Physiotherapy in the Management of Hemophilia

Textbook of Hemophilia: Second Edition

Volumn , Issue , 2010, Pages 200-206

  Beeton, Karen ^a   Padkin, Jane ^b  

^a UNIVERSITY OF HERTFORDSHIRE   (United Kingdom)

^b ROYAL FREE HOSPITAL   (United Kingdom)

Author keywords

Adult patients with hemophilia classification; Adults with hemophilia acute joint or muscle bleed; Children with hemophilia physiotherapy management aims; Factor replacement administration delays pseudotumors; Good communication between team members in providing optimal patient outcome; Patients with inhibitors acquired hemophilia; Patients with musculoskeletal problems referred to physiotherapist; Physiotherapy in hemophilia management

Indexed keywords

EID: 84876033913     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1002/9781444318555.ch31     Document Type: Chapter

References (52)

1. Beeton K, Ryder D. Principles of assessment in haemophilia. In: Buzzard B, Beeton K (eds.) Physiotherapy Management of Haemophilia. Oxford: Blackwell Science, 2000.
2. Higgs J, Jones M. Clinical Reasoning in the Health Professions. Oxford: Butterworth Heinemann, 2000.
3. Bladen M, Alderson L, Khair K, Liesner R, Green J, Main E. Can early subclinical gait changes in children with haemophilia be identified using the GAITRite walkway. Haemophilia 2007; 13: 542-7.
4. Gallach J, Querol F, Gonzalez L, Pardo A, Aznar J. Posturographic analysis of balance control in patients with haemophilic arthropathy. Haemophilia 2008; 14: 329-35.
5. Hilberg T, Herbseb M, Puta C, Gabriel H, Schramm W. Physical training increases isometric muscular strength and proprioceptive performance in haemophilic subjects. Haemophilia 2003; 9: 86-93.
6. Titinsky R, Falk B, Heim M, et al. The effect of resistance training on the frequency of bleeding in haemophilia patients: A pilot study. Haemophilia 2003; 8: 22-7.
7. Harris S, Boggio L. Exercise may decrease further destruction in the adult haemophilic joint. Haemophilia 2006; 12: 237-40.
8. Dalzell R. Non-haemotological pathologies - the importance of musculoskeletal assessment in haemophilia. Haemophilia 2005; 11: 620-2.
9. Buzzard B. Trauma induced pseudotumours in two brothers with moderate factor IX deficiency. In: Proceedings of the 4th Musculoskeletal Congress of the World Federation of Haemophilia. Madrid, 1997.
10. Fischer K, Van der Bom J, Mauser-Bunschoten E, et al. Changes in treatment strategies for severe haemophilia over the last three decades: Effects on clotting factor consumption and arthropathy. Haemophilia 2001; 7: 446-52.
11. Betsy M, Gilbert M. Haemophilic haemarthrosis. In: Rodriguez-Merchan EC (ed.) The Haemophilic Joints: New Perspectives. Oxford: Blackwell Publishing, 2003.
12. Stephensen D. Biomechanics of the lower limb in haemophilia. In: Buzzard B, Beeton K (eds.) Physiotherapy Management of Haemophilia. Oxford: Blackwell Science, 2000.
13. Schoenmakers M, Gulmans V, Helders P, Van Den Berg, H. Motor performance and disability in Dutch children with haemophilia: A comparison with their healthy peers. Haemophilia 2001; 7: 293-8.
14. Beeton K, Neal D, Watson T, Lee CA. Parents of children with haemophilia - a transforming experience. Haemophilia 2007; 13: 570-9.
15. Wallny T, Scholz D, Oldenburg J, et al. Osteoporosis in haemophilia - an underestimated comorbidity? Haemophilia 2007; 13: 79-84.
16. Peacock K. Quality of life before and after surgery: Mobility issues, the fear of surgery, inpatient recovery and outpatient rehabilitation. Haemophilia 2005; 11 ( Suppl. 1 ): 30-1.
17. de Kleijn P, Blamey G, Zourikian N, Dalzell R, Lobet S. Physiotherapy following elective orthopaedic procedures. Haemophilia 2006; 12 ( Suppl. 3 ): 108-12.
18. Hilliard P, Funk S, Zourikian N, et al. Hemophilia joint health score reliability study. Haemophilia 2006, 12: 518-25.
19. Doria AS, Babyn PS, Lundin B, et al. Reliability and construct validity of the compatible MRI scoring system for evaluation of haemophilic knees and ankles of haemophilic children. Expert MRI working group of the international prophylaxis study group. Haemophilia 2006; 12: 503-13.
20. Ljung R. Aspects of haemophilia prophylaxis in Sweden. Haemophilia 2002; 8: 34-7.
21. Jansen NWD, Roosendaal G, Bijlsma JWJ, DeGroot J, Theobald M, Lafeber FPJG. Degenerated and healthy cartilage are equally vulnerable to blood-induced damage. Ann Rheum Disease 2008; 67: 1468-73.
22. Petrini P. Identifying and overcoming barriers to prophylaxis in the management of haemophilia. Haemophilia 2007; 13 ( Suppl. 2 ): 16-22.
