Perceptions by family members of the dying experience of older and seriously ill patients

Annals of Internal Medicine

Volumn 126, Issue 2, 1997, Pages 97-106

  Lynn, Joanne ^a   Teno, Joan M ^a   Phillips, Russell S ^b   Wu, Albert W ^c   Desbiens, Norman ^d   Harrold, Joan ^a   Claessens, Michael T ^e   Wenger, Neu ^f   Kreling, Barbara ^a   Connors Jr , Alfred F ^g  

^a GEORGE WASHINGTON UNIVERSITY MEDICAL CENTER   (United States)

^b BETH ISRAEL DEACONESS MEDICAL CENTER   (United States)

^c JOHNS HOPKINS UNIVERSITY   (United States)

^d MARSHFIELD CLINIC   (United States)

^e VA MEDICAL CENTER   (United States)

^f UNIVERSITY OF CALIFORNIA   (United States)

^g METROHEALTH MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; DYING; FAMILY; FEMALE; GERIATRIC PATIENT; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; PRIORITY JOURNAL; SYMPTOMATOLOGY; TERMINAL CARE;

EID: 0031018538     PISSN: 00034819     EISSN: None     Source Type: Journal    
DOI: 10.7326/0003-4819-126-2-199701150-00001     Document Type: Article

References (37)

1. Brown D. Medical community still divided on Oregon's assisted suicide law. Washington Post. 13 November 1994: A20.
2. Colburn D. Debate on assisted suicide gains steam. Washington Post. 10 May 1994; WH: 8: 1.
3. Carter SL Rush to lethal judgment. New York Times Magazine. 21 July 1996: 28-9.
4. Seale C Cartwright A. The Year Before Death. Brookfield, VT: Avebury; 1994.
5. Brock DB, Foley DJ, Losonccy KG. A survey of the last days of life: overview and initial results. Proceedings of the American Statistical Association, Social Statistics Section. 1987; 306-11.
6. Osier W. Science and Immortality. New York: Riverside Pr; 1908: 18.
7. Cleeland CS, Gonin R, Hatfield AK, Edmonson JH. Blum RH, Stewart JA, et al. Pain and its treatment in outpatients with metastatic cancer. N Engl J Med. 1994; 330: 592-6.
8. Morris JN, Suissa S, Sherwood S, Wright S M, Gré er D. Last days: a study of the quality of life of terminally ill cancer patients. J Chronic Dis. 1986; 39: 47-62.
9. Lynn J, Knaus WA. Background for SUPPORT. J Clin Epidemiol. 1990; 43: 1S-4S.
10. A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT Principal Investigators. JAMA. 1995; 274: 1591-8.
11. Murphy DJ. Knaus WA, Lynn J. Study population in SUPPORT: patients (as defined by disease categories and mortality projections), surrogates, and physicians. J Clin Epidemiol. 1990; 43: 11S-28S.
12. Kreling B, Robinson DK, Bergner M. Data collection strategies in SUPPORT. J Clin Epidemiol. 1990; 43: 5S-9S.
13. Knaus WA, Harrell FE Jr, Lynn J, Goldman L, Phillips RS, Connors AF Jr, et al. The SUPPORT prognostic model. Objective estimates of survival for seriously ill hospitalized adults. Study to understand prognoses and preferences for outcomes and risks of treatments. Ann Intern Med. 1995; 122: 191-203.
14. Katz S, Ford AB. Moskowitz RW. Jackson BA, Jaffe MW. Studies of illness in the aged. The index of.ADL: a standardized measure of biological and psychosocial function. JAMA. 1963: 185: 914-9.
15. Cella DF, Jacobsen PB. Orav EJ, Holland JC, Silberfarb PM, Rafla S. A brief POMS measure of distress for cancer patients. J Chronic Dis. 1987; 40: 939-42.
16. Teasdale G, Jennett B. Assessment of coma and impaired consciousness. A practical scale. Lancet. 1974; 2: 81-4.
17. Layde PM, Broste SK, Desbiens N, Folien M, Lynn J, Reding D. et al. Generalizabiljty of clinical studies conducted at tertiary care medical centers: a population-based analysis. J Clin Epidemiol. 1996: 49: 835-41.
18. Hinohara S. Sir William Osier's philosophy on death. Ann Intern Med. 1993; 118: 638-42.
19. Doyle D. Hanks GW, MacDonald N, eds. Oxford Textbook of Palliative Medicine. New York: Oxford Univ Pr; 1993.
20. Cancer Pain Relief and Palliative Care. Report of a WHO Expert Committee, Technical Report 804. Geneva: World Health Organization; 1990.
21. Rothman SM. Living in the Shadow of Death: Tuberculosis and the Social Experience of Illness in American History. Baltimore: Johns Hopkins Univ Pr; 1995.
22. Saunders C Pain and impending death. In: Wall PD, Melzack R, eds. Textbook of Pain. New York: Churchill Livingstone; 1989: 624-31.
23. Schroeder SA. On Dying in America. Princeton, NJ: The Robert Wood Johnson Foundation; 1995: 7-16.
24. Reuben DB, Mor V. Dyspnea in terminally ill cancer patients. Chest. 1986; 89: 234-6.
25. Cohen MH. Anderson AJ, Krasnow SH. Spagnolo SV, Citron ML, Payne M, et al. Continuous intravenous infusion of morphine for severe dyspnea. South Med J. 1991; 84: 229-34.
26. Bruera E, Schoeller T, MacEachern T. Symptomatic benefit of supplemental oxygen in hypoxemic patients with terminal cancer: the use of the N of 1 randomized controlled trial. J Pain Symptom Manage. 1992; 7: 365-8.
27. Lynn J. Assisted death and physician-assisted suicide [Letter]. N Engl J Med. 1993; 328: 964.
28. Quill TE, Cassel CK, Meier DE. Assisted death and physician-assisted suicide [Letter]. N Engl J Med. 1993: 328: 965-6.
29. Cancer Pain Assessment and Treatment Curriculum Guidelines. The Ad Hoc Committee on Cancer Pain of the American Society of Clinical Oncology. JCIinOncol. 1992; 10: 1976-82.
30. Von Roenn JH. Cleeland CS. Gonin R. Hatfield AK, Pandya KJ. Physician attitudes and practice in cancer pain management. A survey from the Eastern Cooperative Oncology Group. Ann Intern Med. 1993; 119: 121-6.
31. Wallston KA. Burger C, Smith RA, Baugher RJ. Comparing the quality of death for hospice and non-hospice cancer patients. Med Care. 1988; 26: 177-82.
32. Kane RU Wales J, Bernstein L, Leibowitz A, Kaplan S. A randomised controlled trial of hospice care. Lancet. 1984; 1: 890-4.
33. Morris JN, Suissa S, Sherwood S, Wright SM, Gré er D. Last days: a study of the quality of life of terminally ill cancer patients. J Chronic Dis. 1986: 39: 47-62.
34. Miller FG, Fins JJ. A proposal to restructure hospital care for dying patients. N Engl J Med. 1996; 334: 1740-2.
35. Christakis NA, Escarce JJ. Survival of Medicare patients after enrollment in hospice programs. N Engl J Med. 1996; 335: 172-S.
36. Lyrtn J. Caring at the end of our lives [Editorial]. N Engl J Med. 1996; 335: 201-2.
37. The American Board of Internal Medicine. Caring for the Dying: Identification and Promotion of Physician Competency. Philadelphia: American Board of Internal Medicine; 1996.