-
1
-
-
3042522677
-
Medical researchers' ancillary clinical care responsibilities
-
Belsky, L. & Richardson, H. S. (2004). Medical researchers' ancillary clinical care responsibilities. British Medical Journal, 328(7454), 1494-1496. (Pubitemid 38829917)
-
(2004)
British Medical Journal
, vol.328
, Issue.7454
, pp. 1494-1496
-
-
Belsky, L.1
Richardson, H.S.2
-
2
-
-
77955628265
-
Offering individual genetic research results: Context matters
-
Beskow, L. M. & Burke, W. (2010). Offering individual genetic research results: Context matters. Science Translational Medicine, 2(38), 38cm20.
-
(2010)
Science Translational Medicine
, vol.2
, Issue.38
-
-
Beskow, L.M.1
Burke, W.2
-
3
-
-
77952999564
-
Ethical challenges in genotype-driven research recruitment
-
Beskow, L. M., Linney, K. N., Radtke, R. A., Heinzen, E. L., & Goldstein, D. B. (2010). Ethical challenges in genotype-driven research recruitment. Genome Research, 20(6), 705-709.
-
(2010)
Genome Research
, vol.20
, Issue.6
, pp. 705-709
-
-
Beskow, L.M.1
Linney, K.N.2
Radtke, R.A.3
Heinzen, E.L.4
Goldstein, D.B.5
-
4
-
-
84855524838
-
Research par-ticipants' perspectives on genotype-driven research recruit-ment
-
Beskow, L. M., Namey, E. E., Cadigan, R. J., Brazg, T., Crouch, J., Henderson, G. E. et al. (2011). Research par-ticipants' perspectives on genotype-driven research recruit-ment. Journal of Empirical Research on Human Research Ethics, 6(4), 3-20.
-
(2011)
Journal of Empirical Research on Human Research Ethics
, vol.6
, Issue.4
, pp. 3-20
-
-
Beskow, L.M.1
Namey, E.E.2
Cadigan, R.J.3
Brazg, T.4
Crouch, J.5
Henderson, G.E.6
-
5
-
-
70349556038
-
Prospective biorepository participants' perspectives on access to research results
-
Beskow, L. M. & Smolek, S. J. (2009). Prospective biorepository participants' perspectives on access to research results. Journal of Empirical Research on Human Research Ethics, 4(3), 99-111.
-
(2009)
Journal of Empirical Research on Human Research Ethics
, vol.4
, Issue.3
, pp. 99-111
-
-
Beskow, L.M.1
Smolek, S.J.2
-
6
-
-
33646254125
-
Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group
-
Bookman, E. B. , Langehorne, A. A. , Eckfeldt, J. H. , Glass, K. C. , Jarvik, G. P. , Klag, M., & Luepker, R. V. (2006). Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group. American Journal of Medical Genetics A, 140(10), 1033-1040.
-
(2006)
American Journal of Medical Genetics A
, vol.140
, Issue.10
, pp. 1033-1040
-
-
Bookman, E.B.1
Langehorne, A.A.2
Eckfeldt, J.H.3
Glass, K.C.4
Jarvik, G.P.5
Klag, M.6
Luepker, R.V.7
-
7
-
-
79151476271
-
Disclosure of individual genetic data to research participants: The debate reconsidered
-
Bredenoord, A. L., Kroes, H. Y., Cuppen, E., Parker, M., & van Delden, J. J. (2011). Disclosure of individual genetic data to research participants: The debate reconsidered. Trends in Genetics, 27(2), 41-47.
-
(2011)
Trends in Genetics
, vol.27
, Issue.2
, pp. 41-47
-
-
Bredenoord, A.L.1
Kroes, H.Y.2
Cuppen, E.3
Parker, M.4
Van Delden, J.J.5
-
8
-
-
84855555114
-
The meaning of genetic research results: Reflections from individuals with and without a known genetic disorder
-
Cadigan, R. J., Michie, M., Henderson, G., Davis, A. M., & Beskow, L. M. (2011). The meaning of genetic research results: Reflections from individuals with and without a known genetic disorder. Journal of Empirical Research on Human Research Ethics, 6(4), 30-40.
