Aphasia friendly written health information: Content and design characteristics

International Journal of Speech-Language Pathology

Volumn 13, Issue 4, 2011, Pages 335-347

  Rose, Tanya A ^a,b   Worrall, Linda E ^a,b   Hickson, Louise M ^a   Hoffmann, Tammy C ^a  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b Clinical Centre for Research Excellence in Aphasia Rehabilitation   (Australia)

Author keywords

access; Aphasia; aphasia friendly; printed education materials; stroke

Indexed keywords

ACCESS TO INFORMATION; ADULT; AGED; APHASIA; ARTICLE; ATTITUDE TO HEALTH; AUSTRALIA; COMPREHENSION; CONSUMER HEALTH INFORMATION; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; MALE; MIDDLE AGED; PATHOPHYSIOLOGY; PATIENT EDUCATION; PATIENT SATISFACTION; PSYCHOLOGICAL ASPECT; PUBLICATION; QUALITATIVE RESEARCH; READING; STROKE;

ACCESS TO INFORMATION; ADULT; AGED; AGED, 80 AND OVER; APHASIA; COMMUNICATION; COMPREHENSION; CONSUMER HEALTH INFORMATION; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PAMPHLETS; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; QUALITATIVE RESEARCH; QUEENSLAND; READING; STROKE;

EID: 79960998481     PISSN: 17549515     EISSN: 17549507     Source Type: Journal    
DOI: 10.3109/17549507.2011.560396     Document Type: Article

References (77)

