Predictors of emergent feeding tubes and tracheostomies in amyotrophic lateral sclerosis (ALS)

Amyotrophic Lateral Sclerosis

Volumn 13, Issue 3, 2012, Pages 318-325

  Tsou, Amy Y ^a   Karlawish, Jason ^b   Mccluskey, Leo ^a   Xie, Sharon X ^b   Long, Judith A ^b,c  

^a UNIVERSITY OF PENNSYLVANIA   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

^c Philadelphia VA Center for Health Equity Research and Promotion   (United States)

Author keywords

Communication; Costs; Gastrostomy; Health policy; Tracheostomy

Indexed keywords

ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; FEEDING APPARATUS; FEMALE; GASTROSTOMY; HEALTH CARE COST; HOSPITALIZATION; HUMAN; LENGTH OF STAY; MAJOR CLINICAL STUDY; MALE; MEDICAID; MEDICARE; NEGRO; PNEUMONIA; PRIORITY JOURNAL; RACE DIFFERENCE; RESPIRATORY FAILURE; RETROSPECTIVE STUDY; TRACHEOSTOMY;

AGED; AGED, 80 AND OVER; AMYOTROPHIC LATERAL SCLEROSIS; ENTERAL NUTRITION; FEMALE; GASTROSTOMY; HEALTH POLICY; HOSPITALIZATION; HUMANS; MALE; MEDICARE; MIDDLE AGED; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); PENNSYLVANIA; RETROSPECTIVE STUDIES; TRACHEOSTOMY; UNITED STATES;

EID: 84860381148     PISSN: 17482968     EISSN: 1471180X     Source Type: Journal    
DOI: 10.3109/17482968.2012.662987     Document Type: Article

References (22)

1. Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century. 2001.
2. Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008;300:1665-73.
3. Zhang B, Wright AA, Huskamp HA, Nilsson ME, Maciejewski ML, Earle CC, et al. Health care costs in the last week of life: Associations with end-of-life conversations. Arch Intern Med. 2009;169:480-8.
4. Chio A, Bottacchi E, Buffa C, Mutani R, Mora G. Positive effects of tertiary centers for amyotrophic lateral sclerosis on outcome and use of hospital facilities. J Neurol Neurosurg Psychiatry. 2006;77:948-50. (Pubitemid 44174080)
5. van den Berg JP, Kalmijn S, Lindeman E, Veldink JH, de Visser M, van der Graaff MM, et al. Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology. 2005;65:1264-7. (Pubitemid 41508221)
6. Traynor BJ, Alexander M, Corr B, Frost E, Hardiman O. Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: A population based study, 1996 - 2000. J Neurol Neurosurg Psychiatry. 2003; 74:1258-61.
7. https://secure.ssa.gov/poms.nsf/lnx/0423580001. Accessed April 2, 2011.
8. http://www.census.gov/main/www/cen2000.html. Accessed April 2, 2011.
9. Elixhauser A, Steiner C, Harris DR, Coffey RM. Comorbidity measures for use with administrative data. Med Care. 1998;36:8-27. (Pubitemid 128456396)
10. Wright AA, Keating NL, Balboni TA, Matulonis UA, Block SD, Prigerson HG. Place of death: Correlations with quality of life of patients with cancer and predictors of bereaved caregivers mental health. J Clin Oncol. 2010;28:4457-64.
11. Tang ST, McCorkle R. Determinants of congruence between the preferred and actual place of death for terminally ill cancer patients. J Palliat Care. 2003;19:230-7. (Pubitemid 38121101)
12. Pritchard RS, Fisher ES, Teno JM, Sharp SM, Reding DJ, Knaus WA, et al. Infl uence of patient preferences and local health system characteristics on the place of death. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Risks and Outcomes of Treatment. J Am Geriatr Soc. 1998;46:1242-50.
13. Katzberg HD, Benatar M. Enteral tube feeding for amyotrophic lateral sclerosis/motor neuron disease. Cochrane Database Syst Rev. 2011;1:CD004030.
14. Borum ML, Lynn J, Zhong Z. The effects of patient race on outcomes in seriously ill patients in SUPPORT: An overview of economic impact, medical intervention, and end-of-life decisions. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. J Am Geriatr Soc. 2000;48(Suppl):S194 - 8. (Pubitemid 30266014)
15. Gordon HS, Street RL Jr, Sharf BF, Souchek J. Racial differences in doctors information-giving and patients participation. Cancer. 2006;107:1313-20.
16. Mitsumoto H, Davidson M, Moore D, Gad N, Brandis M, Ringel S, et al. Percutaneous endoscopic gastrostomy (PEG) in patients with ALS and bulbar dysfunction. Amyotroph Lateral Scler Other Motor Neuron Disord. 2003;4: 177-85. (Pubitemid 37184888)
17. Miller RG, Rosenberg JA, Gelinas DF, Mitsumoto H, Newman D, Sufi t R, et al. Practice parameter: The care of the patient with amyotrophic lateral sclerosis (an evidence based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force. Neurology. 1999;52:1311-23. (Pubitemid 29190518)
18. Miller RG, Anderson F, Brooks BR, Mitsumoto H, Bradley WG, Ringel SP. Outcomes research in amyotrophic lateral sclerosis: Lessons learned from the amyotrophic lateral sclerosis clinical assessment, research, and education database. Ann Neurol. 2009;65 (Suppl 1):S24 - 8.
19. Chio A, Ciccone G, Calvo A, Vercellino M, Di Vito N, Ghiglione P, et al. Validity of hospital morbidity records for amyotrophic lateral sclerosis. A population based study. J Clin Epidemiol. 2002;55:723-7.
20. Albert SM, Murphy PL, Del Bene ML, Rowland LP. Prospective study of palliative care in ALS: Choice, timing, outcomes. J Neurol Sci. 1999;169:108-13. (Pubitemid 29502516)
21. Olney RK, Murphy J, Forshew D, Garwood E, Miller BL, Langmore S, et al. The effects of executive and behavioral dysfunction on the course of ALS. Neurology. 2005; 65:1774-7.
22. Ringholz GM, Appel SH, Bradshaw M, Cooke NA, Mosnik DM, Schulz PE. Prevalence and patterns of cognitive impairment in sporadic ALS. Neurology. 2005;65:586-90. (Pubitemid 41170719)