Parents' and Service Providers' Perceptions of the Family Goal Setting Tool: A Pilot Study

Journal of Applied Research in Intellectual Disabilities

Volumn 25, Issue 4, 2012, Pages 360-371

  Rodger, Sylvia ^a   O'Keefe, Amy ^a   Cook, Madonna ^b   Jones, Judy ^a  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b Disability and Community Care Services   (Australia)

Author keywords

Early intervention; Family centred practice; Goal setting; Qualitative study

Indexed keywords

ADULT; AGED; ARTICLE; AUSTRALIA; BEHAVIOR; CHILD HEALTH CARE; FAMILY HEALTH; FEEDBACK SYSTEM; FEMALE; HEALTH CARE DELIVERY; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; INTELLECTUAL IMPAIRMENT; MIDDLE AGED; MOTIVATION; PARENT; PERCEPTION; PILOT STUDY; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT;

ADULT; AGED; ATTITUDE OF HEALTH PERSONNEL; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; DELIVERY OF HEALTH CARE; FAMILY HEALTH; FEEDBACK; FEMALE; FOCUS GROUPS; GOALS; HUMANS; INTELLECTUAL DISABILITY; MIDDLE AGED; PARENTS; PERCEPTION; PILOT PROJECTS; POWER (PSYCHOLOGY); PROFESSIONAL-FAMILY RELATIONS; QUEENSLAND; YOUNG ADULT;

EID: 84862668788     PISSN: 13602322     EISSN: 14683148     Source Type: Journal    
DOI: 10.1111/j.1468-3148.2011.00674.x     Document Type: Article

References (46)

