Online participation: A content analysis of differences in utilization of two online cancer communities by men and women, patients and family members

Health Communication

Volumn 23, Issue 1, 2008, Pages 1-12

  Ginossar, Tamar ^a  

^a UNIVERSITY OF NEW MEXICO   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; E-MAIL; FAMILY; FEMALE; HEALTH BEHAVIOR; HUMAN; INTERNET; LUNG TUMOR; MALE; PATIENT; PATIENT EDUCATION; PSYCHOLOGICAL ASPECT; SELF HELP; SEX DIFFERENCE; SOCIAL SUPPORT; UTILIZATION REVIEW;

ELECTRONIC MAIL; FAMILY; FEMALE; HEALTH BEHAVIOR; HUMANS; INTERNET; LUNG NEOPLASMS; MALE; PATIENT EDUCATION AS TOPIC; PATIENTS; SELF-HELP GROUPS; SEX FACTORS; SOCIAL SUPPORT;

EID: 41549095953     PISSN: 10410236     EISSN: None     Source Type: Journal    
DOI: 10.1080/10410230701697100     Document Type: Article

References (73)

1. Alemi, F., Mosavel, M., Stephens, R. C., Ghadiri, A., Krishnaswamy, J., & Thakkar, H. (1996). Electronic self-help and support groups. Medical Care, 34, 32-43.
2. Association of Cancer Online Resources. Retrieved January 16, 2008, from http://www.acor.org
3. Bloom, M. (1999). The search for community in an individualistic society: 12 step programs in the United States. In L. S. Eastland, S. L. Herndon, & J. R. Barr (Eds.), Communication in recovery. Perspectives on twelvestep groups (pp. 29-49). Cresskill, NJ: Hampton Press.
4. Braithwaite, D. O., Waldron, V. R., & Finn, J. (1999). Communication of social support in computer-mediated groups for people with disabilities. Health Communication, 11, 123-151.
5. Brashers, D. E., Haas, S. M., Klingle, R. S., & Neidig, J. L. (2000). Collective AIDS activism and individual's perceived self-advocacy in physician-patient communication. Human Communication Research, 26, 372-402.
6. Brashers, D. E., Haas, S. M., Neidig, J. L., & Rintamaki, L. S. (2002). Social activism, self-advocacy, and coping with HIV illness. Journal of Social and Personal Relationships, 19, 113-133.
7. Burleson, B. R. (1997). A different voice on different culture: Illusion and reality in the study of sex differences in personal relationships. Personal Relationships, 4, 229-241.
8. Burleson, B. R. (2002). Introduction to the special issue: Psychological mediators of sex difference in emotional support. Communication Reports, 15, 1-4.
9. Carver, C. S. (1997). You want to measure coping but your protocol's too long: Consider the brief COPE. International Journal of Behavioral Medicine, 4(92), 9.
10. Contractor, N., & Bishop, A. P. (2000). Reconfiguring community networks: The case of PrairieKNOW. In T. Ishida and K. Isbister (Eds.), Digital cities: Technologies, Experiences, and Future perspectives (pp. 151-164). Berlin, Germany: Springer-Verlag.
11. Culver, J. C., Gerr, F., & Frumkin, H. (1997). Medical information on the Internet: A study of an electronic bulletin board. Journal of General Internal Medicine, 12, 466-470.
12. Derdiarian, A. K. (1989). Effects of information on recently diagnosed cancer patients' and spouses' satisfaction with care. Cancer Nursing, 12, 285-292.
13. Evans, W. (2001). Mapping mainstream and fringe medicine on the Internet. Science Communication, 22, 292-299.
14. Finn, J. (1999). An exploration of health processes in an online self-help group focusing on issues of disability. Health and Social Work, 24, 220-231.
15. Fernsler, J. I. & Manchester, L. J. (1997). Evaluation of a computer-based cancer support network. Cancer Practice, 5, 46-51.
16. Ginossar, T. (2002). Knowledge is power: Health-information seeking of Internet cancer support groups members. Unpublished doctoral dissertation, University of New Mexico, Albuquerque. DAI-A 63/071.
17. Goldsmith, D. J., & Fulfs, P. A. (1999). "You just don't have the evidence": An analysis of claims and evidence in Deborah Tannen's You just don't understand. In M. E. Roloff (Ed.), Communication Yearbook 22 (pp. 1-49). Thousand Oaks, CA: Sage.
18. Guidry, J. J., Aday, L. A., Zhang, D., & Winn, R. J.(1997). The role of informal and formal social support networks for patients with cancer. Cancer Practice, 5, 241-246.
19. Hirokawa, R. Y. (1983). Group communication and problem-solving effectiveness II: An exploratory investigation of procedural functions. Western Journal of Speech Communication, 47, 59-74.
20. Holsti, O. (1968). Content analysis. In G. Lindzey & E. Aronson (Eds.), The handbook of social psychology, (2nd ed.). Reading, MA: Addison-Wesley.
21. Hull, M. M. (1989). Family needs and supportive nursing behaviors during terminal cancer: A review. Oncology Nursing, 16, 787-792.