23. Biss TT, Chan AK, Blanchette VS, Iwenofu LN, Mclimont M, Carao MD. The use of prophylaxis in 2663 children and adults with haemophilia: Results of the 2006 Canadian national haemophilia prophylaxis survey. Haemophilia 2008; 14: 923-30.
24. Miller R, Beeton K, Goldman E, Ribbans W. Counselling guidelines for managing musculoskeletal problems in haemophilia in the 1990s. Haemophilia 1997; 3: 9-13.
25. Tiktinsky R, Barmatz C. Hydrotherapy and its use in haemophilia. In: Buzzard B, Beeton K (eds.) Physiotherapy Management of Haemophilia. Oxford: Blackwell Science, 2000.
26. McLain LG, Heldrich FT. Hemophilia and sports. Guidelines for participation. Phys Sports Med 1990; 76: 77.
27. Watson T. Current concepts in electrotherapy. Haemophilia 2002; 8: 413-18.
28. Froberg K, Lammert O. Exercise and Fitness - Benefits and Risks in Children and Exercise, VIII. Odense: Odense University Press, 1997.
29. Wittmeier K, Mulder K. Enhancing lifestyle for individuals with haemophilia through physical activity and exercise: the role of physiotherapy. Haemophilia 2007; 13 ( Suppl. 2 ): 31-7.
30. Seuser A, Boehm P, Kurme A, Schumpe G, Kurnik K. Orthopaedic issues in sports for persons with haemophilia. Haemophilia 2007; 13 ( Suppl. 2 ): 47-52.
31. Koch B, Luban NL, Galioto FMJ, Rick ME, Goldstein D, Kelleher JF, Jr. Changes in coagulation parameters with exercise in patients with classic haemophilia. Am J Hematol 1984; 16: 227-33.
32. Buzzard B M. Physiotherapy, rehabilitation and sports in countries with limited replacement coagulation factor supply. Haemophilia 2007; 13 ( Suppl. 2 ): 44-6.
33. Riske B. Sports and exercise in haemophilia: Benefits and challenges. Haemophilia 2007; 13 ( Suppl. 2 ): 29-30.
34. Hofstede FG, Fijnvandraat K, Plug I, Kamphuisen PW, Rosendaal FR, Peters M. Obesity: A new disaster for haemophilic patients? A nationwide survey. Haemophilia 2008; 14: 1035-8.
35. Beeton K, Buzzard B. Physiotherapy in the management of patients with inhibitors. In: Rodriguez-Merchan EC, Lee CA (eds.) Inhibitors in Patients with Haemophilia. Oxford: Blackwell Science, 2002.
36. Roberts H. Inhibitors and their management. In: Haemophilia and Other Inherited Bleeding Disorders. London: W.B. Saunders, 1997.
37. Dimichele D. Inhibitors in haemophilia: A primer. Haemophilia 2000; 6 ( Suppl. 1 ): 38-40.
38. Rodriguez-Merchan EC, Quintana M, Jimenez-Yuste V. Orthopaedic surgery in patients with inhibitors as a last resort. Haemophilia 2008; 1 ( Suppl. 6 ): 56-67.
39. Danusantoso H, Heijnen L. Tai Chi Chuan for persons with haemophilia. Haemophilia 2001; 7: 437-8 (correspondence).
40. Heijnen L. The role of rehabilitation and sports in haemophilia patients with inhibitors. Haemophilia 2008; 14 ( Suppl.6 ): 45-51.
41. Fitzpatrick R, Davey C, Buxton M, Jones, D. Evaluating patient-based outcome measures for use in clinical trials. Health Technol Assess 1998; 2: 1-73.
42. Rodriguez-Merchan EC. Orthopaedic assessment in haemophilia. Haemophilia 2003; 9: 65-74.
43. Pettersson H, Gilbert MS. Classification of the hemophilic arthropathy. In: Pettersson H, Gilbert MS (eds.) Diagnostic Imaging in Hemophilia. New York: Springer-Verlag, 1985: 56-68.
44. Haemophilia Alliance. A National Service Specification for Haemophilia and Related Conditions, 2001. http://www. haemophiliaalliance.org.uk/
45. van Genderen FR, Westers P, Heijnen L, et al. Measuring patients ' perceptions on their functional abilities: Validation of the Haemophilia Activities List. Haemophilia 2006; 12: 36-46.
46. Poonnoose PM, Thomas R, Keshava SN, et al. Psychometric analysis of the Functional Independence Score in Haemophilia (FISH). Haemophilia 2007; 13: 620-6.
47. Beeton K, de Kleijn P, Hilliard P, et al. Recent developments in clinimetric instruments. Haemophilia State of the Art 2006; 12 ( Suppl. 3 ): 102-7.
48. Young N, Bradley C, Blanchette V, et al. Development of a health-related quality of life measure for boys with haemophilia: The Canadian Haemophilia Outcomes - Kids Life Assessment Tool (CHO-KLAT). Haemophilia 2004; 10: 34-43.
49. Rosendaal F, Smit C, Varekamp I, et al. Modern haemophilia treatment: Medical improvements and quality of life. J Intern Med 1990; 228: 633-40.
50. Djulbegovic B, Goldsmith G, Vaughn D, et al. Comparison of the quality of life between HIV-positive haemophilia patients and HIV-negative haemophilia patients. Haemophilia 1996; 2: 166-72.
51. Miners A, Sabin C, Tolley K, Jenkinson C, Kind P, Lee C. Assessing health-related quality-of-life in individuals with haemophilia. Haemophilia 1999; 5: 378-85.
52. Beeton K , Neal D , Lee CA . An exploration of health related quality of life in adults with haemophilia - a qualitative perspective . Haemophilia 2005 ; 11 : 123 - 32 .