Surrogate decision makers' interpretation of prognostic information: A mixed-methods study

Annals of Internal Medicine

Volumn 156, Issue 5, 2012, Pages 360-366

  Zier, Lucas S ^a   Sottile, Peter D ^a   Hong, Seo Yeon ^b   Weissfield, Lisa A ^b   White, Douglas B ^c  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b UNIVERSITY OF PITTSBURGH GRADUATE SCHOOL OF PUBLIC HEALTH   (United States)

^c UNIVERSITY OF PITTSBURGH MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CRITICALLY ILL PATIENT; DEATH; FAMILY DECISION MAKING; HUMAN; MEDICAL INFORMATION; PRIORITY JOURNAL; PROGNOSIS; SEMI STRUCTURED INTERVIEW;

EID: 84857759895     PISSN: 00034819     EISSN: 15393704     Source Type: Journal    
DOI: 10.7326/0003-4819-156-5-201203060-00008     Document Type: Article

References (31)

1. Lloyd CB, Nietert PJ, Silvestri GA. Intensive care decision making in the seriously ill and elderly. Crit Care Med. 2004;32:649-54.[PMID: 15090942]
2. Murphy DJ, Burrows D, Santilli S, Kemp AW, Tenner S, Kreling B, et al. The influence of the probability of survival on patients' preferences regarding cardiopulmonary resuscitation. N Engl J Med. 1994;330:545-9. [PMID: 8302322]
3. Zier LS, Burack JH, Micco G, Chipman AK, Frank JA, White DB. Surrogate decision makers' responses to physicians' predictions of medical futility. Chest. 2009;136:110-7. [PMID: 19318665]
4. A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). The SUPPORT Principal Investigators. JAMA. 1995;274: 1591-8. [PMID: 7474243]
5. Azoulay E, Chevret S, Leleu G, Pochard F, Barboteu M, Adrie C, et al. Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med. 2000;28:3044-9. [PMID: 10966293]
6. White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR. The language of prognostication in intensive care units. Med Decis Making. 2010;30:76-83. [PMID: 18753685]
7. Mazur DJ, Hickam DH. Patients' interpretations of probability terms. J Gen Intern Med. 1991;6:237-40.[PMID: 2066829]
8. Nakao MA, Axelrod S. Numbers are better than words. Verbal specifications of frequency have no place in medicine. Am J Med. 1983;74:1061-5. [PMID: 6859055]
9. Ohnishi M, Fukui T, Matsui K, Hira K, Shinozuka M, Ezaki H, et al. Interpretation of and preference for probability expressions among Japanese patients and physicians. Fam Pract. 2002;19:7-11. [PMID: 11818343]
10. Paling J. Strategies to help patients understand risks. BMJ. 2003;327:745-8. [PMID: 14512489]
11. Boyd EA, Lo B, Evans LR, Malvar G, Apatira L, Luce JM, et al. "It's not just what the doctor tells me:" factors that influence surrogate decision-makers' perceptions of prognosis. Crit Care Med. 2010;38:1270-5. [PMID: 20228686]
12. Lee Char SJ, Evans LR, Malvar GL, White DB. A randomized trial of two methods to disclose prognosis to surrogate decision makers in intensive care units. Am J Respir Crit Care Med. 2010;182:905-9. [PMID: 20538959]
13. Zier LS, Burack JH, Micco G, Chipman AK, Frank JA, Luce JM, et al. Doubt and belief in physicians' ability to prognosticate during critical illness: the perspective of surrogate decision makers. Crit Care Med. 2008;36:2341-7. [PMID: 18596630]
14. Sulmasy DP, Astrow AB, He MK, Seils DM, Meropol NJ, Micco E, et al. The culture of faith and hope: patients' justifications for their high estimations of expected therapeutic benefit when enrolling in early phase oncology trials. Cancer. 2010;116:3702-11. [PMID: 20564120]
15. Jansen LA, Appelbaum PS, Klein WM, Weinstein ND, Cook W, Fogel JS, et al. Unrealistic optimism in early-phase oncology trials. IRB. 2011;33:1-8. [PMID: 21314034]
16. DeMaio TJ RJ. Cognitive interviewing techniques: in the lab and in the field. In: Schwarz N, Sudman S, eds. Answering Questions: Methodology for Determining Cognitive and Communicative Processes in Survey Research. San Francsico: Jossey-Bass; 1996:177-96.
17. White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR. Prognostication during physician-family discussions about limiting life support in intensive care units. Crit Care Med. 2007;35:442-8. [PMID: 17205000]
18. White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR. The language of prognostication in intensive care units. Med Decis Making. 2010;30:76-83. [PMID: 18753685]
19. Strauss AL, Corbin J. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Thousand Oaks, CA: Sage; 1998.
20. Glaser BG, Strauss AL. Discovery of Grounded Theory. Chicago: Adline; 1967.
21. Charmaz KC. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. Thousand Oaks, CA: Sage; 2006.
22. Sackett DL, Haynes RB, Guyatt GH, Tugwell P. Clinical Epidemiology: A Basic Science for Clinical Medicine. 2nd ed. Boston: Little, Brown; 1991.
23. Cox CE, Martinu T, Sathy SJ, Clay AS, Chia J, Gray AL, et al. Expectations and outcomes of prolonged mechanical ventilation. Crit Care Med. 2009;37: 2888-94; quiz 2904. [PMID: 19770733]
24. Teno JM, Fisher E, Hamel MB, Wu AW, Murphy DJ, Wenger NS, et al. Decision-making and outcomes of prolonged ICU stays in seriously ill patients. J Am Geriatr Soc. 2000;48:S70-4. [PMID: 10809459]
25. Meadow W, Pohlman A, Frain L, Ren Y, Kress JP, Teuteberg W, et al. Power and limitations of daily prognostications of death in the medical intensive care unit. Crit Care Med. 2011;39:474-9. [PMID: 21150582]
26. Hoorans V. Self-enhancement and superiority biases in social comparison. European Review of Social Psychology. 1993;4:113-139.
27. Blackhall LJ, Murphy ST, Frank G, Michel V, Azen S. Ethnicity and attitudes toward patient autonomy. JAMA. 1995;274:820-5. [PMID: 7650806]
28. Robertson WO. Quantifying the meanings of words. JAMA. 1983;249: 2631-2. [PMID: 6842763]
29. Reyna VF. Theories of medical decision making and health: an evidence-based approach. Med Decis Making. 2008;28:829-33. [PMID: 19020341]
30. Reyna VF. A theory of medical decision making and health: fuzzy trace theory. Med Decis Making. 2008;28:850-65. [PMID: 19015287]
31. Nisbett R, Wilson T. Telling more than we can know: verbal reports on mental process. Psychological Review. 1977;84:231-259.