22. Johnson, J. D. (1997). Cancer-related information seeking. Cresskill, NJ: Hampton Press.
23. Katz, E., Blumler, J. G., & Gurevitch, M. (1974). Utilization of mass communication by the individual. In J. G. Blumler & Katz (Eds.), The uses of mass communication: Current perspectives on gratifications research (pp. 19-32). Beverly Hills, CA: Sage.
24. Kiefer C. H. (1984). Citizen empowerment: A developmental perspective. Preventive Human Services, 2, 9-36.
25. Klemm, P., Hurst, M., Dearholt, S. L, & Trone, S. R. (1999). Cyber solace: Gender differences on Internet cancer support groups. Computers in Nursing, 17, 65-72.
26. Klemm, P., Reppert, K., & Visich, L. (1998). A nontraditional cancer support group: The Internet. Computers in Nursing, 16, 31-36.
27. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
28. Lemish, D. (1985). Soap opera viewing in college: A naturalistic inquiry. Journal of Broadcasting & Electronic Media, 29, 275-293.
29. Liebes, T., & Katz, E. (1990). The export of meaning: Cross-cultural readings of Dallas. New York: Oxford University Press.
30. McMillan, S. J. (2001), Survival of the fittest online: A longitudinal study of health-related Web sites. Journal of Computer Mediated Communication, 6. Retrieved from http://www.ascusc.org/jcmc/vol6/issue3/ mcmillan.html
31. Napoli, P. M. (2001). Consumer use of medical information from electronic and paper media: A literature review. In: R. E. Rice & J. E. Katz (Eds.), The Internet and health communication: Experiences and expectations (pp. 79-98). Thousand Oaks, CA: Sage
32. Northouse, L. L., & Northouse, P. G. (1997). Health communication: Strategies for health professionals. Stamford, CA: Appleton & Lange.
33. Ong, L. M .L , de Haes, C. J .M., Hoos, A. M., & Lammes, F. B. (1995). Doctor-patient communication: A review of the literature. Social Science and Medicine, 40, 903-918.
34. Palmgreen, P., & Rayburn, J. D. (1985). An expectancy-value approach to media gratifications. In K. E. Rosengren, L. A. Wenner, & P. Palmgreen (Eds.), Media gratifications research: Current perspectives (pp. 61-72). Beverly Hills, CA: Sage.
35. Peterson, J. (1999, November 9). Battle of the sexes: A comparison of men and women with breast cancer in on-line support groups. Paper presented at the National Communication Association Convention, Chicago.
36. Postmes, T., Spears, R., & Lea, M. (2000). The formation of group norms in computer-mediated communication. Health Communication Research, 26, 341-372.
37. Rappaport, J. (1987). Terms of empowerment. Exemplars of prevention: Toward a theory for community psychology. American Journal of Community Psychology, 15, 121-148.
38. Rees, C E., Bath, P. A., & Lloyd-Williams M. (1998). The information concerns of spouses of women with breast cancer: Patients' and spouses' perspectives. Issues and Innovations in Nursing Practice, 28, 1249-1258.
39. Rheingold, H. (1993). The virtual community: Homesteading on the electronic frontier. New York: HarperPerennial. Available from http://www.rheingold.com/vc/book/
40. Riva, G. (2001). The mind over the Web: The quest for the definition of a method for internet research. Cyberpsychology and Behavior, 4, 7-16.
41. Rogers, E. M. (2003). Diffusion of Innovations (5th ed.). New York: Free Press.
42. Rubin, A. M. (1994). Media uses and effects: A uses and gratifications perspective. In J. Bryant & D. Zillman (Eds.), Media effects: Advances in theory and research (pp. 417-436). Hillsdale, NJ: Lawrence Erlbaum Associates, Inc.
43. Ruggiero, T. E. (2000). Uses and gratifications theory in the 21st century. Mass Communication & Society, 3, 3-37.
44. Savicki, V., Kelley, M., & Lingenfelter, D. (1996a). Gender and small task group activity using computer mediated communication. Computers in Human Behavior, 12, 209-224.
45. Savicki, V., Kelley, M., & Lingenfelter, D. (1996b). Gender, group composition and task type in small task groups using computer mediated communication. Computers in Human Behavior, 12, 549-565.
46. Savicki,V., Lingenfelter, D., & Kelley, M. (1996). Gender language style and group composition in Internet discussion groups. Journal of Computer Mediated Communication, 2. Retrieved from http://jcmc.mscc.huji.ac. il/vol2/issue3/savicki.html
47. Sharf, B. F. (1997). Communicating breast cancer on-line: Support and empowerment on the Internet. Women & Health, 26, 65-84.
