Development and validation of the family decision-making self-efficacy scale

Palliative and Supportive Care

Volumn 7, Issue 3, 2009, Pages 315-321

  Nolan, Marie T ^a,b   Hughes, Mark T ^b,c   Kub, Joan ^a   Terry, Peter B ^b,c   Astrow, Alan ^d   Thompson, Richard E ^e   Clawson, Lora ^c   Texeira, Kenneth ^f   Sulmasy, Daniel P ^f,g  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF NURSING   (United States)

^b JOHNS HOPKINS UNIVERSITY   (United States)

^c JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d MAIMONIDES MEDICAL CENTER   (United States)

^e JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^f ST VINCENT S HOSPITAL   (United States)

^g NEW YORK MEDICAL COLLEGE   (United States)

Author keywords

Decision making; End of life; Family; Scale; Self efficacy

Indexed keywords

ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; AWARENESS; CAREGIVER; DECISION MAKING; FEMALE; HUMAN; MALE; MIDDLE AGED; PANCREAS TUMOR; PATIENT ATTITUDE; PERSONALITY TEST; PILOT STUDY; PSYCHOLOGIC TEST; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; REPRODUCIBILITY; RIGHT TO DIE; SELF CONCEPT; STATISTICS; TERMINAL CARE; VALIDATION STUDY;

ADULT; AGED; AGED, 80 AND OVER; AMYOTROPHIC LATERAL SCLEROSIS; AWARENESS; CAREGIVERS; DECISION MAKING; FEMALE; HUMANS; INTERVIEW, PSYCHOLOGICAL; MALE; MIDDLE AGED; PANCREATIC NEOPLASMS; PATIENT PREFERENCE; PERSONALITY INVENTORY; PILOT PROJECTS; PSYCHOMETRICS; REPRODUCIBILITY OF RESULTS; RIGHT TO DIE; SELF EFFICACY; TERMINAL CARE;

EID: 73449138460     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951509990241     Document Type: Conference Paper

References (12)

1. Bandura, A. (1997). Self-efficacy: The Exercise of Control. New York: W.H. Freeman and Company.
2. Depp, C., Sorocco, K., Kasl-Godley, J., et al. (2005). Caregiver self-efficacy, ethnicity, and kinship differences in dementia caregivers. American Journal of Geriatric Psychiatry, 13, 787-794.
3. Hsieh, H.F. & Shannon, S.E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15, 1277-1288.
4. Mularski, R.A., Dy, S.M., Shurarman, L.R., et al. (2007). A systematic review of measures of end-of-life care and its outcomes. Health Services Research, 42, 1848-1870.
5. Nolan, M.T., Hughes, M., Narendra, D.P., et al. (2005). When patients lack capacity: The roles that patients with terminal diagnoses would choose for their physicians and loved ones in making medical decisions. Journal of Pain and Symptom Management, 30, 342-353.
6. Nolan, M.T., Kub, J., Hughes, M.T., et al. (2008). Family health care decision making and self-efficacy with patients with ALS at the end of life. Palliative and Supportive Care, 6, 273-280.
7. Steffen, A.M., McKibbin, C., Zeiss, A.M., et al. (2002). The revised scale for caregiving self-efficacy: Reliability and validity studies. Journal of Gerontology, 57B, 74-86.
8. Sulmasy, D.P., Hughes, M.T., Thompson, R.E., et al. (2007). How would terminally ill patients have others make decisions for them in the event of decisional incapacity? A longitudinal study. Journal of the American Geriatric Society, 55, 1981-1988.
9. Sulmasy, D.P., Sood, J.R., Texeira, K., et al. (2006). Prospective trial of a new policy eliminating signed consent for Do Not Resuscitate orders. Journal of General Internal Medicine, 21, 1261-1268.
10. Teno, J.M., Lynn, J., Wenger, N., et al. (1997). Advance directives for seriously ill hospitalized patients: Effectiveness with the patient self-determination act and the SUPPORTintervention. Journal of the American Geriatrics Society, 45, 500-507.
11. Tilden, V.P., Tolle, S.W., Nelson, C.A., et al. (2001). Family decision-making to withdraw life-sustaining treatments from hospitalized patients. Nursing Research, 50, 105-115.
12. Vig, E.K., Starks, H., Taylor, J.S., et al. (2007). Surviving surrogate decision-making: What helps and hampers the experience of making medical decisions for others. Journal of General Internal Medicine, 22, 1274-1279.