End-of-life care in the treatment of advanced heart failure in the elderly

Cardiology in Review

Volumn 21, Issue 1, 2013, Pages 9-15

  Mcclung, John Arthur ^a  

^a WESTCHESTER MEDICAL CENTER   (United States)

Author keywords

device therapy; ethical issues; heart failure; palliative care; terminal care

Indexed keywords

DIPEPTIDYL CARBOXYPEPTIDASE INHIBITOR; LORAZEPAM; MIDAZOLAM; NONSTEROID ANTIINFLAMMATORY AGENT; OPIATE; PROPOFOL;

ATTITUDE TO DEATH; DEFIBRILLATOR; DELIRIUM; DEVICE THERAPY; DISEASE COURSE; DRUG INHIBITION; DYING; DYSPNEA; GERIATRIC CARE; GERIATRIC DISORDER; GERIATRIC PATIENT; HEALTH CARE QUALITY; HEART FAILURE; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL ETHICS; MYOCLONUS SEIZURE; PALLIATIVE SEDATION; PALLIATIVE THERAPY; RESUSCITATION; REVIEW; SEDATION; TERMINAL CARE; THORAX PAIN;

ADVANCE DIRECTIVES; AGED, 80 AND OVER; CARDIAC PACING, ARTIFICIAL; CARDIOPULMONARY RESUSCITATION; COMMUNICATION; CONSCIOUS SEDATION; HEART FAILURE; HUMANS; PALLIATIVE CARE; PATIENT EDUCATION AS TOPIC; PHYSICIAN-PATIENT RELATIONS; PROGNOSIS; TERMINAL CARE;

EID: 84871750150     PISSN: 10615377     EISSN: 15384683     Source Type: Journal    
DOI: 10.1097/CRD.0b013e31826d23ea     Document Type: Review

References (84)

