Spinal cord injured persons' conceptions of hospital care, rehabilitation, and a new life situation

Scandinavian Journal of Occupational Therapy

Volumn 13, Issue 3, 2006, Pages 183-192

  Sand, Åsa ^a   Karlberg, Ingvar ^b   Kreuter, Margareta ^c  

^a SAHLGRENSKA UNIVERSITY HOSPITAL   (Sweden)

^b NORDIC SCHOOL OF PUBLIC HEALTH   (Sweden)

^c UNIVERSITY OF GOTHENBURG   (Sweden)

Author keywords

Adjustment; Information; Life situation; Participation; Rehabilitation process; Spinal cord injury; Support; Vulnerability

Indexed keywords

ACCESS TO INFORMATION; ADJUSTMENT; ADULT; ARTICLE; CLINICAL ARTICLE; COMPREHENSION; CONTROLLED STUDY; COPING BEHAVIOR; EMOTIONAL STRESS; EXPERIENCE; FEMALE; HEALTH CARE NEED; HEALTH PERSONNEL ATTITUDE; HEALTH PROGRAM; HOSPITAL CARE; HUMAN; INDIVIDUALIZATION; INTERVIEW; MALE; OCCUPATIONAL THERAPY; PATIENT ATTITUDE; PATIENT PARTICIPATION; PHENOMENOLOGY; PHYSIOTHERAPY; PSYCHOSOCIAL CARE; QUALITY OF LIFE; SOCIAL PSYCHOLOGY; SOCIAL SUPPORT; SPINAL CORD INJURY; TAPE RECORDER; TREATMENT OUTCOME; TREATMENT PLANNING;

EID: 33747412949     PISSN: 11038128     EISSN: 16512014     Source Type: Journal    
DOI: 10.1080/11038120500542187     Document Type: Article

References (40)

