Internet use and eHealth Literacy of low-income parents whose children have special health care needs

Journal of Medical Internet Research

Volumn 13, Issue 3, 2011, Pages

  Knapp, Caprice ^a   Madden, Vanessa ^a   Wang, Hua ^a   Sloyer, Phyllis ^b   Shenkman, Elizabeth ^a  

^a UNIVERSITY OF FLORIDA   (United States)

^b FLORIDA DEPARTMENT OF HEALTH   (United States)

Author keywords

Children; Internet; Medicaid

Indexed keywords

ADULT; AGE DISTRIBUTION; ARTICLE; CHILD; CHILD HEALTH CARE; CHRONIC DISEASE; CROSS-SECTIONAL STUDY; ETHNIC GROUP; FEMALE; HANDICAPPED CHILD; HEALTH EDUCATION; HEALTH SERVICE; HUMAN; HUMAN COMPUTER INTERACTION; MALE; METHODOLOGY; ORGANIZATION AND MANAGEMENT; POVERTY; SOCIOECONOMICS; STATISTICS; UNITED STATES;

ADULT; AGE DISTRIBUTION; CHILD; CHILD HEALTH SERVICES; CHRONIC DISEASE; COMPUTER LITERACY; CROSS-SECTIONAL STUDIES; DISABLED CHILDREN; ETHNIC GROUPS; FEMALE; FLORIDA; HEALTH EDUCATION; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; MALE; POVERTY; SOCIOECONOMIC FACTORS; YOUNG ADULT;

EID: 80053504954     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.1697     Document Type: Article

References (31)

