Evaluation of the processes of family-centred care for young children with intellectual disability in Western Australia

Child: Care, Health and Development

Volumn 36, Issue 5, 2010, Pages 709-718

  Wilkins, A ^a   Leonard, H ^b   Jacoby, P ^b   MacKinnon, E ^a   Clohessy, P ^a   Forouhgi, S ^a   Slack Smith, L ^a  

^a UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

^b UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

Author keywords

Early intervention; Family centred care; Intellectual disability

Indexed keywords

ARTICLE; AUSTRALIA; CHILD; CHILD HEALTH CARE; EARLY CHILDHOOD INTERVENTION; EVALUATION; FAMILY HEALTH; HEALTH CARE DELIVERY; HUMAN; INFANT; MENTAL DEFICIENCY; METHODOLOGY; MULTIVARIATE ANALYSIS; OCCUPATIONAL THERAPY; PARENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; STANDARD;

CHILD; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; DELIVERY OF HEALTH CARE; EARLY INTERVENTION (EDUCATION); FAMILY HEALTH; HUMANS; INFANT; MENTAL RETARDATION; MULTIVARIATE ANALYSIS; OCCUPATIONAL THERAPY; PARENTS; QUESTIONNAIRES; WESTERN AUSTRALIA;

EID: 77955243941     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2010.01104.x     Document Type: Article

References (48)

