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Volumn 13, Issue 5, 2007, Pages 570-579

Parents of children with haemophilia - A transforming experience

Author keywords

Haemophilia; Parents; Qualitative research; Quality of life

Indexed keywords

ARTICLE; ATTITUDE TO ILLNESS; BLEEDING DISORDER; CONTROLLED STUDY; COPING BEHAVIOR; DISEASE SEVERITY; EMPLOYMENT; FAMILY LIFE; FEMALE; HEMOPHILIA; HUMAN; INTERVIEW; MALE; PARENTAL ATTITUDE; PERSONAL EXPERIENCE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SOCIAL INTERACTION; SPORT; TRUST;

EID: 34548321381     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2007.01494.x     Document Type: Article
Times cited : (64)

References (24)
  • 1
    • 0030013165 scopus 로고    scopus 로고
    • Sports and haemophilia
    • Buzzard B. Sports and haemophilia. Clin Orthop Rel Res 1996; 328: 25-9.
    • (1996) Clin Orthop Rel Res , vol.328 , pp. 25-29
    • Buzzard, B.1
  • 2
    • 0035018008 scopus 로고    scopus 로고
    • Motor performance and disability in Dutch children with haemophilia: A comparison with their healthy peers
    • Schoenmakers M, Gulmans V, Helders P, van den Berg H. Motor performance and disability in Dutch children with haemophilia: A comparison with their healthy peers. Haemophilia 2001; 7: 293-8.
    • (2001) Haemophilia , vol.7 , pp. 293-298
    • Schoenmakers, M.1    Gulmans, V.2    Helders, P.3    van den Berg, H.4
  • 3
    • 18344390038 scopus 로고    scopus 로고
    • Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries
    • Bullinger M, von Mackensen S, Fischer K, et al. Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries. Haemophilia 2002; 8: 47-54.
    • (2002) Haemophilia , vol.8 , pp. 47-54
    • Bullinger, M.1    von Mackensen, S.2    Fischer, K.3
  • 4
    • 1042304228 scopus 로고    scopus 로고
    • Development and validation of a measure of disease specific quality of life in young children with haemophilia
    • Manco-Johnson M, Morrissey-Harding G, Edelman-Lewis B, Oster G. Development and validation of a measure of disease specific quality of life in young children with haemophilia. Haemophilia 2004; 10: 34-41.
    • (2004) Haemophilia , vol.10 , pp. 34-41
    • Manco-Johnson, M.1    Morrissey-Harding, G.2    Edelman-Lewis, B.3    Oster, G.4
  • 5
    • 11044222266 scopus 로고    scopus 로고
    • Development of a health-related quality of life measure for boys with haemophilia: The Canadian Haemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT)
    • Young N, Bradley C, Blanchette V, Wakefield C, Barnard D, Wu J, Mccusker P. Development of a health-related quality of life measure for boys with haemophilia: The Canadian Haemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT). Haemophilia 2004; 10: 34-43.
    • (2004) Haemophilia , vol.10 , pp. 34-43
    • Young, N.1    Bradley, C.2    Blanchette, V.3    Wakefield, C.4    Barnard, D.5    Wu, J.6    Mccusker, P.7
  • 6
    • 0023104909 scopus 로고
    • The risk of AIDS: Psychologic impact on the haemophilic population
    • Agle D, Gluck H, Pierce G. The risk of AIDS: Psychologic impact on the haemophilic population. Gen Hosp Psychiatry 1987; 9: 11-7.
    • (1987) Gen Hosp Psychiatry , vol.9 , pp. 11-17
    • Agle, D.1    Gluck, H.2    Pierce, G.3
  • 7
    • 0015380129 scopus 로고
    • The psycho-social impact of hemophilia on the patient and his family
    • Salk L, Hilgartner M, Granich B. The psycho-social impact of hemophilia on the patient and his family. Social Sci Med 1972; 6: 491-505.
    • (1972) Social Sci Med , vol.6 , pp. 491-505
    • Salk, L.1    Hilgartner, M.2    Granich, B.3
  • 10
    • 0344736745 scopus 로고    scopus 로고
    • Quality of life in children and families with bleeding disorders
    • Bullinger M, von Mackensen S, Haemo-QoL Group, AH-Q. Quality of life in children and families with bleeding disorders. J Ped Haematol Oncol 2003; 25: S64-7.
    • (2003) J Ped Haematol Oncol , vol.25
    • Bullinger, M.1    von Mackensen, S.2
  • 11
    • 16344374136 scopus 로고    scopus 로고