1. AGS Ethics Committee. American Geriatrics Society Position Statement: The care of dying patients. J Am Geriatr Soc 1995; 43:577-578.
2. Goodlin SJ. End-of-life care in heart failure. Curr Cardiol Rep. 2009;11:184-191.
3. Howlett J, Morin L, Fortin M, et al. End-of-life planning in heart failure: it should be the end of the beginning. Can J Cardiol. 2010;26:135-141.
4. Lewis EF. End of life care in advanced heart failure. Curr Treat Options Cardiovasc Med. 2011;13:79-89.
5. Lamont EB, Christakis NA. Prognostic disclosure to patients with cancer near the end of life. Ann Intern Med. 2001;134:1096-1105.
6. Lamont EB, Christakis NA. Complexities in prognostication in advanced cancer: ;to help them live their lives the way they want to;. JAMA. 2003;290:98-104. (Pubitemid 37432871)
7. Yamokoski LM, Hasselblad V, Moser DK, et al. Prediction of rehospitalization and death in severe heart failure by physicians and nurses of the ESCAPE trial. J Card Fail. 2007;13:8-13. (Pubitemid 46330838)
8. Cowburn PJ, Cleland JG, Coats AJ, et al. Risk stratification in chronic heart failure. Eur Heart J. 1998;19:696-710. (Pubitemid 28227152)
9. Lee WH, Packer M. Prognostic importance of serum sodium concentration and its modification by converting-enzyme inhibition in patients with severe chronic heart failure. Circulation. 1986;73:257-267. (Pubitemid 16127402)
10. Levy WC, Mozaffarian D, Linker DT, et al. The Seattle Heart Failure Model: prediction of survival in heart failure. Circulation. 2006;113:1424-1433. (Pubitemid 43739439)
11. Kalogeropoulos AP, Georgiopoulou VV, Giamouzis G, et al. Utility of the Seattle Heart Failure Model in patients with advanced heart failure. J Am Coll Cardiol. 2009;53:334-342.
12. Gorodeski EZ, Chu EC, Chow CH, et al. Application of the Seattle Heart Failure Model in ambulatory patients presented to an advanced heart failure therapeutics committee. Circ Heart Fail. 2010;3:706-714.
13. Cohn JN, Johnson G, Ziesche S, et al. A comparison of enalapril with hydralazine-isosorbide dinitrate in the treatment of chronic congestive heart failure. N Engl J Med. 1991;325:303-310.
14. Maisel A. B-type natriuretic peptide levels: diagnostic and prognostic in congestive heart failure: what's next? Circulation. 2002;105:2328-2331. (Pubitemid 34556380)
15. Berger R, Huelsman M, Strecker K, et al. B-type natriuretic peptide predicts sudden death in patients with chronic heart failure. Circulation. 2002;105:2392-2397. (Pubitemid 34556391)
16. Watanabe J, Shinozaki T, Shiba N, et al. Accumulation of risk markers predicts the incidence of sudden death in patients with chronic heart failure. Eur J Heart Fail. 2006;8:237-242. (Pubitemid 43674489)
17. Bardy GH, Lee KL, Mark DB, et al.; Sudden Cardiac Death in Heart Failure Trial (SCD-HeFT) Investigators. Amiodarone or an implantable cardioverter-defibrillator for congestive heart failure. N Engl J Med. 2005;352:225-237. (Pubitemid 40110811)
18. Daubert JP, Zareba W, Hall WJ, et al.; MADIT II Study Investigators. Predictive value of ventricular arrhythmia inducibility for subsequent ventricular tachycardia or ventricular fibrillation in Multicenter Automatic Defibrillator Implantation Trial (MADIT) II patients. J Am Coll Cardiol. 2006;47:98-107. (Pubitemid 43005171)
19. Weeks JC, Cook EF, O'Day SJ, et al. Relationship between cancer patients' predictions of prognosis and their treatment preferences. JAMA. 1998;279:1709-1714. (Pubitemid 28247301)
20. Murray SA, Boyd K, Kendall M, et al. Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community. BMJ. 2002;325:929.
21. Faber-Langendoen K. A multi-institutional study of care given to patients dying in hospitals. Ethical and practice implications. Arch Intern Med. 1996;156:2130-2136. (Pubitemid 26346972)
22. Allen LA, Gheorghiade M, Reid KJ, et al. Identifying patients hospitalized with heart failure at risk for unfavorable future quality of life. Circ Cardiovasc Qual Outcomes. 2011;4:389-398.
23. Goldstein NE, Lynn J. Trajectory of end-stage heart failure: the influence of technology and implications for policy change. Perspect Biol Med. 2006;49:10-18. (Pubitemid 43227809)
24. McCarthy M, Lay M, Addington-Hall J. Dying from heart disease. J R Coll Physicians Lond. 1996;30:325-328. (Pubitemid 126499823)
25. Zier LS, Sottile PD, Hong SY, et al. Surrogate decision makers' interpretation of prognostic information: a mixed-methods study. Ann Intern Med. 2012;156:360-366.
26. Covinsky KE, Goldman L, Cook EF, et al. The impact of serious illness on patients' families. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. JAMA. 1994;272:1839-1844.
27. The SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA 1995; 274:1591-1598.
28. Lynn J, Teno JM, Phillips RS, et al. Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Ann Intern Med. 1997;126:97-106.
29. Emanuel EJ, Fairclough DL, Wolfe P, et al. Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful? Arch Intern Med. 2004;164:1999-2004. (Pubitemid 39390556)
