Making information easier for people with learning disabilities

British Journal of Learning Disabilities

Volumn 33, Issue 2, 2005, Pages 52-58

  Rodgers, Jackie ^a   Namaganda, Syson ^b  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

^b Zion Community Resource Centre   (United Kingdom)

Author keywords

Black and minority ethnic groups; Information; People with learning disabilities.

Indexed keywords

EID: 54049154662     PISSN: 13544187     EISSN: 14683156     Source Type: Journal    
DOI: 10.1111/j.1468-3156.2005.00341.x     Document Type: Article

References (32)

1. Association of Directors of Social Work (ADSW) and Social Services Information Network (SSIN) (2000) Improving the quality of public information in social care. Reports from the working groups on: standards for public information; information for people with a learningdisability; alternative formats "Beyond Leaflets". Scotland, ADSW and SSIN.
2. Bristol and District People First (undated) Rights, choices, being in control - Make your information easy to understand. Bristol, Bristol and District People First.
3. Brooks N., Magee P., Bhatti G., Briggs C., Buckley S. et al. (2000) Asian patients' perspective on the communication facilities provided in a large inner city hospital. J Clin Nurs, 9: 706-12.
4. Centre for Health Information Quality (2003) Guidelines for producing health information. http://www.hfht.org/chiq/producers_guidelines.htm [accessed on 23 March 2005]
5. Chahal K. (2004) Experiencing ethnicity: discrimination and service provision. A Report on A Collection of Projects From The Joseph Rowntree Foundation's Race Equality and Disability Programme http://www.jrf.org.uk/knowledge/findings/foundations/ 914.asp [accessed on 23 March 2005]
6. Change North (2000) Notes from the Women's Health Meeting. Minutes from meeting held on 21/09/2000. Leeds, Change North.
7. Cluzeau F., Littlejohns P., Grimshaw J.&Feder G. (1997) Appraisal instrument for clinical guidelines. London, St George's Hospital Medical School.
8. Consumer Congress Trust (1996) Now we're talking. Nottingham, Russell Press.
9. Coulter A., Entwistle V.&Gilbert D. (1999) Sharing decisions with patients: is the information good enough? Br Med J, 318: 318-22.
10. Department of Health (2001) Valuing People: a new strategy for learning disability for the 21st century. A UK Government White Paper for people with Learning Disabilities. London, Department of Health. http://www.valuingpeople.gov.uk/ValuingPeople.htm [accessed on 23 March 2005]
11. Disability Discrimination Act (1995) London, HMSO. DISCERN (1997) Discern online quality criteria for consumer health information. http://www.discern.org.uk/discern_instrument.htm [accessed on 23 March 2005]
12. Ellahi R.&Hatfield C. (1992) Research into the needs of Asian families caring for someone with a mental handicap. Mental Handicap, 20: 134-6.
13. Foltz A.T.&Sullivan J.M. (1999) Limited literacy revisited: Implications for patient education. Cancer Pract, 7: 145-50.
14. Glaser B.&Strauss A. (1967) The discovery of grounded theory. Chicago, IL, Aldine.
15. Greenhalgh L. (1994) Well Aware - improving access to health information for people with learning difficulties. London, NHS Executive.
16. Hatton C. (2004) Cultural issues. In: Emerson E., Hatton C., Thompson T., Parmenter T., editors. International handbook of applied research in intellectual disabilities. Chichester, Wiley: 41-60.
17. Health Promotion England (2002) What makes a good leaflet? London, Health Promotion England.
18. Hopkins G. (2002) Pictures of health in community care. Community Care, 1430: 40.
19. Khan N., Rahim N.&Routledge M. (2004) Person Centred Planning and people from south asian communities: some experiences from one locality. http://www.valuingpeople.gov.uk/EthnicityPapers.htm [accessed on 23 March 2005]
20. McIver S. (1993). Obtaining the views of users of health services. London, King's Fund.
21. Mir G. (2004) People from minority ethnic backgrounds living in rural areas. Leeds, Centre for Research in Primary Care, University of Leeds. http://www.valuingpeople.gov.uk/EthnicityPapers.htm [accessed on 23 March 2005]
22. Mir G., Nocon A., Ahmad W.&Jones L. (2001) Learning Difficulties and Ethnicity. A Report to the Department of Health, Centre for Research in Primary Care, University of Leeds. http:// www.valuingpeople.gov.uk/EthnicityPapers.htm [accessed on 23 March 2005]
23. Moffat V. (1996) Life without jargon. London, Choice Press.
24. Rix J. (2001) Defining best practice strategies for basic language audio tours through the needs of people with Down's Syndrome. London, King's College, University of London.
25. RNIB (2002) See it right. London, RNIB.
26. Rodgers J., Townsley R., Tarleton B., Folkes L., Mears C. et al. (2004) Information for all: guidance. Published at http://www.easyinfo.org.uk [accessed on 23 March 2005]
27. Secker J.&Pollard R. (1995) Writing leaflets for patients: guidelines for producing written information. Edinburgh, Health Education Board for Scotland.
28. Shah S. (2004) Learning disability and ethnic minorities (editorial). Learning Disability Bulletin, 132, Spring.
29. Sloper P.&Statham J. (2004) The national service framework for children, young people and maternity services: developing the evidence base. Child Care Health Dev, 30: 567-70.
30. Taylor S.&Bogdan R. (1984) Introduction to qualitative research methods: the search for meaning, 2nd edn. New York, John Wiley&Sons.
31. Walsh D.&Shaw D. (2000) The design of written information for cardiac patients: a review of the literature. J Clin Nurs, 9: 658-67.
32. Ward L.&Townsley R. (2005) British Journal of Learning Disabilities, 33: 59-64.