Vitamin B-9 and MTHFR Variants
    • Swan, M.1    McCauley, R.2
  • 58
    • 84862006934 scopus 로고    scopus 로고
    • Mar. 13, URL:, accessed 2011-12-30 WebCite Cache ID 64KBuCYVj
    • Swan M and Hogg C. Genomera. 2011 Mar. 13. Processing Reality: Impact of Dopamine Modulation on Memory Filtering URL: http://genomera.com/studies/ processing-reality-impact-of-dopamine-modulation-on-memory-filtering [accessed 2011-12-30] [WebCite Cache ID 64KBuCYVj]
    • (2011) Processing Reality: Impact of Dopamine Modulation on Memory Filtering
    • Swan, M.1    Hogg, C.2
  • 59
    • 84862016510 scopus 로고    scopus 로고
    • URL:, accessed 2011-12-30 WebCite Cache ID 64KC5bjuC
    • Quantified Self self-tracking tools. URL: http://quantifiedself.com/ guide/[accessed 2011-12-30] [WebCite Cache ID 64KC5bjuC]
    • Quantified Self Self-tracking Tools
  • 60
    • 84860423182 scopus 로고    scopus 로고
    • Validation of an automated wireless system to monitor sleep in healthy adults
    • Aug. 22. doi: 10.1111/j.1365-2869.2011.00944.x Medline: 21859438
    • Shambroom JR, Fábregas SE, Johnstone J. Validation of an automated wireless system to monitor sleep in healthy adults. J Sleep Res 2011 Aug. 22. [doi: 10.1111/j.1365-2869.2011.00944.x] [Medline: 21859438]
    • (2011) J Sleep Res
    • Shambroom, J.R.1    Fábregas, S.E.2    Johnstone, J.3
  • 61
    • 80054029501 scopus 로고    scopus 로고
    • The Promise of mHealth: Daily activity monitoring and outcome assessments by wearable sensors
    • Nov;, Medline: 21989632
    • Dobkin BH, Dorsch A. The Promise of mHealth: Daily Activity Monitoring and Outcome Assessments by Wearable Sensors. Neurorehabil Neural Repair 2011 Nov; 25(9):788-798. [Medline: 21989632]
    • (2011) Neurorehabil Neural Repair , vol.25 , Issue.9 , pp. 788-798
    • Dobkin, B.H.1    Dorsch, A.2
  • 62
    • 84861998643 scopus 로고    scopus 로고
    • Can a web-based recruitment tool for genomic analysis be valid?
    • Aug. 18;, FREE Full text doi: 10.1097/01. NT.0000405140.28789.76
    • Talan J. Can a Web-Based Recruitment Tool for Genomic Analysis be Valid? Neurology Today 2011 Aug. 18;11(16):38-40 [FREE Full text] [doi: 10.1097/01. NT.0000405140.28789.76]
    • (2011) Neurology Today , vol.11 , Issue.16 , pp. 38-40
    • Talan, J.1
  • 63
    • 80052833420 scopus 로고    scopus 로고
    • The viability of crowdsourcing for survey research
    • Medline: 21437749
    • Behrend TS, Sharek DJ, Meade AW, Wiebe EN. The viability of crowdsourcing for survey research. Behav Res Methods 2011;43(3):800-813. [Medline: 21437749]
    • (2011) Behav Res Methods , vol.43 , Issue.3 , pp. 800-813
    • Behrend, T.S.1    Sharek, D.J.2    Meade, A.W.3    Wiebe, E.N.4
  • 64
    • 77954157547 scopus 로고    scopus 로고
    • Consent and internet-enabled human genomics
    • Medline: 20585615
    • Gibson G, Copenhaver GP. Consent and internet-enabled human genomics. PLoS Genet 2010;6(6):e1000965. [Medline: 20585615]
    • (2010) PLoS Genet , vol.6 , Issue.6
    • Gibson, G.1    Copenhaver, G.P.2
  • 65
    • 84862016420 scopus 로고    scopus 로고
    • Genetic engineering and biotechnology news
    • Oct. 15, URL:, accessed 2011-11-15 WebCite Cache ID 63DoT9dZx