1. Raine L, Fox S, Horrigan JB, Lenhart A, Spooner T. Tracking online life: How women use the Internet to cultivate relationships with family and friends. Washington, DC: The Pew Center Internet & American Life Project; 2000 May 10. URL: http://www.pewinternet.org/-/media//Files/Reports/2000/Report1.pdf.pdf [accessed 2010-11-24] [WebCite Cache ID 5uU3ikMQA]
2. Irving L, Levy K. Falling Through the Net: Defining the Digital Divide. Washington, DC: National Telecommunications and Information Administration, US Department of Commerce; 1999 Jul 08. URL: http://www.ntia.doc.gov/ntiahome/ fttn99/contents.html [accessed 2010-11-24] [WebCite Cache ID 5uTzUk84i]
3. Wangberg S, Andreassen H, Kummervold P, Wynn R, Sørensen T. Use of the internet for health purposes: trends in Norway 2000-2010. Scand J Caring Sci 2009 Dec;23(4):691-696. [doi: 10.1111/j.1471-6712.2008.00662.x] [Medline: 19473317]
4. Renahy E, Parizot I, Chauvin P. [Internet and health: lessons learned from the French national survey on households living conditions in 2005]. Rev Epidemiol Sante Publique 2008 Apr;56(2):117-125. [doi: 10.1016/j.respe.2008.01. 009] [Medline: 18472374]
5. Smith A. Home broadband 2010. Washington, DC: Pew Internet & American Life Project; 2010 Aug 11. URL: http://www.pewinternet.org/-/media//Files/ Reports/2010/Home%20broadband%202010.pdf [accessed 2010-11-24] [WebCite Cache ID 5uU3uk8T0]
6. Lorence D, Park H. Group disparities and health information: a study of online access for the underserved. Health Informatics J 2008 Mar;14(1):29-38. [doi: 10.1177/1460458207086332] [Medline: 18258673] (Pubitemid 351234430)
7. Lorence D, Park H. Study of education disparities and health information seeking behavior. Cyberpsychol Behav 2007 Feb;10(1):149-151. [doi: 10.1089/cpb.2006.9977] [Medline: 17305464] (Pubitemid 46385795)
8. Fox S, Jones S. The social life of health information. Washington, DC: Pew Internet & American Life Project; 2009 Jun. URL: http://www.pewinternet. org/-/media//Files/Reports/2009/PIP-Health-2009.pdf [accessed 2010-11-24] [WebCite Cache ID 5uU3xLI3e]
9. McInnes DK, Gifford AL, Kazis LE, Wagner TH. Disparities in health-related internet use by US veterans: results from a national survey. Inform Prim Care 2010;18(1):59-68. [Medline: 20429979]
10. Lea J, Lockwood G, Ringash J. Survey of computer use for health topics by patients with head and neck cancer. Head Neck 2005 Jan;27(1):8-14. [doi: 10.1002/hed.20114] [Medline: 15551302] (Pubitemid 40024083)
11. Walsh MC, Trentham-Dietz A, Schroepfer TA, Reding DJ, Campbell B, Foote ML, et al. Cancer information sources used by patients to inform and influence treatment decisions. J Health Commun 2010 Jun;15(4):445-463. [doi: 10.1080/10810731003753109] [Medline: 20574881]
12. Norman CD, Skinner HA. eHEALS: The eHealth Literacy Scale. J Med Internet Res 2006;8(4):e27 [FREE Full text] [doi: 10.2196/jmir.8.4.e27] [Medline: 17213046] (Pubitemid 47450198)
13. Mackert M, Kahlor L, Tyler D, Gustafson J. Designing e-health interventions for low-health-literate culturally diverse parents: addressing the obesity epidemic. Telemed J E Health 2009 Sep;15(7):672-677. [doi: 10.1089/tmj.2009.0012] [Medline: 19694596]
14. Kind T, Huang ZJ, Farr D, Pomerantz KL. Internet and computer access and use for health information in an underserved community. Ambul Pediatr 2005;5(2):117-121. [doi: 10.1367/A04-107R.1] [Medline: 15780014] (Pubitemid 40467875)
15. Roche MI, Skinner D. How parents search, interpret, and evaluate genetic information obtained from the internet. J Genet Couns 2009 Apr;18(2):119-129. [doi: 10.1007/s10897-008-9198-4] [Medline: 18937062]
16. Knijnenburg SL, Kremer LC, van den Bos C, Braam KI, Jaspers MW. Health information needs of childhood cancer survivors and their family. Pediatr Blood Cancer 2010 Jan;54(1):123-127. [doi: 10.1002/pbc.22207] [Medline: 19743299]
17. Porter A, Edirippulige S. Parents of deaf children seeking hearing loss-related information on the internet: the Australian experience. J Deaf Stud Deaf Educ 2007;12(4):518-529 [FREE Full text] [doi: 10.1093/deafed/enm009] [Medline: 17456507]
18. Knapp C, Madden V, Marcu M, Wang H, Curtis C, Sloyer P, et al. Information seeking behaviors of parents whose children have life-threatening illnesses. Pediatr Blood Cancer 2011 May;56(5):805-811. [doi: 10.1002/pbc.22674] [Medline: 21370415]
19. Brown CA, Dickson R. Healthcare students' e-literacy skills. J Allied Health 2010;39(3):179-184. [Medline: 21174023]
20. Robinson C, Graham J. Perceived Internet health literacy of HIV-positive people through the provision of a computer and Internet health education intervention. Health Info Libr J 2010 Dec;27(4):295-303. [doi: 10.1111/j.1471-1842.2010.00898.x] [Medline: 21050372]
21. McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, et al. A new definition of children with special health care needs. Pediatrics 1998 Jul;102(1 Pt 1):137-140. [Medline: 9714637] (Pubitemid 28309258)
22. Shiffman RN, Spooner SA, Kwiatkowski K, Brennan PF. Information technology for children's health and health care: report on the Information Technology in Children's Health Care Expert Meeting, September 21-22, 2000. J Am Med Inform Assoc 2001;8(6):546-551 [FREE Full text] [Medline: 11687562] (Pubitemid 33095494)
23. Statistical Analysis Software for Professionals, Release 9 [computer software]. Cary, NC: SAS Institute Inc URL: http://www.stata.com/error/404.html [accessed 2010-11-24] [WebCite Cache ID 5uTzDBNbN]
24. Smith A. Mobile access 2010. Washington, DC: Pew Internet & American Life Project; 2010 Jul 07. URL: http://www.pewinternet.org/-/media//Files/ Reports/2010/PIP-Mobile-Access-2010.pdf [accessed 2010-11-24] [WebCite Cache ID 5uU40MEaO]
25. Salovey P, Williams-Piehota P, Mowad L, Moret ME, Edlund D, Andersen J. Bridging the digital divide by increasing computer and cancer literacy: community technology centers for head-start parents and families. J Health Commun 2009;14(3):228-245. [doi: 10.1080/10810730902805804] [Medline: 19440907]
26. Health Care Financing and Organization. Health Information Technology. Washington, DC: Health Care Financing & Organization; 2009 Apr. URL: http://www.hcfo.org/publications/health-information-technology [accessed 2010-11-24] [WebCite Cache ID 5uTzFRJ8b]
27. Centers for Medicare and Medicaid Services. Medicare and Medicaid Health Information Technology: Title IV of the American Recovery and Reinvestment Act. Washington, DC: US Department of Health & Human Services; 2009. URL: http://www.cms.hhs.gov/apps/media/press/factsheet.asp?Counter= 3466&intNumPerPage=10&checkDate=&checkKey=&srchType= 1&numDays=3500&srchOpt=0&srchData=&keywordType= All&chkNewsType=6&intPage=&showAll=&pYear=& [WebCite Cache ID 5uTzGdfEp]
28. Stepanikova I, Mollborn S, Cook KS, Thom DH, Kramer RM. Patients' race, ethnicity, language, and trust in a physician. J Health Soc Behav 2006 Dec;47(4):390-405. [Medline: 17240927]
29. Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 2005 Jun;115(6):e626-e636 [FREE Full text] [doi: 10.1542/peds.2004- 1689] [Medline: 15930188] (Pubitemid 43852789)
30. Knapp C, Huang IC, Madden V, Vadaparampil S, Quinn G, Shenkman E. An evaluation of two decision-making scales for children with life-limiting illnesses. Palliat Med 2009 Sep;23(6):518-525. [doi: 10.1177/0269216309104892] [Medline: 19346274]
31. Huang IC, Shenkman EA, Leite W, Knapp CA, Thompson LA, Revicki DA. Agreement was not found in adolescents' quality of life rated by parents and adolescents. J Clin Epidemiol 2009 Mar;62(3):337-346. [doi: 10.1016/j.jclinepi. 2008.06.012] [Medline: 18834712]