The consumer's perspective and the professional literature: What do persons with spinal cord injury want?

Journal of Rehabilitation Research and Development

Volumn 40, Issue 4 SUPPL. 1, 2003, Pages 93-98

  Estores, Irene M ^a,b,c  

^a UNIVERSITY OF MIAMI   (United States)

^b VETERANS AFFAIRS MEDICAL CENTER   (United States)

^c UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE   (United States)

Author keywords

Consumer preference; Rehabilitation research; Spinal cord injury

Indexed keywords

BEHAVIORAL RESEARCH; PATIENT REHABILITATION; PATIENT TREATMENT;

SPINAL CORD INJURY (SCI);

NEUROLOGY;

CLINICAL PRACTICE; CONFERENCE PAPER; HUMAN; LIBRARY; MEDICAL INFORMATION; MEDICAL LITERATURE; MEDICAL RESEARCH; PATIENT CARE; PATIENT MOBILITY; PRIORITY JOURNAL; SPINAL CORD INJURY;

EID: 0042732049     PISSN: 07487711     EISSN: None     Source Type: Journal    
DOI: 10.1682/JRRD.2003.08.0093     Document Type: Conference Paper

References (31)

1. Hart KA, Rintala DH, Fuhrer MJ. Educational interests of individuals with spinal cord injury living in the community: medical, sexuality, and wellness topics. Rehabil Nurs 1996;21:82-90.
2. Ernst JL, Thomas LM, Hahnstadt WA, Piskule AA. The self-identified long-term care needs of persons with SCI. SCI Psychosoc Process 1998;10:127-35.
3. Harrison C, Kuric J. Community reintegration of SCI persons: problems and perceptions. SCI Nurs 1989;6:44-47.
4. DeVivo MJ, Richards JS, Stover SL, Go BK. Spinal cord injury: rehabilitation adds life to years. West J Med 1991; 154:602-6.
5. Little JW, Ditunno JF, Stiens SA, Harris RM. Incomplete spinal cord injury: neuronal mechanisms of motor recovery and hyperreflexia. Arch Phys Med Rehabil 1999;80:587-99.
6. Widerström-Noga EG, Felipe-Cuervo E, Broton JG, et al. Perceived difficulty in dealing with consequences of spinal cord injury. Arch Phys Med Rehabil 1999;80:580-86.
7. Cox RJ, Amsters DI, Pershouse KJ. The need for multidisciplinary outreach service for people with spinal cord injury living in the community. Clin Rehabil 2001;15:601-86.
8. Loubser PG, Donovan WH. Chronic pain associated with spinal cord injury. In: Narayan RK, Wilberger JE, Povlislock JT, editors. Neurotrauma. New York: McGraw-Hill; 1996. p. 1311-22.
9. Stensman R. Adjustment to traumatic spinal cord injury. A longitudinal study of self-reported quality of life. Paraplegia 1994;32:416-22.
10. Rintala DH, Loubser PG, Castro J, Hart KA, Fuhrer MJ. Chronic pain in a community-based sample of men with spinal cord injury: prevalence, severity and relationship with impairment, disability, handicap, and subjective well-being. Arch Phys Med Rehabil 1998;79:604-14.
11. Kennedy P, Frankel H, Gardner B, Nuseibeh I. Factors associated with acute and chronic spinal cord injuries. Spinal Cord 1997;35:814-17.
12. Nepomuceno C, Fine PR, Richards JS, Gowens H, Stover SL, Rantanuabol U, et al. Pain in patients with spinal cord injury. Arch Phys Med Rehabil 1979;60:605-9.
13. O'Connor KC, Salcido R. Pressure ulcers and spinal cord injury. In: Kirshblum S, Campagnolo DI, DeLisa JA, editors. Spinal cord medicine. Philadelphia: Lippincott Williams and Wilkins; 2002. p. 207-20.
14. Rodriguez GP, Garber SL. Prospective study of ulcer risk in spinal cord injury patients. Paraplegia 1981;19:235-47.
15. LaMantia JG, Hirschwald JF, Goodman CL, Wooden VM, Delisser O, Staas WE Jr. Pressure sore readmission program: a method to reduce chronic readmissions for pressure sore problems. Rehabil Nurs 1987;12:22-25.
16. White MJ, Rintala DH, Hart KA, Young ME, Fuhrer MJ. Sexual activities, concerns and interests of men with spinal cord injury. Arch Phys Med Rehabil 1992;71:225-31.
17. White MJ, Rintala DH, Hart KA, Fuhrer MJ. Sexual activities, concerns and interests of women with spinal cord injury living in the community. Arch Phys Med Rehabil 1993;1:372-78.
18. DeVivo MJ, Kartus PL, Stover SL, Rutt RD, Fine PR. Seven-year survival following spinal cord injury. Arch Neurol 1987;44:872-75.
19. Pentland W, McCall MA, Rosenthal C. The effect of aging and duration of disability on long-term health outcomes following spinal cord injury. Paraplegia 1995;33:367-73.
20. Pentland W, Walker J, Minnes P, Tremblay M, Brouwer B, Gould M. Women with spinal cord injury and the impact of aging. Spinal Cord 2002;40:374-87.
21. Scriven M, Roth J. Special feature: needs assessment. Eval Pract 1990;11:135-40.
22. Stewart DW, Shamdasani PN. Focus groups: theory and practice. Newbury Park CA: Sage; 1990. p. 62-3.
23. Bellenger DN, Bernhardt KL, Goldstucker JL. Qualitative research in marketing. Chicago: American Marketing Association; 1976.
24. Stineman MG, Maislin G, Nosek M, Fielder R, Granger CV. Comparing consumer and clinician values for alternative functional states: application of a new feature trade-off consensus-building tool. Arch Phys Med Rehabil 1998; 79(12):1522-29.
25. Patrick M, Ditunno P, Ditunno JF, Fiedler R, Granger CV. A comparison of spinal cord injury (SCI) consumers/staff preference for walking: a pilot study. J Spinal Cord Med 2003;26:541.
26. Young W. Spinal cord regeneration: a review of therapies. In: Kirshblum S, Campagnolo DI, DeLisa JA, editors. Spinal cord medicine. Philadelphia: Lippincott Williams and Wilkins; 2002. p. 600-20.
27. Murray M, Tobias CT. Regeneration and sprouting in the injured spinal cord: a decade of growth. Topics Spinal Cord Inj Rehabil 2003;8:37-51.
28. Hill CE, Beattie MS, Bresnahan JC. The interplay of secondary degeneration and self-repair after spinal cord injury. Topics Spinal Cord Inj Rehabil 2003;8:1-13.
29. Protas EJ, Holmes SA, Qureshy H, Johnson A, Lee D, Sherwood AM. Supported treadmill ambulation training after spinal cord injury: a pilot study. Arch Phys Med Rehabil 2001;82:825-31.
30. Field-Fote EC. Combined use of body weight support, functional electrical stimulation, and treadmill training to improve walking ability in individuals with chronic incomplete spinal cord injury. Arch Phys Med Rehabil 2001;82: 818-24.
31. Tate DG, Forchheimer M. Contributions from the model systems programs to spinal cord injury research. J Spinal Cord Med 2002;25:316-30.