Towards personalized care for persons with spinal cord injury: A study on patients' perceptions

Journal of Spinal Cord Medicine

Volumn 34, Issue 1, 2011, Pages 67-75

  Garrino, Lorenza ^a   Curto, Natascia ^a   Decorte, Rita ^b   Felisi, Nadia ^b   Matta, Ebe ^b   Gregorino, Silvano ^a   Actis, M Vittoria ^b   Marchisio, Cecilia ^a   Carone, Roberto ^b  

^a UNIVERSITY OF TURIN   (Italy)

^b CTO HOSPITAL   (Italy)

Author keywords

Advocacy; Disability; Healthcare system; Patient satisfaction; Physical therapy; Qualitative research; Rehabilitation; Spinal cord injuries; Spinal cord injury nursing care models

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO ILLNESS; AWARENESS; CLINICAL ARTICLE; CONTENT ANALYSIS; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE PERSONNEL; HOSPITAL; HOSPITAL ADMISSION; HUMAN; INFORMATION PROCESSING; MALE; NARRATIVE; NURSE PATIENT RELATIONSHIP; PATIENT ATTITUDE; PATIENT CARE; PATIENT PARTICIPATION; PERSONALIZED MEDICINE; PHYSIOTHERAPIST; QUALITATIVE RESEARCH; REHABILITATION CARE; REHABILITATION CENTER; SEMI STRUCTURED INTERVIEW; SPINAL CORD INJURY; ADAPTIVE BEHAVIOR; CLINICAL PATHWAY; DISABILITY; INTERVIEW; MIDDLE AGED; NURSING; PATIENT CARE PLANNING; PATIENT SATISFACTION; PHYSIOTHERAPY; PROCEDURES; PSYCHOLOGY; REHABILITATION NURSING; SPINAL CORD INJURIES; YOUNG ADULT;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CRITICAL PATHWAYS; DISABILITY EVALUATION; FEMALE; HUMANS; INDIVIDUALIZED MEDICINE; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PATIENT CARE PLANNING; PATIENT SATISFACTION; PHYSICAL THERAPY MODALITIES; QUALITATIVE RESEARCH; REHABILITATION NURSING; SPINAL CORD INJURIES; YOUNG ADULT;

EID: 79953050837     PISSN: 10790268     EISSN: None     Source Type: Journal    
DOI: 10.1179/107902610x12883422813741     Document Type: Article

References (26)

1. Concato J, Feinstein AR. Asking patients what they like: overlooked attributes of patient satisfaction with primary care. Am J Med 1997;102(4):399-406.
2. Elfström M, Rydén A, Kreuter M, Taft C, Sullivan M. Relations between coping strategies and health-related quality of life in patients with spinal cord lesion. J Rehabil Med 2005;37(1):9-16.
3. Larsson Lund M, Nordlund A, Nygård L, Lexell J, Bernspång B. Perceptions of participation and predictors of perceived problems with participation in persons with spinal cord injury. J Rehabil Med 2005;37(1):3-8.
4. Fattal C, Leblond C. Assessment of functional abilities, handicap and quality of life in patients with spinal cord injuries. Ann Readapt Med Phys 2005;48(6):346-60.
5. Pellatt GC. Patients, doctors, and therapists perceptions of professional roles in spinal cord injury rehabilitation: do they agree? J Interprof Care 2007;21(2):165-77.
6. Estores IM. The consumer's perspective and the professional literature: what do persons with spinal cord injury want? J Rehabil Res Dev 2003;40(4 Suppl 1):93-8.
7. Convention on the Rights of Persons with Disabilities [last accessed 2009 Dec 22]. Available from: http://www.un.org/disabilities/convention/ conventionfull.shtml.
8. Sand A, Karlberg I, Kreuter M. Spinal cord injured persons' conceptions of hospital care, rehabilitation, and a new life situation. Scand J Occup Ther 2006;13(3):183-92.
9. Tooth LR, Ottenbacher KJ, Smith PM, Illig SB, Linn R, Granger CV. Satisfaction with medical rehabilitation after spinal cord injury. Spine 2004;29(2):211-19.
10. Pellat GC. Perceptions of the nursing role in spinal cord injury rehabilitation. Br J Nurs 2003;12(5):292-9.
11. Dixon G, Thornton EW, Young CA. Perceptions of self-efficacy and rehabilitation among neurologically disabled adults. Clin Rehabil 2007;21(3):230-40.
12. MacLeod GM, Macleod L. Evaluation of client and staff satisfaction with a Goal Planning project implemented with people with spinal cord injuries. Spinal Cord 1996;34(9):525-30.
13. Donnelly C, Eng JJ, Hall J, Alford L, Giachino R, Norton K, et al. Client-centered assessment and the identification of meaningful treatment goals for individuals with a spinal cord injury. Spinal Cord 2004;42(5):302-7.
14. Warms CA, Marshall HM, Hoffman AJ, Tyler EJ. There are a few things you did not ask about my pain: writing on the margins of a survey questionnaire. Rehabil Nurs 2005;30(6):248-56.
15. Pellat GC. Patient-professional partnership in spinal cord injury rehabilitation. Br J Nurs 2004;13(16):948-53.
16. Britten N. Qualitative interviews in medical research. BMJ 1995;311(6999):251-3.
17. Atkinson R. The life story interview. Thousand Oaks, CA: Sage; 1998.
18. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res 2005;15:1277-88.
19. Lucke KT. Outcomes of nurse caring as perceived by individuals with spinal cord injury during rehabilitation. Rehabil Nurs 1999;24(6):247-53.
20. Olinzock BJ. A model for assessing learning readiness for self-direction of care in individuals with spinal cord injuries: a qualitative study. SCI Nurs 2004;21(2):69-74.
21. America PVo. Outcomes following traumatic spinal cord injury: a clinical practice guideline for health care professionals. Washington, DC: Paralyzed Veterans of America, 1999 Jul (reviewed 2005); 38 p.
22. Nordby H. Meaning and normativity in nurse-patient interaction. Nurs Philos 2007;8(1):16-27.
23. Lucke KT. Knowledge acquisition and decision-making: spinal cord injured individuals' perceptions of caring during rehabilitation. SCI Nurs 1997;14(3):87-95.
24. Nelson AL. Patients' perspectives of a spinal cord injury unit. SCI Nurs 1990;7(3):44-63.
25. Dewar AL. Challenges to communication: supporting the patients with SCI with their diagnosis and prognosis. SCI Nurs 2001;18(4):187-90.
26. Crawford JM, Rutter D, Manley C, Weaver T, Bhui K, Fulop N. Systematic review of involving patients in the planning and development of health care. BMJ 2002;235:1263-7.