1. Aleligay, A., Worrall, L. E., & Rose, T. A. (2008). Readability of written health information provided to people with aphasia. Aphasiology, 22, 383-407. (Pubitemid 351486593)
2. Berarducci, M., Cooper, L., & Giles, V. (2007). Aphasia-friendly materials: Are we really producing them? ACQuiring Knowledge in Speech, Language and Hearing, 9, 99-103.
3. Berens, A., Laney, G., Rose, T., & Howe, T. (2006). The Australian aphasia guide. Brisbane: The Australian Aphasia Association.
4. Bernier, M. J. (1993). Developing and evaluating printed education materials: A prescriptive model for quality. Orthopaedic Nursing, 12, 39-46.
5. Boone, D. R., & Friedman, H. M. (1976). Writing in aphasia rehabilitation: Cursive vs manuscript. Journal of Speech and Hearing Disorders, 41, 523-529.
6. Boyd, M. D. (1987). A guide to writing effective patient education materials. Nursing Management, 18(7), 56-57.
7. Braunack-Mayer, A., & Hersh, D. (2001). An ethical voice in the silence of aphasia: Judging understanding and consent in people with aphasia. The Journal of Clinical Ethics, 12, 388-396. (Pubitemid 33709717)
8. Brennan, A. D., Worrall, L. E., & McKenna, K. T. (2005). The relationship between specific features of aphasia-friendly written material and comprehension of written material for people with aphasia. Aphasiology, 19, 693-711. (Pubitemid 41236525)
9. Buxton, T. (1999). Effective ways to improve health education materials. Journal of Health Education, 30, 47-50
10. Communication Resource Centre-Scope. (2005). Easy English writing style guide. Available online at: http://www.scopevic.org.au/index.php/cms/frontend/ resource/id/193, accessed 18 June 2010.
11. Currie, K., Spink, J., & Rajendran, M. (2000). Well-written health information: A guide. Melbourne: Department of Human Services Victoria.
12. Cutts, M. (2004). Oxford guide to plain English. Oxford: Oxford University Press.
13. Davis, T., Fredrickson, D., Arnold, C., Murphy, P., Herbst, M., & Bocchini, J. (1998). A polio immunization pamphlet with increased appeal and simplified language does not improve comprehension to an acceptable level. Patient Education and Counseling, 33, 25-37. (Pubitemid 28031966)
14. Dickey, L., Kagan, A., Lindsay, M., Fang, J., Rowland, A., & Black, S. (2010). Incidence and profile of inpatient stroke-induced aphasia in Ontario, Canada. Archives of Physical Medicine and Rehabilitation, 91, 196-202.
15. Dietz, A., Hux, K., McKelvey, M., Beukelman, D., & Weissling, K. (2009). Reading comprehension by people with chronic aphasia: A comparison of three levels of visuographic contextual support. Aphasiology, 23, 1053-1064.
16. Doak, C., Doak, L., & Root, J. (1996a). Teaching patients with low literacy skills (2nd ed.). Philadelphia, PA: Lipincott.
17. Doak, L., Doak, C., & Meade, C. (1996b). Strategies to improve cancer education materials. Oncology Nursing Forum, 23, 1305-1312.
18. Eames, S., McKenna, K., Worrall, L., & Read, S. (2003). The suitability of written education materials for stroke survivors and their carers. Topics in Stroke Rehabilitation, 10, 70-83. (Pubitemid 37448980)
19. Egan, J., Worrall, L., & Oxenham, D. (2004). Accessible Internet training package helps people with aphasia cross the digital divide. Aphasiology, 18, 265-280. (Pubitemid 38578477)
20. Elman, R. J., Parr, S., & Moss, B. (2003). The Internet and aphasia: Crossing the digital divide. In S. Parr, J. Duchan, & C. Pound (Eds.), Aphasia inside out: Reflections on communicative disability (pp. 103-116). Berkshire: Open University Press.
21. Foltz, A. T., & Sullivan, J. S. (1999). Limited literacy revisited: Implications for patient education. Cancer Practice, 7, 145-150. (Pubitemid 29237287)
22. Ghidella, C. L., Murray, S. J., Smart, M. J., McKenna, K. T., & Worrall, L. E. (2005). Aphasia websites: An examination of their quality and communicative accessibility. Aphasiology, 19, 1134-1146. (Pubitemid 43108708)
23. Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105-112. (Pubitemid 38232767)
24. Gregory, W. (1996). The informability manual: Making information more accessible in the light of the disability discrimination act. London: HMSO Publications Centre.
25. Griffin, J., McKenna, K., & Tooth, L. (2003). Written health education materials: Making them more effective. Australian Occupational Therapy Journal, 50, 170-177. (Pubitemid 37265038)
26. Hallowell, B., & Chapey, R. (2008). Introduction to language intervention strategies in adult aphasia. In R. Chapey (Ed.), Language intervention strategies in aphasia and related neurogenic communication disorders (5th ed.) (pp. 3-19). Philadelphia, PA: Lippincott Williams & Wilkins.
