-
1
-
-
0030013165
-
Sports and haemophilia
-
Buzzard B. Sports and haemophilia. Clin Orthop Rel Res 1996; 328: 25-9.
-
(1996)
Clin Orthop Rel Res
, vol.328
, pp. 25-29
-
-
Buzzard, B.1
-
2
-
-
0035018008
-
Motor performance and disability in Dutch children with haemophilia: A comparison with their healthy peers
-
Schoenmakers M, Gulmans V, Helders P, van den Berg H. Motor performance and disability in Dutch children with haemophilia: A comparison with their healthy peers. Haemophilia 2001; 7: 293-8.
-
(2001)
Haemophilia
, vol.7
, pp. 293-298
-
-
Schoenmakers, M.1
Gulmans, V.2
Helders, P.3
van den Berg, H.4
-
3
-
-
18344390038
-
Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries
-
Bullinger M, von Mackensen S, Fischer K, et al. Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries. Haemophilia 2002; 8: 47-54.
-
(2002)
Haemophilia
, vol.8
, pp. 47-54
-
-
Bullinger, M.1
von Mackensen, S.2
Fischer, K.3
-
4
-
-
1042304228
-
Development and validation of a measure of disease specific quality of life in young children with haemophilia
-
Manco-Johnson M, Morrissey-Harding G, Edelman-Lewis B, Oster G. Development and validation of a measure of disease specific quality of life in young children with haemophilia. Haemophilia 2004; 10: 34-41.
-
(2004)
Haemophilia
, vol.10
, pp. 34-41
-
-
Manco-Johnson, M.1
Morrissey-Harding, G.2
Edelman-Lewis, B.3
Oster, G.4
-
5
-
-
11044222266
-
Development of a health-related quality of life measure for boys with haemophilia: The Canadian Haemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT)
-
Young N, Bradley C, Blanchette V, Wakefield C, Barnard D, Wu J, Mccusker P. Development of a health-related quality of life measure for boys with haemophilia: The Canadian Haemophilia Outcomes-Kids Life Assessment Tool (CHO-KLAT). Haemophilia 2004; 10: 34-43.
-
(2004)
Haemophilia
, vol.10
, pp. 34-43
-
-
Young, N.1
Bradley, C.2
Blanchette, V.3
Wakefield, C.4
Barnard, D.5
Wu, J.6
Mccusker, P.7
-
6
-
-
0023104909
-
The risk of AIDS: Psychologic impact on the haemophilic population
-
Agle D, Gluck H, Pierce G. The risk of AIDS: Psychologic impact on the haemophilic population. Gen Hosp Psychiatry 1987; 9: 11-7.
-
(1987)
Gen Hosp Psychiatry
, vol.9
, pp. 11-17
-
-
Agle, D.1
Gluck, H.2
Pierce, G.3
-
7
-
-
0015380129
-
The psycho-social impact of hemophilia on the patient and his family
-
Salk L, Hilgartner M, Granich B. The psycho-social impact of hemophilia on the patient and his family. Social Sci Med 1972; 6: 491-505.
-
(1972)
Social Sci Med
, vol.6
, pp. 491-505
-
-
Salk, L.1
Hilgartner, M.2
Granich, B.3
-
8
-
-
0034067180
-
Coping styles in families with haemophilia
-
Miller R, Sabin C, Goldman E, Clemente C, Sadowski H, Lee CA. (2000) Coping styles in families with haemophilia. Psychol Health Med 2000; 5: 3-12.
-
(2000)
Psychol Health Med
, vol.5
, pp. 3-12
-
-
Miller, R.1
Sabin, C.2
Goldman, E.3
Clemente, C.4
Sadowski, H.5
Lee, C.A.6
-
9
-
-
0141990540
-
Psychological aspects and coping in haemophilic patients: A case controlled study
-
Canclini M, Saviolo-Negrin N, Zanon E, Bertoletti R, Dgirolami A, Pagnan A. Psychological aspects and coping in haemophilic patients: A case controlled study. Haemophilia 2003; 9: 619-24.
-
(2003)
Haemophilia
, vol.9
, pp. 619-624
-
-
Canclini, M.1
Saviolo-Negrin, N.2
Zanon, E.3
Bertoletti, R.4
Dgirolami, A.5
Pagnan, A.6
-
10
-
-
0344736745
-
Quality of life in children and families with bleeding disorders
-
Bullinger M, von Mackensen S, Haemo-QoL Group, AH-Q. Quality of life in children and families with bleeding disorders. J Ped Haematol Oncol 2003; 25: S64-7.