-
(2011)
Journal of Empirical Research on Human Research Ethics
, vol.6
, Issue.4
, pp. 30-40
-
-
Cadigan, R.J.1
Michie, M.2
Henderson, G.3
Davis, A.M.4
Beskow, L.M.5
-
9
-
-
67650391208
-
Disclosure of research results from cancer genomic studies: State of the science
-
Dressler, L. G. (2009). Disclosure of research results from cancer genomic studies: State of the science. Clinical Cancer Research, 15(13), 4270-4276.
-
(2009)
Clinical Cancer Research
, vol.15
, Issue.13
, pp. 4270-4276
-
-
Dressler, L.G.1
-
10
-
-
79951863517
-
Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from a National Heart, Lung, and Blood Institute working group
-
Fabsitz, R. R., McGuire, A., Sharp, R. R., Puggal, M., Beskow, L. M., Biesecker, L. G., . . . Burke, G. L. (2010). Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from a National Heart, Lung, and Blood Institute working group. Circulation: Cardiovascular Genetics, 3(6), 574-580.
-
(2010)
Circulation: Cardiovascular Genetics
, vol.3
, Issue.6
, pp. 574-580
-
-
Fabsitz, R.R.1
McGuire, A.2
Sharp, R.R.3
Puggal, M.4
Beskow, L.M.5
Biesecker, L.G.6
Burke, G.L.7
-
11
-
-
84855527719
-
-
Thousand Oaks, CA: Sage Publications
-
Guest, G., MacQueen, K. M., & Namey, E. (2012). Applied thematic analysis. Thousand Oaks, CA: Sage Publications.
-
(2012)
Applied Thematic Analysis
-
-
Guest, G.1
MacQueen, K.M.2
Namey, E.3
-
12
-
-
57449115536
-
Subjects matter: A survey of public opinions about a large genetic cohort study
-
Kaufman, D., Murphy, J., Scott, J., & Hudson, K. (2008). Subjects matter: A survey of public opinions about a large genetic cohort study. Genetics in Medicine, 10(11), 831-839.
-
(2008)
Genetics in Medicine
, vol.10
, Issue.11
, pp. 831-839
-
-
Kaufman, D.1
Murphy, J.2
Scott, J.3
Hudson, K.4
-
13
-
-
57349167685
-
Public expectations for return of results from large-cohort genetic research
-
Murphy, J., Scott, J., Kaufman, D., Geller, G., LeRoy, L., & Hudson, K. (2008). Public expectations for return of results from large-cohort genetic research. American Journal of Bioethics, 8(11), 36-43.
-
(2008)
American Journal of Bioethics
, vol.8
, Issue.11
, pp. 36-43
-
-
Murphy, J.1
Scott, J.2
Kaufman, D.3
Geller, G.4
Leroy, L.5
Hudson, K.6
-
15
-
-
84856697955
-
-
NINDS Epilepsy Information Page Retrieved June 6, 2011 from
-
NINDS Epilepsy Information Page. (2011). National Institute of Neurological Disorders and Stroke. Retrieved June 6, 2011 from http://www.ninds.nih.gov/disorders/epilepsy/epilepsyhtm
-
(2011)
National Institute of Neurological Disorders and Stroke
-
-
-
16
-
-
3042525453
-
The ancillary-care responsibilities of medical researchers: An ethical framework for thinking about the clinical care that researchers owe their subjects
-
Richardson, H. S. & Belsky, L. (2004). The ancillary-care responsibilities of medical researchers: An ethical framework for thinking about the clinical care that researchers owe their subjects. Hastings Center Report, 34(1), 25-33.
-
(2004)
Hastings Center Report
, vol.34
, Issue.1
, pp. 25-33
-
-
Richardson, H.S.1
Belsky, L.2
-
17
-
-
84855535566
-
Parent per-spectives on pediatric genetic research and implications for genotype-driven research recruitment
-
Tabor, H. K., Brazg, T., Crouch, J., Namey, E. E., Fullerton, S. M., Beskow, L. M., & Wilfond, B. S. (2011). Parent per-spectives on pediatric genetic research and implications for genotype-driven research recruitment. Journal of Empirical Research on Human Research Ethics, 6(4), 41-52.
-
(2011)
Journal of Empirical Research on Human Research Ethics
, vol.6
, Issue.4
, pp. 41-52
-
-
Tabor, H.K.1
Brazg, T.2
Crouch, J.3
Namey, E.E.4
Fullerton, S.M.5
Beskow, L.M.6
Wilfond, B.S.7
|