27. Hartley, J. (1994). Designing instructional text. London: Kogan Page.
28. Hester, E. J., & Benitez-McCrary, M. (2006). Health literacy: Research directions for speech-language pathology and audiol-ogy. The ASHA Leader, 11, 33-34.
29. Hoffmann, T., & McKenna, K. (2006). Analysis of stroke patients' and carers' reading ability and the content and design of written materials: Recommendations for improving written stroke information. Patient Education and Counseling, 60, 286-293. (Pubitemid 43287933)
30. Hoffmann, T., & Worrall, L. (2004). Designing effective written health education materials: Considerations for rehabilitation professionals. Disability and Rehabilitation, 26, 1166-1173. (Pubitemid 39335147)
31. Hoffmann, T., McKenna, K., Herd, C., & Wearing, S. (2007). Written education materials for stroke patients and their carers: Perspectives and practices of health professionals. Topics in Stroke Rehabilitation, 14, 88-97. (Pubitemid 46365391)
32. Hoffmann, T., McKenna, K., Worrall, L., & Read, S. (2004). Evaluating current practice in the provision of written information to stroke patients and their carers. International Journal of Therapy and Rehabilitation, 11, 303-310.
33. Houts, P., Doak, C., Doak, L., & Loscalzo, M. (2006). The role of pictures in improving health communication: A review of research on attention, comprehension, recall and adherence. Patient Education and Counseling, 61, 173-190.
34. Howe, T. J., Worrall, L. E., & Hickson, L. M. (2008). Interviews wtih people with aphasia: Environmental factors that influence their community participation. Aphasiology, 22, 1-29.
35. Isakson, C., & Spyridakis, J. (1999). The influence of semantics and syntax on what readers remember. Technical Communication, 46, 366-381.
36. Kagan, A. K., & Kimelman, D. Z. (1995). Informed consent in aphasia research: Myth or reality? Clinical Aphasiology, 23, 65-75.
37. Kertesz, A. (1982). The Western Aphasia Battery. New York: The Psychological Corporation, Harcourt Brace Jovanovich.
38. Kitching, J. B. (1990). Patient information leaflets: The state of the art. Journal of the Royal Society of Medicine, 83, 298-300. (Pubitemid 20241610)
39. La Pointe, L., & Horner, J. (1998). Reading Comprehension Battery for Aphasia (2nd ed.). Austin, TX: Pro-Ed.
40. Levy, G. (2005). Seeing for ourselves: Producing accessible information for people with learning difficulties and visual impairments. British Journal of Learning Disabilities, 33, 77-82. (Pubitemid 40782161)
41. Mayeaux, E. J., Murphy, P. W., Arnold, C., Davis, T., Jackson, R. H., & Sentell, T. (1996). Improving patient education for patients with low literacy skills. American Family Physician, 53, 205-211. (Pubitemid 26021344)
42. McKenna, K., & Tooth, L. (2006). Deciding the content and format of educational interventions. In K. McKenna, & L. Tooth (Eds.), Client education: A partnership approach for health practitioners. Sydney: UNSW Press
43. Mencap. (2000). Am I making myself clear? Mencap's guidelines for accessible writing. Available online at: www.mencap.ork.uk, accessed 18 June 2010
44. National Library of Medicine-National Institutes of Health. (2004). Understanding health literacy and its barriers. Current biblographies in medicine. Available online at: http://www.nlm.nih.gov/pubs/cbm/ healthliteracybarriers.html, accessed 11 January 2010.
45. Nicklin, J. (2002). Improving the quality of written information for patients. Nursing Standard, 16, 33-44.
46. Owens, J. S. (2006). Accessible information for people with complex communication needs. Augmentative and Alternative Communication, 22, 196-208. (Pubitemid 44350009)
47. Parr, S., Byng, S., Gilpin, S., & Ireland, C. (1997). Talking about aphasia: Living with loss of language after stroke. Buckingham: Open University Press.
48. Parr, S., Pound, C., Byng, S., & Moss, B. (2004). The stroke and aphasia handbook. London: Connect.
49. Parr, S., Wimbourne, N., Hewitt, A., & Pound, C. (2008). The communication access toolkit. London: Connect Toolkits.
50. Patton, M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage.
51. Paul, C., Redman, S., & Sanson-Fisher, R. (1997). The development of a checklist of content and design characteristics for printed health education materials. Health Promotion Journal of Australia, 7, 153-159.
52. Pierce, L. (2010). How to choose and develop written education materials. Rehabilitation Nursing, 35, 99-105.