-
(2003)
J Ped Haematol Oncol
, vol.25
-
-
Bullinger, M.1
von Mackensen, S.2
-
11
-
-
16344374136
-
-
Oxford: Oxford University Press
-
Rice P, Ezzy D. Focus Groups. Oxford: Oxford University Press, 1999.
-
(1999)
Focus Groups
-
-
Rice, P.1
Ezzy, D.2
-
12
-
-
85011135202
-
Qualitative research and computing: Methodological issues and practices in using QSR NVivo and NUD*IST
-
Crowley C, Harre R, Tagg C. Qualitative research and computing: methodological issues and practices in using QSR NVivo and NUD*IST. Int J Social Res Methodol Theory Practice 2002; 5: 193-7.
-
(2002)
Int J Social Res Methodol Theory Practice
, vol.5
, pp. 193-197
-
-
Crowley, C.1
Harre, R.2
Tagg, C.3
-
14
-
-
0020321030
-
Chronic Illness as biographical disruption
-
Bury M. Chronic Illness as biographical disruption. Sociol Health Illness 1982; 4: 67-81.
-
(1982)
Sociol Health Illness
, vol.4
, pp. 67-81
-
-
Bury, M.1
-
15
-
-
0242386866
-
'The worst hassle is you can't play rugby' Haemophilia and masculinity in New Zealand
-
Park J. 'The worst hassle is you can't play rugby' Haemophilia and masculinity in New Zealand. Curr Anthropol 2000; 41: 443-52.
-
(2000)
Curr Anthropol
, vol.41
, pp. 443-452
-
-
Park, J.1
-
16
-
-
0027550968
-
The unknown and the unknowable - Managing sustained uncertainty
-
Cohen M. The unknown and the unknowable - managing sustained uncertainty. Western J Nurs Res 1993; 15: 77-96.
-
(1993)
Western J Nurs Res
, vol.15
, pp. 77-96
-
-
Cohen, M.1
-
17
-
-
0026229464
-
A theory of mastery
-
Younger J. A theory of mastery. Adv Nurs Sci 1991; 14: 76-89.
-
(1991)
Adv Nurs Sci
, vol.14
, pp. 76-89
-
-
Younger, J.1
-
19
-
-
25844485451
-
Whose tragedy? Towards a personal non tragedy view of disability
-
In: Swain J, French S, Barnes C, Thomas C eds. 3rd edn. London: Sage Publications
-
French S, Swain J. Whose tragedy? Towards a personal non tragedy view of disability. In: Swain J, French S, Barnes C, Thomas C eds. Disabling Barriers-Enabling Environments, 3rd edn. London: Sage Publications, 2004.
-
(2004)
Disabling Barriers-Enabling Environments
-
-
French, S.1
Swain, J.2
-
20
-
-
0025116648
-
Childhood otitis media: The family's endless quest for relief
-
Wuest J, Stern P. Childhood otitis media: The family's endless quest for relief. Issues Comprehen Pediatr Nurs 1990; 13: 25-39.
-
(1990)
Issues Comprehen Pediatr Nurs
, vol.13
, pp. 25-39
-
-
Wuest, J.1
Stern, P.2
-
21
-
-
0029319443
-
The process of empowerment in mothers of chronically ill children
-
Gibson C. The process of empowerment in mothers of chronically ill children. J Adv Nurs 1995; 21: 1201-10.
-
(1995)
J Adv Nurs
, vol.21
, pp. 1201-1210
-
-
Gibson, C.1
-
22
-
-
0032109682
-
Parents' reports of 'Tricks of the Trade' for managing childhood chronic illness
-
Gallo A, Knafl K. Parents' reports of 'Tricks of the Trade' for managing childhood chronic illness. J Soc Ped Nurs 1998; 3: 93-100.
-
(1998)
J Soc Ped Nurs
, vol.3
, pp. 93-100
-
-
Gallo, A.1
Knafl, K.2
-
23
-
-
0019638370
-
The social construction of illness experience: Families with a chronically-ill child
-
Anderson J. (1981) The social construction of illness experience: families with a chronically-ill child. J Adv Nurs 1987; 6: 427-34.
-
(1987)
J Adv Nurs
, vol.6
, pp. 427-434
-
-
Anderson, J.1
|