30. Stewart S, McMurray JJ. Palliative care for heart failure. BMJ. 2002;325:915-916. (Pubitemid 35265203)
31. Murray SA, Boyd K, Sheikh A. Palliative care in chronic illness. BMJ. 2005;330:611-612. (Pubitemid 40444753)
32. Hauptman PJ, Havranek EP. Integrating palliative care into heart failure care. Arch Intern Med. 2005;165:374-378. (Pubitemid 40280191)
33. Kittleson M, Hurwitz S, Shah MR, et al. Development of circulatory-renal limitations to angiotensin-converting enzyme inhibitors identifies patients with severe heart failure and early mortality. J Am Coll Cardiol. 2003;41:2029-2035. (Pubitemid 36677127)
34. Mishkin JD, Saxonhouse SJ, Woo GW, et al. Appropriate evaluation and treatment of heart failure patients after implantable cardioverter-defibrillator discharge: time to go beyond the initial shock. J Am Coll Cardiol. 2009;54:1993-2000.
35. Williams SG, Wright DJ, Marshall P, et al. Safety and potential benefits of low dose diamorphine during exercise in patients with chronic heart failure. Heart. 2003;89:1085-1086. (Pubitemid 37046855)
36. Levenson JW, McCarthy EP, Lynn J, et al. The last six months of life for patients with congestive heart failure. J Am Geriatr Soc. 2000;48(5 Suppl):S101-S109. (Pubitemid 30266002)
37. Bleumink GS, Feenstra J, Sturkenboom MC, et al. Nonsteroidal anti-inflammatory drugs and heart failure. Drugs. 2003;63:525-534. (Pubitemid 36384619)
38. Hauptman PJ, Mikolajczak P, George A, et al. Chronic inotropic therapy in end-stage heart failure. Am Heart J. 2006;152:1096.e1-1096.e8.
39. Bradley TD, Logan AG, Kimoff RJ, et al.; CANPAP Investigators. Continuous positive airway pressure for central sleep apnea and heart failure. N Engl J Med. 2005;353:2025-2033. (Pubitemid 41609095)
40. VanVeldhuisen DJ, Dickstein K, Cohen-Solal A, et al. Randomized, double-blind, placebo-controlled study to evaluate the effect of two dosing regimens of darbepoetin alfa on hemoglobin response and symptoms in patients with heart failure and anemia. J Am Coll Cardiol 2006; 47 (Suppl A):61A.
41. Pfeffer MA, Burdmann EA, Chen CY, et al.; TREAT Investigators. A trial of darbepoetin alfa in type 2 diabetes and chronic kidney disease. N Engl J Med. 2009;361:2019-2032.
42. Ward C. The need for palliative care in the management of heart failure. Heart. 2002;87:294-298. (Pubitemid 34177695)
43. Smith C, Da Silva-Gane M, Chandna S, et al. Choosing not to dialyse: evaluation of planned non-dialytic management in a cohort of patients with end-stage renal failure. Nephron Clin Pract. 2003;95:c40-c46.
44. Beck A, Scott J, Williams P, et al. A randomized trial of group outpatient visits for chronically ill older HMO members: the Cooperative Health Care Clinic. J Am Geriatr Soc. 1997;45:543-549.
45. Advance Care Planning (Module 9). St Paul:Heart Failure Society of America; 2005.
46. Managing Feelings About Heart Failure (Module 6). St Paul: Heart Failure Society of America; 2005.
47. Albert NM, Davis M, Young J. Improving the care of patients dying of heart failure. Cleve Clin J Med. 2002;69:321-328. (Pubitemid 34436317)
48. Murray SA, Kendall M, Boyd K, et al. Exploring the spiritual needs of people dying of lung cancer or heart failure: a prospective qualitative interview study of patients and their carers. Palliat Med. 2004;18:39-45 (Pubitemid 38220061)
49. Bailey FA, Burgio KL, Woodby LL, et al. Improving processes of hospital care during the last hours of life. Arch Intern Med. 2005;165:1722-1727. (Pubitemid 41138959)
50. Gibbs JSR, McCoy ASM, Gibbs LME, et al. Living with and dying from heart failure: the role of palliative care. Heart 2002; 88(Suppl II):II36-II39.
51. Gostin LO. Deciding life and death in the courtroom. From Quinlan to Cruzan, Glucksberg, and Vacco-a brief history and analysis of constitutional protection of the 'right to die'. JAMA. 1997;278:1523-1528. (Pubitemid 27488282)
52. Snyder L; American College of Physicians Ethics, Professionalism, and Human Rights Committee. American College of Physicians Ethics Manual: sixth edition. Ann Intern Med. 2012;156(1 Pt 2):73-104.
53. Hunt SA, Abraham WT, Chin MH, et al.; American College of Cardiology; American Heart Association Task Force on Practice Guidelines; American College of Chest Physicians; International Society for Heart and Lung Transplantation; Heart Rhythm Society. ACC/AHA 2005 Guideline Update for the Diagnosis and Management of Chronic Heart Failure in the Adult: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Update the 2001 Guidelines for the Evaluation and Management of Heart Failure): developed in collaboration with the American College of Chest Physicians and the International Society for Heart and Lung Transplantation: endorsed by the Heart Rhythm Society. Circulation. 2005;112:e154-e235.
54. Gillick MR. Advance care planning. N Engl J Med. 2004;350:7-8. (Pubitemid 38032177)
55. Greco PJ, Schulman KA, Lavizzo-Mourey R, et al. The Patient Self-Determination Act and the future of advance directives. Ann Intern Med. 1991;115:639-643.