53. Podolsky, L., Bindman, B., & Cohen-Schneider, R. (2003). What is aphasia? An interactive resource for adults with aphasia, their families and their caregivers (2nd ed.). Toronto: Aphasia Institute.
54. Pothier, L., Day, R., Harris, C., & Pothier, D. (2008). Readability statistics of patient information leaflets in a Speech and Language Therapy Department. International Journal of Language and Communication Disorders, 43, 712-722.
55. Pound, C., Duchan, J., Penman, T., Hewitt, A., & Parr, S. (2007). Communication access to organisations: Inclusionary practices for people with aphasia. Aphasiology, 21, 23-38. (Pubitemid 44762598)
56. Rodgers, J., & Namaganda, S. (2005). Making information easier for people with learning disabilities. British Journal of Learning Disabilities, 33, 52-58. (Pubitemid 40782159)
57. Rodgers, J., & Townsley, R. (2005). Commissioning information for people with learning difficulties. Journal of Integrated Care, 13, 44-48.
58. Rodgers, J., Townsley, R., Tarleton, B., Folkes, L., Mears, C., Levy, G., et al. (2004). Information for all: Guidance. Available online at: www.easyinfo.org.uk, accessed 12 February 2010.
59. Rohert, L., & Ferguson, K. (1990). Effective use of patient education illustrations. Patient Education and Counseling, 15, 73-75. (Pubitemid 20057090)
60. Rose, T. A., Worrall, L. E., Hickson, L. M., & Hoffmann, T. C. (2010). Do people with aphasia want written stroke and aphasia information? A verbal survey exploring preferences for when and how to provide stroke and aphasia information. Topics in Stroke Rehabilitation, 17, 79-98.
61. Rose, T. A., Worrall, L. E., & McKenna, K. (2003). The effectiveness of aphasia-friendly principles for printed health education materials for people with aphasia following stroke. Aphasiology, 17, 947-963. (Pubitemid 37461140)
62. Rose, T. A., Worrall, L. E., McKenna, K. T., Hickson, L. M., & Hoffmann, T. C. (2009). Do people with aphasia receive written stroke and aphasia information? Aphasiology, 23, 364-392.
63. Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing and Health, 23, 334-340.
64. Smith, A., & Alford, B. (1988). Literate and semi-literate audiences: Tips for effective teaching. Journal of Nutrition Education, 20, 238B-238C.
65. Sullivan-Bolyai, S., Bova, C., & Harper, D. (2005). Developing and refining interventions in person with health disparities: The use of qualitative description. Nursing Outlook, 53, 127-133. (Pubitemid 40884693)
66. Townsley, R., Rodgers, J., & Folkes, L. (2003). Getting informed: Researching the production of accessible information for people with learning disabilities. Journal of Integrated Care, 11, 39-43.
67. Trifiletti, L. B., Shields, W. C., McDonald, E. M., Walker, A. R., & Gielen, A. C. (2006). Development of injury prevention materials for people with low literacy skills. Patient Education and Counseling, 64, 119-117.
68. Tutty, L., & O'Conor, G. (1999). Patient information leaflets: Some pertinent guidelines. Radiography, 5, 11-14. (Pubitemid 29179350)
69. Vanderheiden, G. (2001). Fundamental and priorities for design of information and telecommunications technologies. In W. Preiser, & E. Ostroff (Eds.), Universal design handbook (pp. 65.63-65.15). Boston, MA: McGraw-Hill.
70. Vision Australia. (2008). Guidelines for producing readable text. Available online at: http://www.visionaustralia.org.au/info.aspx?page1845, accessed 4 January 2010.
71. Ward, L., & Townsley, R. (2005). It's about a dialogue: Working with people with learning difficulties to develop accessible information. British Journal of Learning Disabilities, 33, 59-64. (Pubitemid 40782164)
72. Williams, S. (1984). Influence of written form on reading comprehension in aphasia. Journal of Communication Disorders, 17, 165-174.
73. Woods, B. T., & Poppel, E. (1974). Effect of print size on reading time in a patient with verbal alexia. Neuropsychologia, 12, 31-41.
74. Worrall, L., Howe, T., & Rose, T. (2006). Educating clients with speech and language impairments. In K. McKenna, & L. Tooth (Eds.), Client education: A partnership approach for health practitioners. Sydney: UNSW Press.
75. Worrall, L., Rose, T., Howe, T., Brennan, A., Egan, J., Oxenham, D., et al. (2005). Access to written information for people with aphasia. Aphasiology, 19, 923-929. (Pubitemid 43084494)
76. Worrall, L., Rose, T., Howe, T., McKenna, K., & Hickson, L. (2007). Developing an evidence-base for accessibility for people with aphasia. Aphasiology, 21, 134-136.
77. Wrye Forest Self Advocacy, & Tarleton, B. (2005). Writing it ourselves. British Journal of Learning Disabilities, 33, 65-69. (Pubitemid 40782163)