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Volumn 6, Issue 1, 2011, Pages

Awakening Australia to rare diseases: Symposium report and preliminary outcomes

Author keywords

[No Author keywords available]

Indexed keywords

AUSTRALIA; DECISION MAKING; DISABILITY; DRUG INDUSTRY; EDITORIAL; EMPOWERMENT; FRANCE; GOVERNMENT; HEALTH CARE PLANNING; HONG KONG; HUMAN; INCIDENCE; INFORMATION; MEDICAL RESEARCH; NEW ZEALAND; NORTH AMERICA; PREVALENCE; PRODUCTIVITY; RARE DISEASE; SINGAPORE; SOCIAL SUPPORT; UNITED KINGDOM; WORKSHOP; CONFERENCE PAPER; ECONOMICS; HEALTH CARE POLICY; INTEGRATED HEALTH CARE SYSTEM; PATIENT ADVOCACY;

EID: 80052787766     PISSN: None     EISSN: 17501172     Source Type: Journal    
DOI: 10.1186/1750-1172-6-57     Document Type: Editorial
Times cited : (10)

References (13)
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  • 5
    • 80052804014 scopus 로고    scopus 로고
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    • Rare diseases understanding this public health priority. EURORDIS, European Organisation for Rare Diseases 2005
    • (2005) European Organisation for Rare Diseases
  • 6
    • 38849098444 scopus 로고    scopus 로고
    • Rare diseases in disabled children: An epidemiological survey
    • DOI 10.1136/adc.2006.104455
    • Rare diseases in disabled children: an epidemiological survey. Guillem P, Cans C, Robert-Gnansia E, Aymé S, Jouk PS, Arch Dis Child 2008 93 2 115 118 10.1136/adc.2006.104455 17942587 (Pubitemid 351204750)
    • (2008) Archives of Disease in Childhood , vol.93 , Issue.2 , pp. 115-118
    • Guillem, P.1    Cans, C.2    Robert-Gnansia, E.3    Ayme, S.4    Jouk, P.S.5
  • 7
    • 84903957509 scopus 로고    scopus 로고
    • Prevalence of rare diseases: Bibliographic data
    • Orphanet: Paris Olry A, Aymé S
    • Prevalence of rare diseases: Bibliographic data. Orphanet Report Series Orphanet: Paris, Olry A, Aymé S, 2010
    • (2010) Orphanet Report Series
  • 9
    • 79953161288 scopus 로고    scopus 로고
    • The case for a global rare-diseases registry
    • 21872750
    • The case for a global rare-diseases registry. Forrest C, Bartek RJ, Rubinstein Y, Groft SC, Lancet 2011 26;377 9771 1057 1059 21872750
    • (2011) Lancet , vol.263 , Issue.9771 , pp. 1057-1059
    • Forrest, C.1    Bartek, R.J.2    Rubinstein, Y.3    Groft, S.C.4
  • 10
    • 0036437604 scopus 로고    scopus 로고
    • The Agrenska centre: A socioeconomic case study of rare diseases
    • The Agrenska Centre: a socioeconomic case study of rare diseases. Olauson A, Pharmacogenomics 2002 20 Suppl 3 73 75 (Pubitemid 35397399)
    • (2002) PharmacoEconomics , vol.20 , Issue.SUPPL. 3 , pp. 73-75
    • Olauson, A.1
  • 12
    • 44849143056 scopus 로고    scopus 로고
    • Why rare diseases are an important medical and social issue
    • DOI 10.1016/S0140-6736(08)60872-7, PII S0140673608608727
    • Why rare diseases are an important medical and social issue. Schiepatti A, Henter JI, Daina E, Aperia A, Lancet 2008 371 2039 10.1016/S0140-6736(08) 60872-7 18555915 (Pubitemid 351799861)
    • (2008) The Lancet , vol.371 , Issue.9629 , pp. 2039-2041
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  • 13


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.