48. Sharf, B. F. (1999). The present and future of health communication scholarship: Overlooked opportunities. Health Communication 11, 195-199.
49. Shaw, B. R., McTavish, F., Hawkins, R., Gustafson, D. H., & Pingree, S. (2000). Experiences of women with breast cancer; Exchanging social support over the CHESS computer network. Journal of Health Communication, 5, 135-159.
50. Shaw, L. H., & Gant, L. M. (2002). Users divide? Exploring the gender gap in Internet use. CyberPsychology & Behavior, 5, 517-527.
51. Soukup, C. (1999). The gendered interactional patterns of computer-mediated chatrooms: A critical ethnographic study. Information Society, 3. Retrieved from http://web20.epenet.com/citation.asp?tb-1_sug= dbs+0+ln+en%2Dus+sid+095FA33E%
52. Spears, R., & Lea, M. (1994). Panacea or panopticon? The hidden power in computer-mediated communication. Communication Research, 21, 427-459.
53. Sproull, L., & Keisler, S. (1986). Reducing social context cues: Electronic mail in organizational communication. Management Science, 17, 1492-1512
54. Sullivan, C. F. (2003). Gendered cybersupport: A thematic analysis of two online cancer support groups. Journal of Health Psychology, 8, 83-103.
55. Tannen, D. (1990). You just don't understand. New York: Ballantine Books.
56. Tewksbury, D., & Althaus, S.(2000). Differences in knowledge acquisition among readers of the paper and online versions of a national newspaper. Journalism & Mass Communication Quarterly, 77, 457-479.
57. Waitzkin, H. (1985). Information giving in medical care. Journal of Health Social Behavior, 26, 81-101.
58. Walther, J. B. (1992). Interpersonal effects in computer mediated interaction: A relational perspective. Communication Research, 19, 52-90.
59. Walther, J. B. (1996). Computer-mediated communication: Impersonal, interpersonal, and hyperpersonal interaction. Communication Research, 23, 1-43.
60. Walther, J. B., Anderson, J. F., & Park, D. (1994). Interpersonal effects in computer mediated interaction: A meta-analysis of social and antisocial communication. Communication Research, 21, 460-487.
61. Walther, J. B., & Burgoon, J. K. (1992). Relational communication in computer-mediated interaction. Human Communication Research, 19, 50-88.
62. Warisse Turner, J., Grube, J. A., & Meyers, J. (2001). Developing an optimal match within online communities: An exploration of CMC support community and traditional support. Journal of Communication, 51, 231-251.
63. Weber, R. P. (1985). Basic content analysis. Sage University Paper Series on Quantitative Applications in The Social Sciences, Series No. 07-049. Beverly Hills, CA: Sage.
64. Weinberg, N., Schmale, J. D., Uken, J., & Wessel, K. (1996). Online help: Cancer patients participate in a computer mediated support group. Health and Social Work, 21, 24-29.
65. Wellman, B., & Gulia, M. (1999). Virtual communities as communities: Net surfers don't ride alone. In M. Smith & P. Kollock (Eds.), Communities in cyberspace (pp. 163-190). New York: Routledge.
66. White, D. M. (2000). Questioning behavior on a consumer health electronic list. Library Quarterly, 70, 302-334.
67. Wood, J. T. (2002). A critical essay on John Gray's Mars and Venus portrayals of men and women. Southern Communication Journal, 67, 201-210.
68. Wright, K. (1999). Computer-mediated support groups: An examination of relationships among social support, perceived stress, and coping strategies. Communication Quarterly, 47, 402-414.
69. Wright, K. B. (2000). Perceptions of on-line support providers: An examination of perceived homophily, source credibility, communication and social support within on-line support groups. Communication Quarterly, 48, 44-59.
70. Wright, K. (2002). Social support within an online cancer community: An assessment of emotional support, perceptions of advantages and disadvantages, and motives for using the community from a communication perspective. Journal of Applied Communication, 30, 195-209.
71. Zimmerman, M. A., (2000). Empowerment theory. Psychological, organizational and community levels of analysis In: J. Rappaport & E. Seidman (Eds.), Handbook of community psychology (pp. 43-63). New York: Kluwer Academic.
72. Zimmerman, M. A., Israel, B. A., Schulz, A., & Checkoway, B. (1992). Further explorations in empowerment theory: An empirical analysis of psychological empowerment. American Journal of Community Psychology, 20, 707-727.
73. Zimmerman, M. A., & Rappaport, J. (1988). Citizen participation, perceived control and psychological empowerment. American Journal of Community Psychology, 16, 725-759.