56. Goldstein NE, Lampert R, Bradley E, et al. Management of implantable cardioverter defibrillators in end-of-life care. Ann Intern Med. 2004;141:835-838. (Pubitemid 39601176)
57. Hauptman PJ, Swindle J, Hussain Z, et al. Physician attitudes toward end-stage heart failure: a national survey. Am J Med. 2008;121:127-135. (Pubitemid 351199454)
58. Berger JT. The ethics of deactivating implanted cardioverter defibrillators. Ann Intern Med. 2005;142:631-634. (Pubitemid 40529960)
59. Braun TC, Hagen NA, Hatfield RE, et al. Cardiac pacemakers and implantable
60. defibrillators in terminal care. J Pain Symptom Manage. 1999;18:126-131.
61. Cleland JG, Daubert JC, Erdmann E, et al.; Cardiac Resynchronization- Heart Failure (CARE-HF) Study Investigators. The effect of cardiac resynchronization on morbidity and mortality in heart failure. N Engl J Med. 2005;352:1539-1549. (Pubitemid 40517094)
62. Carson P, Anand I, O'Connor C, et al. Mode of death in advanced heart failure: the Comparison of Medical, Pacing, and Defibrillation Therapies in Heart Failure (COMPANION) trial. J Am Coll Cardiol. 2005;46:2329-2334. (Pubitemid 41785506)
63. Bax JJ, Abraham T, Barold SS, et al. Cardiac resynchronization therapy: Part 2-issues during and after device implantation and unresolved questions. J Am Coll Cardiol. 2005;46:2168-2182. (Pubitemid 41785482)
64. Mueller PS, Hook CC, Hayes DL. Ethical analysis of withdrawal of pacemaker or implantable cardioverter-defibrillator support at the end of life. Mayo Clin Proc. 2003;78:959-963. (Pubitemid 36936127)
65. Vitale CA, Chandekar R, Rodgers PE, et al. A call for guidance in the use of left ventricular assist devices in older adults. J Am Geriatr Soc. 2012;60:145-150.
66. Slaughter MS, Rogers JG, Milano CA, et al.; HeartMate II Investigators. Advanced heart failure treated with continuous-flow left ventricular assist device. N Engl J Med. 2009;361:2241-2251.
67. Stevenson LW. Rites and responsibility for resuscitation in heart failure: tread gently on the thin places. Circulation. 1998;98:619-622. (Pubitemid 28387485)
68. Krumholz HM, Phillips RS, Hamel MB, et al. Resuscitation preferences among patients with severe congestive heart failure: results from the SUPPORT project. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Circulation. 1998;98:648-655. (Pubitemid 28387491)
69. Tsai E. Should family members be present during cardiopulmonary resuscitation? N Engl J Med. 2002;346:1019-1021. (Pubitemid 34983254)
70. 2005 American Heart Association guidelines for cardiopulmonary resuscitation and emergency cardiovascular care - Part 2: Ethical issues. Circulation 2005; 112(Suppl IV):IV6-IV11.
71. Casarett DJ, Inouye SK; American College of Physicians-American Society of Internal Medicine End-of-Life Care Consensus Panel. Diagnosis and management of delirium near the end of life. Ann Intern Med. 2001;135:32-40.
72. Lo B, Rubenfeld G. Palliative sedation in dying patients: ;we turn to it when everything else hasn't worked;. JAMA. 2005;294:1810-1816. (Pubitemid 41434627)
73. Quill TE, Dresser R, Brock DW. The rule of double effect-a critique of its role in end-of-life decision making. N Engl J Med. 1997;337:1768-1771. (Pubitemid 27527778)
74. Wilson WC, Smedira NG, Fink C, et al. Ordering and administration of sedatives and analgesics during the withholding and withdrawal of life support from critically ill patients. JAMA. 1992;267:949-953.
75. Sulmasy DP, Pellegrino ED. The rule of double effect: clearing up the double talk. Arch Intern Med. 1999;159:545-550. (Pubitemid 29133878)
76. Sulmasy DP. Commentary: double effect-intention is the solution, not the problem. J Law Med Ethics. 2000;28:26-9, 2.
77. Brody H. Causing, intending, and assisting death. J Clin Ethics. 1993;4:112-117.
78. Jansen LA, Sulmasy DP. Sedation, alimentation, hydration, and equivocation: careful conversation about care at the end of life. Ann Intern Med. 2002;136:845-849. (Pubitemid 34568655)
79. Barnard D. The skull at the banquet. In Jansen L, editor. Death in the clinic. Lanham, Md:Rowman & Littlefield; 2006. p 66-80.
80. Kearney M. Mortally wounded: Stories of soul pain, death, and healing. New York: Scribner; 1996. p. 131.
81. Steinhauser KE, Clipp EC, McNeilly M, et al. In search of a good death: observations of patients, families, and providers. Ann Intern Med. 2000;132:825-832. (Pubitemid 30317799)
82. McCue JD. The naturalness of dying. JAMA 1995; 273:1039-1042.
83. Goodlin SJ, Hauptman PJ, Arnold R, et al. Consensus statement: Palliative and supportive care in advanced heart failure. J Card Fail. 2004;10:200-209. (Pubitemid 38869460)
84. Allen LA, Stevenson LW, Grady KL, et al.; American Heart Association; Council on Quality of Care and Outcomes Research; Council on Cardiovascular Nursing; Council on Clinical Cardiology; Council on Cardiovascular Radiology and Intervention; Council on Cardiovascular Surgery and Anesthesia. Decision making in advanced heart failure: a scientific statement from the American Heart Association. Circulation. 2012;125:1928-1952.