    • MacDonald C. Genetic Engineering and Biotechnology News. 2009 Oct. 15. DTC Genomics & Leading-Edge Ethics URL: http://www.genengnews.com/gen- articles/dtc-genomics-leading-edge-ethics/3063/[accessed 2011-11-15] [WebCite Cache ID 63DoT9dZx]
    • (2009) DTC Genomics & Leading-edge Ethics
    • MacDonald, C.1
  • 68
    • 84862006941 scopus 로고    scopus 로고
    • The Boston globe
    • Nov. 11, URL:, accessed 2011-12-22 WebCite Cache ID 648LeWUsL
    • Cook G. The Boston Globe. 2011 Nov. 11. How crowdsourcing is changing science URL: http://www.bostonglobe.com/ideas/2011/11/11/how-crowdsourcing- changing-science/dWL4DGWMq2YonHKC8uOXZN/story.html [accessed 2011-12-22] [WebCite Cache ID 648LeWUsL]
    • (2011) How Crowdsourcing Is Changing Science
    • Cook, G.1
  • 69
    • 84862011354 scopus 로고    scopus 로고
    • Science-based medicine
    • Apr. 14, URL:, accessed 2011-12-30 WebCite Cache ID 64K2Qjqco
    • Gavura S. Science-based Medicine. 2011 Apr. 14. What does a new drug cost? URL: http://www.sciencebasedmedicine.org/index.php/what-does-a-new-drug- cost/[accessed 2011-12-30] [WebCite Cache ID 64K2Qjqco]
    • (2011) What Does A New Drug cost?
    • Gavura, S.1
  • 70
    • 80053254127 scopus 로고    scopus 로고
    • Smart phone, smart science: How the use of smartphones can revolutionize research in cognitive science
    • Medline: 21980370
    • Dufau S, Duñabeitia JA, Moret-Tatay C. Smart phone, smart science: how the use of smartphones can revolutionize research in cognitive science. PLoS One 2011;6(9):e24974. [Medline: 21980370]
    • (2011) PLoS One , vol.6 , Issue.9
    • Dufau, S.1    Duñabeitia, J.A.2    Moret-Tatay, C.3
  • 71
    • 79960076301 scopus 로고    scopus 로고
    • Lee Hood
    • Mar;, Medline: 21390010
    • Hood L. Lee Hood. Nat Biotechnol 2011 Mar; 29(3):191. [Medline: 21390010]
    • (2011) Nat Biotechnol , vol.29 , Issue.3 , pp. 191
    • Hood, L.1
  • 72
    • 70849126253 scopus 로고    scopus 로고
    • The unreasonable effectiveness of data
    • FREE Full text doi: 10.1109/MIS.2009.36
    • Halevy A, Norvig P, Pereira F. The Unreasonable Effectiveness of Data. IEEE Intelligence Systems 2009;24:8-12 [FREE Full text] [doi: 10.1109/MIS.2009.36]
    • (2009) IEEE Intelligence Systems , vol.24 , pp. 8-12
    • Halevy, A.1    Norvig, P.2    Pereira, F.3
  • 73
    • 84862016422 scopus 로고    scopus 로고
    • The Technium blog
    • Jun. 28, URL:, accessed 2011-12-28 WebCite Cache ID 64H4qd03L
    • Kelly K. The Technium blog. 2008 Jun. 28. The Google Way of Science URL: http://www.kk.org/thetechnium/archives/2008/06/the-google-way.php [accessed 2011-12-28] [WebCite Cache ID 64H4qd03L]
    • (2008) The Google Way of Science
    • Kelly, K.1
  • 74
    • 44649119874 scopus 로고    scopus 로고
    • Social uses of personal health information within PatientsLikeMe, an online patient community: What can happen when patients have access to one another's data
    • FREE Full text doi: 10.2196/jmir.1053 Medline: 18504244
    • Frost JH, Massagli MP. Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's data. J Med Internet Res 2008;10(3):e15 [FREE Full text] [doi: 10.2196/jmir.1053] [Medline: 18504244]
    • (2008) J Med Internet Res , vol.10 , Issue.3
    • Frost, J.H.1    Massagli, M.P.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.