    • Oxford: Oxford University Press
    • Rice P, Ezzy D. Focus Groups. Oxford: Oxford University Press, 1999.
    • (1999) Focus Groups
    • Rice, P.1    Ezzy, D.2
  • 12
    • 85011135202 scopus 로고    scopus 로고
    • Qualitative research and computing: Methodological issues and practices in using QSR NVivo and NUD*IST
    • Crowley C, Harre R, Tagg C. Qualitative research and computing: methodological issues and practices in using QSR NVivo and NUD*IST. Int J Social Res Methodol Theory Practice 2002; 5: 193-7.
    • (2002) Int J Social Res Methodol Theory Practice , vol.5 , pp. 193-197
    • Crowley, C.1    Harre, R.2    Tagg, C.3
  • 13
    • 0000906241 scopus 로고    scopus 로고
    • Using computers in qualitative research
    • In: Denzin N, Lincoln Y eds. London: Sage Publications
    • Richards T, Richards L. Using computers in qualitative research. In: Denzin N, Lincoln Y eds. Collecting and Interpreting Qualitative Methods. London: Sage Publications, 1998.
    • (1998) Collecting and Interpreting Qualitative Methods
    • Richards, T.1    Richards, L.2
  • 14
    • 0020321030 scopus 로고
    • Chronic Illness as biographical disruption
    • Bury M. Chronic Illness as biographical disruption. Sociol Health Illness 1982; 4: 67-81.
    • (1982) Sociol Health Illness , vol.4 , pp. 67-81
    • Bury, M.1
  • 15
    • 0242386866 scopus 로고    scopus 로고
    • 'The worst hassle is you can't play rugby' Haemophilia and masculinity in New Zealand
    • Park J. 'The worst hassle is you can't play rugby' Haemophilia and masculinity in New Zealand. Curr Anthropol 2000; 41: 443-52.
    • (2000) Curr Anthropol , vol.41 , pp. 443-452
    • Park, J.1
  • 16
    • 0027550968 scopus 로고
    • The unknown and the unknowable - Managing sustained uncertainty
    • Cohen M. The unknown and the unknowable - managing sustained uncertainty. Western J Nurs Res 1993; 15: 77-96.
    • (1993) Western J Nurs Res , vol.15 , pp. 77-96
    • Cohen, M.1
  • 17
    • 0026229464 scopus 로고
    • A theory of mastery
    • Younger J. A theory of mastery. Adv Nurs Sci 1991; 14: 76-89.
    • (1991) Adv Nurs Sci , vol.14 , pp. 76-89
    • Younger, J.1
  • 19
    • 25844485451 scopus 로고    scopus 로고
    • Whose tragedy? Towards a personal non tragedy view of disability
    • In: Swain J, French S, Barnes C, Thomas C eds. 3rd edn. London: Sage Publications
    • French S, Swain J. Whose tragedy? Towards a personal non tragedy view of disability. In: Swain J, French S, Barnes C, Thomas C eds. Disabling Barriers-Enabling Environments, 3rd edn. London: Sage Publications, 2004.
    • (2004) Disabling Barriers-Enabling Environments
    • French, S.1    Swain, J.2
  • 20
    • 0025116648 scopus 로고
    • Childhood otitis media: The family's endless quest for relief
    • Wuest J, Stern P. Childhood otitis media: The family's endless quest for relief. Issues Comprehen Pediatr Nurs 1990; 13: 25-39.
    • (1990) Issues Comprehen Pediatr Nurs , vol.13 , pp. 25-39
    • Wuest, J.1    Stern, P.2
  • 21
    • 0029319443 scopus 로고
    • The process of empowerment in mothers of chronically ill children
    • Gibson C. The process of empowerment in mothers of chronically ill children. J Adv Nurs 1995; 21: 1201-10.
    • (1995) J Adv Nurs , vol.21 , pp. 1201-1210
    • Gibson, C.1
  • 22
    • 0032109682 scopus 로고    scopus 로고
    • Parents' reports of 'Tricks of the Trade' for managing childhood chronic illness
    • Gallo A, Knafl K. Parents' reports of 'Tricks of the Trade' for managing childhood chronic illness. J Soc Ped Nurs 1998; 3: 93-100.
    • (1998) J Soc Ped Nurs , vol.3 , pp. 93-100
    • Gallo, A.1    Knafl, K.2
  • 23
    • 0019638370 scopus 로고
    • The social construction of illness experience: Families with a chronically-ill child
    • Anderson J. (1981) The social construction of illness experience: families with a chronically-ill child. J Adv Nurs 1987; 6: 427-34.
    • (1987) J Adv Nurs , vol.6 , pp. 427-434
    • Anderson, J.1


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