1. Appleton P, Boll V, Everett J, Kelly A, Meredith K, Payne T. Beyond child development centres: care coordination for children with disabilities. Child: care, health and development 1997, 23:29-40.
2. Information Paper 2001 Census of Population and Housing Socio-Economic Indexes for Areas (SEIFA) 2003, Australian Bureau of Statistics ABS, Australian Bureau of Statistics, Canberra, Australia, ABS Catalogue No. 2039.0
3. Benedict R E. Disparities in use of and unmet need for therapeutic and supportive services among school-age children with functional limitations: a comparison across settings. Health Services Research 2006, 41:103-124.
4. Bjerre I, Larsson M, Franzon A, Nilsson M, Stromberg G, Westbom L. Measure of processes of care (MPOC) applied to measure parent's perception of the habilitation process in Sweden. Child: care, health and development 2004, 30:123-130.
5. Carrigan N, Rodger S, Copley J. Parent satisfaction with a paediatric occupational therapy service: a pilot investigation. Physical & Occupational Therapy in Pediatrics 2001, 21:51-76.
6. Cumella S, Ransford N, Lyons J, Burnham H. Needs for oral care among people with intellectual disability not in contact with Community Dental Services. Journal of Intellectual Disability Research 2000, 44:45-52.
7. Dekker M C, Koot H M, Ende J, Verhulst F C. Emotional and behavioral problems in children and adolescents with and without intellectual disability. Journal of Child Psychology and Psychiatry, and Allied Disciplines 2002, 43:1087-1098.
8. Review of the Local Area Coordination Program, Western Australia 2003, Disability Services Commission WA, Disability Services Commission, Perth, Australia
9. Donaldson N, McDermott A, Hollands K, Copley J, Davidson B. Clinical reporting by occupational therapists and speech pathologists: therapists' intentions and parental satisfaction. Advances in Speech Language Pathology 2004, 6:23-38.
10. Dyke P, Buttigieg P, Blackmore A, Ghose A. Use of the Measure of Processes of Care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child: care, health and development 2006, 32:167-176.
11. Edwards M A, Millard P, Praskac L E, Wisniewski P A. Occupational therapy and early intervention: a family-centred approach. Occupational Therapy International 2003, 10:239-252.
12. Einfeld S L, Tonge B J. Population prevalence of psychopathology in children and adolescents with intellectual disability: II Epidemiological findings. Journal of Intellectual Disability Research 1996, 40:99-109.
13. Emerson E. Prevalence of psychiatric disorders in children and adolescents with and without intellectual disability. Journal of Intellectual Disability Research 2003, 47:51-58.
14. Greco V, Sloper P. Care co-ordination and key worker schemes for disabled children: results of a UK-wide survey. Child: care, health and development 2004, 30:13-20.
15. Hazell P, Tarren-Sweeny M, Vimpani G, Keatinge D, Callan K. Children with disruptive behaviours II: clinical and community service needs. Journal of Paediatrics and Child Health 2002, 38:32-40.
16. Hessell S. Entering the unknown? Identifying potential expectations of paediatric occupational therapy held by families. New Zealand Journal of Occupational Therapy 2004, 51:5-10.
17. Holt G, Costello H, Bouras N, Diareme S, Hillery J, Moss S, Rodriguez Blazquez C, Salvador L, Tsiantis J, Weber G. BIOMED-MEROPE project: service provision for adults with intellectual disability: a European comparison. Journal of Intellectual Disability Research 2000, 44:685-696.
18. Iacono T, Humphreys J, Davis R, Chandler N. Health care service provision for country people with developmental disability: an Australian perspective. Research in Developmental Disabilities 2004, 25:265-284.
19. King G, Rosenbaum P, King S. Evaluating family-centred service using a measure of parents' perceptions. Child: care, health and development 1997, 23:47-62.
20. King G, Law M, King S, Rosenbaum P. Parents' and service providers' perceptions of the family-centredness of children's rehabilitation services. Physical and Occupational Therapy in Pediatrics 1998, 18:21-40.
21. King S, Rosenbaum P, King G. The Measure of Processes of Care (MPOC): A Means to Assess Family-Centred Behaviours of Health Care Providers 1995, CanChild Centre for Childhood Disability Research, Hamilton, Canada
22. King S, Teplicky R, King G, Rosenbaum P. Family-centred service for children with cerebral palsy and their families: a review of the literature. Seminars in Pediatric Neurology 2004, 11:78-86.
23. Law M, Hanna S, King G, Hurley P, King S, Kertoy M, Rosenbaum P. Factors affecting family-centred service delivery for children with disabilities. Child: care, health and development 2003, 29:357-366.
24. Law M, Majnemer A, McColl M A, Bosch J, Hanna S, Wilkins S, Birch S, Telford J, Stewart D. Home and community occupational therapy for children and youth: a before and after study. Canadian Journal of Occupational Therapy 2005, 72:289-297.
25. Leonard H, Petterson B, Bourke J. Inaugural Report of the IDEA Database: Intellectual Disability in Western Australia 2004, Telethon Institute for Child Health Research, Perth, Australia
26. McConachie H, Logan S. Validation of the measure of processes of care for use when there is no Child Development Centre. Child: care, health and development 2003, 29:35-45.
27. Majnemer A, Shevell M, Rosenbaum P, Abrahamowicz M. Early rehabilitation service utilization patterns in young children with developmental delays. Child: care, health and development 2002, 28:29-37.
28. Minnes P, Steiner K. Parent views on enhancing the quality of health care for their children with fragile X syndrome, autism or Down syndrome. Child: care, health and development 2009, 35:250-256.
29. Nijhuis B J G, Reinders-Messelink H A, de Blecourt A C E, Hitters W M G C, Groothoff J W, Nakken H, Postema K. Family-centred care in family-specific teams. Clinical Rehabilitation 2007, 21:660-671.
30. Raghavendra P, Murchland S, Bentley M, Wake-Dyster W, Lyon T. Parents' and service providers'perceptions of family-centred practice in a community-based, paediatric disability service in Australia. Child: care, health and development 2007, 33:586-592.
31. Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter S D, Russell D, Swinton M, Zhu B, Wood E. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 2005, 115:e626-e636.
32. Reddihough D, Tinworth S, Moore T, Ihsen E. Early intervention: professional views and referral patterns of Australian paediatricians. Journal of Paediatrics and Child Health 1996, 32:246-250.
33. Saggers S, Paskevicius A, Tilley F. Changing Models of Care: Tools Towards Best Practice for Consumers and Professionals in the Paediatric Disability and Health Service Sectors 2002, Edith Cowan University, Perth, Australia
34. Sanders M R, Mazzucchelli T G, Studman L J. Stepping Stones Triple P: the theoretical basis and development of an evidence-based positive parenting program for families with a child who has a disability. Journal of Intellectual and Developmental Disability 2004, 29:265-283.
35. van Schie P, Siebes R, Ketelaar M, Vermeer A. The measure of processes of care (MPOC): validation of the Dutch translation. Child: care, health and development 2004, 30:529-539.
36. van Schrojenstein Lantman-De Valk H M, Metsemakers J F, Haveman M J, Crebolder H F. Health problems in people with intellectual disability in general practice: a comparative study. Family Practice 2000, 17:405-407.
37. Schultz S T, Shenkin J D, Horowitz A M. Parental perceptions of unmet dental need and cost barriers to care for developmentally disabled children. Pediatric Dentistry 1998, 20:321-325.
38. Shannon P. Barriers to family-centred services for infants and toddlers with developmental delays. Social Work 2004, 49:301-309.
39. Slack-Smith L. Dental visits by Australian preschool children. Journal of Paediatrics and Child Health 2003, 39:442-445.
40. SPSS for Windows, Professional Statistics [Computer Program] 1993, SPSS Inc., Version 11, SPSS Inc., Chicago, IL, USA
41. Szymanski L, King B. Summary of the Practice Parameters for the assessment and treatment of children, adolescents, and adults with mental retardation and comorbid mental disorders. American Academy of Child and Adolescent Psychiatry. Journal of the American Academy of Child and Adolescent Psychiatry 1999, 38:1606-1610.
42. Thyen U, Sperner J, Morfeld M, Meyer C, Ravens-Sieberer U. Unmet health care needs and impact on families with children with disabilities in Germany. Ambulatory Pediatrics 2003, 3:74-81.
43. Van Riper M. Maternal perceptions of family-provider relationships and well-being in families of children with Down syndrome. Research in Nursing & Health 1999, 22:357-368.
44. Van Riper M. Family-provider relationships and well-being in families with preterm infants in the NICU. Heart and Lung 2001, 30:74-84.
45. Waldman H B, Perlman S P, Swerdloff M. Dental care for children with mental retardation: thoughts about the Americans with Disabilities Act. Journal of Dentistry for Children 1998, 65:487-491.
46. Weller W E, Minkovitz C S, Anderson G F. Utilization of medical and health-related services among school-age children and adolescents with special health care needs (1994 National Health Interview Survey on Disability [NHIS-D] baseline data). Pediatrics 2003, 112:593-603.
47. Widerstrom A H, Mowder B A, Sandall S R. Infant Development and Risk: An Introduction 1997, 2nd, edn., Paul H. Brookes Publishing, Baltimore, MD, USA
48. Witt W P, Kasper J D, Riley A W. Mental health services use among school-aged children with disabilities: the role of sociodemographics, functional limitations, family burdens, and care coordination. Health Services Research 2003, 38:1441-1446.