1. Allen P. & Petr C. (1996) Toward developing standards and measurements for family-centered practice in family support programs. In: Re-defining Family Support: Innovations in Public- Private Partnerships (eds G. Singer, L. Powers & A. Olsen), pp. 57-86. Paul H Brookes Publishing Co, Baltimore.
2. Broggi M. & Sabatelli R. (2010) Parent perceptions of the parent-therapist relationship: effects on outcomes of early intervention. Physical & Occupational Therapy in Paediatrics 30, 234-247.
3. Caelli K., Ray L. & Mill J. (2003) 'Clear as mud': toward greater clarity in generic qualitative research. International Journal of Qualitative Methods 2, 1-24.
4. Case-Smith J. (2001) Occupational Therapy for Children. 4th edn. Mosby Incorporated, Missouri.
5. Dempsey I. & Keen D. (2008) A review of processes and outcomes in family centered services for children with a disability. Topics in Early Childhood Special Education 28, 42-52.
6. Dodd J., Saggers S. & Wildy H. (2009) Constructing the 'ideal' family for family- centred practice: challenges for delivery. Disability & Society 24, 173-186.
7. Dunst C. (2002) Family-centred practices: birth through high school. The Journal of Special Education 36, 141-149.
8. Dyke P., Buttigieg P., Blackmore A. & Ghose A. (2006) Use of the Measure of Process of Care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child: Care, Health & Development 32, 167-176.
9. Edwards M., Millard P., Praskac L. & Wisniewski P. (2003) Occupational therapy and early intervention: a family-centred approach. Occupational Therapy International 10, 239-252.
10. Epley P., Summers J. & Turnbull A. (2010) Characteristics and trends in family- centred conceptualizations. Journal of Family Social Work 13, 269-285.
11. Fitzgerald M., Mullavey-O'Byrne C. & Clemson L. (1997) Cultural issues from practice. Australian Occupational Therapy Journal 44, 1-21.
12. Hanna K. & Rodger S. (2002) Towards family-centred practice in paediatric occupational therapy: a review of the literature on parent-therapist collaboration. Australian Occupational Therapy Journal 49, 14-24.
13. Hsieh H. & Shannon S. (2005) Three approaches to qualitative content analysis. Qualitative Health Research 15, 1277-1288.
14. Jeffries L. (2009) Within a family centred practice, how can family outcomes be identified? Physical and Occupational Therapy in Paediatrics 29, 131-134.
15. Kemp L., Anderson T., Bellingham K., McIntyre L., Clark T. & Harris E. (2004) Success and Celebration: A Strengths-Based Approach in Action. Centre for Health Equity Training Research and Evaluation, University of NSW, Liverpool Hospital, Locked Bag 7103, Liverpool BC, NSW, 1871. Available at: (accessed on 27 December 2011) Poster presented at Early Childhood Intervention Australia Conference, Melbourne 2004.
16. King S., Rosenbaum P. & King G. (1995) The Measure of Processes of Care: A Means to Assess Family-Centred Behaviours of Health Care Providers. McMaster University Neurodevelopment Clinical Research Unit, Hamilton, Canada.
17. King G., Law M., King S. & Rosenbaum P. (1998) Parent's and service providers' perceptions of the family centeredness of children's rehabilitation services. Physical and Occupational Therapy in Paediatrics 18, 21-40.
18. King S., Teplicky R., King G. & Rosenbaum P. (2004) Family-centred service for children with cerebral palsy and their families: a review of the literature. Seminars in Paediatric Neurology 11, 78-86.
19. Kiresuk T. & Sherman R. (1968) Goal attainment scaling: a general method for evaluating comprehensive community mental health programs. Community Mental Health Journal 4, 443-453.
20. Law M., Hanna S., King G., Hurley P., King S., Kertoy M. & Rosenbaum P. (2003) Factors affecting family-centred service delivery for children with disabilities. Child: Care, Health and Development 29, 357-366.
21. Law M., Baptise S., Carswell A., McColl M., Polatajko H. & Pollock N. (2005) The Canadian Occupational Performance Measure. 4th Edn. CAOT Publications ACE, Ottowa.
22. Lawlor M. & Mattingly C. (1998) The complexities embedded in family-centred care. American Journal of Occupational Therapy 52, 259-267.
23. MacKean G., Thurston W. & Scott C. (2005) Bridging the divide between families and health professionals' perspectives on family centred care. Health Expectations 8, 74-85.
24. Mandich A., Polatajko H., Miller L. & Baum C. (2004) Paediatric Activity Card Sort. CAOT Publications ACE, Ottawa.
25. Mays N. & Pope C. (1995) Rigour and qualitative research. British Medical Journal 311, 109-112.
26. Missiuna C., Pollock N. & Law M. (2004) The Perceived Efficacy and Goal Setting System. Psychocorp, San Antonio, TX.
27. Moore T. (2005) Natural Learning Environments for Children with Disabilities. Centre for Community Child Health, Royal Children's Hospital, Melbourne. (papers for Principles of Early Childhood Practice Symposium, 22/7/05 Brisbane).
28. Nijhuis B., Reinders-Messelink H., Hitters W., Groothoff J., Nakken H. & Postema K. (2007) Family-centred care in family-specific teams. Clinical Rehabilitation 21, 660-671.
29. Nijhuis B., Reinders-Messelink H., de Blecourt A., Calame S., Groothoff J., Nakken H. & Postema K. (2008) Goal setting in Dutch rehabilitation. Are the needs and principal problems of children with cerebral palsy integrated into the rehabilitation goals?. Clinical Rehabilitation 22, 348-363.
30. Oien I., Fallang B. & Ostenjso S. (2009) Goal setting in paediatric rehabilitation: perceptions of parent and professional. Child: Care, Health and Development 36, 558-565.
31. O'Neil M., Palisano R. & Westcott S. (2001) Relationship of therapist's attitudes, children's motor ability, and parenting stress to mother's perceptions of therapists' behaviour in early intervention. Physical Therapy 80, 1412-1424.
32. Pollock N., Missiuna C. & Rodger S. (2010) Occupational goal setting with children and families. In: Occupation Centred Practice for Children: A Practical Guide for Occupational Therapy (ed S. Rodger), pp. 114-135. Wiley Blackwell, Oxford.
33. Raghavendra P., Murchland S., Bentley M., Wake-Dyste W. & Lyons T. (2007) Parents' and service providers' perceptions of family-centred practice in a community-based, paediatric disability service in Australia. Child: Care, Health and Development 33, 586-592.
34. Rodger S. & Keen D. (2010) Child and family centred service provision. In: Occupation Centred Practice for Children: A Practical Guide for Occupational Therapy (ed S. Rodger), pp. 114-135. Wiley Blackwell, Oxford.
35. Rosenbaum P., King S., Law M., King G. & Evans L. (1998) Family-centred service: a conceptual framework and research review. Physical and Occupational Therapy in Paediatrics 18, 1-20.
36. Siebes R., Wijnroks L., Ketelarr M., van Schie P., Gorter J. & Vermeer A. (2006) Parent Participation in paediatric rehabilitation treatment centres in the Netherlands: a parent's viewpoint. Child: Care, Health & Development 33, 196-205.
37. Siebes R., Ketelaar M., Gorter J., Wijnroks L., De Blecourt A., Reinders-Messelink H., Van Schie P. & Vermeer A. (2007) Transparency and tuning of rehabilitation care for children with cerebral palsy: a multiple case study in five children with complex needs. Developmental Neurorehabilitation 10, 193-204.
38. Spectronics (2010) Boardmaker Software Family, Version for 2010. Available at: (accessed on 23rd September 2010).
39. Steenbeek D., Ketelaar M., Galama K. & Gorter J. (2007) Goal attainment scaling in paediatric rehabilitation: a critical review of the literature. Developmental Medicine and Child Neurology 49, 550-556.
40. Steenbeek D., Ketelaar M., Lindeman E., Galama K. & Gorter J. (2010) Interrater reliability of goal attainment scaling in rehabilitation of children with cerebral palsy. Archives of Physical Medicine & Rehabilitation 91, 429-435.
41. Tam C., Teachman G. & Wright V. (2008) Paediatric application of individualized client-centred outcome measures: a literature review. British Journal of Occupational Therapy 71, 286-296.
42. Thomas L., MacMillanm J., McColl E., Hale C. & Bond S. (1995) Comparison of focus group and individual interview methodology in examining patient satisfaction with nursing care. Social Sciences in Health 1, 206-219.
43. Thompson K. (1998) Early intervention services in daily family life: mothers' perceptions of 'ideal' versus 'actual' service provision. Occupational Therapy International 5, 206-221.
44. Tomasello N., Manning A. & Dulmus C. (2010) Family-centred intervention for infants and toddlers with disabilities. Journal of Family Social Work 13, 163-172.
45. Turnbull A., Turbiville V. & Turnbull H. (2000) Evolution of family-professional partnerships: collective empowerment as the model for the early twenty-first century. In: Handbook of Early Childhood Intervention (eds J.P. Shonkoff & S. Meisels), pp. 630-650. University Press, Cambridge, UK.
46. Wilkins A., Leonard H., Jacoby P., MacKinnon E., Clohessy P., Forouhgi S. & Slack-Smith L. (2010) Evaluation of the processes of family-centred care for young children with intellectual disability in Western Australia. Child: Care Health and Development 36, 709-718.