1. El Masri, WS. (1995) Spinal injuries: The nature of the problem J Jpn Med Soc Paraplegia, 8, pp. 18-25.
2. Grundy, D and Gardner, J. (1998) Spinal cord injury management in Salisbury: The history of Duke of Cornwall spinal treatment centre Spinal Cord, 36, pp. 438-42.
3. Sarrias, M and Ramirez, JM and Vidal, J. (1998) The Guttman institute of Barcelona Spinal Cord, 36, pp. 514-19.
4. GoodmanS. Spirit of Stoke. Mandeville: The story of Sir Ludvig Guttman. London: Collins; 1986.
5. El Masri, WS and Short, DJ. (1997) Current concepts: Spinal cord injuries and rehabilitation Curr Opin Neurol, 10, pp. 484-92.
6. Oliver, M and Zarb, G and Silver, J and Moore, M and Salisbury, V.(1988) Walking into darkness: The experience of spinal cord injury. London: Macmillan.
7. Dahllöf, A-G and Höök, O and Stjernberg, L. and Ryggmärgsskador, I and Höök, O.(1995) Rehabiliteringsmedicin. Stockholm: Almqvist & Wiksell Medicin Liber Utbildning.
8. TromblyCA. Occupational therapy for dysfunction. 3rd ed. Baltimore: Williams & Wilkins; 1989. p 555-70.
9. Donovan, WH and Carter, RE and Bedbrook, GM and Young, JS and Griffiths, ER. (1984) Incidence of medical complications in spinal cord injury: Patients in specialised, compared with non-specialised centres Paraplegia, 22, pp. 282-90.
10. DeVivo, MJ and Kartus, PL and Stover, SL and Fine, PR. (1990) Benefits of early admission to an organised spinal cord injury care system Paraplegia, 28, pp. 545-55.
11. Carpenter, C. (1994) The experience of spinal cord injury: The individual's perspective - implications for rehabilitation practice Phys Ther, 74, pp. 614-27.
12. Lucke, KT. (1999) Outcomes of nurse caring as perceived by individuals with spinal cord injury during rehabilitation Rehabil Nurs, 24, pp. 247-53.
13. Lucke, KT. (1997) Knowledge acquisition and decision-making: Spinal cord injured individuals' perceptions of caring during rehabilitation SCI Nurs, 14, pp. 87-95.
14. Sullivan, J. (2001) Surviving uncertainty and projecting recovery: A qualitative study of patients' and family members' experiences with acute spinal cord injury SCI Nurs, 18, pp. 78-86.
15. King, C and Kennedy, P. (1999) Coping effectiveness training for people with spinal cord injury: Preliminary results of a controlled trial Br J Clin Psychol, 38, pp. 5-14.
16. Stiens, SA and Biener Bergman, S and Formal, CS. (1997) Spinal cord injury rehabilitation, 4: Individual experience, personal adaptation, and social perspectives Arch Phys Med Rehabil, 78, pp. 65-72.
17. Craig, AR and Hancock, KM and Dickson, H and Martin, J and Chang, E. (1990) Psychological consequences of spinal injury: A review of the literature Aust N Z J Psychiatry, 24, pp. 418-25.
18. Schultz, R and Decker, S. (1985) Long-term adjustment to physical disability: The role of social support, perceived control, and self-blame J Pers Soc Psychol, 48, pp. 1162-72.
19. Galvin, LR and Godfrey, HPD. (2001) The impact of coping on emotional adjustment to spinal cord injury (SCI): Review of the literature and application of a stress appraisal and coping formulation Spinal Cord, 39, pp. 615-27.
20. Starrin, B and Svensson, PG.(1994) Kvalitativ metod och vetenskapsteori. Lund: Studentlitteratur.
21. TaylorSJ, BodganR. Introduction to qualitative research methods. 3rd ed. New York: Wiley; 1988.
22. Elfström, ML and Kreuter, M and Rydén, A and Persson, LO and Sullivan, M. (2002) Effects of coping on psychological outcome when controlling for background variables: A study of traumatically spinal cord lesioned persons Spinal Cord, 40, pp. 408-15.
23. Rappaport, J. (1985) The power of empowerment language Soc Policy, 16, pp. 15-21.
24. Ley, P.(1988) Communicating with patients: Improving communication, satisfaction and compliance. London: Croom Helm.
25. Nelson, AL. (1990) Patient's perspectives of a spinal cord injury unit SCI Nurs, 7, pp. 44-63.
26. HohmannGW. Psychological aspects of treatment and rehabilitation of the spinal cord injured patient. Clinical Orthop Rel Res 1975; 112:81-8
27. Trombly, CA. (1995) Occupation: Purposefulness and meaningfulness as therapeutic mechanisms, Eleanor Clarke Slagle Lecture AJOT; 49, 1995, pp. 960-72.
28. Fisher, AG. (1998) Uniting practice and theory in an occupational framework AJOT, 52, pp. 509-21.
29. Baum, CM and Law, M. (1997) Occupational therapy practice: Focusing on occupational performance AJOT, 51, pp. 277-88.
30. Law, M and Polatajko, H and Baptiste, S and Townsend, E.(1997) Enabling occupation: An occupational therapy perspective. Ottawa: CAOT Publications ACE.
31. Kennedy, P and Hamilton, LR. (1999) The needs assessment checklist: A clinical approach to measuring outcome Spinal Cord, 37, pp. 136-9.
32. Law, M and Baptiste, S and McColl, MA and Opzoomer, A and Polatajko, H and Pollock, N. (1990) The Canadian occupational performance measure: An outcome measure for occupational therapy CJOT, 2, pp. 82-7.
33. Law, M and Polatajko, H and Pollock, N and McColl, MA and Carswell, A and Baptiste, S. (1994) Pilot testing of the Canadian occupational performance measure: Clinical and measurement issues CJOT, 4, pp. 191-7.
34. Krause, JS. (1992) Life satisfaction after spinal cord injury: A descriptive study Rehabil Psychol, 37, pp. 67-71.
35. Kreuter, M and Sullivan, M and Dahllöf, AG and Siösteen, A. (1998) Partner relationships, functioning, mood and global quality of life in persons with spinal cord injury and traumatic brain injury Spinal Cord, 36, pp. 252-61.
36. North, NT. (1999) Scientific review. The psychological effects of spinal cord injury: A review Spinal Cord, 37, pp. 671-9.
37. Beauchamp, T and Childress, J.(1989) Principles of biomedical ethics. Oxford: Oxford University Press.
38. Mosey, AC.(1986) Psychosocial components of occupational therapy. New York: Raven Press.
39. Elfström, ML and Rydén, A and Kreuter, M and Persson, L-O and Sullivan, M. (2002) Linkages between coping and psychological outcome in the spinal cord lesioned. Development of SCL-related measures Spinal Cord, 40, pp. 23-9.
40. Frank, RG and Elliott, TR. (1989) Spinal cord injury and health locus of control beliefs Paraplegia, 27, pp. 250-6.