The Suitability of Written Education Materials for Stroke Survivors and Their Carers

Topics in Stroke Rehabilitation

Volumn 10, Issue 3, 2003, Pages 70-83

  Eames, Sally ^a   McKenna, Kryss ^a   Worrall, Linda ^a   Read, Stephen ^b  

^a UNIVERSITY OF QUEENSLAND   (Australia)

^b ROYAL BRISBANE AND WOMEN'S HOSPITAL   (Australia)

Author keywords

Aphasia; Patient education; Readability; Written information

Indexed keywords

ADULT; AGED; APHASIA; ARTICLE; CAREGIVER; CLINICAL ARTICLE; CONTROLLED STUDY; FEMALE; HEALTH CARE PERSONNEL; HOSPITAL; HUMAN; INTERVIEW; LANGUAGE; MALE; PATIENT EDUCATION; PATIENT INFORMATION; PATIENT SATISFACTION; PERCEPTION; READING; STROKE; SURVIVAL;

ADULT; AGED; APHASIA; CAREGIVERS; CEREBROVASCULAR ACCIDENT; COGNITION DISORDERS; FEMALE; HUMANS; LANGUAGE; MALE; MIDDLE AGED; PATIENT EDUCATION; READING; SURVIVORS; WRITING;

EID: 0345357684     PISSN: 10749357     EISSN: None     Source Type: Journal    
DOI: 10.1310/KQ70-P8UD-QKYT-DMG4     Document Type: Article

References (37)

1. Hanger HC, Walker G, Paterson LA, McBride S, Sainsbury R. What do patients and their carers want to know about stroke? A two year follow-up study. Clin Rehabil. 1998;12:45-52.
2. Lorig K. Patient Education: A Practical Approach. Thousand Oaks, CA: Sage Publications; 2000.
3. O'Mahony PG, Rodgers H, Thomson RG, Dobson R, James OFW. Satisfaction with information and advice received by stroke patients. Clin Rehabil. 1997;11:68-72.
4. Bernier MJ. Developing and evaluating printed education materials: a prescriptive model for quality. Orthop Nurs. 1993;12:39-46.
5. Wilson SR, Scamagas P, German DF, Hughes GW, Lulla S, Coss S. A controlled trial of two forms of self-management education for adults with asthma. Am J Med. 1993;94:564-576.
6. Ley P. Satisfaction, compliance and communication. Br J Clin Psychol. 1992;21:241-254.
7. Wellwood I, Denis MS, Warlow CP. Perception and knowledge of stroke among surviving patients with stroke and their carers. Age Ageing. 1994;23:293-298.
8. Greveson G, James OFW. Improving long term outcome after stroke: the views of patients and carers. Health Trends. 1991;23:161-162.
9. Rodgers H, Atkinson C, Bond S, Suddes M, Dobson R, Curless R. Randomized controlled trial of a comprehensive stroke education program for patients and caregivers. Stroke. 1999;30:2585-2591.
10. Gazmararian JA, Baker DW, Williams MV, et al. Health literacy among Medicare enrollees in a managed care organization. JAMA. 1999;281:545-551.
11. Woodson AM. Stroke. In: Trombly CA, ed. Occupational Therapy for Physical Dysfunction. Baltimore, MD: Williams & Wilkins; 1995:677-704.
12. Cooley ME, Moriarty H, Berger MS, Selm-Orr D, Coyle B, Short T. Patient literacy and the readability of written cancer educational material. Oncol Nurs Forum. 1995;22:1345-1351.
13. Buxton T. Effective ways to improve health education materials. J Health Educ. 1999:30:47-50.
14. Vehabi M, Ferris L. Improving written patient education materials: a review of the evidence. Health Educ J. 1995;54:99-106.
15. Ley P, Florio T. The use of readability formulas in health care. Psychol Health Med. 1996;1:7-28.
16. Murphy PW, Davis TC, Long SW, Jackson RH, Decker BC. Rapid estimate of adult literacy in medicine (REALM): a quick reading test for patients. J Reading. 1993;37:124-130.
17. Anderson J. LIX and RIX: variations on a little-known readability index. J Reading. 1983;26:490-496.
18. Doak CC, Doak LG, Root JH. Teaching Patients with Low Literacy Skills. Philadelphia: Lippincott; 1995.
19. Kothari R, Sauerbeck L, Jauch E, Broderick J, Brott T, Khoury J, Liu T. Patients' awareness of stroke signs, symptoms and risk factors. Stroke. 1997;28:1871-1875.
20. Quintana LA. Optimizing cognitive abilities. In: Trombly CA, Radomski MV, eds. Occupational Therapy for Physical Dysfunction. 5th ed. Baltimore, MD: Williams & Wilkins; 2002:609-627.
21. Quintana LA. Optimizing vision, visual perception, and praxis abilities. In: Trombly CA, Radomski MV, eds. Occupational Therapy for Physical Dysfunction. 5th ed. Baltimore, MD: Williams & Wilkins; 2002:597-608.
22. Owen PM, Porter KA, Frost CD, O'Hare E, Johnson E. Determination of the readability of education materials for patients with cardiac disease. J Cardiopulm Rehabil. 1993;13:20-24.
23. Sullivan K, O'Conor F. A readability analysis of Australian stroke information. Top Stroke Rehabil. 2001;7:52-60.
24. Davis TC, Mayeaux EJ, Fredrickson D, Bocchini JA, Jackson RH, Murphy PW. Reading ability of parents compared with reading levels of pediatric patient education material. Pediatrics. 1994;93:460-468.
25. Beaver K, Luker K. Readability of patient information booklets for women with breast cancer. Patient Educ Counseling. 1997;31:95-102.
26. Estrada CA, Hryniewicz MM, Higgs VB, Collins C, Byrd JC. Anticoagulant patient information material is written at high readability levels. Stroke. 2000;31:2966-2970.
27. Fisher E. Low literacy levels in adults: implications for patient education. J Continuing Educ Nurs. 1999;30:56-61.
28. Albert T, Chadwick S. How readable are practice leaflets? BMJ. 1992;305:1266-1268.
29. Coulter A, Entwistle V, Gilbert D. Sharing decisions with patients: Is the information good enough. BMJ. 1999;318:318-322.
30. Currie K, Spink J, Rajendran M. Well-Written Health Information: A Guide. Melbourne, Australia: Department of Human Services, Victoria; 2000.
31. Glanz K, Rudd J. Readability and content analysis of print cholesterol education material. Patient Educ Counseling. 1990;16:109-118.
32. Shepperd S, Charnock D, Gann B. Helping patients access high quality health information. BMJ. 1999;319:764-766.
33. Pound P, Gompertz P, Ebrahim S. Patients' satisfaction with stroke services. Clin Rehabil. 1994;8:7-17.
34. Mesters I, van den Borne B, De Boer M, Pruyn J. Measuring information needs among cancer patients. Patient Educ Counseling. 2001;43:253-262.
35. Dickinson D, Raynor DK, Duman M. Patient information leaflets for medicines: using consumer testing to determine the most effective design. Patient Educ Counseling. 2001;43:147-159.
36. Duchin SP, Brown SA. Patients should participate in designing diabetes educational content. Patient Educ Counseling. 1990;16:255-267.
37. The Communication Disability in Ageing Research Unit. (2002). Queensland University Aphasia Groups. [On-line]. Available: www.shrs.uq.edu.au/cdaru/aphasiagroups